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The Shelagh Cheesman Lupus Information Day - 16th March
The Cambridgeshire Lupus Group will be hosting an Information Day on Saturday 16th March, in memory of Shelagh Cheesman, who died as a result of cancer in March 2018. To register for your free ticket, please visit - https://lupusuk.org.uk/shelagh-cheesman-lupus-day/ If you have any questions, please
The Cambridgeshire Lupus Group will be hosting an Information Day on Saturday 16th March, in memory of Shelagh Cheesman, who died as a result of cancer in March 2018. To register for your free ticket, please visit - https://lupusuk.org.uk/shelagh-cheesman-lupus-day/ If you have any questions, please
michaellasmith
Administrator
in
LUPUS UK
5 months ago
lupus and surgery
hi my name is Diana I have lupus and I am looking to do a hip dip and bum filler. I and on medication my lupus is topical it only affects my skin making it really dry and also my scalp really dry. I am on medication once a day It only affects my skins in the sun here in the uk but not when I’m home
hi my name is Diana I have lupus and I am looking to do a hip dip and bum filler. I and on medication my lupus is topical it only affects my skin making it really dry and also my scalp really dry. I am on medication once a day It only affects my skins in the sun here in the uk but not when I’m home
Shawna3g
in
LUPUS UK
5 months ago
sound distortion
hi I am new to the forum and would like to share and hear from other members on this subject I am suffering from tinnitus for many year following a me’nie’re’s disease this cause a loss of hearing as well. I have an hearing aid which helps to reduce the tinnitus. Some weeks ago I had a strange sound
hi I am new to the forum and would like to share and hear from other members on this subject I am suffering from tinnitus for many year following a me’nie’re’s disease this cause a loss of hearing as well. I have an hearing aid which helps to reduce the tinnitus. Some weeks ago I had a strange sound
Blueberry-muffin
in
Tinnitus UK
4 months ago
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Improved?
Had investigations for right ear polyp that had been present for over 20 years but making routine ear micro suctioning difficult (long standing over production of ear wax). Had hearing test but waited for results (October 2023). Went to concert 3rd Nov and mistakenly did not wear ear plugs. Very loud
Had investigations for right ear polyp that had been present for over 20 years but making routine ear micro suctioning difficult (long standing over production of ear wax). Had hearing test but waited for results (October 2023). Went to concert 3rd Nov and mistakenly did not wear ear plugs. Very loud
GlenM12
in
Tinnitus UK
4 months ago
Reducing or eliminating IBS symptoms
I thought I should share this, if your IBS symptoms is frequent stooling (not diarrhoea) you can try peppermint oil capsules say 30 mins to 1 hour before a meal (once a day) combined with deliberate reduction in stress and relaxation from worry; I believe it will work, at least 90% reduction. The best
I thought I should share this, if your IBS symptoms is frequent stooling (not diarrhoea) you can try peppermint oil capsules say 30 mins to 1 hour before a meal (once a day) combined with deliberate reduction in stress and relaxation from worry; I believe it will work, at least 90% reduction. The best
overcomer42
in
IBS Network
4 months ago
Thyroid scan
Clinical Indication: croaky voice, underactive thyroid Findings: Patient highlights known Hashimoto's. The thyroid is atrophic and hypoechoic in keeping with end stage diffuse thyroid disease. It has an overall volume of 2.1 cc; the right lobe has a volume of 1.3 cc, while the left a volume of
Clinical Indication: croaky voice, underactive thyroid Findings: Patient highlights known Hashimoto's. The thyroid is atrophic and hypoechoic in keeping with end stage diffuse thyroid disease. It has an overall volume of 2.1 cc; the right lobe has a volume of 1.3 cc, while the left a volume of
Flick9
in
Thyroid UK
5 months ago
IOP and Dry Eye Drops
Has anyone experienced side effects from using Brinzolamide and Bimatoprost drops together with dry eye drops?
Has anyone experienced side effects from using Brinzolamide and Bimatoprost drops together with dry eye drops?
Bill_Evans
in
Glaucoma UK
4 months ago
Tinnitus
I am almost 60 and I have had tinnitus at least 40 years in both ears , lots of scar tissues from ear operations . Burst ear drums . Over the years, Many illnesses and chronic conditions, on lots medications Has worsend over the last 6-8 years !! . It's very disabling, miserable and depressing ,
I am almost 60 and I have had tinnitus at least 40 years in both ears , lots of scar tissues from ear operations . Burst ear drums . Over the years, Many illnesses and chronic conditions, on lots medications Has worsend over the last 6-8 years !! . It's very disabling, miserable and depressing ,
Stavrou1
in
Tinnitus UK
4 months ago
Juvia?
Hi, has anybody in this group tried Juvia? If so did it help and are you still using it? It sounds quite an interesting concept: its mixture of enzymes etc starts to digest carbohydrates before they hit the intestines. This lessens the chance of food fermenting and helping stop bloating, gas and bowel
Hi, has anybody in this group tried Juvia? If so did it help and are you still using it? It sounds quite an interesting concept: its mixture of enzymes etc starts to digest carbohydrates before they hit the intestines. This lessens the chance of food fermenting and helping stop bloating, gas and bowel
CrampyMan
in
IBS Network
9 months ago
Vabysmo or Eylea
Hi All, I need an urgent advice from the experts here. My father's dry amd has recently progressed to wet and we have been advised to get an Anti VEGF injection. He has advanced glaucoma as well and this is his only working eye (left). The other eye is already affected by glaucoma (90-95%). We are
Hi All, I need an urgent advice from the experts here. My father's dry amd has recently progressed to wet and we have been advised to get an Anti VEGF injection. He has advanced glaucoma as well and this is his only working eye (left). The other eye is already affected by glaucoma (90-95%). We are
VikPa
in
Macular Society
4 months ago
levothyroxine induced lupus erythematosus?
