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New guidance for people treated with methotrexate when they have the COVID-19 vaccine
New guidance has been published for people treated with methotrexate when they have their next COVID-19 booster vaccine. You can read about the VROOM Study and the new guidance at https://www.lupusuk.org.uk/mtx-covid19-vaccination/ If you are treated with methotrexate, please speak with your doctor
New guidance has been published for people treated with methotrexate when they have their next COVID-19 booster vaccine. You can read about the VROOM Study and the new guidance at https://www.lupusuk.org.uk/mtx-covid19-vaccination/ If you are treated with methotrexate, please speak with your doctor
Paul_Howard
LUPUS UK
in
LUPUS UK
2 years ago
Covid-19 2nd Positive
Hi folks,well it’s almost 12 months since my 1st Covid positive and this morning I have tested positive for the 2nd time.I have thus far received 2 vaccinations and 3 booster shots and after feeling a little off last night and testing negative,I tested again this morning after waking up with that really
Hi folks,well it’s almost 12 months since my 1st Covid positive and this morning I have tested positive for the 2nd time.I have thus far received 2 vaccinations and 3 booster shots and after feeling a little off last night and testing negative,I tested again this morning after waking up with that really
Nickos66
in
CLL Support
2 years ago
All clear
well I have had my telephone consultation with the haematologist just. my epo 7.3 and two under 450 bloods tests later he's discharged me. 395 I had my scan results and he says my spleen normal.kidney cysts are normal.a and everything else normal. says that some people can have abnormal blood
well I have had my telephone consultation with the haematologist just. my epo 7.3 and two under 450 bloods tests later he's discharged me. 395 I had my scan results and he says my spleen normal.kidney cysts are normal.a and everything else normal. says that some people can have abnormal blood
Notdiagnosed
in
MPN Voice
2 years ago
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Israeli Covid drug also aids cancer immunotherapy patients
With the outbreak of the global
coronavirus
epidemic, Bonus BioGroup started experimenting with the very same mesenchymal cells, isolated from adipose tissue of healthy donors, to enhance ability to reduce inflammatory processes, including respiratory infections and other diseases.
With the outbreak of the global
coronavirus
epidemic, Bonus BioGroup started experimenting with the very same mesenchymal cells, isolated from adipose tissue of healthy donors, to enhance ability to reduce inflammatory processes, including respiratory infections and other diseases.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
FET and Covid
Following on from my post Monday regarding frozen embryo transfer and feeling very positive my daughter had tested positive for covid this morning 😭 I am currently negative and wearing a mask round the house, constantly sanitising myself and surfaces but so nervous to catch it and what might happen
Following on from my post Monday regarding frozen embryo transfer and feeling very positive my daughter had tested positive for covid this morning 😭 I am currently negative and wearing a mask round the house, constantly sanitising myself and surfaces but so nervous to catch it and what might happen
Aame7800
in
Fertility Network UK
2 years ago
Covid and GCA
I have GCA. My prednisolone has reduced to 3mg daily and methotrexate 15mg weekly. I am now having a relapse and am awaiting a PET scan. I now have covid. The NHS pharmacist phoned me and told me I wasnt eligible for the pill to stop it getting worse as you have to be on 10mg or more prednisolone
I have GCA. My prednisolone has reduced to 3mg daily and methotrexate 15mg weekly. I am now having a relapse and am awaiting a PET scan. I now have covid. The NHS pharmacist phoned me and told me I wasnt eligible for the pill to stop it getting worse as you have to be on 10mg or more prednisolone
Hidden
in
PMRGCAuk
2 years ago
immune suppression during Covid is scary
Anyone else feeling like Covid is not over for them yet? I’m still working from home, avoiding public and crowded places, ordering groceries. Am I being overly cautious? Everyone has stopped wearing masks so for me, it’s gotten even more dangerous out there. Yes, I’ve had 4 shots but they don’t really
Anyone else feeling like Covid is not over for them yet? I’m still working from home, avoiding public and crowded places, ordering groceries. Am I being overly cautious? Everyone has stopped wearing masks so for me, it’s gotten even more dangerous out there. Yes, I’ve had 4 shots but they don’t really
MsAmyM
in
Kidney Disease
2 years ago
Lupus and COVID-19 Information & Guidance - UPDATED 06/04/2022
Hi everyone, We have updated our lupus and COVID-19 information and guidance to reflect the latest changes - https://www.lupusuk.org.uk/
coronavirus
/ For updates about vaccines and the "spring booster" go to https://www.lupusuk.org.uk/covid19-vaccination/ For updates about free lateral flow tests and
Hi everyone, We have updated our lupus and COVID-19 information and guidance to reflect the latest changes - https://www.lupusuk.org.uk/
coronavirus
/ For updates about vaccines and the "spring booster" go to https://www.lupusuk.org.uk/covid19-vaccination/ For updates about free lateral flow tests and
Paul_Howard
LUPUS UK
in
LUPUS UK
2 years ago
Partner not allowed into consultation
My wife received a letter today, confirming her consultation date when she will finally learn if any treatment is available to her and if so what is recommended. However, this letter also states [i]"please would you attend alone."[/i] This is utterly astonishing. They say it's due to the pandemic.
