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Hi all! It's been awhile since I posted anything. I've been doing about 5 injections of methylcobalamin a week, for several years now. I take a food based multi with 800 mcg of folate, pretty much just on the days I inject. My naturopath doctor prescribed methyl folate. I took a1000mcg dose and
Hi all! It's been awhile since I posted anything. I've been doing about 5 injections of methylcobalamin a week, for several years now. I take a food based multi with 800 mcg of folate, pretty much just on the days I inject. My naturopath doctor prescribed methyl folate. I took a1000mcg dose and
ndodge
in
Pernicious Anaemia Society
5 months ago
How to deal with GP who is not keen on tests
I am having issues where my GP would rather no give advise or tests. I have to remember and follow up on test to be done and even then he can deny the tests requested. I had blurry vision , cold hand when i stay still and body aches but doctor claims these felt by all the people though when check with
I am having issues where my GP would rather no give advise or tests. I have to remember and follow up on test to be done and even then he can deny the tests requested. I had blurry vision , cold hand when i stay still and body aches but doctor claims these felt by all the people though when check with
thyroidsymtoms
in
Thyroid UK
5 months ago
Advice following GP visit please
Hi, I posted a few days ago asking for advice after having had results back from blood tests and struggling to see my GP. Well, I finally saw her today. She was sympathetic, and has referred my results to an endocrinologist for guidance. I wanted to get some thoughts on something she did say, bearing
Hi, I posted a few days ago asking for advice after having had results back from blood tests and struggling to see my GP. Well, I finally saw her today. She was sympathetic, and has referred my results to an endocrinologist for guidance. I wanted to get some thoughts on something she did say, bearing
TheMudRunner
in
Thyroid UK
5 months ago
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Cyanocobalamin
Hi, I have just been informed by my GP surgery that Cyanocobalamin injections, which I have 4 weekly, have been discontinued in England. I am allergic to hydroxycobalamin so cannot have that. I know Cyanocobalamin is still available in Europe but my GP can only use what is available to them in England
Hi, I have just been informed by my GP surgery that Cyanocobalamin injections, which I have 4 weekly, have been discontinued in England. I am allergic to hydroxycobalamin so cannot have that. I know Cyanocobalamin is still available in Europe but my GP can only use what is available to them in England
Syuri
in
Pernicious Anaemia Society
5 months ago
Success with GP - for now
Just had an appointment with my GP and after lots of persuasion and me quoting NICE guidelines at him, he's agreed to reinstate my previous daily 100mcg Levo. 🥳This does come with the condition of reassessing in 6-8 weeks after bloods done. (I'll cross that bridge when I get there) I got the usual
Just had an appointment with my GP and after lots of persuasion and me quoting NICE guidelines at him, he's agreed to reinstate my previous daily 100mcg Levo. 🥳This does come with the condition of reassessing in 6-8 weeks after bloods done. (I'll cross that bridge when I get there) I got the usual
Jingley
in
Thyroid UK
5 months ago
newly diagnosed anemia
Hi. I’m new to HealthUnlocked and to this group. I’m also in America, so I hope it’s OK that I post here. I’ll try to put in all the info I have and follow proper posting guidelines. It’s taken me a while to be able to get this post all typed up due to tiredness and brain fog. I just had 3 month follow-up
Hi. I’m new to HealthUnlocked and to this group. I’m also in America, so I hope it’s OK that I post here. I’ll try to put in all the info I have and follow proper posting guidelines. It’s taken me a while to be able to get this post all typed up due to tiredness and brain fog. I just had 3 month follow-up
SugarMint
in
Thyroid UK
5 months ago
Nd Thyroid to thyroxine
Hi, I have Hashimoto's thyroid and Endoctrinologist has advised I move from NP thyroid to thyroxine. I was sent for Ultra sound by my doctor and had difficulty getting a follow up as he was on holidays for 2 months. I had to get online doc to refer me and only had report of ultrasound so not the scan
Hi, I have Hashimoto's thyroid and Endoctrinologist has advised I move from NP thyroid to thyroxine. I was sent for Ultra sound by my doctor and had difficulty getting a follow up as he was on holidays for 2 months. I had to get online doc to refer me and only had report of ultrasound so not the scan
Bridb
in
Thyroid UK
5 months ago
Muscle Damage
Hi all. I’m wondering if any of you have experienced muscle damage from self-injecting, and if so how did you know? How long did it take to heal? The last couple of months or so, it seems like I’m having an increasingly difficult time injecting my thighs. The injection itself seems to go really well
Hi all. I’m wondering if any of you have experienced muscle damage from self-injecting, and if so how did you know? How long did it take to heal? The last couple of months or so, it seems like I’m having an increasingly difficult time injecting my thighs. The injection itself seems to go really well
Cobalt1312
in
Pernicious Anaemia Society
5 months ago
Vitamin timings
Morning from not at all sunny Wales. I don’t know why I struggle with a vitamin routine and I wonder if I’m alone on this? Is it okay to take all of these at the same time after breakfast: Vit D/K, B12, Folate, and DHEA? If I take them then they aren’t near any thyroid medication but wanted
Morning from not at all sunny Wales. I don’t know why I struggle with a vitamin routine and I wonder if I’m alone on this? Is it okay to take all of these at the same time after breakfast: Vit D/K, B12, Folate, and DHEA? If I take them then they aren’t near any thyroid medication but wanted
Joant24
in
Thyroid UK
5 months ago
A weird dynamic.
