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Does anyone have any feedback on Wegener's Gramgranulomatosis?
I have Wegener's and it has primarily affected my eyes and lungs. I've been on rituximab and 25mg methotrexate for two years but I have a host of issues from taking the rituximab.
I have Wegener's and it has primarily affected my eyes and lungs. I've been on rituximab and 25mg methotrexate for two years but I have a host of issues from taking the rituximab.
Youelbeverly
in
NRAS
6 months ago
Diagnosis
Hello, my first post š I have had Tinnitus for many years. I live with it and I cope well most of the time. No one has ever looked at my ears apart from my GP. He looked in my ears and said 'yes you just have a bit of wax' you probably have Tinnitus' I complain of pain I frequently get in my right
Hello, my first post š I have had Tinnitus for many years. I live with it and I cope well most of the time. No one has ever looked at my ears apart from my GP. He looked in my ears and said 'yes you just have a bit of wax' you probably have Tinnitus' I complain of pain I frequently get in my right
Idontknow71
in
Tinnitus UK
6 months ago
Foot op
Hi I had foot surgery 6 weeks ago I had big toe fused and metatarsal heads removed, I now have a foot about 1 and half sizes smaller than the other foot.I can't find any information about this surgery, so wondering if anyone on here has had it done please
Hi I had foot surgery 6 weeks ago I had big toe fused and metatarsal heads removed, I now have a foot about 1 and half sizes smaller than the other foot.I can't find any information about this surgery, so wondering if anyone on here has had it done please
mazzy21
in
NRAS
6 months ago
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PSA following Lupron and question on scans
hi all, I am so happy to report that my dad has really improved following terrible side effects with his radiation treatment. I have posted before -he was having awful GI side effects which seemed to get worse following radiation completion. But this is all subsided which we are grateful for. dad
hi all, I am so happy to report that my dad has really improved following terrible side effects with his radiation treatment. I have posted before -he was having awful GI side effects which seemed to get worse following radiation completion. But this is all subsided which we are grateful for. dad
alysona828
in
Advanced Prostate Cancer
3 months ago
question about macuna
hi Few questions. 1. Does macuna capsule must take with benserazide or carbidopa? 2. If so, i am taking 100mg levodopa/25mg benserazide(Madopar) if I want to add 400mg mucuna15% levodopa ; so I need to take extra benserazide? thx
hi Few questions. 1. Does macuna capsule must take with benserazide or carbidopa? 2. If so, i am taking 100mg levodopa/25mg benserazide(Madopar) if I want to add 400mg mucuna15% levodopa ; so I need to take extra benserazide? thx
limcheeese22
in
Cure Parkinson's
3 months ago
Stage 4 fibrosis of the Liver
I contracted Hepatitis A in 2020, undiagnosed for 2 months. Six months later I was told I had NALD and last year I was sent for ultrasound scans and blood tests to check for cancer. In March this year, I was told I had Stage 4 Fibrosis of the liver. Does anyone know if this can be reversed, any treatments
I contracted Hepatitis A in 2020, undiagnosed for 2 months. Six months later I was told I had NALD and last year I was sent for ultrasound scans and blood tests to check for cancer. In March this year, I was told I had Stage 4 Fibrosis of the liver. Does anyone know if this can be reversed, any treatments
Wi-llow
in
British Liver Trust
3 months ago
How do you contact your Rheumatologist?
Hi lovely Lupies. Just a quick question to people in the UK regarding how you make contact with your Rheumy? I have never tried to contact my Rheumy here in `wales previously but at my last two appointments he said if you are struggling with flares contact me. Well since coming out if hospital I am
Hi lovely Lupies. Just a quick question to people in the UK regarding how you make contact with your Rheumy? I have never tried to contact my Rheumy here in `wales previously but at my last two appointments he said if you are struggling with flares contact me. Well since coming out if hospital I am
CecilyParsley
in
LUPUS UK
3 months ago
Gerd and tinnitus
Can Gerd cause issues to Eustachian tube dysfunction or problems, and in turn tinnitus?
