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Devastated! No babies for me... Are there any support groups
I had a
colostomy
bag for 7 months and had the reversal in April 2013. My endo pain has been constant throughout so I went for my first laparoscopy which then turned in to a laparotomy as my small bowel was torn during the procedure due to adhesions from the previous surgeries.
I had a
colostomy
bag for 7 months and had the reversal in April 2013. My endo pain has been constant throughout so I went for my first laparoscopy which then turned in to a laparotomy as my small bowel was torn during the procedure due to adhesions from the previous surgeries.
KerryJ
in
Endometriosis UK
10 years ago
Hernia on c-section type scar
Hi does anyone have any advice or experience of having a hernia especially in the pelvic area? Mine is on the left and due to a c-section type scar I have for a sigmoid colectomy 3 years ago. The GP seems pretty sure that is what it is. I also have adhesions. The main symptoms are shooting pains, into
Hi does anyone have any advice or experience of having a hernia especially in the pelvic area? Mine is on the left and due to a c-section type scar I have for a sigmoid colectomy 3 years ago. The GP seems pretty sure that is what it is. I also have adhesions. The main symptoms are shooting pains, into
Orangeflower
in
Pelvic Pain Support Network
10 years ago
Foods? Dr who did colostomy had don't eat list. new Dr who did reconnect and temporary ileostomy says eat anything? I do but seeds in bag
Will these seeds get caught in the pockets of diverticuli? should I take metamusil after reversal of temporary ileostomy to push things along. Who advises on this ...primary care or who? I am drinking a lost of water now!
Will these seeds get caught in the pockets of diverticuli? should I take metamusil after reversal of temporary ileostomy to push things along. Who advises on this ...primary care or who? I am drinking a lost of water now!
Hidden
in
Living with a Stoma
10 years ago
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My daughter Jaci was diagnosed with oc in 2011 had debulking op and three lots of chemo, then a colostomy three weeks ago and passed away
Early Sunday morning. She went through such a lot and was only 48 when she died I am devastated. