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Cyclophosphamide
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How to Plan Your Long-Term CLL Treatment Journey - Patient Power - Professor Peter Hillmen
Patient Power’s latest Andrew Schorr video broadcast just hit my inbox How to Plan Your Long-Term CLL Treatment Journey http://www.patientpower.info/video/how-to-plan-your-cll-treatment-journey-long-term/?autoplay=1&utm_source=health-topic-alert&utm_medium=email&utm_campaign=CLL-EU-2013-005-25&utm_content
Patient Power’s latest Andrew Schorr video broadcast just hit my inbox How to Plan Your Long-Term CLL Treatment Journey http://www.patientpower.info/video/how-to-plan-your-cll-treatment-journey-long-term/?autoplay=1&utm_source=health-topic-alert&utm_medium=email&utm_campaign=CLL-EU-2013-005-25&utm_content
HAIRBEAR_UK
Administrator
in
CLL Support
11 years ago
WWW final preparations
I've done no exercise since April due to a partial tear of my Achilles and tendonitis, and my PAN seems to be stirring with growing paralysis in my limbs, night sweats, and joint aches returning, and the spectre of more
cyclophosphamide
cycles looming.
I've done no exercise since April due to a partial tear of my Achilles and tendonitis, and my PAN seems to be stirring with growing paralysis in my limbs, night sweats, and joint aches returning, and the spectre of more
cyclophosphamide
cycles looming.
Wellsie
in
Vasculitis UK
11 years ago
Symptom Regression
So my rheumy is going to have a conference with my neuro to discuss if they bring out the big guns again;
cyclophosphamide
.
So my rheumy is going to have a conference with my neuro to discuss if they bring out the big guns again;
cyclophosphamide
.
Wellsie
in
Vasculitis UK
11 years ago
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Cyclophosphamide and avoiding public places
I'm currently taking
Cyclophosphamide
and my white blood cells are around 6 (normal value is from 4.0 to 10.0). It's very sunny and I was wondering is it OK for me to go out in public? Is it still dangerous to use public transportation or to go to other places where there is a lot of people?
I'm currently taking
Cyclophosphamide
and my white blood cells are around 6 (normal value is from 4.0 to 10.0). It's very sunny and I was wondering is it OK for me to go out in public? Is it still dangerous to use public transportation or to go to other places where there is a lot of people?
Hidden
in
Vasculitis UK
11 years ago
Starting treatment FCR on Monday, what should I expect for side effects?
In Canada saying no to chemo is only an option once you have received chemo and failed. Wondering if anyone has words of wisdom to get prepared for chemo, this coming Monday?
In Canada saying no to chemo is only an option once you have received chemo and failed. Wondering if anyone has words of wisdom to get prepared for chemo, this coming Monday?
Musicguy
in
CLL Support
11 years ago
Really fed up and struggling to remain positive with latest lupus flare
The latest debate is to possibly start me on
cyclophosphamide
which petrifies me. I'm 31 and feel more like 71. I sat in work last Friday and just cried in a room which is ridiculous and totally out of character for me.
The latest debate is to possibly start me on
cyclophosphamide
which petrifies me. I'm 31 and feel more like 71. I sat in work last Friday and just cried in a room which is ridiculous and totally out of character for me.
jk2503
in
LUPUS UK
11 years ago
treatment for a flare
just curious,as to what happens if you have a flare what treatment are you given,surely you do not go back on the
cyclophosphamide
infusions and if it effects your kidneys or lungs,is the damage done with a flare up irreversable
just curious,as to what happens if you have a flare what treatment are you given,surely you do not go back on the
cyclophosphamide
infusions and if it effects your kidneys or lungs,is the damage done with a flare up irreversable
quinnster
in
Vasculitis UK
11 years ago
Is this the right time to recieve treatment with Chemo?
My Oncologist has recommended that I begin treatment in July with FCR. My numbers are 30 WBC and I have enlarged lymph nodes The change is my spleen is slightly enlarged. My only symptom is my fungus affected toes keep getting infected, and I have to take antibiotics. My preference is a clinical
My Oncologist has recommended that I begin treatment in July with FCR. My numbers are 30 WBC and I have enlarged lymph nodes The change is my spleen is slightly enlarged. My only symptom is my fungus affected toes keep getting infected, and I have to take antibiotics. My preference is a clinical
Musicguy
in
CLL Support
11 years ago
Is painful arm and chest a relapse?
My husband was diagnosed with WG in October 2012 and has been treated with
cyclophosphamide
, rituximab and prednisolone ever since. In recent weeks, his condition had improved and his steroids have reduced to 10mg daily, adding on methotrexate only last week.
My husband was diagnosed with WG in October 2012 and has been treated with
cyclophosphamide
, rituximab and prednisolone ever since. In recent weeks, his condition had improved and his steroids have reduced to 10mg daily, adding on methotrexate only last week.
andyclairegp
in
Vasculitis UK
11 years ago
Finished FCR - precautions until blood counts stabilise?
