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sourcing b12
I’ve been unable to get hold of my usual panpharma b12 for SI. What alternative do you use? Hoping to stay injecting hydroxocobalamin as my body hates change. Thanks, Cx
I’ve been unable to get hold of my usual panpharma b12 for SI. What alternative do you use? Hoping to stay injecting hydroxocobalamin as my body hates change. Thanks, Cx
Pepperpots302
in
Pernicious Anaemia Society
6 months ago
Hypothyroid symptoms but Dr says normal
Hey! So my recent bloods show; Tsh 0.01 T4 11 (range 9- 19) T3 ( 4.5) (range 3 to 7) Dr says normal but I'm so fluid. My legs swell all the time and make indents in my leg. Confused. Legs are tingling due to water being so bad. I drink alot of water daily as I'm active but the retention is getting
Hey! So my recent bloods show; Tsh 0.01 T4 11 (range 9- 19) T3 ( 4.5) (range 3 to 7) Dr says normal but I'm so fluid. My legs swell all the time and make indents in my leg. Confused. Legs are tingling due to water being so bad. I drink alot of water daily as I'm active but the retention is getting
jparsss
in
Thyroid UK
6 months ago
Metatrexate
I am now back on 15 mil of Metx injection with 20m Pred. followed by folic acid 2 days later.and all seems to be going well and not affecting my blood sugar levels so badly. My B12 was very low so also had a course of injections it seems to be a fine balance between blood pressure, blood sugar levels
I am now back on 15 mil of Metx injection with 20m Pred. followed by folic acid 2 days later.and all seems to be going well and not affecting my blood sugar levels so badly. My B12 was very low so also had a course of injections it seems to be a fine balance between blood pressure, blood sugar levels
Doublef
in
PMRGCAuk
6 months ago
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Informing GP of sourcing own supplies
Hi, as some of you are aware I am in the process of writing to my GP and my MP. My GP does not know that I source my own supplies of B12. I was going to put this in my letter so that she, and my MP, can see the lengths people have to go to have any hope of recover. As B12 is not available over the counter
Hi, as some of you are aware I am in the process of writing to my GP and my MP. My GP does not know that I source my own supplies of B12. I was going to put this in my letter so that she, and my MP, can see the lengths people have to go to have any hope of recover. As B12 is not available over the counter
BeachArt
in
Pernicious Anaemia Society
6 months ago
levo increase!
Hi all about a month ago I increased my levo from 100mcgs to 112mcgs daily as per body weight thing! I am unfortunately 100kgs 😟 I am feeling a bit tired again sleeping a lot and not having much energy! I am doing something wrong? 😑 PS still have the ongoing saga with the deficient B12 and folate
Hi all about a month ago I increased my levo from 100mcgs to 112mcgs daily as per body weight thing! I am unfortunately 100kgs 😟 I am feeling a bit tired again sleeping a lot and not having much energy! I am doing something wrong? 😑 PS still have the ongoing saga with the deficient B12 and folate
Doris11
in
Thyroid UK
6 months ago
ferritin high
hello. I’m new to the group I’ve had under active thyroid for approx 2 years diagnosed during covid. I was just told over the phone you need thyroxine it’s sent to the chemist and that’s all the info I got. I’ve had another blood test as my shoulders and hips are in almost constant discomfort all that
hello. I’m new to the group I’ve had under active thyroid for approx 2 years diagnosed during covid. I was just told over the phone you need thyroxine it’s sent to the chemist and that’s all the info I got. I’ve had another blood test as my shoulders and hips are in almost constant discomfort all that
Puglady1981
in
Thyroid UK
6 months ago
Results
Hello everyone. Firstly I want to say a big thanks to everyone that helped me understand my mum's results and situation. I also got my wires crossed and gave some wrong info. My mum did have a test before they prescribed 25mg, TSH 8.58. They said as she was 'borderline' they would try levo before considering
Hello everyone. Firstly I want to say a big thanks to everyone that helped me understand my mum's results and situation. I also got my wires crossed and gave some wrong info. My mum did have a test before they prescribed 25mg, TSH 8.58. They said as she was 'borderline' they would try levo before considering
RedOne1
in
Thyroid UK
6 months ago
on b12 treatment, when start folic acid?
