Search
Search
About
Log in
Join
Experiences with
Cyclophosphamide
Posts
Communities
1,122 public posts
Filter results
Fish Test Results and Treatment Decisions
Hi everyone. I was with my consultant haematologist today and my FISH test results show no abnormalities - I didn't think that this was even possible. On the face of it, its good news, but has anyone else had such a result? I haven't been tested re mutated / unmutated status - seemingly not available
Hi everyone. I was with my consultant haematologist today and my FISH test results show no abnormalities - I didn't think that this was even possible. On the face of it, its good news, but has anyone else had such a result? I haven't been tested re mutated / unmutated status - seemingly not available
KateEvaLen
in
CLL Support
9 years ago
sourdough live yeast bread
I began making my beloved sourdough bread again after several years (thinking it a good way to relax) and then thought- oops- this is a live yeast. Possible fungus? So is it safe? Am about to start FLAIR on Ibrutinib/Rituximab arm so immunity not as compromised as FCR but nevertheless. Any advice or
I began making my beloved sourdough bread again after several years (thinking it a good way to relax) and then thought- oops- this is a live yeast. Possible fungus? So is it safe? Am about to start FLAIR on Ibrutinib/Rituximab arm so immunity not as compromised as FCR but nevertheless. Any advice or
romarin
in
CLL Support
9 years ago
Confusion of being told my lupus has 'disappeared' because I'm nearing 60 years of age
I was given
cyclophosphamide
infusions in 2002 and I felt the benefit and was able to take my first steps and my body started to defrost after being paralysed from the neck down.
I was given
cyclophosphamide
infusions in 2002 and I felt the benefit and was able to take my first steps and my body started to defrost after being paralysed from the neck down.
hazel595
in
St Thomas Lupus Trust
9 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Feedback from the new Northumberland and Cumbria first support group meeting
Two doctors from the Freemans Hospital popped into talk about vasculitis, the hospital in Newcastle,
Cyclophosphamide
and Rituximab. Dr Lordan and Dr Griffiths both stayed on to answer lots of questions.
Two doctors from the Freemans Hospital popped into talk about vasculitis, the hospital in Newcastle,
Cyclophosphamide
and Rituximab. Dr Lordan and Dr Griffiths both stayed on to answer lots of questions.
Suzym2u
Vasculitis UK
in
Vasculitis UK
9 years ago
Frustrated! Possible early menopause
These symptoms are never ending & I know that there is a high possibility that I'm infertile due to the
Cyclophosphamide
treatment I had last yr. I've been staying positive but at the moment I'm frustrated. Any advice welcome!
These symptoms are never ending & I know that there is a high possibility that I'm infertile due to the
Cyclophosphamide
treatment I had last yr. I've been staying positive but at the moment I'm frustrated. Any advice welcome!
magSLE
in
LUPUS UK
9 years ago
FCR soon/confused
I am 49 and was dx. In April 2015. I have been on watch & wait or should I say watch & worry. I am being followed by a cll doctor at Dana Farber in Boston. My markers are 11q (less than 10 per cent), CD 38 positive, Zap 70 negative an unmutated ighv. My only symptoms are many swollen lymph nodes ( neck
I am 49 and was dx. In April 2015. I have been on watch & wait or should I say watch & worry. I am being followed by a cll doctor at Dana Farber in Boston. My markers are 11q (less than 10 per cent), CD 38 positive, Zap 70 negative an unmutated ighv. My only symptoms are many swollen lymph nodes ( neck
Dinasantos
in
CLL Support
9 years ago
Ibrutinib + FCR Phase II Study
My wife Michele began treatment with Ibrutinib last week, one week prior to FCR chemo as part of a Phase II Study of Ibrutinib Plus FCR in Previously Untreated, Younger Patients With CLL (iFCR), NIH Trial Number: NCT02251548. The goal of this study is to be cancer free (minimum residual disease MRD
My wife Michele began treatment with Ibrutinib last week, one week prior to FCR chemo as part of a Phase II Study of Ibrutinib Plus FCR in Previously Untreated, Younger Patients With CLL (iFCR), NIH Trial Number: NCT02251548. The goal of this study is to be cancer free (minimum residual disease MRD
ltcbbaker
in
CLL Support
9 years ago
Are you biologically young enough for FCR?
