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Dr. Jones' Knowledge
Several times a week I want to share some of Dr. Jones' statements regarding PBC These are all taken from his book [u][i]The Definitive Guide for Patients Who Have Primary Biliary Cholangitis. I [/i][/u]think it's important to share some of the basics of this complicated disease. If you have any questions
Several times a week I want to share some of Dr. Jones' statements regarding PBC These are all taken from his book [u][i]The Definitive Guide for Patients Who Have Primary Biliary Cholangitis. I [/i][/u]think it's important to share some of the basics of this complicated disease. If you have any questions
DonnaBoll
Administrator
in
PBC Foundation
1 month ago
Recurrence?im scared
I don't know where to start because I'm scared to death. I already made a post about my situation but I need to talk more about it with people who understand my situation. My mother, my beloved mother... my reason for living. In 2020 she underwent surgery for stage one seromucinous adenocarcinoma
I don't know where to start because I'm scared to death. I already made a post about my situation but I need to talk more about it with people who understand my situation. My mother, my beloved mother... my reason for living. In 2020 she underwent surgery for stage one seromucinous adenocarcinoma
Belindajames
in
My Ovacome
3 months ago
New diagnosis - what to expect/demand from GP
I had my second child in August 2022 and to be honest I've not felt right since. Since going back to work in June last year I've been permanently exhausted but it's just got worse and worse. Totally mental fog, can't focus, constantly yawning my head off. My body aches constantly but all the while I
I had my second child in August 2022 and to be honest I've not felt right since. Since going back to work in June last year I've been permanently exhausted but it's just got worse and worse. Totally mental fog, can't focus, constantly yawning my head off. My body aches constantly but all the while I
Whatdidyousay
in
Thyroid UK
1 day ago
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Thyroid disease link with lupus and fibromyalgia
Hello I need to try to understand about my current situation I have underactive thyroid for which I’m prescribed levothyroxine But I have told my drs about feeling so wiped out so tired it hurts falling asleep during the day but not sleeping through the night I have been diagnosed with atrial
Hello I need to try to understand about my current situation I have underactive thyroid for which I’m prescribed levothyroxine But I have told my drs about feeling so wiped out so tired it hurts falling asleep during the day but not sleeping through the night I have been diagnosed with atrial
Dogsareangels
in
Thyroid UK
4 days ago
PMR/GCA and Sjogrens disease
Does anyone have Sjogren’s disease along with PMR/CGA? For months I’ve been struggling with worsening vision in my left eye, and trying to figure out if I was having a flare. The left eye vision is like it was before cataract surgery, worse some times than others, especially after reading. Opthomologist
Does anyone have Sjogren’s disease along with PMR/CGA? For months I’ve been struggling with worsening vision in my left eye, and trying to figure out if I was having a flare. The left eye vision is like it was before cataract surgery, worse some times than others, especially after reading. Opthomologist
Mstiles
in
PMRGCAuk
4 days ago
Gluten and B12 deficiency
Is there a link between B12 deficiency and gluten sensitivity? My neuropathy has massively improved since I started self injecting regularly but I’ve noticed it returns slightly after eating bread, pasta or other foods containing gluten. Alcohol has an effect too I think. Trying to put the pieces of
Is there a link between B12 deficiency and gluten sensitivity? My neuropathy has massively improved since I started self injecting regularly but I’ve noticed it returns slightly after eating bread, pasta or other foods containing gluten. Alcohol has an effect too I think. Trying to put the pieces of
Alilev
in
Pernicious Anaemia Society
4 days ago
Hello, any help welcome
Hi all,I've been told I have an underactive thyroid recently after feeling very tired and achy for a few months, and having a blood test. No treatment as yet, seems more tests are to follow. I've become much more tired, a bit weepy ( not like me at all😔). And, horror of horrors, I'm gaining weight
Hi all,I've been told I have an underactive thyroid recently after feeling very tired and achy for a few months, and having a blood test. No treatment as yet, seems more tests are to follow. I've become much more tired, a bit weepy ( not like me at all😔). And, horror of horrors, I'm gaining weight
cheeseandonioncrisps
in
Thyroid UK
4 days ago
Sarcoidosis
Hi I have Lupus and a few other auto diseases , just a quick question is Sarcoidosis any relation and do any of you have it , 💕
Hi I have Lupus and a few other auto diseases , just a quick question is Sarcoidosis any relation and do any of you have it , 💕
whatsit
in
LUPUS UK
4 days ago
who also has fibromyalgia and then lupus?
I was diagnosed with fibromyalgia in 2009 and then lupus last year. I think it was harder to get the diagnosis because a lot of syptoms overlap.
I was diagnosed with fibromyalgia in 2009 and then lupus last year. I think it was harder to get the diagnosis because a lot of syptoms overlap.
