Cogan's syndrome

[Jandaw]

My daughter has recently been diagnosed with Cogans and although picked up quickly within 2 weeks of symptoms has suffered hearing loss. Does anyone in the North East see a doctor who has good knowledge of Cogans? Thanks

[Hidden]

Hi Jandaw,

Dr Bridget Griffiths heads the Rheumatology team with an interest in Vasculitis and Connective tissue disease at the Freeman in Newcastle, they are excellent.

I don't know if they have any specific experience in Cogans though.

[Whoknows]

Hello. I'm sorry that you haven't had a better response to your question. Cogan's is a tricky one. I should know - I've got it! From my experience, ANY consultant with ANY interest in this disease can make a huge difference. My consultants are all in the North West (Cumbria/Manchester), so I'm not sure that they would be of much help to you. I really do hope that your daughter gets some satisfaction from somewhere though. It sounds as though she's been lucky (if that's the right word) to have been diagnosed so quickly. And she's really lucky to have you there asking these questions. Hang in there!

[Jandaw in reply to Whoknows]

Thanks for your reply. Sorry to hear you have Cogans too x

[Oztrax in reply to Whoknows]

hello, can you tell me a bit more about how your COGANS was diagnosed ?

[noisy]

Hi, I think I have Cogans. It began with sharp electric shock like pains in both ears and feelings like something touching my eyes which became irritated. I have a full feeling in the ear too that never goes. Please would you message me on [e-mail]

to talk about it. thanks Debbie