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Intermittent fasting
Does anyone have experience with intermittent fasting? It is supposed to help with autoimmune diseases.
Does anyone have experience with intermittent fasting? It is supposed to help with autoimmune diseases.
Swizzly
in
PMRGCAuk
2 months ago
Nearly 14 years on - time has flown.
On Friday 16th April 2010 I joined the Pernicious Anaemia Society and posted the following: “I was diagnosed with PA back in 1972 consequent upon having had surgery for a peptic ulcer in April 1959 at the tender age of 17. In those days I was not many years from having to be put on a diet of raw liver
On Friday 16th April 2010 I joined the Pernicious Anaemia Society and posted the following: “I was diagnosed with PA back in 1972 consequent upon having had surgery for a peptic ulcer in April 1959 at the tender age of 17. In those days I was not many years from having to be put on a diet of raw liver
clivealive
Forum Support
in
Pernicious Anaemia Society
8 months ago
Is Low Dose Naltrexone (LDN) ever used in Sjogren's syndrome?
Is Low Dose Naltrexone (LDN) ever used in Sjogren's syndrome? Answered by Linda Elsegood, LDNRT Founder https://youtu.be/NQXRcsKpdOk
Is Low Dose Naltrexone (LDN) ever used in Sjogren's syndrome? Answered by Linda Elsegood, LDNRT Founder https://youtu.be/NQXRcsKpdOk
Shewulf
Administrator
in
LDN Research Trust
3 months ago
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lupus or fibromyalgia
hi has anyone else in a similarly position my GP can’t tell whether I have fibromyalgia or lupus or a combination of the two
hi has anyone else in a similarly position my GP can’t tell whether I have fibromyalgia or lupus or a combination of the two
Pricey110
in
Fibromyalgia Action UK
3 months ago
fibromyalgia or lupus
hi has anyone else been diagnosed with fibromyalgia but you think it’s more likely to be Lupus. I am constantly tired and just don’t have any energy, hate direct sunlight and have constant pain in my joints. How do I get my GP to actually come to a conclusion it’s so frustrating not knowing.
hi has anyone else been diagnosed with fibromyalgia but you think it’s more likely to be Lupus. I am constantly tired and just don’t have any energy, hate direct sunlight and have constant pain in my joints. How do I get my GP to actually come to a conclusion it’s so frustrating not knowing.
Pricey110
in
LUPUS UK
3 months ago
Enterosgel
Hi I’ve been suffering from haemorrhoids for a few months. It’s been getting better very gradually by eating a very high fibre diet to keep my stool very soft. But this has had the side effect of causing urgency several times a day. It’s making it very difficult to leave the house. I’ve had ibs for
Hi I’ve been suffering from haemorrhoids for a few months. It’s been getting better very gradually by eating a very high fibre diet to keep my stool very soft. But this has had the side effect of causing urgency several times a day. It’s making it very difficult to leave the house. I’ve had ibs for
MurphysSoulMate
in
IBS Network
7 months ago
Blood tests whilst pregnant
This is a question after reading posts+research. I understand there is a Def link between underactive thyroid/Hashimotos kicking off whilst pregnant+a link between Hashimotos+pre-eclampsia. Speaking from experience many years ago, for me this seems clear. So, just as mother's are checked re diabetes
This is a question after reading posts+research. I understand there is a Def link between underactive thyroid/Hashimotos kicking off whilst pregnant+a link between Hashimotos+pre-eclampsia. Speaking from experience many years ago, for me this seems clear. So, just as mother's are checked re diabetes
Lottyplum
in
Thyroid UK
3 months ago
Recurrence?im scared
I don't know where to start because I'm scared to death. I already made a post about my situation but I need to talk more about it with people who understand my situation. My mother, my beloved mother... my reason for living. In 2020 she underwent surgery for stage one seromucinous adenocarcinoma
I don't know where to start because I'm scared to death. I already made a post about my situation but I need to talk more about it with people who understand my situation. My mother, my beloved mother... my reason for living. In 2020 she underwent surgery for stage one seromucinous adenocarcinoma
Belindajames
in
My Ovacome
4 months ago
Medical lecture and Q&A - Hosted by Dr. Arvind Kaul (with guest speakers) - 15th June 9.30am
Consultant Rheumatologist Dr Arvind Kaul, the Head of Rheumatology & Lupus Patient Care at St. George's Hospital will be hosting the next South London Lupus Group Medical Patient-Focused Lecture. Our agenda for the morning as follows: 1. 09.30: Registration and Welcome 2. 10.00: Melanie Sloan:
Consultant Rheumatologist Dr Arvind Kaul, the Head of Rheumatology & Lupus Patient Care at St. George's Hospital will be hosting the next South London Lupus Group Medical Patient-Focused Lecture. Our agenda for the morning as follows: 1. 09.30: Registration and Welcome 2. 10.00: Melanie Sloan:
michaellasmith
Administrator
in
LUPUS UK
3 months ago
What is folic acid used for?
