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New to the group
I was diagnosed with ovarian cancer in August 2017, stage 3, after a complete hysterectomy and debulking surgery, where I was lucky enough to not require a
colostomy
bag afterwards. I go on Monday to get the results of my one year scan and am a little nervous this time.
I was diagnosed with ovarian cancer in August 2017, stage 3, after a complete hysterectomy and debulking surgery, where I was lucky enough to not require a
colostomy
bag afterwards. I go on Monday to get the results of my one year scan and am a little nervous this time.
AvaBoo
in
SHARE Ovarian Cancer Support
5 years ago
Low grade - Major surgery is coming
Surgeon says they will not know exactly what they are facing until they open up, and that there are many risks and the possibility of removing many organs, part of the bowel, having to make a
colostomy
...
Surgeon says they will not know exactly what they are facing until they open up, and that there are many risks and the possibility of removing many organs, part of the bowel, having to make a
colostomy
...
Seshat2
in
My Ovacome
5 years ago
Waiting times at Oxford Endometriosis Centre?
recent MRI , consultant said it was one of the worst he's seen in 16 years of doing his job and too complex for him to fix, so has referred me on ( which is what I wanted in the first place) My first lap in 2015 was supposed to last me 10 years....Now being told I need min of 2 surgeries and potentially
colostomy
recent MRI , consultant said it was one of the worst he's seen in 16 years of doing his job and too complex for him to fix, so has referred me on ( which is what I wanted in the first place) My first lap in 2015 was supposed to last me 10 years....Now being told I need min of 2 surgeries and potentially
colostomy
Adele-84
in
Endometriosis UK
5 years ago
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tofacitinib side effects
my son has just started taking tofacitinib (xeljanz) and is feeling pretty rubbish like he's starting with a cold/flu which he's put down to side effects of this new drug. Has anyone else had the same and if so how long did they last? Also how effective has this been in treating your ulcerative colitis
my son has just started taking tofacitinib (xeljanz) and is feeling pretty rubbish like he's starting with a cold/flu which he's put down to side effects of this new drug. Has anyone else had the same and if so how long did they last? Also how effective has this been in treating your ulcerative colitis
overworked1
in
Crohn's and Colitis Support
5 years ago
Not to tight please!
I cannot tolerate the pressure on my
colostomy
or abdomen; it makes me feel sick. Any suggestions? I do need to aid in treating the lymphedema by wearing some compression. Thanks for any suggestions. Kaleena
I cannot tolerate the pressure on my
colostomy
or abdomen; it makes me feel sick. Any suggestions? I do need to aid in treating the lymphedema by wearing some compression. Thanks for any suggestions. Kaleena
Kaleena
in
LSN
5 years ago
Bowel and uterus stuck together
Four years ago I had a
colostomy
and had it reversed which left me with an enormous amount of scar tissue. I am happy to say that 2 days after surgery I can finally have a successful bowel movement without laxatives. Life can get better!!
Four years ago I had a
colostomy
and had it reversed which left me with an enormous amount of scar tissue. I am happy to say that 2 days after surgery I can finally have a successful bowel movement without laxatives. Life can get better!!
Kimberly75
in
Endometriosis UK
5 years ago
Bowel leakage after partner's surgery
My partner has had UC for around a year and a half, very severe, and required surgery for a
colostomy
bag within a month of diagnosis. He is currently in the process of having it reversed and has just had his second surgery. 1.
My partner has had UC for around a year and a half, very severe, and required surgery for a
colostomy
bag within a month of diagnosis. He is currently in the process of having it reversed and has just had his second surgery. 1.
SamanthaChapelle
in
Crohn's and Colitis Support
5 years ago
Update on Yesterday’s Colonoscopy
I explained my mother had a
colostomy
as a result of diverticulitis so the nurse showed me small reddened parts which were beginning to develop into diverticula. No polyps, some biopsies taken “because of weight loss” and I was given a copy of the report with a bonus four photos of my innards.
I explained my mother had a
colostomy
as a result of diverticulitis so the nurse showed me small reddened parts which were beginning to develop into diverticula. No polyps, some biopsies taken “because of weight loss” and I was given a copy of the report with a bonus four photos of my innards.
Lupiknits
in
LUPUS UK
5 years ago
Information Please After Hysterectomy
During the keyhole op the Consultant terminated the op as he found that my womb was stuck to my bowel and if he had continued the way it was I might have ended up having to wear a
colostomy
bag. He continued treating me another way.
During the keyhole op the Consultant terminated the op as he found that my womb was stuck to my bowel and if he had continued the way it was I might have ended up having to wear a
colostomy
bag. He continued treating me another way.
reader26
in
Endometriosis UK
5 years ago
Adenomyosis/Fibroids - which treatment?
Risks of damage to bowel and other organs or even risk of a
colostomy
. Regular hysterectomy - through the vagina and very similar to above. I'm still on Methyprogesterone but being told it is a risk being on it and need to come off asap, which of course I can't as I will haemmorhage.
Risks of damage to bowel and other organs or even risk of a
colostomy
. Regular hysterectomy - through the vagina and very similar to above. I'm still on Methyprogesterone but being told it is a risk being on it and need to come off asap, which of course I can't as I will haemmorhage.
juneann
in
NRAS
5 years ago
Adenomyosis/Fibroid - which treatment?