Can Gerd cause issues to Eustachian tube dysfunction or problems, and in turn tinnitus?
Healthymetoday
in
Tinnitus UK
6 months ago
FDA approves a new IND application of 225Ac-J591 (Actinium)
The FDA has granted clearance to an investigational new drug (IND) application for 225Ac-J591 (CONV01-Ī±), a prostate-specific membrane antigen-targeted monoclonal antibody under investigation for the treatment of patients with advanced prostate cancer, announced Convergent Therapeutics, the developer
The FDA has granted clearance to an investigational new drug (IND) application for 225Ac-J591 (CONV01-Ī±), a prostate-specific membrane antigen-targeted monoclonal antibody under investigation for the treatment of patients with advanced prostate cancer, announced Convergent Therapeutics, the developer
Maxone73
in
Advanced Prostate Cancer
3 months ago
Respiratory Exposure to Highly Fluorinated Chemicals via Application of Ski Wax and Related Health Effects
Initially, I wondered why this paper had ended up in my alert. But a very brief scan read revealed this sentence: [i]PFAS exposure can adversely impact [/i][i]
cardiometabolic
[/i][i], [/i][i]
thyroid
[/i][i], liver, kidney, reproductive, and [/i][i]
immune
[/i][i] [/i][i]
health[
Initially, I wondered why this paper had ended up in my alert. But a very brief scan read revealed this sentence: [i]PFAS exposure can adversely impact [/i][i]
cardiometabolic
[/i][i], [/i][i]
thyroid
[/i][i], liver, kidney, reproductive, and [/i][i]
immune
[/i][i] [/i][i]
health[
helvella
Thyroid UK
in
Thyroid UK
6 months ago
DVLA eye test result
Two days ago I posted about waiting for my result of my eye test and was anxious it would drag on. On the 13th December I went to see my consultant, I made it obvious I was not happy with the lack of support during and after covid and that I knew my eyesight had deteriorated because of it. Two weeks
Two days ago I posted about waiting for my result of my eye test and was anxious it would drag on. On the 13th December I went to see my consultant, I made it obvious I was not happy with the lack of support during and after covid and that I knew my eyesight had deteriorated because of it. Two weeks
Ibstockblue
in
Glaucoma UK
6 months ago
Hand grip training for lowering blood pressure?
Good morning all you helpful people. Iāve just heard a fascinating thing on the Zoe podcast, about hand grip strength and high blood pressure. Apparently, using a hand-held device to strengthen your hand grip over several weeks can effectively lower your blood pressure. Iāve had a look online, and it
Good morning all you helpful people. Iāve just heard a fascinating thing on the Zoe podcast, about hand grip strength and high blood pressure. Apparently, using a hand-held device to strengthen your hand grip over several weeks can effectively lower your blood pressure. Iāve had a look online, and it
Outsidethelines
in
Atrial Fibrillation Support
6 months ago
Addition of an ARSI to standard ADT significantly increases the risk of fractures and falls in men with prostate cancer
Jones C, Gray S, Brown M, et al. Risk of fractures and falls in men with advanced or metastatic prostate cancer receiving androgen deprivation therapy and treated with novel androgen receptor signalling inhibitors: a systematic review and meta-analysis of randomised controlled trials. Eur Urol Oncol.
Jones C, Gray S, Brown M, et al. Risk of fractures and falls in men with advanced or metastatic prostate cancer receiving androgen deprivation therapy and treated with novel androgen receptor signalling inhibitors: a systematic review and meta-analysis of randomised controlled trials. Eur Urol Oncol.
