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Hello all, sone advise please.
I am undiagnosed B12 diffident but started self injecting and it has changed my life. I am fast Approaching 50 and have been obease for more than 3/4 of my life. I have a friend who does have a diagnosis and hers 3 monthly injections of the NHS and I can’t understand how she is coping, but she was
I am undiagnosed B12 diffident but started self injecting and it has changed my life. I am fast Approaching 50 and have been obease for more than 3/4 of my life. I have a friend who does have a diagnosis and hers 3 monthly injections of the NHS and I can’t understand how she is coping, but she was
Lowbattry03
in
Pernicious Anaemia Society
5 months ago
B12 and Ferritin results
Just had blood tests and results for B12 are 201 (110-900) and ferritin 59 (30-337). Am I right in thinking these should be higher?
Just had blood tests and results for B12 are 201 (110-900) and ferritin 59 (30-337). Am I right in thinking these should be higher?
Girlslovescifi
in
Thyroid UK
5 months ago
Extra folate & biotin?
Since 24th April, I’ve taken 50mg levo daily, with BioCare Adreno Complex, Igennus Super B-Complex and separate Igennus B12. It’s early days, but in due course I plan to increase levo to 75mg, then 100mg, if my obliging GP will prescribe it. My question is this: is it safe/advisable/helpful to add in
Since 24th April, I’ve taken 50mg levo daily, with BioCare Adreno Complex, Igennus Super B-Complex and separate Igennus B12. It’s early days, but in due course I plan to increase levo to 75mg, then 100mg, if my obliging GP will prescribe it. My question is this: is it safe/advisable/helpful to add in
KingJohnVII
in
Thyroid UK
5 months ago
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Private GP visit
I saw I private GP today as I felt with more time to go through my symptoms and tests I might get somewhere. But she is of the opinion that my B12, ferritin and folate levels were all fine and nothing to worry about. They are within range. I asked about my symptoms, but she didn’t feel they warranted
I saw I private GP today as I felt with more time to go through my symptoms and tests I might get somewhere. But she is of the opinion that my B12, ferritin and folate levels were all fine and nothing to worry about. They are within range. I asked about my symptoms, but she didn’t feel they warranted
Chickens44
in
Pernicious Anaemia Society
5 months ago
update and advice please
First of all I want to thank the administrators and everyone who contribute to this forum. I look at it several times a week and so continue to learn about our shared condition from all the contributions. I need to take a bit of a sounding about my next steps – I think I know what I want to do, but
First of all I want to thank the administrators and everyone who contribute to this forum. I look at it several times a week and so continue to learn about our shared condition from all the contributions. I need to take a bit of a sounding about my next steps – I think I know what I want to do, but
Catch57
in
Thyroid UK
5 months ago
Test Result Feedback
Any feedback on below bloods? On 600mcg levothyroxine total per week. Am working on the iron at the moment. Vit B12 and D are fine. Trying to de-stress where I can. TSH 0.52 mIU/L (0.4 - 4) 3.3% Free T4 (fT4) 15.6 pmol/L (9 - 25) 41.3% Free T3 (fT3) 5.7 pmol/L (3.5 - 6.5) 73.3% T4:T3 Ratio 2.737
Any feedback on below bloods? On 600mcg levothyroxine total per week. Am working on the iron at the moment. Vit B12 and D are fine. Trying to de-stress where I can. TSH 0.52 mIU/L (0.4 - 4) 3.3% Free T4 (fT4) 15.6 pmol/L (9 - 25) 41.3% Free T3 (fT3) 5.7 pmol/L (3.5 - 6.5) 73.3% T4:T3 Ratio 2.737
Curious123
in
Thyroid UK
5 months ago
My TSH level is under the range.
I value this knowledgeable forum very much, thank you for all your help. I had my blood tested last week. The draw was at 9.30am and my last Levo medication was taken the previous morning at 8am. I am currently on 125 mg Levothyroxine which I take on waking up and only drink water for the first 2
I value this knowledgeable forum very much, thank you for all your help. I had my blood tested last week. The draw was at 9.30am and my last Levo medication was taken the previous morning at 8am. I am currently on 125 mg Levothyroxine which I take on waking up and only drink water for the first 2
Rezzar
in
Thyroid UK
5 months ago
B12 jabs and tablets giving me palpitations. Anyone else have trouble
Hi, I now find if I take a sublingual B12 tablet of 1000ug I experience palpitations. I have reduced to 500, and then 250ug same problem but slightly less severe. The symptoms came on soon after taking the tablets and lasted a few hours. I swapped back onto my injections Hevert B12 Depot Hydroxocobalaminacetate
Hi, I now find if I take a sublingual B12 tablet of 1000ug I experience palpitations. I have reduced to 500, and then 250ug same problem but slightly less severe. The symptoms came on soon after taking the tablets and lasted a few hours. I swapped back onto my injections Hevert B12 Depot Hydroxocobalaminacetate
john159
in
Pernicious Anaemia Society
5 months ago
Unrelated PMR question, but asking for a desperate friend in need …
A friend of mine is bewildered about what is going on with his wife’s health. He doesn’t know where to go from here, so I told him I would ask for help from you. She has recovered from breast and throat/neck cancer, unrelated to each other, but has undergone chemo/radio and now has the all clear.
A friend of mine is bewildered about what is going on with his wife’s health. He doesn’t know where to go from here, so I told him I would ask for help from you. She has recovered from breast and throat/neck cancer, unrelated to each other, but has undergone chemo/radio and now has the all clear.
LemonZest11
in
PMRGCAuk
5 months ago
Supplements still necessary?
Good morning allI have run out of my methylfolate supplements I have been on B12 injections for a few years now and been taking supplements too. Just wanted to know if its necessary to keep taking the supplements, it just gets so expensive with the cost of living. I take B1,B2 & methylfolate. Any advice
Good morning allI have run out of my methylfolate supplements I have been on B12 injections for a few years now and been taking supplements too. Just wanted to know if its necessary to keep taking the supplements, it just gets so expensive with the cost of living. I take B1,B2 & methylfolate. Any advice
Aumshantii
in
Pernicious Anaemia Society
5 months ago
Reversing out worse than actual symptoms
I am 32 years old and had B12 deficiency. B12 was <83 pg/ml (normal 180-914) as the lab could not test below this value and Vitamin D was 16 ng/ml (normal 30-100). I had multiple symptoms, some are mentioned below 1. Vertigo 2. Consistent dizziness (feeling like sitting on a boat all the time) 3.
I am 32 years old and had B12 deficiency. B12 was <83 pg/ml (normal 180-914) as the lab could not test below this value and Vitamin D was 16 ng/ml (normal 30-100). I had multiple symptoms, some are mentioned below 1. Vertigo 2. Consistent dizziness (feeling like sitting on a boat all the time) 3.
Trialerror
in
Pernicious Anaemia Society
5 months ago
Bloods Results
Hi 👋 Please can anyone tell me if they see anything 'abnormal' or concerning about my below latest Blood results from 01/05/24? My GP Surgery says that apart from my TSH result, they're all 'normal'. Background: I am Hypo (Hashimotos) for 13 years. Late diagnosis & undertreated the entire time - and
Hi 👋 Please can anyone tell me if they see anything 'abnormal' or concerning about my below latest Blood results from 01/05/24? My GP Surgery says that apart from my TSH result, they're all 'normal'. Background: I am Hypo (Hashimotos) for 13 years. Late diagnosis & undertreated the entire time - and
RhianR
in
Thyroid UK
5 months ago
Turmeric and a Flare and Drama + Thoughts
Turmeric and so on….. Flare up … Drama Hello everyone…. I have had some success (I think - quite strongly) with varying Turmeric shots and soluble lozenges . Some are way too expensive but I found some on Amazon that were really inexpensive and had a delivery of a few shots of Turmeric from Tesco
Turmeric and so on….. Flare up … Drama Hello everyone…. I have had some success (I think - quite strongly) with varying Turmeric shots and soluble lozenges . Some are way too expensive but I found some on Amazon that were really inexpensive and had a delivery of a few shots of Turmeric from Tesco
Hidden
in
PMRGCAuk
5 months ago
Iron supplementation
Hi I have Hashimoto's - as yet untreated due to fluctuating TSH levels. My symptoms are numerous, and due to low levels of B12 and vitamin D, I am supplementing those. I am gluten Soy and Dairy free. My ferritin has been historically low and the GPs have frequently me prescribed Ferrous Fumarate.
