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Successfully treated my Multiple Myeloma and now in remission from both MM and PCA
I successfully completed my induction cycles for treatment of my Multiple Myeloma. Mayo Clinic confirmed I am in remission from MM. I completed collection of my stem cells for future transplant if needed. 9 days down there - 21 appointments. The Bone Marrow Transplant Center at the Mayo, does not mess
I successfully completed my induction cycles for treatment of my Multiple Myeloma. Mayo Clinic confirmed I am in remission from MM. I completed collection of my stem cells for future transplant if needed. 9 days down there - 21 appointments. The Bone Marrow Transplant Center at the Mayo, does not mess
swwags
in
Advanced Prostate Cancer
8 months ago
after effects of kidney transplant
Hi There, I am a 62 years old male, with CKD 4 , EGFR as 16 and creatinine 4.07 . I have been listed for Kidney Transplant. I need to talk to people who have already got the transplant done and what kind of experience they have after getting the transplant. Any complications they had, is it better or
Hi There, I am a 62 years old male, with CKD 4 , EGFR as 16 and creatinine 4.07 . I have been listed for Kidney Transplant. I need to talk to people who have already got the transplant done and what kind of experience they have after getting the transplant. Any complications they had, is it better or
asahdev
in
Kidney Transplant
1 year ago
lung transplant
found this on my computer in box today you have probably seen it too but putting it on here hopefully
found this on my computer in box today you have probably seen it too but putting it on here hopefully
Jaybird19
in
Lung Conditions Community Forum
1 year ago
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Immune Responses + Autoimmune Myelofibrosis
There were some posts a few weeks ago on adverse immune responses after vaccination for people using interferons. I had this experience while transitioning form HU to Peg, firstly with a covid jab last December and secondly with the first of the Shingrix jabs in March, which triggered, at the very least
There were some posts a few weeks ago on adverse immune responses after vaccination for people using interferons. I had this experience while transitioning form HU to Peg, firstly with a covid jab last December and secondly with the first of the Shingrix jabs in March, which triggered, at the very least
LongETinUS
in
MPN Voice
8 months ago
one month post op
I am one month out from my liver transplant, and am still in horrible pain, have lost 40 pounds, of which I did not have to loose, still taking OxyContin regularly, can’t sleep, and can’t eat solid foods. Any suggestions? Feeling absolutely miserable, and NO energy.
I am one month out from my liver transplant, and am still in horrible pain, have lost 40 pounds, of which I did not have to loose, still taking OxyContin regularly, can’t sleep, and can’t eat solid foods. Any suggestions? Feeling absolutely miserable, and NO energy.
Rubyrebe
in
British Liver Trust
1 year ago
Lipstickandcrayons
Hello my name is lipsticandcrayons I am a previous kidney transplant Paitient. It lasted me a whole 7 years and trust me when I say I protect this kidney with my life because it came from my beautiful mother. My mother was getting tested she had done the round and I got a call to come in , I was so
Hello my name is lipsticandcrayons I am a previous kidney transplant Paitient. It lasted me a whole 7 years and trust me when I say I protect this kidney with my life because it came from my beautiful mother. My mother was getting tested she had done the round and I got a call to come in , I was so
Lipstickncrayons
in
Kidney Transplant
1 year ago
F4: cirrhosis
I was recently diagnosed with F4 Cirrhosis and I'm terrified. I found out by reading my medical record. I was first told that I had Autoimmune Hepatitis after my Fibro scan results and that I needed to start treatment with Imuran and prednisone. GI dr said that if treatment didn't work I would be put
I was recently diagnosed with F4 Cirrhosis and I'm terrified. I found out by reading my medical record. I was first told that I had Autoimmune Hepatitis after my Fibro scan results and that I needed to start treatment with Imuran and prednisone. GI dr said that if treatment didn't work I would be put
TrixieMami
in
Living with Fatty Liver and NASH
1 year ago
A cross in the sand
Does anyone else find this explanation helpful -- ? Imagine yourself sitting on the beach and you draw a cross in the sand like an 'x'. The first stroke represents your dopamine deficiency and the second stroke you draw several times as it represents an overactive adrenal response subsequent to the HABIT
Does anyone else find this explanation helpful -- ? Imagine yourself sitting on the beach and you draw a cross in the sand like an 'x'. The first stroke represents your dopamine deficiency and the second stroke you draw several times as it represents an overactive adrenal response subsequent to the HABIT
Meg024
in
Cure Parkinson's
1 year ago
kidney transplant recipient.
hello everyone with a kidney transplant, congratulations to all. I received my new kidney about a year and a half ago. I still have pain at the site of the surgery. I drive for living what advice you guys can render?
hello everyone with a kidney transplant, congratulations to all. I received my new kidney about a year and a half ago. I still have pain at the site of the surgery. I drive for living what advice you guys can render?
