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Daughters repeat bloods , off to Rapid Access this afternoon.
Previous post https://healthunlocked.com/pasoc/posts/150279394/the-saga-continues-daughters-bloods so at surgery this am, 5th jab, asked for latest bloods print out , told but it hasn't been reported on so can't, said look need it for appointment this afternoon at Alder Hey. Went in to get her jab
Previous post https://healthunlocked.com/pasoc/posts/150279394/the-saga-continues-daughters-bloods so at surgery this am, 5th jab, asked for latest bloods print out , told but it hasn't been reported on so can't, said look need it for appointment this afternoon at Alder Hey. Went in to get her jab
Polo22
in
Pernicious Anaemia Society
8 months ago
Tributes to Dr Joseph Chandy, RIP ... ☹️ 😥 😢- the PEOPLE'S B12d identifying, & treating CHAMPION.
There are MANY ways in which tributes may be paid to celebrate the life & notable dedication to patient/service user care, of the late Dr JC. His funeral details are on another recent thread, that being on 12noon on Friday 12 January 2024: https://healthunlocked.com/pasoc/posts/150369759/dr-chandys-funeral-friday
There are MANY ways in which tributes may be paid to celebrate the life & notable dedication to patient/service user care, of the late Dr JC. His funeral details are on another recent thread, that being on 12noon on Friday 12 January 2024: https://healthunlocked.com/pasoc/posts/150369759/dr-chandys-funeral-friday
Sid_Arthur
in
Pernicious Anaemia Society
8 months ago
Hevert B12 ampoules
Hi everyone and Happy New Year. I have recieved the above B12 ampoules which are Hydroxocobalamine 1000 ug however the volume inside the ampoule is 2ml , I usually inject just 1ml Panpharma is it safe to inject the 2ml and does this equate to 1000ug, thank you
Hi everyone and Happy New Year. I have recieved the above B12 ampoules which are Hydroxocobalamine 1000 ug however the volume inside the ampoule is 2ml , I usually inject just 1ml Panpharma is it safe to inject the 2ml and does this equate to 1000ug, thank you
Helliborous
in
Pernicious Anaemia Society
8 months ago
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Duty Reclaim - Ongoing Saga!
Hi All 26 days ago I posted about my shock at receiving a charge from customs. I made a reclaim based on that the B12 was for personal use and I received this reply: "[i]I am currently assessing your BOR286 refund request for your shipment of Vitamin B12 injectable Hydroxocobalamin. This shipment
Hi All 26 days ago I posted about my shock at receiving a charge from customs. I made a reclaim based on that the B12 was for personal use and I received this reply: "[i]I am currently assessing your BOR286 refund request for your shipment of Vitamin B12 injectable Hydroxocobalamin. This shipment
Wwwdot
in
Pernicious Anaemia Society
8 months ago
TSH STILL 00.1 AFTER HALVING T3 DOSE TO CONCIEVE AND REPRODUCTIVE ENDOCRINOLOGIST RECOMMENDATIONS IN LONDON OR MANCHESTER PLEASE
Hi all HMY! I have been on T3 for about 8 years very successfully and VERY happy on 20mg daily T3 and 150mcg thyroxine. I felt great. Whichever endo I see private or nhs has told me despite feeling well that I am over medicated as my TSH is 0.01 and I need to reduce my T3. I have always refused
Hi all HMY! I have been on T3 for about 8 years very successfully and VERY happy on 20mg daily T3 and 150mcg thyroxine. I felt great. Whichever endo I see private or nhs has told me despite feeling well that I am over medicated as my TSH is 0.01 and I need to reduce my T3. I have always refused
AuntieMandy
in
Thyroid UK
8 months ago
Looking for advice for my daughter.