When I make a positive change in my supplementation or activity there is a three day +- uptick as my body is getting more of what it needs. This is followed by a downturn of 5 +- days which I assume is my body healing which is hard on my body and I need a lot of rest. This dynamic was not apparent until
When I make a positive change in my supplementation or activity there is a three day +- uptick as my body is getting more of what it needs. This is followed by a downturn of 5 +- days which I assume is my body healing which is hard on my body and I need a lot of rest. This dynamic was not apparent until
WIZARD6787
in
Pernicious Anaemia Society
5 months ago
stomach polyps
Hi all I’ve addressed a thyroid issue - Hashimotos, with the help from the thyroid site. I’m still experiencing fatigue. I am in meno/post menopausal stage. Symptoms do over lap, but have suspected B12 issue for some time. Tend to get low active B12 results. Lots of B12 symptoms. Dr not interested,
Hi all I’ve addressed a thyroid issue - Hashimotos, with the help from the thyroid site. I’m still experiencing fatigue. I am in meno/post menopausal stage. Symptoms do over lap, but have suspected B12 issue for some time. Tend to get low active B12 results. Lots of B12 symptoms. Dr not interested,
Bacca
in
Pernicious Anaemia Society
5 months ago
Iron blood test results are back, please could you take a look for me?
In a previous post I gave my Ferritin result from a blood test in March (this was 36.90) and I was recommended to check my other iron levels before taking iron supplements . I now have these results back and would be really grateful if you could let me know your thoughts please : Medichecks BLOOD TEST
In a previous post I gave my Ferritin result from a blood test in March (this was 36.90) and I was recommended to check my other iron levels before taking iron supplements . I now have these results back and would be really grateful if you could let me know your thoughts please : Medichecks BLOOD TEST
Alternatively
in
Thyroid UK
5 months ago
some advice needed please
Hi I’m going to see Dr Klein in Cambridge as recommended by some of you guys, he has sent links to order theses products from Medisave Sharpsguard yellow 2.5ltr sharps bin professional 70% Alcohol IPA Pre- Injection Swabs x 100 BD Discardit 2 ml Concentric Tip Syringe 2 Piece x 100
Hi I’m going to see Dr Klein in Cambridge as recommended by some of you guys, he has sent links to order theses products from Medisave Sharpsguard yellow 2.5ltr sharps bin professional 70% Alcohol IPA Pre- Injection Swabs x 100 BD Discardit 2 ml Concentric Tip Syringe 2 Piece x 100
Windyway
in
Pernicious Anaemia Society
5 months ago
Risk of reversing out for A'levels
Hi everyone. I'm in a conundrum. My youngest daughter, 17, has low B12 (181ng/L, so not low enough for our GP to take any notice), inherited from me (141ng/L and now self-injecting) and her grandmother (hospitalised on intravenous B12 for several months in the '50s). She has quite low folate at 5.5.
Hi everyone. I'm in a conundrum. My youngest daughter, 17, has low B12 (181ng/L, so not low enough for our GP to take any notice), inherited from me (141ng/L and now self-injecting) and her grandmother (hospitalised on intravenous B12 for several months in the '50s). She has quite low folate at 5.5.
