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Numb hands 😞
Hello, I have been suffering with numb hands at night and during the day for a while. They really hurt at night and wake me up. It seems that it's made worse by laying on my side and not so connected to the position of my wrists. Splints don't make much difference. Has anyone had anything similar and
Hello, I have been suffering with numb hands at night and during the day for a while. They really hurt at night and wake me up. It seems that it's made worse by laying on my side and not so connected to the position of my wrists. Splints don't make much difference. Has anyone had anything similar and
Auntbessy
in
Thyroid UK
8 months ago
PA and FND
Today I saw a neurologist for the first time , sadly not impressed and I am frustrated . I have already posted about my bad experience and lack of care from my Gp surgery, the same from my new surgery. I realised that my right hip was not working as it should, couldn't lift it off the bed or get it into
Today I saw a neurologist for the first time , sadly not impressed and I am frustrated . I have already posted about my bad experience and lack of care from my Gp surgery, the same from my new surgery. I realised that my right hip was not working as it should, couldn't lift it off the bed or get it into
purpleabc
in
Pernicious Anaemia Society
8 months ago
Symptoms of Vitamin B12 deficiency - that I cannot find an answer to....
I had a low Vitamin B12 (125 mg/L) and low folate. One of my symptoms was severe pins and needles - particularly my legs, feet and genital areas. Is it common to have more severe symptoms in one leg more than the other? I have quite severe pins and needs in my left leg, and milder pins and needles
I had a low Vitamin B12 (125 mg/L) and low folate. One of my symptoms was severe pins and needles - particularly my legs, feet and genital areas. Is it common to have more severe symptoms in one leg more than the other? I have quite severe pins and needs in my left leg, and milder pins and needles
Madman070578
in
Pernicious Anaemia Society
8 months ago
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sublingual B12
if there is ever a problem getting my injectable B12 I was told sublingual B 12might be answer for me with my pernicious anemia. Anyone have any experience with using it as a backup
if there is ever a problem getting my injectable B12 I was told sublingual B 12might be answer for me with my pernicious anemia. Anyone have any experience with using it as a backup
CH52
in
Pernicious Anaemia Society
8 months ago
B12 deficiency and bronchitis
hi. I’m new to this and I’m hoping that someone can help me. Over four weeks ago. I had a serious flu that turned out to be bronchitis. I was sleeping 20 hours a day and was seriously fatigued. I wasn’t getting better so went to the GP who told me I had post viral fatigue and told me to rest but weeks
hi. I’m new to this and I’m hoping that someone can help me. Over four weeks ago. I had a serious flu that turned out to be bronchitis. I was sleeping 20 hours a day and was seriously fatigued. I wasn’t getting better so went to the GP who told me I had post viral fatigue and told me to rest but weeks
Hatwindowwindow4
in
Pernicious Anaemia Society
8 months ago
Part Rant
There is more B12 in the liver than in other organs Guessing a weight/volume measurement. Someone who wishes they had what it takes to be a scientist came up with that the liver is a magical storage bank of B12. Divided the amount of B12 by the minimum daily requirement and came up with a foolish mathematical
There is more B12 in the liver than in other organs Guessing a weight/volume measurement. Someone who wishes they had what it takes to be a scientist came up with that the liver is a magical storage bank of B12. Divided the amount of B12 by the minimum daily requirement and came up with a foolish mathematical
WIZARD6787
in
Pernicious Anaemia Society
8 months ago
Injecting with out of date B12 ampules
I still have some B12 ampules left over after panic buying a lot during the pandemic. Are they still effective a year or two after their expiry date, if they have been kept in the unheated spare room all this time?
I still have some B12 ampules left over after panic buying a lot during the pandemic. Are they still effective a year or two after their expiry date, if they have been kept in the unheated spare room all this time?
Cetus
in
Pernicious Anaemia Society
8 months ago
Peripheral neuropathy
Hi to the CLL community , on cycle 8 of my V and O treatment and now on Venetoclax for the last 4 months. Have had the venetoclax reduced to 200mg for a few weeks to help with neutropenia, but over the last 3 weeks I have developed neuropathy particularly in my fingers which wakes me up at night as
Hi to the CLL community , on cycle 8 of my V and O treatment and now on Venetoclax for the last 4 months. Have had the venetoclax reduced to 200mg for a few weeks to help with neutropenia, but over the last 3 weeks I have developed neuropathy particularly in my fingers which wakes me up at night as
puppy43
in
CLL Support
8 months ago
INTRINSIC FACTOR ANTIBODY positive result
Does a positive INTRINSIC FACTOR ANTIBODY mean I have Pernicious Anemia? Does this mean I'm on B12 shots for life?
