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looking for advice.
My husband Martin was diagnosed in 2019 with prostate cancer. Gleason score 7 (3+4) Biopsy showed 12 out of 16 cores. In June 2019 he had Robotic surgery. We were told everything went very well. His PSA dropped to <0.05. This lasted until September 2020 when his PSA started to increase 0.46. And continued
My husband Martin was diagnosed in 2019 with prostate cancer. Gleason score 7 (3+4) Biopsy showed 12 out of 16 cores. In June 2019 he had Robotic surgery. We were told everything went very well. His PSA dropped to <0.05. This lasted until September 2020 when his PSA started to increase 0.46. And continued
Believeit
in
Advanced Prostate Cancer
1 year ago
Diabetes 2 high blood sugar level 03/11/2022 HbA1c level 92 mmol/mol 20/02/23 88 mmol/mol, through Prostate Cancer June 2022 to April 2023!
Colourful medical history had diabetes 2 since March 2020 on Metformin 1500mg, aged 66, left over side effects from Radiotherapy sessions and hormone injections Decapeptyl SR [last injection 19/12/2022] any reliable way of measuring Blood Sugar Level? Target meant to be circa 58 on 'diet' have had to
Colourful medical history had diabetes 2 since March 2020 on Metformin 1500mg, aged 66, left over side effects from Radiotherapy sessions and hormone injections Decapeptyl SR [last injection 19/12/2022] any reliable way of measuring Blood Sugar Level? Target meant to be circa 58 on 'diet' have had to
Adlon57
in
Healthy Evidence
1 year ago
Dry Mouth & the Advanced PC Patient (for those on Pluvicto or meds or ICI, where a side effect is dry mouth) - A Guide
Xerostomia (dry mouth) is associated with an increased incidence of dental decay (cavities), oral fungal infections (candidiasis), halitosis, burning mouth, gingivitis and periodontal disease. Dry mouth may also cause dysphagia (difficulty in swallowing), dysgeusia (altered or loss of taste), and difficulty
Xerostomia (dry mouth) is associated with an increased incidence of dental decay (cavities), oral fungal infections (candidiasis), halitosis, burning mouth, gingivitis and periodontal disease. Dry mouth may also cause dysphagia (difficulty in swallowing), dysgeusia (altered or loss of taste), and difficulty
rsgdmd
in
Advanced Prostate Cancer
1 year ago
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Life beyond Myelofibrosis
I progressed from ET to Myelofibrosis a couple of years ago. I had an enlarged spleen and ruxolitinib lowered the platelets too much so I was switched to fedratinib. Depending on what predictive tool was used, I had a median predicted life span of between 2 and 14 years - not terribly helpful! I was
I progressed from ET to Myelofibrosis a couple of years ago. I had an enlarged spleen and ruxolitinib lowered the platelets too much so I was switched to fedratinib. Depending on what predictive tool was used, I had a median predicted life span of between 2 and 14 years - not terribly helpful! I was
Scaredy_cat
in
MPN Voice
1 year ago
Follow up on RILP
Just wanted to share my situation dealing with consequences of an adverse reaction to some pallative radiation treatment I received. I posted a while back that I had been diagnosed with radiation induced lumbar sacral paraplexy that had affected my left leg to the point of no longer being able to walk
Just wanted to share my situation dealing with consequences of an adverse reaction to some pallative radiation treatment I received. I posted a while back that I had been diagnosed with radiation induced lumbar sacral paraplexy that had affected my left leg to the point of no longer being able to walk
Kentucky1
in
Advanced Prostate Cancer
1 year ago
Recurring Pneumonia from Breast Cancer radiation treatment
I was diagnosed with stage 0 breast cancer and went through two lumpectomies in April 2022, and 21 radiation treatments in May 2022, ending early June 2022. By the end of July 2022, I knew something was not right with my left lung with constant coughing, shortness of breath. In fall of 2022 I was diagnosed
I was diagnosed with stage 0 breast cancer and went through two lumpectomies in April 2022, and 21 radiation treatments in May 2022, ending early June 2022. By the end of July 2022, I knew something was not right with my left lung with constant coughing, shortness of breath. In fall of 2022 I was diagnosed
TiaDave
in
Lung Conditions Community Forum
1 year ago
MANAGING BIOCHEMICAL FAILURE AFTER RADIATION THERAPY — The Importance of Considering Both PSA and PSA Doubling Time
Reposted from the Inspire PC site. What do you think? https://grandroundsinurology.com/pca-commentary-volume-174-february-2023/
Reposted from the Inspire PC site. What do you think? https://grandroundsinurology.com/pca-commentary-volume-174-february-2023/
zeitgeistxx
in
Advanced Prostate Cancer
1 year ago
Radiotherapy and diabetes
Does anyone know if radiotherapy affects blood sugar levels?