Cotswolds23
in
Pernicious Anaemia Society
5 months ago
It’s ok to be deficient if you inflicted it upon yourself..
Has anyone sought an explanation from their gp as to why if you have caused b12 deficiency by the deliberate use of nitrous oxide that the NHS sanctions the use of b12 injections. Self administered. Daily!! Even providing an instruction video to show how easy and convenient it is to do. I can only
Has anyone sought an explanation from their gp as to why if you have caused b12 deficiency by the deliberate use of nitrous oxide that the NHS sanctions the use of b12 injections. Self administered. Daily!! Even providing an instruction video to show how easy and convenient it is to do. I can only
MorningMist
in
Pernicious Anaemia Society
5 months ago
Help please to understand blood test results a month after c vaccine
Hi! I have no idea what is going on with me. I have been Si daily and twice daily sometimes for 6 mths now and am taking all cofactors.My blood tests have come back today with high MCH and MCV has climbed. I had a c vaccine a mth ago and every thing flared up exhaustion neuropathy etcblurred vision
Hi! I have no idea what is going on with me. I have been Si daily and twice daily sometimes for 6 mths now and am taking all cofactors.My blood tests have come back today with high MCH and MCV has climbed. I had a c vaccine a mth ago and every thing flared up exhaustion neuropathy etcblurred vision
brenanddave
in
Pernicious Anaemia Society
5 months ago
Mum's battle
Hi all, Mum has suffered from adrenal insufficiency over the past 15 years, as well as pernicious anemia, hypothyroidism, low WBC count and was hospitalised several times with low electrolytes. The electrolyte imbalance was caused by the cortisol acetate supplement she takes. She was numerous doctors
Hi all, Mum has suffered from adrenal insufficiency over the past 15 years, as well as pernicious anemia, hypothyroidism, low WBC count and was hospitalised several times with low electrolytes. The electrolyte imbalance was caused by the cortisol acetate supplement she takes. She was numerous doctors
quicklyinsignificant
in
Thyroid UK
5 months ago
Methyl or Hydro B12 injections - is it safe to switch between both each month?
Is it safe to switch between different types of B12 injections? For example, one month I take the hydroxocobalamin injection and the next month i take the methylcobalamin injection? I feel better with methylcobalamin , but I’m only prescribed the hydroxocobalamin but I’m thinking to take methylcobalamin
Is it safe to switch between different types of B12 injections? For example, one month I take the hydroxocobalamin injection and the next month i take the methylcobalamin injection? I feel better with methylcobalamin , but I’m only prescribed the hydroxocobalamin but I’m thinking to take methylcobalamin
LaraPA
in
Pernicious Anaemia Society
5 months ago
Help please in results interpretation of advanced function thyroid test
I’ve just received results of private test because surgery has reduced levothyroxine from 75mcg to 50mcg. Please see below. I would welcome some advice before I approach anyone. Jan 30 TSH 0.23 (0.27-4.2) T4 17.7 (10.5-24.5) At this point doctor wanted me to reduce to 50mcg but I confessed that
I’ve just received results of private test because surgery has reduced levothyroxine from 75mcg to 50mcg. Please see below. I would welcome some advice before I approach anyone. Jan 30 TSH 0.23 (0.27-4.2) T4 17.7 (10.5-24.5) At this point doctor wanted me to reduce to 50mcg but I confessed that
Libuse
in
Thyroid UK
5 months ago
Advice needed re Hashimotos.
Hi, I would love to understand more about my thyroid. I’ve been on Levothyroxine since diagnosis some 20 years ago. It’s crept up to 175mcg last week. Here are my latest bloods from my GP. TSH 2.71 Free t4 14 Ferritin 84 Folic Acid 15.5 Vitamin D 95 I am on b12 injections and supplementing with
Hi, I would love to understand more about my thyroid. I’ve been on Levothyroxine since diagnosis some 20 years ago. It’s crept up to 175mcg last week. Here are my latest bloods from my GP. TSH 2.71 Free t4 14 Ferritin 84 Folic Acid 15.5 Vitamin D 95 I am on b12 injections and supplementing with
Artist23
in
Thyroid UK
5 months ago
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