Does a positive INTRINSIC FACTOR ANTIBODY mean I have Pernicious Anemia? Does this mean I'm on B12 shots for life?
ReallyWondering
in
Pernicious Anaemia Society
8 months ago
Blood test results: what to do next plus should I tell my endo?
Thanks everyone for your advice here over the last months. I’ve been on 125mcg Levothyroxine and 10mcg T3 for 7 weeks now (up from 100mcg three days and 125mcg four days) and did this blood test last week, following your protocol: TSH: 0.01 (0.27 - 4.2) FT3: 5.5 (3.1 - 6.8) FT4: 21.6 (12 - 22) Iron
Thanks everyone for your advice here over the last months. I’ve been on 125mcg Levothyroxine and 10mcg T3 for 7 weeks now (up from 100mcg three days and 125mcg four days) and did this blood test last week, following your protocol: TSH: 0.01 (0.27 - 4.2) FT3: 5.5 (3.1 - 6.8) FT4: 21.6 (12 - 22) Iron
WaystarRoyco
in
Thyroid UK
8 months ago
Private testing for B12 and MMA (UK)
Looking for some pointers from others. I have felt unwell since Jan 23. URQ pain, malaise, tingling on chest and in thumbs and fingers, cold extremeties, chest pain, shortness of breath , distinct and new varicose veins in ankles. Also poor fat absorption. I had thought maybe liver. But ultrasound and
Looking for some pointers from others. I have felt unwell since Jan 23. URQ pain, malaise, tingling on chest and in thumbs and fingers, cold extremeties, chest pain, shortness of breath , distinct and new varicose veins in ankles. Also poor fat absorption. I had thought maybe liver. But ultrasound and
Shoe2
in
Pernicious Anaemia Society
8 months ago
Dizziness
Has anyone experienced dizziness in between having B12.. I’m having up to 15 episodes of light headiness dizziness a day now having B12 every 8 weeks had 8 days ago but still getting dizzy how long does it take to get into system… had blood test all came back normal I’m thinking it could be neurological
Has anyone experienced dizziness in between having B12.. I’m having up to 15 episodes of light headiness dizziness a day now having B12 every 8 weeks had 8 days ago but still getting dizzy how long does it take to get into system… had blood test all came back normal I’m thinking it could be neurological
Catsmud
in
Pernicious Anaemia Society
8 months ago
Help with blood results
I recently posted here for advice on whether I need levothyroxine as I have been subclinical for 10 years and now my tsh seems to be creeping up the last few weeks from 4.88 to 5.59 and now 6.15 all in the space of 3/4 weeks. I wonder if it is linked to the introduction of testosterone, I started hrt
I recently posted here for advice on whether I need levothyroxine as I have been subclinical for 10 years and now my tsh seems to be creeping up the last few weeks from 4.88 to 5.59 and now 6.15 all in the space of 3/4 weeks. I wonder if it is linked to the introduction of testosterone, I started hrt
Rambler16
in
Thyroid UK
8 months ago
VIT B12 BINDING CAPACITY, UNSAT(TRANSCOBALAMIN) LOW 528 L
IT B12 BINDING CAPACITY, UNSAT(TRANSCOBALAMIN) LOW - 528 L Reference Range: 650-1340 pg/mL I finally have a result that proves my B12 Deficiency that I have indicated has been quite recovered on EOD Hydro IM. The issue is that it went on back order everywhere, and I have been to minimal IM of Methyl
IT B12 BINDING CAPACITY, UNSAT(TRANSCOBALAMIN) LOW - 528 L Reference Range: 650-1340 pg/mL I finally have a result that proves my B12 Deficiency that I have indicated has been quite recovered on EOD Hydro IM. The issue is that it went on back order everywhere, and I have been to minimal IM of Methyl
LeaKolo
in
Pernicious Anaemia Society
8 months ago
TSH level increase after total thyroidectomy(8 years ago)
I am a 28-year-old man (90 kg). I had a total thyroidectomy 8 years ago due to papillary carcinoma. Recently, I had a knee surgery and during a subsequent blood test, my TSH level was checked and found to be 4.5. However, I had taken my medication (euthyrox 150mg) on the morning of this blood test. Therefore
