Experiences with

Corticobasal degeneration

I received a gut punch when I saw that my neurologist had actually diagnosed me as having “corticobasal degeneration.” He had always told me that it was atypical Parkinsonism and only time would reveal how bad it was. He actually told me to enjoy my life (which I am!).

REGISTRATION IS NOW OPEN Brain Support Network and Stanford's Movement Disorders Center are co-hosting this Progressive Supranuclear Palsy/Corticobasal Degeneration (PSP/CBD) Symposium. This is a hybrid event -- some attending in-person on Stanford's campus and many attending virtually.

My wife had a consultation this morning as a result she has wet amd in one eye and dry amd in the other eye, which was a bit of a shock. She had an injection in her eye with wet amd, which she has to have another 2 over the next 2 months and then a check up. I am concerned if the wet amd eye could change

Not entirely comparable, as he has rapidly deteriorating Corticobasal degeneration CBD (a form of Parkinsonism), and I have PD, for which at least there is levodopa medication.

We will be delving into the science behind Valeda light therapy for treating age-related macular degeneration (AMD). In this session, we’ll be joined Professor Tim Jackson, consultant ophthalmic surgeon from King’s College Hospital, to explore the science behind the Valeda photobiomodulation technique

Hi all, I’m suppose to be starting belimumab infusions next week, however there is a shortage in the medication so I’m just waiting for a new date I’m on all the usual medication for lupus but nothing seems to be working, I have had rituximab last year and the first lot lasted 5 months which was great

what are the best type? My husband has just purchased some which seem to say both sodium selenite and selenite, 100 ug,, not sure if is the correct compound. The instructions are in small Turkish language/ print n fortunately. Any comments? had not noticed autocorrect must have worked paper stuck on

A renowned retinal specialist based in the US, Dr Kenneth Fan will join us this month to discuss the increased dose of licensed drug Eylea (aflibercept) to treat wet age-related macular degeneration and diabetic macular oedema. Dr Fan will talk more about the trials which have led to the increased 8mg

I don't think there is any reason to expect many members to be taking any form of Valproate, but this is such an important issue, with such significant consequences, I've decided to post it anyway. Even if you are not taking it, someone you know might be. [i]Valproate (Belvo, Convulex, Depakote,

I went for my review at the eye clinic today and the doctor there said she couldn’t understand why my right eye was not improving but my right eye had. She also said that it was strange as my blood sugars were very well controlled. She went off to speak to a consultant and the result of that was I am

Dr Jasleen K Jolly, from the Vision and Eye Research Institute at Anglia Ruskin University, joins us tonight for our next My Macular and Me webinar to discuss her latest research on Charles Bonnet syndrome. The research has been split into two studies, the first uses an MRI to observe the activity levels

I have been reacting to subcutaneous SI and looking at what is in Panpharma B12 there is acetic acid sodium chloride sodium acetate. This is hydro. I have bought a lot of these and worry first if I can’t use them and secondly if all have this in them. Any advice please?

Apologies for the offtopic but I thought this was an interesting anti-oxidant supplement although only preliminary research has been carried out on it as yet. It seems to have potential as a very powerful antioxidant but too much anti-oxidants can also be a bad thing (based on vitamin E and beta-carotene

Sending strength to others who are hit by corticobasal degeneration which is often misdiagnosed by healthcare professionals. This group has been a good source of information and support. I’m happy to answer questions to help others and will remain in the group. Rest in peace Mum.

The first-ever treatment for dry age-related macular degeneration (AMD) will be the topic of our next My Macular and Me webinar. Pegcetacoplan, which will be known as Syfovre, was approved for use in the US in February to treat patients with late-stage dry AMD – often referred to as geographic atrophy

Our second My Macular and Me webinar of the month will welcome researchers from the Royal Holloway University of London who will discuss their latest research on Charles Bonnet Syndrome (CBS). Professor Robin Walker and his team are the first to study the effectiveness of recommended techniques to manage

Hello, I am going to experiment with self injecting. Have ordered this off amazon.de: Pascoe® Vitamin B12 Depot Injectopaz 1500 μg 10 x 1 ml Ingredients: 1 ampoule 1 ml contains: active ingredient: hydroxocobalamine acetate 1500 μg. Other ingredients: sodium chloride, water for injection purposes

has anybody had triamcinolone injection for macular oedema. I am having a cataract op in 3 weeks time and I will be having this injection around the eye at the same time. I think it is also called Kenalog

I had repeat dexascan says my hips are getting worse, anyone on enoxaparin/lovenox taking vit k2 for “calcium to bone absorption”? Docs are talking about fosamex, etc, but I would rather do vitamins if possible. Not looking for medical advice but would like to know if others with APS are taking it

Like many aspects of life that we're all trying to grapple with, good health comes from a very fine balance. There is no 'one way' to do things, but a sweet spot in the middle. And I believe it's the same with diet, in particular B12. B12 is a regulator of homocysteine. Low B12 is a driver for high