Husband is just finishing 6th FCR treatment and doing very well, no complications so far. Diagnosed Jan, started treatment immediately as had large nodes, spleen, weight loss, fatigue, WBC climbing fast, at 90 000. Nodes and spleen normal so far, counts all good, one more round of treatment. What
Husband is just finishing 6th FCR treatment and doing very well, no complications so far. Diagnosed Jan, started treatment immediately as had large nodes, spleen, weight loss, fatigue, WBC climbing fast, at 90 000. Nodes and spleen normal so far, counts all good, one more round of treatment. What
mklukas
in
CLL Support
11 years ago
Post treatment check ups
I am interested to know what tests people get when they have checkups after FCR treatment? So, for my first checkup, three months after treatment i had CT scan, blood tests and bone marrow biopsy. I believe next checkup in June i'll only have blood test. Blood tests i have report 15 different
I am interested to know what tests people get when they have checkups after FCR treatment? So, for my first checkup, three months after treatment i had CT scan, blood tests and bone marrow biopsy. I believe next checkup in June i'll only have blood test. Blood tests i have report 15 different
Oleboyredw-uk
in
CLL Support
11 years ago
I am due a CT scan shortly after 6 rounds of FCR. My response was good and blood is ok.
Considering a CT scan is equivalent to 400 X Rays would it make more sense to leave it for further down the line?
Considering a CT scan is equivalent to 400 X Rays would it make more sense to leave it for further down the line?
keepfit123
in
CLL Support
11 years ago
Any experience with Chinese or Alternative therapy (Green tea EGCG) for CLL/SLL results
CLL/SLL found during prostate cancer surgery at Jan 2009 Now facing therapy because increased lymph size and WBC 17300 and decrease of HGB 11.3 +PLT=84000 ZAP70+ & CD38 FISH 13q -55% & 11q =35% No night sweating or fever Was recommended for light FCR or from other MD Bendamustine
CLL/SLL found during prostate cancer surgery at Jan 2009 Now facing therapy because increased lymph size and WBC 17300 and decrease of HGB 11.3 +PLT=84000 ZAP70+ & CD38 FISH 13q -55% & 11q =35% No night sweating or fever Was recommended for light FCR or from other MD Bendamustine
jacobbarnea
in
CLL Support
11 years ago
Does anyone have both localized and systemic scleroderma?
With a 6 month treatment of
cyclophosphamide
, the pulmonary fibrosis went away, but I started developing other CREST symptoms. Within the past 5 months, I started developing morphea (skin discoloration and tightening) on my arms and neck, which are symptoms of localized scleroderma.
With a 6 month treatment of
cyclophosphamide
, the pulmonary fibrosis went away, but I started developing other CREST symptoms. Within the past 5 months, I started developing morphea (skin discoloration and tightening) on my arms and neck, which are symptoms of localized scleroderma.
flickchick777
in
Scleroderma & Raynaud's UK (SRUK)
11 years ago
Chemo brain research shows promise of finding answers - and some help
articles.view/articleNo/34848/title/After-Chemo/ Some of the reported research includes long term studies into children given chemotherapy for ALL and in the animal studies, one of the chemo drugs that was found to adversely affect rodents was
cyclophosphamide
, the "C" in FCR.
articles.view/articleNo/34848/title/After-Chemo/ Some of the reported research includes long term studies into children given chemotherapy for ALL and in the animal studies, one of the chemo drugs that was found to adversely affect rodents was
cyclophosphamide
, the "C" in FCR.
AussieNeil
Partner
in
CLL Support
11 years ago
I had a pre chemo blood check ahead of cycle 5 of FCR (F and C at half dose) All results o,k except WBC 1.1 , ALC 0.22, ANC 0.17
Treatment was put off for a week. Any comments and advice please ? Cheers, keepfit 123
Treatment was put off for a week. Any comments and advice please ? Cheers, keepfit 123
keepfit123
in
CLL Support
11 years ago
Start of my journey on FCR.
Day 3 (
Cyclophosphamide
) again arrived around 8:30am and was back home around 12:00. For 2 or 3 days after the final treatment I felt very tired and kind of strange, all most like the worst hangover ever.
Day 3 (
Cyclophosphamide
) again arrived around 8:30am and was back home around 12:00. For 2 or 3 days after the final treatment I felt very tired and kind of strange, all most like the worst hangover ever.
davey57
in
CLL Support
11 years ago
Methotrixate, ciclosporin, cyclophosphamide, or sulfasalazine????
Can anyone help with the above medications? Im reluctant to go on methotrixate cos I like my wine!!!!!!!!!!! Have been on hydroxychloroquinne for 6 months but didn't do anything for me, am back on steriods again for 6 weeks then further bloods and back to rheumy in 3 months. Thank you for your input
Can anyone help with the above medications? Im reluctant to go on methotrixate cos I like my wine!!!!!!!!!!! Have been on hydroxychloroquinne for 6 months but didn't do anything for me, am back on steriods again for 6 weeks then further bloods and back to rheumy in 3 months. Thank you for your input
beckybooboo
in
LUPUS UK
11 years ago
Brain Fog
These include corticosteroids and
cyclophosphamide
. Some other drugs which can induce brain fog are H2-receptor antagonists, commonly known as antacids. These are often prescribed quite casually.
These include corticosteroids and
cyclophosphamide
. Some other drugs which can induce brain fog are H2-receptor antagonists, commonly known as antacids. These are often prescribed quite casually.
lupuswriter
in
LUPUS UK
11 years ago
First Cyclosphosphamide Infusion
I had my first
cyclophosphamide
infusion today... took about 7 hours in the day ward... It will go on on a four-week basis for up to 6 months... My Rhuemy told me is the best solution I should take as I have RENAL and CEREBRAL lupus which is vastly affecting brain...
I had my first
cyclophosphamide
infusion today... took about 7 hours in the day ward... It will go on on a four-week basis for up to 6 months... My Rhuemy told me is the best solution I should take as I have RENAL and CEREBRAL lupus which is vastly affecting brain...
nass361
in
LUPUS UK
11 years ago
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