Experiences with

Corticobasal degeneration

CBS - Corticobasal Syndrome. CBD - corticobasal degeneration. MSA - Multiple System Atrophy. DLB - Dementia with Lewy bodies. Let’s continue to uplift, support, and advocate—because together, we are stronger.

The Faces and Voices Campaign at CCF is more than just a collection of tales; it's a beacon of hope and a call to action for those affected by atypical Parkinsonism, including conditions like PSP (Progressive Supranuclear Palsy), MSA (Multiple System Atrophy), CBD (Corticobasal Degeneration) and DLB

I received a gut punch when I saw that my neurologist had actually diagnosed me as having “corticobasal degeneration.” He had always told me that it was atypical Parkinsonism and only time would reveal how bad it was. He actually told me to enjoy my life (which I am!).

Hello everyone - I was diagnosed 7 - 8 years ago with wet macular degeneration. This has been controlled very well over the years with Eylea injections approximately 12 weekly - sometimes longer as it is difficult to get appointments. I have had 30+ injections in each eye during that time. However

Lytenava (bevacizumab gamma), is the first licensed version of Avastin for wet age-related macular degeneration. The treatment was approved by the National Institute for Health and Care Excellence (NICE) for use in the NHS last year. Join our monthly webinar as professor Andrew Lotery will break down

has anyone tried valeda light therapy for dry macular degeneration. I have wet macular in my left eye and very limited sight following a sub macular haemerage after an injection and geographic atrophy in my right eye eye. I am considering the treatment following an article in the macular society magazine

Good Morning. I have wet macular degeneration in both eyes and have been getting Eylea shots for about 8 yrs. I am wondering if anyone has had to have a head head CT scan and is it dangerous with wet macular degeneration. Thank you.

REGISTRATION IS NOW OPEN Brain Support Network and Stanford's Movement Disorders Center are co-hosting this Progressive Supranuclear Palsy/Corticobasal Degeneration (PSP/CBD) Symposium. This is a hybrid event -- some attending in-person on Stanford's campus and many attending virtually.

My wife had a consultation this morning as a result she has wet amd in one eye and dry amd in the other eye, which was a bit of a shock. She had an injection in her eye with wet amd, which she has to have another 2 over the next 2 months and then a check up. I am concerned if the wet amd eye could change

Not entirely comparable, as he has rapidly deteriorating Corticobasal degeneration CBD (a form of Parkinsonism), and I have PD, for which at least there is levodopa medication.

We will be delving into the science behind Valeda light therapy for treating age-related macular degeneration (AMD). In this session, we’ll be joined Professor Tim Jackson, consultant ophthalmic surgeon from King’s College Hospital, to explore the science behind the Valeda photobiomodulation technique

Hi all, I’m suppose to be starting belimumab infusions next week, however there is a shortage in the medication so I’m just waiting for a new date I’m on all the usual medication for lupus but nothing seems to be working, I have had rituximab last year and the first lot lasted 5 months which was great

what are the best type? My husband has just purchased some which seem to say both sodium selenite and selenite, 100 ug,, not sure if is the correct compound. The instructions are in small Turkish language/ print n fortunately. Any comments? had not noticed autocorrect must have worked paper stuck on

A renowned retinal specialist based in the US, Dr Kenneth Fan will join us this month to discuss the increased dose of licensed drug Eylea (aflibercept) to treat wet age-related macular degeneration and diabetic macular oedema. Dr Fan will talk more about the trials which have led to the increased 8mg

I don't think there is any reason to expect many members to be taking any form of Valproate, but this is such an important issue, with such significant consequences, I've decided to post it anyway. Even if you are not taking it, someone you know might be. [i]Valproate (Belvo, Convulex, Depakote,

I went for my review at the eye clinic today and the doctor there said she couldn’t understand why my right eye was not improving but my right eye had. She also said that it was strange as my blood sugars were very well controlled. She went off to speak to a consultant and the result of that was I am

Dr Jasleen K Jolly, from the Vision and Eye Research Institute at Anglia Ruskin University, joins us tonight for our next My Macular and Me webinar to discuss her latest research on Charles Bonnet syndrome. The research has been split into two studies, the first uses an MRI to observe the activity levels

I have been reacting to subcutaneous SI and looking at what is in Panpharma B12 there is acetic acid sodium chloride sodium acetate. This is hydro. I have bought a lot of these and worry first if I can’t use them and secondly if all have this in them. Any advice please?

Apologies for the offtopic but I thought this was an interesting anti-oxidant supplement although only preliminary research has been carried out on it as yet. It seems to have potential as a very powerful antioxidant but too much anti-oxidants can also be a bad thing (based on vitamin E and beta-carotene

Sending strength to others who are hit by corticobasal degeneration which is often misdiagnosed by healthcare professionals. This group has been a good source of information and support. I’m happy to answer questions to help others and will remain in the group. Rest in peace Mum.