Hi it's me again but this time I'm looking for advice for my daughter who has had Hypothyroidism since a teenager. Now 45. I've told her she needs to increase her thyroxine but thought I would ask the experts. They have never tested her T4 or T3. Her vitamins were tested last in October 2022 which
Hi it's me again but this time I'm looking for advice for my daughter who has had Hypothyroidism since a teenager. Now 45. I've told her she needs to increase her thyroxine but thought I would ask the experts. They have never tested her T4 or T3. Her vitamins were tested last in October 2022 which
Otto11
in
Thyroid UK
8 months ago
3 Months of EOD B12 Injections
Hi I have been doing EOD sub cut injections of Hydroxycobalamin for 13 weeks now. The peripheral neuropathy in my feet has not improved. If anything it might be worse, but that could be from something else. Have I given this long enough to rule lack of B12 out or do I need to keep going? Some
Hi I have been doing EOD sub cut injections of Hydroxycobalamin for 13 weeks now. The peripheral neuropathy in my feet has not improved. If anything it might be worse, but that could be from something else. Have I given this long enough to rule lack of B12 out or do I need to keep going? Some
FancyPants54
in
Pernicious Anaemia Society
8 months ago
HNY!... and a warning for those who lead busy lives (aka all of us)
Firstly, I'm conscious I haven't posted in a while. 2023 has been a tumultuous and stressful year for me personally which involved a very close family member being diagnosed with cancer at the start of the year and much of my life for the next 6 months revolving around that. It's not why I'm here, but
Firstly, I'm conscious I haven't posted in a while. 2023 has been a tumultuous and stressful year for me personally which involved a very close family member being diagnosed with cancer at the start of the year and much of my life for the next 6 months revolving around that. It's not why I'm here, but
ottiliefloyd
in
Pernicious Anaemia Society
8 months ago
Vitamin/mineral deficiencies
Hi. I've had Pbc for 6 yrs now. Recently I've noticed that I am more fatigued than normal. I asked for my blood results over the last 10 yrs . I noticed a progressive decline in my ferritin levels over the last few yes. I had a vitamin b12 level done recently and it was just above the borderline/normal
Hi. I've had Pbc for 6 yrs now. Recently I've noticed that I am more fatigued than normal. I asked for my blood results over the last 10 yrs . I noticed a progressive decline in my ferritin levels over the last few yes. I had a vitamin b12 level done recently and it was just above the borderline/normal
Finn2021
in
PBC Foundation
8 months ago
ongoing issues
it’s been a tough month this weather is making the fibro non stop but in turn my RA has also kicked in within the joints so I am creaking away like an unoiled motor and even hubby went you need some calm weather! Trip to GP yesterday and he looked at me and said I know you have a lot going on what’
it’s been a tough month this weather is making the fibro non stop but in turn my RA has also kicked in within the joints so I am creaking away like an unoiled motor and even hubby went you need some calm weather! Trip to GP yesterday and he looked at me and said I know you have a lot going on what’
Deeb1764
in
NRAS
8 months ago
interpreting results
Hi everyone, I’ve recently ordered a blood test to check my TSH, T4 and T3 levels. I’m also having my antibodies, ferritin, vit D, B12 and folate checked aswell. I’m fine interpreting the results of the vitamins and minerals, and I also understand that the higher the TSH the more underactive you are
Hi everyone, I’ve recently ordered a blood test to check my TSH, T4 and T3 levels. I’m also having my antibodies, ferritin, vit D, B12 and folate checked aswell. I’m fine interpreting the results of the vitamins and minerals, and I also understand that the higher the TSH the more underactive you are
MarvelDC
in
Thyroid UK
8 months ago
Loading doses
I will try and keep this as short as possible. 21 years ago GP diagnosed PA and up until 3 years ago I had B12 injections every 12 weeks. 3 years ago the CCG instructed GP's to cut down giving injections to anyone unless they had PA. My jobsworth GP decided to give me a blood test, which was in range
I will try and keep this as short as possible. 21 years ago GP diagnosed PA and up until 3 years ago I had B12 injections every 12 weeks. 3 years ago the CCG instructed GP's to cut down giving injections to anyone unless they had PA. My jobsworth GP decided to give me a blood test, which was in range
Lilian15
in
Pernicious Anaemia Society
8 months ago
Updated bloods
Hello I had some updated bloods done in September (just about to retake on 8 Jan). My thyroglobulin has increased from 239 in April to 289 in Sept (although TSH has lowered from 4.1) . I am having increased symptoms fatigue, hair fall, dry skin, nails peeling, cracked heels, generally feeling rubbish
Hello I had some updated bloods done in September (just about to retake on 8 Jan). My thyroglobulin has increased from 239 in April to 289 in Sept (although TSH has lowered from 4.1) . I am having increased symptoms fatigue, hair fall, dry skin, nails peeling, cracked heels, generally feeling rubbish
MPG15
in
Thyroid UK
8 months ago
Hele36
How do you obtain B12 injections in Australia? There seems to be a serious scarcity. Does anyone know an outlet .?
