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Colostomy
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My journey
So I now 4 yrs later am sporting a
colostomy
. Hey never have to look for a bathroom when I’m doubled over with belly pains. (yes my wonderful sense of humor has me still surviving) Which brings me to now diagnosed on June 1st 2018 with MBC. Yes lymph nodes in my bronchial tree have 3 tumors.
So I now 4 yrs later am sporting a
colostomy
. Hey never have to look for a bathroom when I’m doubled over with belly pains. (yes my wonderful sense of humor has me still surviving) Which brings me to now diagnosed on June 1st 2018 with MBC. Yes lymph nodes in my bronchial tree have 3 tumors.
Tobysasha65
in
SHARE Metastatic Breast Cancer
6 years ago
Permanent or temporary colostomy
Will they be able to tell me for sure if my
colostomy
will be permanent or temporary at that time?
Will they be able to tell me for sure if my
colostomy
will be permanent or temporary at that time?
Hidden
in
Colon Cancer Connected
6 years ago
Eastenders
Does anyone else find Eastender’s character Sharon’s line on tonights episode “He’s been strapped to me a
colostomy
bag” highly offensive. I’m coeliac but have family members who are IBD sufferers so I can sympathise as to how insensitive this is!
Does anyone else find Eastender’s character Sharon’s line on tonights episode “He’s been strapped to me a
colostomy
bag” highly offensive. I’m coeliac but have family members who are IBD sufferers so I can sympathise as to how insensitive this is!
GFlis
in
Crohn's and Colitis Support
6 years ago
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Almost a year after ICU stay and sepsis
Eleven months later I have recovered about 80% physically, the
colostomy
was reversed and I was sent on my way. However, I still have pain, diarrhea and nightmares from the whole things. There is nobody to talk to about it either.
Eleven months later I have recovered about 80% physically, the
colostomy
was reversed and I was sent on my way. However, I still have pain, diarrhea and nightmares from the whole things. There is nobody to talk to about it either.
cskitchens
in
ICUsteps
6 years ago
Colonoscopy
I asked him how long I’d had my
colostomy
bag for and he’s said a year. Which to be fair is ok. Considering what Iv been through I think I can manage it for that period of time. My gynea consultant seen me last week and Iv made it into the medical journal.
I asked him how long I’d had my
colostomy
bag for and he’s said a year. Which to be fair is ok. Considering what Iv been through I think I can manage it for that period of time. My gynea consultant seen me last week and Iv made it into the medical journal.
Libra87
in
Colon Cancer Connected
6 years ago
Operation date: 8/10/18 😱
I’m marked up for my ‘just incase’
colostomy
and illeostomy which is naturally giving me nightmares, but would love to know if anyone had success and had tubes etc saved?! M x
I’m marked up for my ‘just incase’
colostomy
and illeostomy which is naturally giving me nightmares, but would love to know if anyone had success and had tubes etc saved?! M x
milly89
in
Endometriosis UK
6 years ago
Retal Cancer
Later her cancer was surgically removed and was released with a
colostomy
bag. The bowel bag was later reversed once her bowel obstruction was given time to heal. She later developed sepsis infection due to a bowel leakage. She recovered from that.
Later her cancer was surgically removed and was released with a
colostomy
bag. The bowel bag was later reversed once her bowel obstruction was given time to heal. She later developed sepsis infection due to a bowel leakage. She recovered from that.
Mbc5594
in
Colon Cancer Connected
6 years ago
Repeated rupture of colostomy bag
Hi Dear ladies Its truely amazing the amount of knowledge you guys have my mom has a stoma currently she is on gem / carbo regiemn she has a peculiar problem her
colostomy
bag keeps rupturing leading to changing one almost every second day she says her stools are hard and they stick near the joint leading
Hi Dear ladies Its truely amazing the amount of knowledge you guys have my mom has a stoma currently she is on gem / carbo regiemn she has a peculiar problem her
colostomy
bag keeps rupturing leading to changing one almost every second day she says her stools are hard and they stick near the joint leading
Indujoshi
in
My Ovacome
6 years ago
Endo & ovarian cyst
She said to try microgynon for 3 months, she said I could have an op but there is no guarantee she wouldn't puncture my bowel and end up with a
colostomy
bag. I have had cyst for 3 years now, had lap 3 years ago aswell. I have severe endometriosis
She said to try microgynon for 3 months, she said I could have an op but there is no guarantee she wouldn't puncture my bowel and end up with a
colostomy
bag. I have had cyst for 3 years now, had lap 3 years ago aswell. I have severe endometriosis
kel456
in
Endometriosis UK
6 years ago
Levator Ani spasms
I had a sigmoid colectomy in March of 2011 and exactly one week to the day I came home from the hospita,l I started having severe rectal pressure, as if to have a bowel movement. For the following year, my colorectal doctor tried all kinds of medicines and therapies and said in his 20 years of practice
I had a sigmoid colectomy in March of 2011 and exactly one week to the day I came home from the hospita,l I started having severe rectal pressure, as if to have a bowel movement. For the following year, my colorectal doctor tried all kinds of medicines and therapies and said in his 20 years of practice