For other reasons, nothing to do with Pernicious Anaemia, I was checking the Patient Information Leaflet for a UK folic acid product. And I noticed this bit: [i]Ennogen Pharma Limited[/i] [i]
Folic Acid Tablets 5mg
[/i] [i]1. WHAT FOLIC ACID TABLETS ARE AND[/i] [i]WHAT THEY ARE USED FOR[/i]
For other reasons, nothing to do with Pernicious Anaemia, I was checking the Patient Information Leaflet for a UK folic acid product. And I noticed this bit: [i]Ennogen Pharma Limited[/i] [i]
Folic Acid Tablets 5mg
[/i] [i]1. WHAT FOLIC ACID TABLETS ARE AND[/i] [i]WHAT THEY ARE USED FOR[/i]
helvella
in
Pernicious Anaemia Society
3 months ago
Autoimmune disease?
hello, Looking for advice/reassurance just need somewhere to unload really. It all started off with upper right sided abdominal pain which took me to the doctors back in February. Dull ache burning sensation not unbearable but I’m aware of the pain. Ultrasound scan on upper abdo normal. Bloods showed
hello, Looking for advice/reassurance just need somewhere to unload really. It all started off with upper right sided abdominal pain which took me to the doctors back in February. Dull ache burning sensation not unbearable but I’m aware of the pain. Ultrasound scan on upper abdo normal. Bloods showed
Farfield
in
British Liver Trust
3 months ago
Anyone know about Dr's or consultants prescribing metformin for endometriosis?
I recently got access to ALL my medical records from the consultants I had been referred to over the years and saw that in the past I had been prescribed metformin, altavita and amitryptaline at the same time by an endocrinologist. I presumed at the time it was for my underactive Thyroid and wasn't on
I recently got access to ALL my medical records from the consultants I had been referred to over the years and saw that in the past I had been prescribed metformin, altavita and amitryptaline at the same time by an endocrinologist. I presumed at the time it was for my underactive Thyroid and wasn't on
Escapologygirl
in
Endometriosis UK
3 months ago
When to test?
Good morning.....I have PA diagnosed in 2016. My younger daughter has Sapho Syndrome (autoimmune) and has also suffered Endometriosis (?autoimmune) for nearly 30 years....She is about to have an endoscopy, also several bi opsies. I keep feeling that a lot of her symptoms could be PA...I have eventually
Good morning.....I have PA diagnosed in 2016. My younger daughter has Sapho Syndrome (autoimmune) and has also suffered Endometriosis (?autoimmune) for nearly 30 years....She is about to have an endoscopy, also several bi opsies. I keep feeling that a lot of her symptoms could be PA...I have eventually
edeuweed
in
Pernicious Anaemia Society
6 months ago
How effective is fenofibrate for itch?
My doctor suggested a few different drugs, like rifampricin, naltrexone, and fenofibrate for my itch. He prescribed fenofibrate as he thinks it works best. Does anyone here take it and if so, has it helped? I'm worried about the warnings it comes with about severe liver damage.