I am a 28-year-old man (90 kg). I had a total thyroidectomy 8 years ago due to papillary carcinoma. Recently, I had a knee surgery and during a subsequent blood test, my TSH level was checked and found to be 4.5. However, I had taken my medication (euthyrox 150mg) on the morning of this blood test. Therefore
Renadom
in
Thyroid UK
8 months ago
my story
I started on cobalamin injections pre Covid then when lockdown arrived was put on Tablet form which remained until last July when a retired Doctor in our practice noticed I’d been requesting to be given B12 injections once more. I’d gone for a different reason but I felt so well by next day it convinced
I started on cobalamin injections pre Covid then when lockdown arrived was put on Tablet form which remained until last July when a retired Doctor in our practice noticed I’d been requesting to be given B12 injections once more. I’d gone for a different reason but I felt so well by next day it convinced
Beadbuddy
in
Pernicious Anaemia Society
8 months ago
Normal B12 levels?
63 yo female. Symptoms have been over a year of tingling/light pins and needles in feet, exhaustion, and memory issues, now lately ringing in ears, diagnosed with low B12 (63). Currently on weekly shots of Cyanocobalamin 1000 mcg/ml. After 6 weeks my B12 is at 537. What should it be? Also had a homocysteine
63 yo female. Symptoms have been over a year of tingling/light pins and needles in feet, exhaustion, and memory issues, now lately ringing in ears, diagnosed with low B12 (63). Currently on weekly shots of Cyanocobalamin 1000 mcg/ml. After 6 weeks my B12 is at 537. What should it be? Also had a homocysteine
ReallyWondering
in
Pernicious Anaemia Society
8 months ago
Could this be the beginning of something good for B12 in the UK ?
https://www.ukri.org/who-we-are/how-we-are-doing/research-outcomes-and-impact/bbsrc/better-b12-safer-and-sustainable-production/ Am imagining the day when we can purchase B12 phials in our local pharmacies ? Or will Big Pharma make a move ? Whilst living in Crete for 15 years I was able to buy 3 phials
https://www.ukri.org/who-we-are/how-we-are-doing/research-outcomes-and-impact/bbsrc/better-b12-safer-and-sustainable-production/ Am imagining the day when we can purchase B12 phials in our local pharmacies ? Or will Big Pharma make a move ? Whilst living in Crete for 15 years I was able to buy 3 phials
Marz
in
Pernicious Anaemia Society
8 months ago
Repost with more info: peripheral neuropathy
Thanks to Marion and Esperanto for helping me to provide more information. All questions answered here... (Original post question: my Movement Disorders Specialist (MDS) says foot numbness is not Pripheral Neuropathy, but rather a non motor symptom of Parkinson's??? ) I'm in my 10th year with PD symptoms
Thanks to Marion and Esperanto for helping me to provide more information. All questions answered here... (Original post question: my Movement Disorders Specialist (MDS) says foot numbness is not Pripheral Neuropathy, but rather a non motor symptom of Parkinson's??? ) I'm in my 10th year with PD symptoms
rebtar
in
Cure Parkinson's
4 months ago
Updated Results on Armour
Hi everyone, Following up on my previous post, I eliminated T3 Liothyronine 25 mcg from my current Armour 150 mg dosage (1/2 tablet of 300 mg early morning). Here are my recent results: Tested 10 hrs after I took my half dosage of Armour: TSH (mIU/L)
0.01
Range: 0.40-4.50 T4 (THYROXINE
Hi everyone, Following up on my previous post, I eliminated T3 Liothyronine 25 mcg from my current Armour 150 mg dosage (1/2 tablet of 300 mg early morning). Here are my recent results: Tested 10 hrs after I took my half dosage of Armour: TSH (mIU/L)
0.01
Range: 0.40-4.50 T4 (THYROXINE
Moxyca
in
Thyroid UK
4 months ago
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