I'm a 52 year old female in Greece, 1 year on Dialysis now, after a journey of failed fistula creation attempts and finally a graft placement due to very thin veins. Started dialysis last July after an 18 year diet struggle to keep function of the one kidney I have. (the other one was lost for unknown reasons, though we suspect it was lost during my 1st pregnancy some 28 years ago).
My journey with dialysis this past year has been quite eventful with regards to side effects. Sure, I feel much more energetic since I started, however, that last hour of dialysis is a nightmare of palpitations and cramps from hell. The team at the dialysis center keep raising my dry weight, which makes sense, yet doesn't seem to resolve the cramps. I'm now on magnesium supplement, vitamin e, double the carnitine dose during every dialysis session and dextrose, but still to no avail, that last hour is just cramp hell.
I still work a full time job, try to exercise as much as I can (and as much as my body allows me to), and basically trying to keep my life unchanged, working around the dialysis hours. However, this appears to be impossible sometimes, and the nightmare of that last hour of dialysis doesn't make it any easier.
Anyone else on dialysis with similar experience? I keep trying to research these side effects, trying to get a grasp on things, but can't seem to get anything other than what is already being tried at the dialysis center.
Any input would be appreciated.