Graham49
in
Advanced Prostate Cancer
3 months ago
Cortisol test result
Hi, I have just had some blood test results come back today. Currently on 5.5mg, but have been taking 6mg (Sat 30th..Sun, Mon, Tues) as have had lots going on, bit stressful but good stress not bad! the 0.5mg did help. All results are ok including PV, ESR, CRP. Also had a basal cortisol test (partially
Hi, I have just had some blood test results come back today. Currently on 5.5mg, but have been taking 6mg (Sat 30th..Sun, Mon, Tues) as have had lots going on, bit stressful but good stress not bad! the 0.5mg did help. All results are ok including PV, ESR, CRP. Also had a basal cortisol test (partially
Saffron23
in
PMRGCAuk
3 months ago
'Wednesday Word"
Since my question yesterday was concerning 'brain fog', I thought my word for today should be [u][i]
encephalopathy
[/i][/u] - here are specifics about the word This is a blanket term referring to any brain dysfunction. It can commonly be called 'brain fog'. However, [u][i]
encephalopathy
Since my question yesterday was concerning 'brain fog', I thought my word for today should be [u][i]
encephalopathy
[/i][/u] - here are specifics about the word This is a blanket term referring to any brain dysfunction. It can commonly be called 'brain fog'. However, [u][i]
encephalopathy
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Gallstone
Back in June I went on a work trip to London , which I will state was one of the most stressful time I have experienced. I was staying in a hotel room and I awoke early hours in the morning with V&D , luckily I manage to drive home safely however nausea was terrible. I then had V&D for 10 days. At this
Back in June I went on a work trip to London , which I will state was one of the most stressful time I have experienced. I was staying in a hotel room and I awoke early hours in the morning with V&D , luckily I manage to drive home safely however nausea was terrible. I then had V&D for 10 days. At this
Griffyndor_Brat
in
British Liver Trust
8 months ago
PSA after chemo # 4
Hi My husbands last chemo was # 3 and PSA was 0.14, he just got the results from Chemo # 4 and it was at 0.12. This is the slowest decline if you look in the profile Iisted all his PSA results. Should we be worried that this last one barely moved ? Or is this slower decline good news? Thanks for any
Hi My husbands last chemo was # 3 and PSA was 0.14, he just got the results from Chemo # 4 and it was at 0.12. This is the slowest decline if you look in the profile Iisted all his PSA results. Should we be worried that this last one barely moved ? Or is this slower decline good news? Thanks for any
positive-thinking
in
Advanced Prostate Cancer
3 months ago
How Much Carbidopa Levodopa After 5-10 Years? Any other meds?
I am about to "celebrate" the six year anniversary of my Parkinson's disease diagnosis. I currently take five 25/100 Carbidopa Levodopa tablets per day, usually around 9:00 a.m., noon, 3:00 p.m., 6:00 p.m., and 9:00 p.m. although timing varies slightly from day to day. Lately, I have noticed that I
I am about to "celebrate" the six year anniversary of my Parkinson's disease diagnosis. I currently take five 25/100 Carbidopa Levodopa tablets per day, usually around 9:00 a.m., noon, 3:00 p.m., 6:00 p.m., and 9:00 p.m. although timing varies slightly from day to day. Lately, I have noticed that I
jimcaster
in
Cure Parkinson's
3 months ago
Fear of getting ill (nosophobia)
Hello, does anyone else have the fear of getting ill? It's really crippling me at the moment. The other day I had a huge "floater" in my eye. I have been to the eye doctor and a retina specialist and everything is ok. But I'm still having extremely bad anxiety attacks. I'm finding it difficult to
Hello, does anyone else have the fear of getting ill? It's really crippling me at the moment. The other day I had a huge "floater" in my eye. I have been to the eye doctor and a retina specialist and everything is ok. But I'm still having extremely bad anxiety attacks. I'm finding it difficult to
Tobytime45
in
Anxiety Support
6 months ago
Recommendations for overcoming dizzy episodes?
I have Tinnitus and Pulsatile tinnitus, since summer have had intermittent muffled ears, bit of dizziness. Past 3 weeks have had 24/7 clogged muffled ears like I've got my entire head wrapped in cotton wool and then in a box. What as really hit me hard is the swoosh of dizziness that suddenly hits
I have Tinnitus and Pulsatile tinnitus, since summer have had intermittent muffled ears, bit of dizziness. Past 3 weeks have had 24/7 clogged muffled ears like I've got my entire head wrapped in cotton wool and then in a box. What as really hit me hard is the swoosh of dizziness that suddenly hits
hollyrain
in
Tinnitus UK
6 months ago
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