Newbie

[louie48]

Hey CLLers, I found this website and looks like I found a new family. I'll soon turn 72. I was diagnosed for CLL in March of 2013. Did BR from October 2016 to February 2017. Currently symptom free and do monthly blood work and IGIV at oncologist. Dr. mentioned if I relapse we might try a pill. I assume she meant Ibrutinib. Would appreciate any input you guys might have. God bless my new family.

[Panz]

Welcome to our community! So very happy to have you join us!! Also , it is nice to hear you are doing well...may that continue. Happy Turkey Day if you are in the US, if not then you just have a super day!

Panz 🙏💕☘️😍 🦃🦃🦃

[cllady01 Former Volunteer in reply to Panz]

Panz, the sentiment is appreciated, I am sure--however, "turkey day" is next Thursday.

But, every day can be turkey day, can't it?

[cllady01 Former Volunteer]

Louie, welcome and congratulations on your great outcome with Bendamustine+Rituxan.

[PlanetaryKim]

Welcome Louie!

[Hidden]

lots of new novel drugs. i;m on ibrutinib BUT i had nothing prior. You would technically be getting 2nd line therapy. who knows.

[JigFettler Volunteer]

Hi Louie - welcome!

I am not sure which continent you come from, greetings from the UK in any case!

It is good to hear you are doing well at 72 years young! Your remission duration cannot be predicted, and indeed there are pills IF need in your future, Ibrutinib is definitely one, there are many more, so if the time comes that you need more treatment, please check in here, as well as all the other places when choosing to proceed.

All aspects of CLL and the impact it has on our lives is discussed here. Lots of advice, and in many cases you will find folk who have been through stuff that you might be facing.

In the mean time embrace life and live it to the full. Eat well, keep fit and avoid infection.

Best wishes

Jig

[Kokobean]

Welcome to the family! I don’t know much about BR or the use of Ibrutinib after BR, but my husband had been on Ibrutinib for 5 months and doing very well with minimal side effects. Enjoy your treatment free time!

[Big_Dee]

Hello louie48

Sounds like a good plan. I am 72 as well. I was diagnosed in Sept 2017 and did B+R from Nov 2018 to April 2019. Feel great. My plan is also to maybe go to pill when/if I relapse. There have been a lot of new drugs in testing/approval stage which should be ready when/if we need them. Blessings.

[Smakwater]

Hi louie48,

Keep your eye on Calquence aka acalabrutinib. Already approved in relapse and should is submitted for front line approval.

Suppose to be better targeted in some cases, and with possibly less adverse side affects.

Yesterday - seekingalpha.com/news/35213...

JM

[lorna222]

Hi Louie and welcome! This forum and all the wonderful people here have proven to be priceless!! A world of information and support and caring❤ feel free to share your journey with us all.

Lorna