Hi all, I was able to feel better over the last year with the help of this forum, a big thank you. My problem started with neurological symptoms without knowing what was happening! Then with the help of people here and researching I found out I was low in b12 when started treating with folic acid (5mg
Hi all, I was able to feel better over the last year with the help of this forum, a big thank you. My problem started with neurological symptoms without knowing what was happening! Then with the help of people here and researching I found out I was low in b12 when started treating with folic acid (5mg
Kat_88
in
Pernicious Anaemia Society
6 months ago
Inflammation and RLS
I have always believed that inflammation was part of my RLS. I believe this because my RLS responds well to ibuprofen. A recent blog was using this study http://www.smj.org.sg/sites/default/files/SMJ-57-514.pdf The study is from 2016. The study proposes to use the neutrophil-to-lymphocyte ratio
I have always believed that inflammation was part of my RLS. I believe this because my RLS responds well to ibuprofen. A recent blog was using this study http://www.smj.org.sg/sites/default/files/SMJ-57-514.pdf The study is from 2016. The study proposes to use the neutrophil-to-lymphocyte ratio
WideBody
in
Restless Legs Syndrome
6 months ago
Prep For Thyroid Blood Test?
Hi folks. I’m sending off a blood test next Monday for FT3, FT4, TSH, anti-Tg, anti-TPO and want to prepare properly for taking the bloods. I’ve taken in doing it before 9am, drink only water. But unsure about vits, I’m taking Fish Oil, magnesium, B Complex, D3+K. I also SI B12. I think I heard one
Hi folks. I’m sending off a blood test next Monday for FT3, FT4, TSH, anti-Tg, anti-TPO and want to prepare properly for taking the bloods. I’ve taken in doing it before 9am, drink only water. But unsure about vits, I’m taking Fish Oil, magnesium, B Complex, D3+K. I also SI B12. I think I heard one
B12again
in
Thyroid UK
6 months ago
Oral B12
So i am fully aware that those of us with PA don't absorb b12 through our diets, and that we ideally require treatment through IM injections. But i have also seen articles that suggest that it is at least 'possible' to get 'some' b12 from oral supplements. What do we think about this? I have copied in
So i am fully aware that those of us with PA don't absorb b12 through our diets, and that we ideally require treatment through IM injections. But i have also seen articles that suggest that it is at least 'possible' to get 'some' b12 from oral supplements. What do we think about this? I have copied in
FatThumbs
in
Pernicious Anaemia Society
6 months ago
Thyroid results-Hashimotos?
Hello, Looking for some help in interpreting thyroid results. I've been testing privately over the last two years. Does this show Hashimotos and would it be enough for a GP to take seriously? Since having my son three years ago I've had many unexplained symptoms - weight gain, swollen legs, fatigue,
Hello, Looking for some help in interpreting thyroid results. I've been testing privately over the last two years. Does this show Hashimotos and would it be enough for a GP to take seriously? Since having my son three years ago I've had many unexplained symptoms - weight gain, swollen legs, fatigue,
Llan12
in
Thyroid UK
6 months ago
High T4
Hi Greygoose, I've seen your reply to Helen'shubby. Just wondering about my T4 and T3 . I'm awaiting new test results but my last test showed T4 at 22.4 ( 7.5- 21.1) ( 109.56%) FT3 4.9 (3.8-6.8) (36.67%) TSH is always undetectable B12 351 (110- 914.0) I am supplementing now (nature provides 3000mcg daily
Hi Greygoose, I've seen your reply to Helen'shubby. Just wondering about my T4 and T3 . I'm awaiting new test results but my last test showed T4 at 22.4 ( 7.5- 21.1) ( 109.56%) FT3 4.9 (3.8-6.8) (36.67%) TSH is always undetectable B12 351 (110- 914.0) I am supplementing now (nature provides 3000mcg daily
Shellian
in
Thyroid UK
6 months ago
I am urging more members to respond. 🙏
I am reposting the link put on by
Sleepybunny 5 days ago........
Hi, I've posted about Care Opinion before but look every now and then to see if any stories have been posted about B12 deficiency. They want people to share good and bad experiences of health care in UK. Sometimes the GP surgeries
I am reposting the link put on by
Sleepybunny 5 days ago........