ru7318
in
Kidney Transplant
1 year ago
Transplant and BKV Realities
I received my kidney transplant 8 1/2 months ago. The surgery went so well and the transplant has been a new lease on life in so many ways. As I have posted here, I have dealt with a near-constant onslaught of infections (C-dif x2, UTI, Sepsis, BKV, CMV), the most recent resulting in 2 weeks spent in
I received my kidney transplant 8 1/2 months ago. The surgery went so well and the transplant has been a new lease on life in so many ways. As I have posted here, I have dealt with a near-constant onslaught of infections (C-dif x2, UTI, Sepsis, BKV, CMV), the most recent resulting in 2 weeks spent in
Hidden
in
Kidney Transplant
1 year ago
Strategic Masking to Protect Patients from All Respiratory Viral Infections
https://www.nejm.org/doi/full/10.1056/NEJMp2306223 - The end of the public health emergency in the United States is a richly symbolic milestone in the course of the SARS-CoV-2 pandemic. During the height of the pandemic, the virus killed millions of people worldwide, upended lives, and radically altered
https://www.nejm.org/doi/full/10.1056/NEJMp2306223 - The end of the public health emergency in the United States is a richly symbolic milestone in the course of the SARS-CoV-2 pandemic. During the height of the pandemic, the virus killed millions of people worldwide, upended lives, and radically altered
lankisterguy
Volunteer
in
CLL Support
1 year ago
Famous Kidney Transplant People
I am watching Modern Family (rerun and the series is now ended) and remembered that Sarah Hyland, the oldest daughter, Hailey, of Claire and Phil on the show, was transplanted with a kidney when she was younger by a donation from her father. It failed and she got another transplant.I read that she said
I am watching Modern Family (rerun and the series is now ended) and remembered that Sarah Hyland, the oldest daughter, Hailey, of Claire and Phil on the show, was transplanted with a kidney when she was younger by a donation from her father. It failed and she got another transplant.I read that she said
TaffyTwoshoes27
in
Kidney Transplant
1 year ago
How much can one body take?
As if 2 strokes in 15 months plus a double lung transplant isn’t enough I have now been told I suffered a mild ( thank the Lord mild) heart attack recently which I wasn’t aware of. “Possible inferior infarct- age undetermined “ is their medical term for a myocardial arrest. Suppose on a positive note
As if 2 strokes in 15 months plus a double lung transplant isn’t enough I have now been told I suffered a mild ( thank the Lord mild) heart attack recently which I wasn’t aware of. “Possible inferior infarct- age undetermined “ is their medical term for a myocardial arrest. Suppose on a positive note
Mrbojangles
in
Lung Conditions Community Forum
1 year ago
Queenersize
So I'm trying to find ways to get motivated to exercise. I want to lose weight in preparation for a transplant. I have no donor yet, but I was told I would gain weight from steroids taken after your transplant. Can anyone give more insight on that? I at least want to try. I'm on my second week of clean
So I'm trying to find ways to get motivated to exercise. I want to lose weight in preparation for a transplant. I have no donor yet, but I was told I would gain weight from steroids taken after your transplant. Can anyone give more insight on that? I at least want to try. I'm on my second week of clean
HipHopQueen
in
Kidney Dialysis
1 year ago
Start of my stem cell journey 0.3.1 ambulatory care
I have been offered Ambulatory Care (treatment in a specialised day unit) for my stem cell transplant has anyone else gone through this process?
I have been offered Ambulatory Care (treatment in a specialised day unit) for my stem cell transplant has anyone else gone through this process?
Grizly
in
MPN Voice
9 months ago
injector1
Hello everyone….. can I ask if there is anyone on this forum who has had a single/double lung transplant at the age limit, or above of 65 years?
Hello everyone….. can I ask if there is anyone on this forum who has had a single/double lung transplant at the age limit, or above of 65 years?
Injecter1
in
Lung Conditions Community Forum
1 year ago
Start of my Stem Cell Journey 0.3
Well, where do I start. The transplant team wanted to increase my Rux to 10 mgs which has been really good for me. So much energy hardly any symptoms and overall feeling better. The fly in the ointment is my blood levels are dropping red cells were 80 and my platelets were in the 30’s. My Haematologist
Well, where do I start. The transplant team wanted to increase my Rux to 10 mgs which has been really good for me. So much energy hardly any symptoms and overall feeling better. The fly in the ointment is my blood levels are dropping red cells were 80 and my platelets were in the 30’s. My Haematologist
Grizly
in
MPN Voice
9 months ago
6 weeks post lung transplant.
Home now and what a relief. 22 days in ICU resulting in muscle waste in legs so starting all over again with stairs etc. Wound pain 8/10 especially when bending or reaching out. 30% loss of vision due to minor stroke at bottom of brain. The docs seem quite happy with results which is brilliant but
Home now and what a relief. 22 days in ICU resulting in muscle waste in legs so starting all over again with stairs etc. Wound pain 8/10 especially when bending or reaching out. 30% loss of vision due to minor stroke at bottom of brain. The docs seem quite happy with results which is brilliant but
Mrbojangles
in
Lung Conditions Community Forum
1 year ago
Covid Positive now day 60
Hi All Am getting concerned about my husband - he had a liver transplant in 2017 due to NASH cirrhosis and suffers from COPD, Asthma and Diabetes Type 2. He has now tested positive for Covid for 60 days and has had 1 x anti viral medication from St Thomas, 4 x antibiotics, 3 x steroids and remains
Hi All Am getting concerned about my husband - he had a liver transplant in 2017 due to NASH cirrhosis and suffers from COPD, Asthma and Diabetes Type 2. He has now tested positive for Covid for 60 days and has had 1 x anti viral medication from St Thomas, 4 x antibiotics, 3 x steroids and remains
Kimlescam
in
British Liver Trust
1 year ago
Emphysema
Hi, i joined this group a few months ago. I was diagnosed Dec '21 after being hospitalised because my sats were so low 70-80 at that time. Then it was a whirwind of tests before I got my complete diagnosis with the letter from my consultant with all that fev % stuff at the end of the letter. i went
Hi, i joined this group a few months ago. I was diagnosed Dec '21 after being hospitalised because my sats were so low 70-80 at that time. Then it was a whirwind of tests before I got my complete diagnosis with the letter from my consultant with all that fev % stuff at the end of the letter. i went
Zand60
in
Lung Conditions Community Forum
1 year ago
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