Does anyone know if radiotherapy affects blood sugar levels?
Kazza1111
in
SHARE Breast Cancer Support
1 year ago
Clear Cell reoccurrence update 3
Hi everyone, I wanted to update you all on todays experience with Professor Jayson at The Christie. Not only was he a lovely gentleman, he gave me hope back, told me I have options. He wants to go through my case from the beginning, discuss it with the MDT and come up with a plan. Things he is thinking
Hi everyone, I wanted to update you all on todays experience with Professor Jayson at The Christie. Not only was he a lovely gentleman, he gave me hope back, told me I have options. He wants to go through my case from the beginning, discuss it with the MDT and come up with a plan. Things he is thinking
Hidden
in
My Ovacome
1 year ago
The human microbiome links to prostate cancer risk and treatment (Review)
New study below [1].
Abstract.
Prostate cancer (Pca) is the second most common cancer type worldwide. Microorganisms colonized in different body parts may affect the development/progression and treatment of Pca through direct or indirect interactions. The composition of microorganisms
New study below [1].
Abstract.
Prostate cancer (Pca) is the second most common cancer type worldwide. Microorganisms colonized in different body parts may affect the development/progression and treatment of Pca through direct or indirect interactions. The composition of microorganisms
pca2004
in
Fight Prostate Cancer
1 year ago
Radiation Treatment for Gleason 8 with Rectal Lymph Node
Looking for recommendations and advice....newly diagnosed . I am 67 PSA at annual physical March 1st was 26 then rose to 32 two weeks later with second test. Going to Mayo Clinic in Jacksonville. Have had an MRI, Biopsy, Gleason (4+4)=8, and PSMA Pet Scan last week confirming it has spread to my Rectal
Looking for recommendations and advice....newly diagnosed . I am 67 PSA at annual physical March 1st was 26 then rose to 32 two weeks later with second test. Going to Mayo Clinic in Jacksonville. Have had an MRI, Biopsy, Gleason (4+4)=8, and PSMA Pet Scan last week confirming it has spread to my Rectal
MustangGuy
in
Advanced Prostate Cancer
1 year ago
Stinging/burning near tip of penis when urinating. Also, small brown sediment in urine.
---This has happened for about a week. Because of rising PSA value, will see a new oncologist next week. Radiation therapy 14 years ago, PSA rising annually, now at 2.5. Also, there is hip and thigh pain, more so at night. And an odd, mild pain in the groin. And a burning lower back pain, only
---This has happened for about a week. Because of rising PSA value, will see a new oncologist next week. Radiation therapy 14 years ago, PSA rising annually, now at 2.5. Also, there is hip and thigh pain, more so at night. And an odd, mild pain in the groin. And a burning lower back pain, only
MProust
in
Advanced Prostate Cancer
1 year ago
Firmagon Injection gone bad!