My wife received a letter today, confirming her consultation date when she will finally learn if any treatment is available to her and if so what is recommended. However, this letter also states [i]"please would you attend alone."[/i] This is utterly astonishing. They say it's due to the pandemic.
scotleag
in
The Roy Castle Lung Cancer Foundation
2 years ago
COVID
Hi everyone it is with a heavy heart that after about 6 days in the respiratory ward & after a swab I sadly have been found to be positive tested for Covid im very shocked.Alli came in for was to get my oxygen levels back up to normal after for the6th time it dropped dangerously on a
Hi everyone it is with a heavy heart that after about 6 days in the respiratory ward & after a swab I sadly have been found to be positive tested for Covid im very shocked.Alli came in for was to get my oxygen levels back up to normal after for the6th time it dropped dangerously on a
Sara_2611
in
Lung Conditions Community Forum
2 years ago
Finding it really hard getting back into it
My last run was on 7th July. A busy week made me miss a couple of runs, then catching Covid (again) and the heat wave just made it impossible to even consider running. I dont do well in the heat at the best of time, anything over 25 and I find walking fast a killer. The dogs can only have a short
My last run was on 7th July. A busy week made me miss a couple of runs, then catching Covid (again) and the heat wave just made it impossible to even consider running. I dont do well in the heat at the best of time, anything over 25 and I find walking fast a killer. The dogs can only have a short
Chris--B
Graduate
in
Couch to 5K
2 years ago
covid
apologies not sure where to post this ....not asthma related ... does anyone have any tips on dealing with a spre swollen throat due to covid ? it's gotten so bad I'm struggling to swallow my spit and eat or drink. I've eaten a yoghurt today amd then promptly threw up just to add to it. tried
apologies not sure where to post this ....not asthma related ... does anyone have any tips on dealing with a spre swollen throat due to covid ? it's gotten so bad I'm struggling to swallow my spit and eat or drink. I've eaten a yoghurt today amd then promptly threw up just to add to it. tried
Nifflerluck
in
Asthma Community Forum
2 years ago
Going backwards!
I am not sure if anyone can help with this, maybe some words of encouragement or similar? I started my running journey about a year ago and with lots of hard work managed to get to 9 miles in 1 hour 28 mins. I was so happy, and felt that I was really improving. Then in April 21 covid hit. Since
I am not sure if anyone can help with this, maybe some words of encouragement or similar? I started my running journey about a year ago and with lots of hard work managed to get to 9 miles in 1 hour 28 mins. I was so happy, and felt that I was really improving. Then in April 21 covid hit. Since
SB1000
in
Bridge to 10K
2 years ago
GCA since Feb. 2018 ---mid-transfer from one roller coaster to another. Its tricky.
