A kind person sent me this link so I could find people to talk to about this thing that invaded my life last February.
So, I'm not going to moan on but out of the blue the above tinnitus started. It has affected my mental health and gives me panic attacks. I watch tv and listen to music and try to be amongst friends so I can't hear it.
I was an urgent referral last February and haven't heard from ENT in Inverness yet. Had visions of tumour, but I think I'd know about it by now...well the doc thinks so.
I shall be 72 next month.....but a very youthful one (female). I'm not giving up just yet.
Many thanks for listening and look forward to meeting everyone....oh, and I live in the Highlands of Scotland.
cheers..xx
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horsewhispere
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Hi there untold.....thanks for messaging. Yes, I pressed the 'r' but everything disappeared! I don't know how to amend it. I'm afraid I'm not much of a techy...neither is my husband....so you've got what sounds like the French version😜
Good morning… white noise is great for tinnitus… that and mindful meditations to get off to sleep. You’ll eventually learn to live with it but it is very disturbing at initial onset. Mine arrived with a bang in the form of hypercussis. So glad it morphed into normal tinnitus. Some people find hearing aids help it. Your among friends here. Keep searching for what best works for you to alleviate this hideous condition
Thank you AussieHeart for sharing your experience and for welcoming me onboard. I'm waiting for an ENT appointment, so I hope I get some good feedback from them too. Many thanks.🙂
I had pulsatile tinnitus for quite a long time several years ago and I know how difficult it is to live with. I found ear plugs helped me sleep- they make normal tinnitus worse but they relieved my pulsatile at nightime. I had a CT scan which was clear so NHS didn't offer any more help other than suggesting a sound machine. I got a flat speaker & placed it under my pillow and downloaded 'air conditioner' noise from Youtube as this seemed to work best for me. My pulsatile tinnitus went away eventually so I do hope you find that yours goes too!🤞
Many thanks for your encouraging message, it gives me some hope and the possibility that maybe my PT will disappear too. It's a day at a time at the moment which I expect it was for you too.🤞
I have had tinnitus for decades, and pulsatile tinnitus off and on for at least 20 years. The other tinnitus is permanent and never ending, the pulsatile comes and goes on its own agenda. I have had MRIs and a CAT scan and no tumour of any kind has ever been found. The one thing that was found on one side was a vascular loop which might have been the cause in the left ear, but is of itself not a cause for concern. Once I received a cochlear implant in that side the pulsatile tinnitus disappeared (but not the other tinnitus, which stayed about the same). I had several months of pulsatile tinnitus in my right ear earlier this year, then one day, gone. This to reassure you that pulsatile tinnitus whether on one side or two is probably not a tumour. I'm in the US, and so things move much more quickly. You need the MRI (or CAT scan) just to rule out anything nasty, and I strongly suggest that you start making a nuisance of yourself by calling your doctor and the ENT department to see what is happening. I realise that with the NHS as it is that may not do you much good, but worth the ask if you haven't already done it.
I am about the same age as you and consider myself to be in good health and youthful(ish). I have found that just keeping busy is what helps the most. It certainly doesn't stop the tinnitus, but it does stop me from focussing on it. It doesn't need to be a loud activity, reading works as does sewing, as well as socialising etc. Just the redirection to something else seems to be key, for me. Others do different things including white noise, background noise etc. As I have had severe hearing loss they didn't work too well. And now that I'm using an implant and a hearing aid I can hear very nicely, but don't really like extra background noise.
Good luck. I hope you get an appointment soon. Trying to habituate is all you can do, as there is, as yet, no cure for tinnitus - although current research is possibly in a better place than it's been for a very long time.
Many thanks for replying to my post..especially from across the pond. Regarding an appointment with ENT, My doctor has written to them twice with a urgent referral and I have rung them three times. All they can say is that I'm slowly moving up the list and it might be weeks yet...how long is a piece of string?!...when I mentioned about the urgent referrals they said they had quite a few UR's on the list who haven't ben seen yet. So it's a waiting game I'm afraid. I could go to a private clinic and have a consultation for about £200 but I'll leave it a little while yet. The PT is in my right ear and I have ringing in my other ear! Happy days. Anyway, I shall bear in mind everything that everybody has said and report back if there's any change. Have a good day.
tumours are very, very rare . I have one sided T so was referred for an MRI , 3 month wait. I just couldn't cope with the stress, so went private. That was 20 odd years ago so quite expensive then. Was it worth it , yes at that time for my own peace of mind. However this time when Mr T resurfaced, I didn't bother , I've learnt a lot on here.
Many thanks for the feedback. Yes, thanks to everyone's kind responses I'm learning a lot too! It's a real pain isn't it? I was thinking the other day...as you do!.... that I may never know what silence is like again. I think weird things like that. But it's not funny is it? Thanks KTC74.🙂🙂
That to me is the irony and the oddest sensation. I am completely deaf in one ear, and now have a Cochlear Implant on that side, and severely to profoundly deaf in the other ear, so when I am somewhere completely alone, I hear very little if I'm not using the processor and HA. And yet I'm never in silence because of the tinnitus.
We never knew how much silence was worth !!. Sometimes I cried more about that than the actual T noise. A note of hope, after many years I did habituate and could only hear the T when in complete silence and then only if I made a point of trying to hear it . Guess that's why I'm not as depressed as before. Just hoping it goes the same way . But not holding my breath. I've got sciatica at the moment. Its very painful. but I think I'd rather have my T than ( as some people have) constant pain. Suppose I could think of myself as lucky.
I really feel for you with the sciatica...it's excruciating isn't it? I get bouts of it from time to time and as we know, it has it's own agenda! There's no telling how long it will last either....how long is a piece of string? It's just plain cruel! Thanks for your message and have a pleasant evening ......or rather, try to.☺️
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