Hi, I've posted about Care Opinion before but look every now and then to see if any stories have been posted about B12 deficiency. They want people to share good and bad experiences of health care in UK. Sometimes the GP surgeries
Jillymo
in
Pernicious Anaemia Society
6 months ago
Fibro-Fatigued-Fed up!!!
I have suffered with fibro now for the past three years. I feel like I’m one of the lucky ones as I started symptoms at 42. I’m reading a lot younger people and I feel really sorry for you. my sister also suffers with fibro a lot worse than me and she’s had it a lot longer. My mum also. So between
I have suffered with fibro now for the past three years. I feel like I’m one of the lucky ones as I started symptoms at 42. I’m reading a lot younger people and I feel really sorry for you. my sister also suffers with fibro a lot worse than me and she’s had it a lot longer. My mum also. So between
Loulou1800
in
Fibromyalgia Action UK
6 months ago
Blood test results
Repeated blood tests ordered by my GP trying to compare private ones I had a month ago with different ranges,I had both done at 9am and only glass of water can someone help please? 12th February 2024 repeat GP tests January 2024 Medichecks private test B12 344 range (187-883.00ng
Repeated blood tests ordered by my GP trying to compare private ones I had a month ago with different ranges,I had both done at 9am and only glass of water can someone help please? 12th February 2024 repeat GP tests January 2024 Medichecks private test B12 344 range (187-883.00ng
Bluenose69
in
Thyroid UK
6 months ago
Newbie to this community and wondering about B12 deficiency
Hello, for the past 4 years I've had symptoms of CFS, plus low FT4 and on occasions, low TSH. I've also had my cortisol tested by saliva and short synacthen test, both showed low levels but the adrenals work when stimulated so it's not Addisons. I've tried levothyroxine, T3 and thyroid glandulars and
Hello, for the past 4 years I've had symptoms of CFS, plus low FT4 and on occasions, low TSH. I've also had my cortisol tested by saliva and short synacthen test, both showed low levels but the adrenals work when stimulated so it's not Addisons. I've tried levothyroxine, T3 and thyroid glandulars and
Jamima
in
Pernicious Anaemia Society
6 months ago
Latest Private Blood Test Results
Latest Private Blood Test Results
These results were after a change in my Levothyroxine from 100mcg per day to - 100mcg/75mcg EOD.
Monitor My Health Results 12/2/24
TSH 0.28 - (0.27 - 4.2)
T4 15.3 (12 - 22)
T3 4.2 (3.1 - 6.8
Latest Private Blood Test Results
These results were after a change in my Levothyroxine from 100mcg per day to - 100mcg/75mcg EOD.
Monitor My Health Results 12/2/24
TSH 0.28 - (0.27 - 4.2)
T4 15.3 (12 - 22)
T3 4.2 (3.1 - 6.8
Lemondrizz
in
Thyroid UK
6 months ago
GP requests blood tests after injections
My daughter has asked her GP for B12 injections (I won't always be around to do them) she has been called in for a blood test, however stating NICE guidelines didn't help. She has previously been misdiagnosed with MS and even her neurologist wrote in a letter last summer that nothing abnormal was found
My daughter has asked her GP for B12 injections (I won't always be around to do them) she has been called in for a blood test, however stating NICE guidelines didn't help. She has previously been misdiagnosed with MS and even her neurologist wrote in a letter last summer that nothing abnormal was found
pinkpaddleboarder
in
Pernicious Anaemia Society
6 months ago
Private Blood Test Results
Hello, Diagnosed with Hashimoto’s 2019, it was a long and sickly road to diagnosis and treatment. Levothyroxine only didn’t work for me and after a couple of not so great endo appointments I finally found a really good endocrinologist who agreed to add in liothyronine and commenced me on 20mcg
Hello, Diagnosed with Hashimoto’s 2019, it was a long and sickly road to diagnosis and treatment. Levothyroxine only didn’t work for me and after a couple of not so great endo appointments I finally found a really good endocrinologist who agreed to add in liothyronine and commenced me on 20mcg
Lassithi
in
Thyroid UK
6 months ago
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