Hiya, I am fairly new to all this, I have been on Levothryroxine for Hypothyroid (Hashimoto’s disease.) since June. My initial symptoms started after my first covid infection. All was going well until November time when I started to develop a Malar rash in the classic butterfly shape on my face. I don
Hiya, I am fairly new to all this, I have been on Levothryroxine for Hypothyroid (Hashimoto’s disease.) since June. My initial symptoms started after my first covid infection. All was going well until November time when I started to develop a Malar rash in the classic butterfly shape on my face. I don
Baker16
in
Thyroid UK
5 months ago
Gluten ataxia
I was diagnosed ga last yr but got steadily worse since I have been very careful what I eat ( no cheating ) but worse symptoms
I was diagnosed ga last yr but got steadily worse since I have been very careful what I eat ( no cheating ) but worse symptoms
Tazwaz
in
Ataxia UK
4 months ago
feeling down
Hi there , I have had IBS for 10 years now it is generally IBS c but recently it has changed to IBS d I still visit the toilet at the same time each day (usuallytwice) but instead of Constipation I end up rushing and end up filling the toilet non solid but not bad diarrhea . Has anybody else had this
Hi there , I have had IBS for 10 years now it is generally IBS c but recently it has changed to IBS d I still visit the toilet at the same time each day (usuallytwice) but instead of Constipation I end up rushing and end up filling the toilet non solid but not bad diarrhea . Has anybody else had this
nigelroget
in
IBS Network
4 months ago
Appendicitis and PMR?
I’m 67, have well controlled PMR and take 5mg of Prednisolone. I have been on a low carb diet because of a diagnosis of pre diabetes. On occasion I have been feeling tired recently and put that down to the change of diet. Ten days ago I got severe stomach cramps and a temperature and went to the GP
I’m 67, have well controlled PMR and take 5mg of Prednisolone. I have been on a low carb diet because of a diagnosis of pre diabetes. On occasion I have been feeling tired recently and put that down to the change of diet. Ten days ago I got severe stomach cramps and a temperature and went to the GP
Loco99
in
PMRGCAuk
9 months ago
Ureter Restriction from Radiation Treatments?
While I don't have any symptoms (yet), a CT scan and ultrasound tests show that the lower part of my right ureter tube is very narrow and causing the kidney to swell, apparently from restricted flow of urine through the ureter. My University of Chicago Medicine urologist suspects scarring in the ureter
While I don't have any symptoms (yet), a CT scan and ultrasound tests show that the lower part of my right ureter tube is very narrow and causing the kidney to swell, apparently from restricted flow of urine through the ureter. My University of Chicago Medicine urologist suspects scarring in the ureter
Polaris1
in
Advanced Prostate Cancer
2 months ago
PPIs?
Just wondering how many are taking a PPI if they are taking Pred and alendronic acid? I have not taken any Omeprazole so far and my stomach has been fine but for the first time last night I had painful, burning reflux and I can still feel the after effects today so am not eating very much. This is
Just wondering how many are taking a PPI if they are taking Pred and alendronic acid? I have not taken any Omeprazole so far and my stomach has been fine but for the first time last night I had painful, burning reflux and I can still feel the after effects today so am not eating very much. This is
Miserere
in
PMRGCAuk
9 months ago
feeling a bit overwhelmed and lost
In September 2023 I found out by chance that I had apparently been diagnosed with lupus 15-20 years ago. I haven’t been told at any point in this time by a doctor - I found out almost by accident from my GP physio. Since then my current GP has been initially verbally supportive although said they knew
In September 2023 I found out by chance that I had apparently been diagnosed with lupus 15-20 years ago. I haven’t been told at any point in this time by a doctor - I found out almost by accident from my GP physio. Since then my current GP has been initially verbally supportive although said they knew
opalescenthope
in
LUPUS UK
5 months ago
a newby to Lupus
Hello folks, I was only diagnosed with lupus a few days ago, after six months of being told I have stage4 CKD, currently at 21% .Eight years ago I was diagnosed with severe anaemia by my GP, which with retrospect I think was a symptom of Lupus and the cause wasn’t looked into. I don’t have the energy
Hello folks, I was only diagnosed with lupus a few days ago, after six months of being told I have stage4 CKD, currently at 21% .Eight years ago I was diagnosed with severe anaemia by my GP, which with retrospect I think was a symptom of Lupus and the cause wasn’t looked into. I don’t have the energy
C0rnflakes
in
LUPUS UK
5 months ago
Switching From Adalimumab to Benepali
After a few years with Adalimumab with increasing skin psoriasis to the hands and back of head one my rheumy has advised Benepali ...not because I love Italian food but it was havoc on my skin. I ask has anyone had a transition with these two biologics with any symptoms?
After a few years with Adalimumab with increasing skin psoriasis to the hands and back of head one my rheumy has advised Benepali ...not because I love Italian food but it was havoc on my skin. I ask has anyone had a transition with these two biologics with any symptoms?
Frankiefocus
in
NRAS
4 months ago
Fibro medication and alcahol
Diagnosed a few years ago but decided not to take medication. The only meds I take are for my underactive Thyroid,i also have Ostioarthritis and Scoliosis but finding my pain is gradually feeling worse. What medication would you recommend? I am sociable and enjoy a sociable beer so is there anything
Diagnosed a few years ago but decided not to take medication. The only meds I take are for my underactive Thyroid,i also have Ostioarthritis and Scoliosis but finding my pain is gradually feeling worse. What medication would you recommend? I am sociable and enjoy a sociable beer so is there anything
henrythewasp
in
Fibromyalgia Action UK
5 months ago
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