I believe my GCA is under control. I am down to 5 mg of prednisone, and on that aspect, feel good. It has taken a year to settle into 5mg, and I hope others will read this and realize that sometimes it just takes a long time to get the dose down. I appreciate all the support from you folks. I shared
I believe my GCA is under control. I am down to 5 mg of prednisone, and on that aspect, feel good. It has taken a year to settle into 5mg, and I hope others will read this and realize that sometimes it just takes a long time to get the dose down. I appreciate all the support from you folks. I shared
Blurry62
in
PMRGCAuk
2 years ago
4 months and no answers!
Heads up: this is a vent post about how much this SUCKS! OK, so the story is, I’ve been off work for the past 4 months with exertional breathlessness and no cause. They know my heart is involved, but every single cardiac test (stress test, CPCA, halter, PET/CT, cardiac MRI) has come back normal. CPET
Heads up: this is a vent post about how much this SUCKS! OK, so the story is, I’ve been off work for the past 4 months with exertional breathlessness and no cause. They know my heart is involved, but every single cardiac test (stress test, CPCA, halter, PET/CT, cardiac MRI) has come back normal. CPET
MusicalFurbaby
in
LUPUS UK
2 years ago
Covid prior to ivf
I tested positive for covid last Friday, but negative both Saturday and today. I’m due to start stims either tomorrow or Tuesday. I was barely ill- I had a cough for a day and that was it. We think it’s likely my partner had it as well, he was even less symptomatic, just a scratchy throat for 24hrs at
I tested positive for covid last Friday, but negative both Saturday and today. I’m due to start stims either tomorrow or Tuesday. I was barely ill- I had a cough for a day and that was it. We think it’s likely my partner had it as well, he was even less symptomatic, just a scratchy throat for 24hrs at
NemoFish
in
Fertility Network UK
2 years ago
PROTECTION FROM COVID WITH EVUSHELD??
I have not been on this site for a while, but wanted to share some interesting information with you. I have been in a random trial (arm 1; I/O) at Mayo’s for over 3 years (started April 2019). I am in the high risk category being IgVH unmutated, 11del, and having trisomy 12. My blood picture became
I have not been on this site for a while, but wanted to share some interesting information with you. I have been in a random trial (arm 1; I/O) at Mayo’s for over 3 years (started April 2019). I am in the high risk category being IgVH unmutated, 11del, and having trisomy 12. My blood picture became
Varney
in
CLL Support
2 years ago
My family smells when i make the slightest progress and ruins it
I was just stabilizing myself with a lot of effort and grandpa called and ruined it all. He said dad, stepmother and the kid have covid and first i hate to be talked about them, second he sees them as family, third mom wants to go to her mom and what if she and sis are infected. But how to tell her
I was just stabilizing myself with a lot of effort and grandpa called and ruined it all. He said dad, stepmother and the kid have covid and first i hate to be talked about them, second he sees them as family, third mom wants to go to her mom and what if she and sis are infected. But how to tell her
Against_the_current
in
Anxiety and Depression Support
2 years ago
Effect of Covid on AF
I am now recovering ( tested positive 7 days ago) from a nasty bout with Covid . I am finding that my heart rhythm is all over the place. Had an ablation in December and have been largely but not entirely in NSR for a while. I am now either tachycardic, unclassified or possible AF according to my kardia
I am now recovering ( tested positive 7 days ago) from a nasty bout with Covid . I am finding that my heart rhythm is all over the place. Had an ablation in December and have been largely but not entirely in NSR for a while. I am now either tachycardic, unclassified or possible AF according to my kardia
BriontePip
in
AF Association
2 years ago
Seems a long time
My husband was diagnosed with Right upper lobe T3 N0 M0 non-small cell lung cancer in June 2021. Because he also has COPD they said they couldn’t operate so he was given 20 sessions of radiotherapy in October 2021. Since then he hasn’t seen his oncologist at all, just a phone call every 12 weeks. He
My husband was diagnosed with Right upper lobe T3 N0 M0 non-small cell lung cancer in June 2021. Because he also has COPD they said they couldn’t operate so he was given 20 sessions of radiotherapy in October 2021. Since then he hasn’t seen his oncologist at all, just a phone call every 12 weeks. He
Hidden
in
The Roy Castle Lung Cancer Foundation
2 years ago
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