Hope everyone is doing ok. I haven't posted for ages but am still here in the background!
Mam had to stop daily cyclophosphamide and fortnightly avastin in March, she was worn out. Her next scan showed it had only just been holding things steady, and the cancer had progressed, thickening around the bowel and spreading to the lining of the lung. She opted in May to start 3 weekly Trabectedin, with very low hopes, but she didn't feel she wanted to stop trying. She has had 4 - more than we had thought she would manage, but her first scan yesterday has shown it isn't really keeping things at bay.
The oncologist has advised that it's time for mam to stop chemo. She has already had 6 carbo taxol, 3 caelyx, 6 gemcitabine, and 4 months of cyclophosphamide and avastin, all since Jan 2013, all with very limited success. The oncologist said current thinking of the American Society of Oncologists is that people are sometimes having chemo more for the psychological aspect of feeling they are still fighting etc, but the side effects are maybe shortening their lives or decreasing quality of life.
I'm glad that there is no more chemo, though afraid of course that the cancer symptoms will cause mam to suffer a lot, or soon, or for a prolonged time. Hopefully she will do ok for a while still without the chemo beating her down, the cancer hasn't spread to other organs. Mam has more mixed feelings as the chemo was a sort of security blanket, albeit not that pleasant. We don't really think there is much point getting a second opinion as mam has tried so many treatments that have barely worked. She's very tired and sad, even though we knew this day was coming it's still so hard. She'll be 63 tomorrow. Today now i suppose, it's past midnight.
I'm not sure why I'm posting really, and i hope i don't upset anyone who is just starting their journey or feeling low. I just wanted to check in and to wish everyone well, you are a great supportive community. Sometimes just posting and writing it all down is therapeutic.
With thoughts and prayers for you all and your families