Hi I have Hashimoto's - as yet untreated due to fluctuating TSH levels. My symptoms are numerous, and due to low levels of B12 and vitamin D, I am supplementing those. I am gluten Soy and Dairy free. My ferritin has been historically low and the GPs have frequently me prescribed Ferrous Fumarate.
Justine_Case
in
Thyroid UK
5 months ago
B12 suppliers to UK
I’ve just tried to order B12 depot from verdandapo through amazon pay but they won’t ship to my Uk address. Where are people ordering from at the moment? Thanks
I’ve just tried to order B12 depot from verdandapo through amazon pay but they won’t ship to my Uk address. Where are people ordering from at the moment? Thanks
FlorencePocket-Owl
in
Pernicious Anaemia Society
5 months ago
Swollen tongue and teeth impressions on tongue
I am suffering with a very sore swollen tongue and I'm sure ages ago there was a post about this but I can't find it. Am I right in thinking that B12 may be the issue or increase in meds to rectify this? I am currently on Erfa one and quarter grains 6am and half grain 3pm and alternate days one and half
I am suffering with a very sore swollen tongue and I'm sure ages ago there was a post about this but I can't find it. Am I right in thinking that B12 may be the issue or increase in meds to rectify this? I am currently on Erfa one and quarter grains 6am and half grain 3pm and alternate days one and half
lostherpocket
in
Thyroid UK
5 months ago
Excess Folic Acid and Vitamin B12 Deficiency: Clinical Implications?
This is a very recent paper. Some of the areas covered are well-known. Such as not treating B12 deficiency with folic acid. But, in the more speculative parts, I think it does raise questions over the prescribing of high dose (e.g. 5 milligrams a day) of folic acid in those who are currently low in
This is a very recent paper. Some of the areas covered are well-known. Such as not treating B12 deficiency with folic acid. But, in the more speculative parts, I think it does raise questions over the prescribing of high dose (e.g. 5 milligrams a day) of folic acid in those who are currently low in
helvella
in
Pernicious Anaemia Society
2 months ago
Can I get some advice on my latest results, please?
Hello All I recently had my blood test through my GP for my Vitamin D and other tests. (Currently on 100mcg T4 and 10mcg T3 due to see my endo around July 2024) Date: 02/05/2024 (Early morning fasting after taking my Levo and T3). Serum Vitamin B12 239 ng/L [200 - 900] Serum Vitamin D 101 nmol
Hello All I recently had my blood test through my GP for my Vitamin D and other tests. (Currently on 100mcg T4 and 10mcg T3 due to see my endo around July 2024) Date: 02/05/2024 (Early morning fasting after taking my Levo and T3). Serum Vitamin B12 239 ng/L [200 - 900] Serum Vitamin D 101 nmol
BookLover2020
in
Thyroid UK
5 months ago
good morning, question on iron supplement when I start injection
well for now I'm on liquid b12 methyl 720 per day and next week my injections come in the mail ans I know Im needing Iron supplements but I'm not sure how much to take. Im not sure on how much injection I will be on yet.
well for now I'm on liquid b12 methyl 720 per day and next week my injections come in the mail ans I know Im needing Iron supplements but I'm not sure how much to take. Im not sure on how much injection I will be on yet.
JesusMercy60
in
Pernicious Anaemia Society
5 months ago
New to PA and need info and support
Hi, for nearly 10 years I have been returning blood tests with low b12 levels, recently these have been 140 / 155 / 170 and 2 weeks ago 165. I continued to advise GP that there was an issue. In 2018 I had 6 loading doses but no follow up treatments. Throughout 2023 I reported tiredness and more concerningly
Hi, for nearly 10 years I have been returning blood tests with low b12 levels, recently these have been 140 / 155 / 170 and 2 weeks ago 165. I continued to advise GP that there was an issue. In 2018 I had 6 loading doses but no follow up treatments. Throughout 2023 I reported tiredness and more concerningly
Sailing63
in
Pernicious Anaemia Society
5 months ago
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