Husband got his first hormone injection yesterday to begin treatment which will include 45 Radiation Therapy sessions. He got the first shot, everything seemed ok, got the second shot and BP dropped like a rock. Could not wake him up. They called 911 took him to the hospital. He is home and doing OK
Husband got his first hormone injection yesterday to begin treatment which will include 45 Radiation Therapy sessions. He got the first shot, everything seemed ok, got the second shot and BP dropped like a rock. Could not wake him up. They called 911 took him to the hospital. He is home and doing OK
USAFproudmom
in
Prostate Cancer Network
1 year ago
A New Direction
After seven years of fighting this disease with chemo, radiation, ADT, and abiraterone, I suffer from fatigue, nerve damage and paralysis and nerve pain in my left foot from radiation treatment, as well as depression, and a constant feeling of uncertainty. However, I am now free to let go of the life
After seven years of fighting this disease with chemo, radiation, ADT, and abiraterone, I suffer from fatigue, nerve damage and paralysis and nerve pain in my left foot from radiation treatment, as well as depression, and a constant feeling of uncertainty. However, I am now free to let go of the life
dmt1121
in
Advanced Prostate Cancer
1 year ago
Results of diverticulitis caused by radiation treatments
I had 44 days of external beam radiation therapy (EBRT) to treat prostate cancer over two months. In week four I started getting intense pain and symptoms of diverticulitis. I had diverticulitis twice before, five years and ten years previously so I knew the symptoms. Radiation continued and after
I had 44 days of external beam radiation therapy (EBRT) to treat prostate cancer over two months. In week four I started getting intense pain and symptoms of diverticulitis. I had diverticulitis twice before, five years and ten years previously so I knew the symptoms. Radiation continued and after
TexasPRD
in
Pelvic Radiation Disease Association
1 year ago
Final STAMPEDE results for Abi with/out Enza when starting ADT.
New paper below [1]. "Between Nov 15, 2011, and Jan 17, 2014, 1003 patients were randomly assigned to standard of care (n=502) or standard of care plus abiraterone (n=501) in the abiraterone trial. "Between July 29, 2014, and March 31, 2016, 916 patients were randomly assigned to standard of care
New paper below [1]. "Between Nov 15, 2011, and Jan 17, 2014, 1003 patients were randomly assigned to standard of care (n=502) or standard of care plus abiraterone (n=501) in the abiraterone trial. "Between July 29, 2014, and March 31, 2016, 916 patients were randomly assigned to standard of care
pca2004
in
Fight Prostate Cancer
1 year ago
Rising PSA...again..
In December 2017 I was diagnosed with prostate cancer after a biopsy. I ignored the symptoms for many years and it cost me. In February 2018 I had surgery to remove my prostate hoping that would cure me, PSA never went to 0. By December 2019 I was alarmed enough to start ADT with Elegard and in February
In December 2017 I was diagnosed with prostate cancer after a biopsy. I ignored the symptoms for many years and it cost me. In February 2018 I had surgery to remove my prostate hoping that would cure me, PSA never went to 0. By December 2019 I was alarmed enough to start ADT with Elegard and in February
Skidooerr
in
Advanced Prostate Cancer
1 year ago
Laboratory test variance or ?
5 weeks ago I had asked my own physician for a 3 month post radiotherapy PSA and Testosterone done - the PSA was 0.01 and the Testosterone was 0.6nmol/L (17.3ng/dL) - which I felt happy with and seemed good. A week later I had a bad 12 week implant that bled and bruised badly and I could then feel
5 weeks ago I had asked my own physician for a 3 month post radiotherapy PSA and Testosterone done - the PSA was 0.01 and the Testosterone was 0.6nmol/L (17.3ng/dL) - which I felt happy with and seemed good. A week later I had a bad 12 week implant that bled and bruised badly and I could then feel
SimMartin
in
Advanced Prostate Cancer
1 year ago
Testosterone & RLS
I was aware of mild RLS from about age 10 nearly 62 years ago. Occasionally, I could control it by autosuggestion. Dramatically, this RLS stopped when I had reached puberty, 3 years later. It emerged 62 years later, immediately radiotherapy and hormone therapy for prostrate cancer commenced in 2012
I was aware of mild RLS from about age 10 nearly 62 years ago. Occasionally, I could control it by autosuggestion. Dramatically, this RLS stopped when I had reached puberty, 3 years later. It emerged 62 years later, immediately radiotherapy and hormone therapy for prostrate cancer commenced in 2012
Elouis
in
Restless Legs Syndrome
1 year ago
lutetium 177
after exploring options in Germany and London my husband had his first treatment in London on 6 April, he had pain about day 10 to 14 as the steroids finished and then pain passed. We were not expecting g the continual bleeding that started on day 18. My husband has a Foley catheter so it’s is just continual
after exploring options in Germany and London my husband had his first treatment in London on 6 April, he had pain about day 10 to 14 as the steroids finished and then pain passed. We were not expecting g the continual bleeding that started on day 18. My husband has a Foley catheter so it’s is just continual
FionaElbourne
in
Advanced Prostate Cancer
1 year ago
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