My doctor suggested a few different drugs, like rifampricin, naltrexone, and fenofibrate for my itch. He prescribed fenofibrate as he thinks it works best. Does anyone here take it and if so, has it helped? I'm worried about the warnings it comes with about severe liver damage.
Carly92
in
PBC Foundation
8 months ago
Weight, bloating, and itchy arms
After a long, tortuous fight to get diagnosed and treated with/for hypothyroidism, which was achieved almost entirely with the help and info from this forum, I think that my meds are now very close to perfect and my blood test results are continuing to improve. So thank you again to everyone. But I
After a long, tortuous fight to get diagnosed and treated with/for hypothyroidism, which was achieved almost entirely with the help and info from this forum, I think that my meds are now very close to perfect and my blood test results are continuing to improve. So thank you again to everyone. But I
noquitter
in
Thyroid UK
8 months ago
New Post, community only please
HiI found out I had APS during my 8th pregnancy in 2006. I had PEs. Fast forward to 2024. One of my adult daughters had PEs in pregnancy, horrific treatment from hospital, which was minutes from losing both my daughter and her baby (at 39 weeks) I'm now waiting to have a genetic test for APs as I
HiI found out I had APS during my 8th pregnancy in 2006. I had PEs. Fast forward to 2024. One of my adult daughters had PEs in pregnancy, horrific treatment from hospital, which was minutes from losing both my daughter and her baby (at 39 weeks) I'm now waiting to have a genetic test for APs as I
Dawnm10
in
Hughes Syndrome APS Forum
3 months ago
Shingles Jab
I noted that Lupus sufferers over 50 were supposed to be eligible for the Shingrix jab. However, after requesting one from the Surgery the receptionist said no. I did recently get the over 75s Covid booster without asking, courtesy of my immune system, , which I thought over the top. However, as rashes
I noted that Lupus sufferers over 50 were supposed to be eligible for the Shingrix jab. However, after requesting one from the Surgery the receptionist said no. I did recently get the over 75s Covid booster without asking, courtesy of my immune system, , which I thought over the top. However, as rashes
Stewart64
in
LUPUS UK
3 months ago
Pulsetile tinnitus
Hi Folks, A kind person sent me this link so I could find people to talk to about this thing that invaded my life last February. So, I'm not going to moan on but out of the blue the above tinnitus started. It has affected my mental health and gives me panic attacks. I watch tv and listen to music and
Hi Folks, A kind person sent me this link so I could find people to talk to about this thing that invaded my life last February. So, I'm not going to moan on but out of the blue the above tinnitus started. It has affected my mental health and gives me panic attacks. I watch tv and listen to music and
horsewhispere
in
Tinnitus UK
36 minutes ago
AF causing head pain??
Hi everyone, my father has been suffering from extreme head pain, lightheadness, spells of blacking out, paleness, nausea and other symptoms. He has had two MRIs on his head which the neurologist keep referring him back to the cardiology team as they keep saying it’s fine. They have done a myocardial
Hi everyone, my father has been suffering from extreme head pain, lightheadness, spells of blacking out, paleness, nausea and other symptoms. He has had two MRIs on his head which the neurologist keep referring him back to the cardiology team as they keep saying it’s fine. They have done a myocardial
Emmarandall24
in
Atrial Fibrillation Support
17 hours ago
Lupus and Sjogrens issue
Has anybody ever had issues with lupus/sjogrens in their ears? I caught a cold and mucus has settled in my Eustachian tubes or something and they have been blocked now for over 15 months. I have so much fullness and pressure in both ears and I have lost a lot of my hearing. Prednisone hasn't helped
Has anybody ever had issues with lupus/sjogrens in their ears? I caught a cold and mucus has settled in my Eustachian tubes or something and they have been blocked now for over 15 months. I have so much fullness and pressure in both ears and I have lost a lot of my hearing. Prednisone hasn't helped
Nanosaint
in
LUPUS UK
20 hours ago
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