How do you obtain B12 injections in Australia? There seems to be a serious scarcity. Does anyone know an outlet .?
36Hele
in
Pernicious Anaemia Society
8 months ago
Borderline B12 Deficiency
Hi, I have been diagnosed with Borderline Vit B12 Deficiency and am wondering if long term Pred could have caused itHad PMR from 2014 for six years, it is back again and have been on Pred since August 2023 I would value your opinions. Thank you Jenny
Hi, I have been diagnosed with Borderline Vit B12 Deficiency and am wondering if long term Pred could have caused itHad PMR from 2014 for six years, it is back again and have been on Pred since August 2023 I would value your opinions. Thank you Jenny
Attic
in
PMRGCAuk
8 months ago
B12 and menopause?
Hiya! I’ve been advised to take vitamin b complex for menopause symptoms but is there any point if I have pernicious anaemia? Might be a silly question but if my body can’t absorb it (I have injections every 3 months) isn’t my body just getting rid of it every day? Some advice would be good!
Hiya! I’ve been advised to take vitamin b complex for menopause symptoms but is there any point if I have pernicious anaemia? Might be a silly question but if my body can’t absorb it (I have injections every 3 months) isn’t my body just getting rid of it every day? Some advice would be good!
Clare2502
in
Pernicious Anaemia Society
8 months ago
How to inject Hevert ampoules
I ordered the Hevert B12.A few responses were from people who had used these ampoules. These ampoules contain a lot more liquid than Panpharma ones. Can you tell me how to use them please. Do I inject in two goes or is it safe to inject the full amount at once. I am now doing sub cut but will go back
I ordered the Hevert B12.A few responses were from people who had used these ampoules. These ampoules contain a lot more liquid than Panpharma ones. Can you tell me how to use them please. Do I inject in two goes or is it safe to inject the full amount at once. I am now doing sub cut but will go back
3rdNettydoon
in
Pernicious Anaemia Society
8 months ago
Retest advice please
I am intending to arrange a follow up private blood test following a dose increase and change of Levo brand 6 weeks ago. I also changed from taking Levo in the morning to bedtime. The previous test I had was a Medicheck Advanced Thryoid finger prick test but I would welcome advice as to whether I should
I am intending to arrange a follow up private blood test following a dose increase and change of Levo brand 6 weeks ago. I also changed from taking Levo in the morning to bedtime. The previous test I had was a Medicheck Advanced Thryoid finger prick test but I would welcome advice as to whether I should
SpringerMom
in
Thyroid UK
8 months ago
Hypothesis VIIIl
That B12 is a progressive condition with an unknowable age of onset and intermittent to varying degrees. That all symptoms can be caused by B12 deficiency in the cells including hematological symptoms and digestive issues. Symptoms are only measurable at an untreated advanced stage. A few competent
That B12 is a progressive condition with an unknowable age of onset and intermittent to varying degrees. That all symptoms can be caused by B12 deficiency in the cells including hematological symptoms and digestive issues. Symptoms are only measurable at an untreated advanced stage. A few competent
WIZARD6787
in
Pernicious Anaemia Society
8 months ago
B6 and tingling in toes
My brother has been experiencing tingling in his toes. A retired doctor who my brother sees socially told him to have B12 tested, and also B6. I briefly googled B6 and saw reports in general websites that both high and low levels of B6 can cause tingling in toes. My brother told me that his B6 tested
My brother has been experiencing tingling in his toes. A retired doctor who my brother sees socially told him to have B12 tested, and also B6. I briefly googled B6 and saw reports in general websites that both high and low levels of B6 can cause tingling in toes. My brother told me that his B6 tested
WiscGuy
in
Pernicious Anaemia Society
8 months ago
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