Risks of damage to bowel and other organs or even risk of a
colostomy
. Regular hysterectomy - through the vagina and very similar to above. I'm still on Methyprogesterone but being told it is a risk being on it and need to come off asap, which of course I can't as I will haemmorhage.
Risks of damage to bowel and other organs or even risk of a
colostomy
. Regular hysterectomy - through the vagina and very similar to above. I'm still on Methyprogesterone but being told it is a risk being on it and need to come off asap, which of course I can't as I will haemmorhage.
juneann
in
Adenomyosis Advice Association
5 years ago
My journey
So I now 4 yrs later am sporting a
colostomy
. Hey never have to look for a bathroom when I’m doubled over with belly pains. (yes my wonderful sense of humor has me still surviving) Which brings me to now diagnosed on June 1st 2018 with MBC. Yes lymph nodes in my bronchial tree have 3 tumors.
So I now 4 yrs later am sporting a
colostomy
. Hey never have to look for a bathroom when I’m doubled over with belly pains. (yes my wonderful sense of humor has me still surviving) Which brings me to now diagnosed on June 1st 2018 with MBC. Yes lymph nodes in my bronchial tree have 3 tumors.
Tobysasha65
in
SHARE Metastatic Breast Cancer
5 years ago
Permanent or temporary colostomy
Will they be able to tell me for sure if my
colostomy
will be permanent or temporary at that time?
Will they be able to tell me for sure if my
colostomy
will be permanent or temporary at that time?
Hidden
in
Colon Cancer Connected
6 years ago
Eastenders
Does anyone else find Eastender’s character Sharon’s line on tonights episode “He’s been strapped to me a
colostomy
bag” highly offensive. I’m coeliac but have family members who are IBD sufferers so I can sympathise as to how insensitive this is!
Does anyone else find Eastender’s character Sharon’s line on tonights episode “He’s been strapped to me a
colostomy
bag” highly offensive. I’m coeliac but have family members who are IBD sufferers so I can sympathise as to how insensitive this is!
GFlis
in
Crohn's and Colitis Support
6 years ago
Almost a year after ICU stay and sepsis
Eleven months later I have recovered about 80% physically, the
colostomy
was reversed and I was sent on my way. However, I still have pain, diarrhea and nightmares from the whole things. There is nobody to talk to about it either.
Eleven months later I have recovered about 80% physically, the
colostomy
was reversed and I was sent on my way. However, I still have pain, diarrhea and nightmares from the whole things. There is nobody to talk to about it either.
cskitchens
in
ICUsteps
6 years ago
Colonoscopy
I asked him how long I’d had my
colostomy
bag for and he’s said a year. Which to be fair is ok. Considering what Iv been through I think I can manage it for that period of time. My gynea consultant seen me last week and Iv made it into the medical journal.
I asked him how long I’d had my
colostomy
bag for and he’s said a year. Which to be fair is ok. Considering what Iv been through I think I can manage it for that period of time. My gynea consultant seen me last week and Iv made it into the medical journal.
Libra87
in
Colon Cancer Connected
6 years ago
Operation date: 8/10/18 😱
I’m marked up for my ‘just incase’
colostomy
and illeostomy which is naturally giving me nightmares, but would love to know if anyone had success and had tubes etc saved?! M x
I’m marked up for my ‘just incase’
colostomy
and illeostomy which is naturally giving me nightmares, but would love to know if anyone had success and had tubes etc saved?! M x
milly89
in
Endometriosis UK
6 years ago
Retal Cancer
Later her cancer was surgically removed and was released with a
colostomy
bag. The bowel bag was later reversed once her bowel obstruction was given time to heal. She later developed sepsis infection due to a bowel leakage. She recovered from that.
Later her cancer was surgically removed and was released with a
colostomy
bag. The bowel bag was later reversed once her bowel obstruction was given time to heal. She later developed sepsis infection due to a bowel leakage. She recovered from that.
Mbc5594
in
Colon Cancer Connected
6 years ago
Repeated rupture of colostomy bag
Hi Dear ladies Its truely amazing the amount of knowledge you guys have my mom has a stoma currently she is on gem / carbo regiemn she has a peculiar problem her
colostomy
bag keeps rupturing leading to changing one almost every second day she says her stools are hard and they stick near the joint leading
Hi Dear ladies Its truely amazing the amount of knowledge you guys have my mom has a stoma currently she is on gem / carbo regiemn she has a peculiar problem her
colostomy
bag keeps rupturing leading to changing one almost every second day she says her stools are hard and they stick near the joint leading
Indujoshi
in
My Ovacome
6 years ago
Endo & ovarian cyst
She said to try microgynon for 3 months, she said I could have an op but there is no guarantee she wouldn't puncture my bowel and end up with a
colostomy
bag. I have had cyst for 3 years now, had lap 3 years ago aswell. I have severe endometriosis
She said to try microgynon for 3 months, she said I could have an op but there is no guarantee she wouldn't puncture my bowel and end up with a
colostomy
bag. I have had cyst for 3 years now, had lap 3 years ago aswell. I have severe endometriosis
kel456
in
Endometriosis UK
6 years ago
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