Onegirl1
in
Pelvic Pain Support Network
6 years ago
Going in for second line gem/ carbo
Hi ladies Its been a whirlwind week seeing doctors getting mom treated for dvt and pulmonary embolism surgeons refusing to operate she only had emergency
colostomy
done with no definitive surgery in clear cell carcinoma ovary first line chemo appears to have not work what to expect from gem/ carbo dont
Hi ladies Its been a whirlwind week seeing doctors getting mom treated for dvt and pulmonary embolism surgeons refusing to operate she only had emergency
colostomy
done with no definitive surgery in clear cell carcinoma ovary first line chemo appears to have not work what to expect from gem/ carbo dont
Indujoshi
in
My Ovacome
6 years ago
Going in for second line gem/ carbo
Hi ladies Its been a whirlwind week seeing doctors getting mom treated for dvt and pulmonary embolism surgeons refusing to operate she only had emergency
colostomy
done with no definitive surgery in clear cell carcinoma ovary first line chemo appears to have not work what to expect from gem/ carbo dont
Hi ladies Its been a whirlwind week seeing doctors getting mom treated for dvt and pulmonary embolism surgeons refusing to operate she only had emergency
colostomy
done with no definitive surgery in clear cell carcinoma ovary first line chemo appears to have not work what to expect from gem/ carbo dont
Indujoshi
in
My Ovacome
6 years ago
Going in for second line gem/ carbo
Hi ladies Its been a whirlwind week seeing doctors getting mom treated for dvt and pulmonary embolism surgeons refusing to operate she only had emergency
colostomy
done with no definitive surgery in clear cell carcinoma ovary first line chemo appears to have not work what to expect from gem/ carbo dont
Hi ladies Its been a whirlwind week seeing doctors getting mom treated for dvt and pulmonary embolism surgeons refusing to operate she only had emergency
colostomy
done with no definitive surgery in clear cell carcinoma ovary first line chemo appears to have not work what to expect from gem/ carbo dont
Indujoshi
in
My Ovacome
6 years ago
Laparoscopy, Bowel Prep, Colostomy
They have also prepared me that I may have a
colostomy
bag fitted best case temporary worse case permanently does this effect people like I’m expecting it to? Any advice welcome x
They have also prepared me that I may have a
colostomy
bag fitted best case temporary worse case permanently does this effect people like I’m expecting it to? Any advice welcome x
Linzihall
in
Endometriosis UK
6 years ago
Acupuncture does it work ?
I’m under a specialist at guys in London who are excellent but I’m always deterred from the surgery which is now termed ‘major’ and poss of temp
colostomy
bag also frightens me.
I’m under a specialist at guys in London who are excellent but I’m always deterred from the surgery which is now termed ‘major’ and poss of temp
colostomy
bag also frightens me.
aw2901
in
Endometriosis UK
6 years ago
Change of plan .....
bathe , what clothes do I need ....It will be a big zipper cut again right through from under ribs to pelvis , three days minimum in intensive care , five days of IV anti biotics ( we know I have infection ......) eventually stoma team at home , district nurse , private nurse if needs be ...will join
Colostomy
bathe , what clothes do I need ....It will be a big zipper cut again right through from under ribs to pelvis , three days minimum in intensive care , five days of IV anti biotics ( we know I have infection ......) eventually stoma team at home , district nurse , private nurse if needs be ...will join
Colostomy
angeladale
in
My Ovacome
6 years ago
Incontinence due to torn spinchter muscle due to childbirth
I don't mind getting a
colostomy
if it will set me free . Just wondering if anyone besides me has this unfortunate issue.
I don't mind getting a
colostomy
if it will set me free . Just wondering if anyone besides me has this unfortunate issue.
Meimster1989
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Update on my journey
I was told before my surgery there was a chance of hysterectomy or a
colostomy
bag and possibly a large cut. My opp went really well and I managed to get away with a bowel shave and removal of Endo through keyhole. I was obviously so pleased by this.
I was told before my surgery there was a chance of hysterectomy or a
colostomy
bag and possibly a large cut. My opp went really well and I managed to get away with a bowel shave and removal of Endo through keyhole. I was obviously so pleased by this.
Swats
in
Endometriosis UK
6 years ago
Help for rectum mucus
I have a lot of mucus from rectum and it is making my life miserable many times a day I run to bathroom with the strong urge to poop like old days before the
colostomy
. No blood or color just clear watery like mucus. I have tried enemas.
I have a lot of mucus from rectum and it is making my life miserable many times a day I run to bathroom with the strong urge to poop like old days before the
colostomy
. No blood or color just clear watery like mucus. I have tried enemas.
Legsarms7
in
Living with a Stoma
6 years ago
Deep infiltrating endo surgery
As I have it on the bladder , bowl, uterus and rectum I am at risk of coming out of surgery with a life long
colostomy
bag. Anyone who has had the surgery, how did it go for you? Thank u 😘
As I have it on the bladder , bowl, uterus and rectum I am at risk of coming out of surgery with a life long
colostomy
bag. Anyone who has had the surgery, how did it go for you? Thank u 😘
Ashlea2
in
Endometriosis UK
6 years ago
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