Cazpurple
in
LUPUS UK
5 days ago
New to the scene
Hello, I’ve just signed up after probably a year of avoiding doing so, really hoping to connect with some people who understand rheumatoid arthritis and how to navigate it alongside the health system 🦓🐘🦒
Hello, I’ve just signed up after probably a year of avoiding doing so, really hoping to connect with some people who understand rheumatoid arthritis and how to navigate it alongside the health system 🦓🐘🦒
LoveIslandFan
in
NRAS
5 days ago
Another amazing research 💪🏼
🧐Scientists discover a cause of lupus and a possible way to reverse it😯❗ I recommend listening to the podcast that appears in the article, which sums it up very well: https://news.northwestern.edu/stories/2024/july/lupus-immune-response-reversal/ Mxx 💜💚
🧐Scientists discover a cause of lupus and a possible way to reverse it😯❗ I recommend listening to the podcast that appears in the article, which sums it up very well: https://news.northwestern.edu/stories/2024/july/lupus-immune-response-reversal/ Mxx 💜💚
Naladog
in
LUPUS UK
7 days ago
🐺New Lupus Research: Mechanism of lupus pathogenesis unveiled🦋
📚👩🏼🔬Professor Yoontae Lee’s team identifies target protein regulating autoimmune disease lupus: https://www.postech.ac.kr/eng/mechanism-of-lupus-pathogenesis-unveiled/ Happy reading 🧐 Xxx
📚👩🏼🔬Professor Yoontae Lee’s team identifies target protein regulating autoimmune disease lupus: https://www.postech.ac.kr/eng/mechanism-of-lupus-pathogenesis-unveiled/ Happy reading 🧐 Xxx
Naladog
in
LUPUS UK
9 days ago
What to expect, medication etc - First appointment since Systemic Sclerosis diagnosis
Hi, I hope you can advise. Since November 2023 I have had Raynaud's, then December Severe Dry Eyes and mouth, In May 2023 landed up with medication for Sicca Sjogren's (Cyclosporine & Pilocarpine). Blood test done at the appointment showed Systemic Sclerosis (anti TH/TO) as well. I was advised of this
Hi, I hope you can advise. Since November 2023 I have had Raynaud's, then December Severe Dry Eyes and mouth, In May 2023 landed up with medication for Sicca Sjogren's (Cyclosporine & Pilocarpine). Blood test done at the appointment showed Systemic Sclerosis (anti TH/TO) as well. I was advised of this
Jules1821
in
Scleroderma & Raynaud's UK (SRUK)
10 days ago
Cutaneous scleroderma ?with Lupus overlap?
Recently saw Rheumatologist for 1st time confident that I’d get Sjogren’s diagnosis but came away with more than I’d bargained for with Cutaneous scleroderma possibly with Lupus overlap to add to my ever growing list of autoimmune conditions.
Recently saw Rheumatologist for 1st time confident that I’d get Sjogren’s diagnosis but came away with more than I’d bargained for with Cutaneous scleroderma possibly with Lupus overlap to add to my ever growing list of autoimmune conditions.
DebatDG9
in
PBC Foundation
11 days ago
Covid
just tested positive for the first time .. do I need any extra medication these days via nhs due to lupus ?
just tested positive for the first time .. do I need any extra medication these days via nhs due to lupus ?
Dressgirl52
in
LUPUS UK
11 days ago
Underactive thyroid
Hi, I’ve had underactive thyroid for a few years now but have never really done much research into the condition, I just take my meds and crack on. I have noticed more recently struggling more with tiredness, feeling groggy and just not feeling great. I’ve had blood tests etc and all is good so I am
Hi, I’ve had underactive thyroid for a few years now but have never really done much research into the condition, I just take my meds and crack on. I have noticed more recently struggling more with tiredness, feeling groggy and just not feeling great. I’ve had blood tests etc and all is good so I am
Jeo05
in
Thyroid UK
11 days ago
B12 advice please
Hi i am new to this group, nice to meet you all. I just wondered if I should order an MMA urine test or contact the GP with concerns of low B12. Or should I just carry on taking the Thorn basic B and better you b12, then re test. I have an underactive thyroid and inflammatory arthritis, also taking
Hi i am new to this group, nice to meet you all. I just wondered if I should order an MMA urine test or contact the GP with concerns of low B12. Or should I just carry on taking the Thorn basic B and better you b12, then re test. I have an underactive thyroid and inflammatory arthritis, also taking
Ankles
in
Pernicious Anaemia Society
12 days ago
HRT with APS and Lupus
I was wondering if anyone takes HRT that has APS and or Lupus. I’m in blood thinners and on immune suppression drugs and also had a stroke so I’m not sure if this would be something I could take. Experiencing very low moods and crying a lot so thinking I’m peri menopausal. Thanks
I was wondering if anyone takes HRT that has APS and or Lupus. I’m in blood thinners and on immune suppression drugs and also had a stroke so I’m not sure if this would be something I could take. Experiencing very low moods and crying a lot so thinking I’m peri menopausal. Thanks
Newlupus76
in
LUPUS UK
12 days ago
Lupus pain
I was diagnosed over23yrs ago i am now 64 and struggling quite alot with muscle and joint pains i am due ultrasound scans on both hips plus my right shoulder this month i cant sleep due to pain sick of feeling exhausted and downhearted i have severe acid reflux and ibs so cant take antinflamatory medications
I was diagnosed over23yrs ago i am now 64 and struggling quite alot with muscle and joint pains i am due ultrasound scans on both hips plus my right shoulder this month i cant sleep due to pain sick of feeling exhausted and downhearted i have severe acid reflux and ibs so cant take antinflamatory medications
LUPUSLADY60
in
NRAS
13 days ago
B12 website - Norway (Norge / Noreg)
This has probably been mentioned before but just thought I'd post it for any forum members from Norway. B12-Foreningen https://www.b12-foreningen.no/ Another link for Norway below. https://www.b12info.com/very-useful-links/ PAS (Pernicious Anaemia Society) accepts members from across the world.
This has probably been mentioned before but just thought I'd post it for any forum members from Norway. B12-Foreningen https://www.b12-foreningen.no/ Another link for Norway below. https://www.b12info.com/very-useful-links/ PAS (Pernicious Anaemia Society) accepts members from across the world.
Sleepybunny
in
Pernicious Anaemia Society
15 days ago
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