Nd Thyroid to thyroxine: Hi, I have Hashimoto's... - Thyroid UK

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Nd Thyroid to thyroxine

Bridb profile image
16 Replies

Hi, I have Hashimoto's thyroid and Endoctrinologist has advised I move from NP thyroid to thyroxine. I was sent for Ultra sound by my doctor and had difficulty getting a follow up as he was on holidays for 2 months. I had to get online doc to refer me and only had report of ultrasound so not the scan. My results of last bloods were

Anti-Thyroid Peroxidase >600 kIU/L High 0-34

Anti-Thyroglobulin 248 IU/ml High 0-115

25(OH)Vitamin D 240 nmol/L High 30-125

TSH <0.02 mIU/l Low 0.27-4.20

Free T4 17.3 pmol/L 11.9-21.6

Free T3 8.2 pmol/L High 3.1-6.8

Vitamin B12 1541 ng/L High 197-771

I would prefer to stay on NP thyroid but doctor doesn't seem to answer my emails so thinking he doesnt want to deal with me. Endoctrinologist doesn't want to know about NP Thyroid and said that as I had Hashi my thyroid would be deformed, questioned why I was sent for ultrasound .

any suggestions on best approach to moving to the Thyroxine? or just advice?

is it possible to get NP thyroid without a prescription?

Many thanks

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Bridb
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16 Replies
helvella profile image
helvellaAdministrator

It is possible to get NP Thyroid without a prescription. But it is expensive (of the order of £200 or more per 100 tablets of 60 milligrams). And whatever you do, continuity of supply is always going to be a concern.

Bridb profile image
Bridb in reply tohelvella

Helvella, very expensive and then the unpredictability would be a serious worry for me. I think I will just get the thyroxine.Thanks for the help.

Regards

SlowDragon profile image
SlowDragonAdministrator

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test (and last dose levothyroxine 24 hours before test)

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

NDT or T3 ….day before test split T3 as 2 or 3 smaller doses spread through the day, with last dose approximately 8-12 hours before test

Is this how you did your test

If it is you look over medicated

Vitamin D and B12 rather too high

Suggest you reduce supplement doses a little

No folate or ferritin results

Are you on dairy free or gluten free diet

Bridb profile image
Bridb in reply toSlowDragon

Slow dragan, yes I took the meds as you said. Folate is 7.3 ug/l and Ferritin 286 uh/l which is high. Eat very little dairy and mainly gluten free. Diet doesn’t seem to make a difference. Reducing the Np thyroid by less than half a grain. I take 2 grains 2×60. and very dizzy and light headed so thats why i was looking for advice on changing.

SlowDragon profile image
SlowDragonAdministrator in reply toBridb

suggest you add 25mcg Levo and reduce NDT by 1/4 grain

Look at lactose free levothyroxine

Wait 6-8 weeks and retest

Ferritin- how old are you?

Higher ferritin is common and normal after menopause

Updated reference ranges for top of ferritin range depending upon age

healthunlocked.com/thyroidu...

Thank you for your incredible patience while you have been awaiting the outcome of our ferritin reference range review. We conducted this with Inuvi lab, which has now changed the reference ranges to the following:

Females 18 ≤ age < 40. 30 to 180

Females 40 ≤ age < 50. 30 to 207

Females 50 ≤ age < 60. 30 to 264l

Females Age ≥ 60. 30 to 332

Males 18 ≤ age < 40 30 to 442

Males Age ≥ 40 30 to 518

The lower limits of 30 are by the NICE threshold of <30 for iron deficiency. Our review of Medichecks data has determined the upper limits. This retrospective study used a large dataset of blood test results from 25,425 healthy participants aged 18 to 97 over seven years. This is the most extensive study on ferritin reference ranges, and we hope to achieve journal publication so that these ranges can be applied more widely.

Folate is 7.3 ug/l

what’s range on Folate

are you taking daily vitamin B complex

Bridb profile image
Bridb in reply toSlowDragon

I am 67 so post menopause and I give myself a b12 injection every 4 months.

SlowDragon profile image
SlowDragonAdministrator in reply toBridb

So ferritin is fine

You could do full iron panel test to check iron isn’t high

Test early morning, only water to drink between waking and test. Avoid high iron rich dinner night before test

Stop iron supplements 5-7 days before testing

Medichecks iron panel test

medichecks.com/products/iro...

Bridb profile image
Bridb in reply toSlowDragon

Slowdragon, I will try that but I don't take any iron supplements.

SlowDragon profile image
SlowDragonAdministrator in reply toBridb

I give myself a b12 injection every 4 months.

You might be better taking daily B12

And daily vitamin B complex

Highly effective B12 drops

natureprovides.com/products...

Or

B12 sublingual lozenges

uk.iherb.com/pr/jarrow-form...

cytoplan.co.uk/shop-by-prod...

B12 range in U.K. is too wide

Interesting that in this research B12 below 400 is considered inadequate

healthunlocked.com/thyroidu...

Low folate

supplementing a good quality daily vitamin B complex, one with folate in (not folic acid)

This can help keep all B vitamins in balance and will help improve B12 levels too

Difference between folate and folic acid

healthline.com/nutrition/fo...

B vitamins best taken after breakfast

Igennus B complex popular option. Nice small tablets. Most people only find they need one per day. But a few people find it’s not high enough dose

Post discussing different B complex

healthunlocked.com/thyroidu...

Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule) Thorne can be difficult to find at reasonable price, should be around £20-£25. iherb.com often have in stock. Or try ebay

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12

Post discussing how biotin can affect test results

healthunlocked.com/thyroidu...

helvella.blogspot.com/p/hel...

Bridb profile image
Bridb in reply toSlowDragon

Slowdragon, Yes I think that might be a good idea as I seem to get very erratic results with the injection. I was under the impression that the injection was more effective for the pernicious anemia so will the daily dose still be as effective?

SlowDragon profile image
SlowDragonAdministrator in reply toBridb

Do you definitely have PA

If so you will need injections

You could/should have injections more frequently

Monthly or every 2 months

Bridb profile image
Bridb in reply toSlowDragon

Slowdragon, I was diagnosed with PA at same time as hashi so as far as I know I still have it. Is there a way of checking it? I am afraid to do injections more often as levels seem to go up so not really sure what to do. Thanks very much for taking so much time answering my questions.

SlowDragon profile image
SlowDragonAdministrator in reply toBridb

On injections you would expect B12 to be high

Perhaps ask question on PAS Healthunlocked

Most PA patients have injections via GP every 2-3 months

Bridb profile image
Bridb in reply toSlowDragon

Slowdragon, will do that. Thanks again for all your time.

Hectorsmum2 profile image
Hectorsmum2

How did your vitamin D get so high. I take loads of it but struggle to get to 60.

Bridb profile image
Bridb in reply toHectorsmum2

Hectorsmum, I take K2 with vit d

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