Wondering if you are biologically young and fit enough to tolerate say FCR (Fludarabine,
Cyclophosphamide
Rituximab), or whether a gentler treatment protocol such as BR (Bendamustine Rituximab) would suit you better?
Wondering if you are biologically young and fit enough to tolerate say FCR (Fludarabine,
Cyclophosphamide
Rituximab), or whether a gentler treatment protocol such as BR (Bendamustine Rituximab) would suit you better?
AussieNeil
Partner
in
CLL Support
9 years ago
Join CLL Global and MD Anderson for Oct 25th Patient Forum
Dear CLL friends: Right now about 300 people are registered for the CLL educational event from with Drs. Keating, Lamanna and Estrov at MD Anderson. We have room for more in person and many online to watch like a tv show. Please join me as in-person host and my spouse of 30 years, Esther, as the online
Dear CLL friends: Right now about 300 people are registered for the CLL educational event from with Drs. Keating, Lamanna and Estrov at MD Anderson. We have room for more in person and many online to watch like a tv show. Please join me as in-person host and my spouse of 30 years, Esther, as the online
andrewschorr
in
CLL Support
9 years ago
Join us for Patient Town Meeting Oct 25th
Dear CLL friends: Right now about 300 people are registered for the CLL educational event from with Drs. Keating, Lamanna and Estrov at MD Anderson. We have room for more in person and many online to watch like a tv show. Please join me as in-person host and my spouse of 30 years, Esther, as the online
Dear CLL friends: Right now about 300 people are registered for the CLL educational event from with Drs. Keating, Lamanna and Estrov at MD Anderson. We have room for more in person and many online to watch like a tv show. Please join me as in-person host and my spouse of 30 years, Esther, as the online
andrewschorr
in
CLL America Support
9 years ago
The end of chemo
She has already had 6 carbo taxol, 3 caelyx, 6 gemcitabine, and 4 months of
cyclophosphamide
and avastin, all since Jan 2013, all with very limited success.
She has already had 6 carbo taxol, 3 caelyx, 6 gemcitabine, and 4 months of
cyclophosphamide
and avastin, all since Jan 2013, all with very limited success.
marymarcy
in
My Ovacome
9 years ago
NHS at its best
I've been getting monthly pulses of
cyclophosphamide
and each time I felt more breathless. After number 5 I came home somehow to the Western Isles and gradually declined further. Everything was such an effort. I didn't have the energy to even eat or drink. A visit from the nurse changed all that.
I've been getting monthly pulses of
cyclophosphamide
and each time I felt more breathless. After number 5 I came home somehow to the Western Isles and gradually declined further. Everything was such an effort. I didn't have the energy to even eat or drink. A visit from the nurse changed all that.
Chris3
in
Lung Conditions Community Forum
9 years ago
MRD negative
After 6 rounds of FCR (2 rounds of 5 x days F&C, and 4 rounds with just 3 days of taking the tablets) we got the results of my husband's bone marrow biopsy yesterday. It was the best possible news - he is MRD negative ( minimal residual disease) ie complete remission. It was tough, but obviously worth
After 6 rounds of FCR (2 rounds of 5 x days F&C, and 4 rounds with just 3 days of taking the tablets) we got the results of my husband's bone marrow biopsy yesterday. It was the best possible news - he is MRD negative ( minimal residual disease) ie complete remission. It was tough, but obviously worth
Fowey2009
in
CLL Support
9 years ago
IPF
I was wondering if anyone could help, my mum is 77 and has IPF she was diagnoised September 2014 she left hospital with steroids and a course of
cyclophosphamide
, which wasn't completed due to a chest infection She just about manages with light day to day chores and tries desperately to remain active
I was wondering if anyone could help, my mum is 77 and has IPF she was diagnoised September 2014 she left hospital with steroids and a course of
cyclophosphamide
, which wasn't completed due to a chest infection She just about manages with light day to day chores and tries desperately to remain active
Tina_B
in
Lung Conditions Community Forum
9 years ago
Treatment Needed?
Hi All, My last CBC report (03 days back) was very depressing. My WBC has raised to almost 2 hundred thousand (200,000). RBC still just above 4 and HG just above 12. ALC 98% (198). But still no significant weight loss. night sweat, lymph nodes are there. One of my oncologist is of the view that now should
Hi All, My last CBC report (03 days back) was very depressing. My WBC has raised to almost 2 hundred thousand (200,000). RBC still just above 4 and HG just above 12. ALC 98% (198). But still no significant weight loss. night sweat, lymph nodes are there. One of my oncologist is of the view that now should
AAli
in
CLL Support
9 years ago
Latest news on the COMPLEMENT 2 trial, duvelisib (IPI-145), TGR-1202 and a novel SYK inhibitor TAK-659 presented at EHA and ICML
with relapsed chronic lymphocytic leukemia (CLL), when compared to fludarabine and
cyclophosphamide
alone (FC)[/i] http://www.hematologytimes.com/p_article.do?
with relapsed chronic lymphocytic leukemia (CLL), when compared to fludarabine and
cyclophosphamide
alone (FC)[/i] http://www.hematologytimes.com/p_article.do?
AussieNeil
Partner
in
CLL Support
9 years ago
Husband returning to treatment
After 10 months of well-managed anemia (PRCA), using cyclosporine, my husband's WBC is rising, and he's likely to need CLL treatment again (he had 2 rounds of FCR 2 years ago). We're looking for CLL treatment options that will be less likely to trigger the anemia/blood transfusions.
After 10 months of well-managed anemia (PRCA), using cyclosporine, my husband's WBC is rising, and he's likely to need CLL treatment again (he had 2 rounds of FCR 2 years ago). We're looking for CLL treatment options that will be less likely to trigger the anemia/blood transfusions.
LAinNYC
in
CLL Support
9 years ago
Microscopic Polyangiitis
I was treated with
Cyclophosphamide
and Prednisone. In the Spring of 2008, I was declared in remission and gradually recovered. I am still in remission. I have written a book about MPA and my observations.
I was treated with
Cyclophosphamide
and Prednisone. In the Spring of 2008, I was declared in remission and gradually recovered. I am still in remission. I have written a book about MPA and my observations.
Rachelle_Labelle
in
Vasculitis UK
9 years ago
MPA query
I have undergone
Cyclophosphamide
treatment and now taking Azathopirine as well as 7mg of steroids which I understand I will be on for some time yet.
I have undergone
Cyclophosphamide
treatment and now taking Azathopirine as well as 7mg of steroids which I understand I will be on for some time yet.
Foggy56
in
Vasculitis UK
9 years ago
Why they draw 10 tubes of our bloods and comments on chemo from patients
Friends, This week the CLL Society Inc. finally learned why they need so much blood of ours every time we are seen at a research center. We learned what a biorepository is and how it is changing how CLL research is done. Donna Neuberg, Sc. D. from Dana Farber Cancer Institute is the director of biostatistics
Friends, This week the CLL Society Inc. finally learned why they need so much blood of ours every time we are seen at a research center. We learned what a biorepository is and how it is changing how CLL research is done. Donna Neuberg, Sc. D. from Dana Farber Cancer Institute is the director of biostatistics
bkoffman
CLL CURE Hero
in
CLL Support
9 years ago
1
...
41
42
43
...
57
Next page
10
20
30
40
50
Filter results
Clear filters
Posted in
All communities
CLL Support
744 results
Vasculitis UK
164 results
LUPUS UK
46 results
View top 10 communities
Sort by
Most Relevant
Newest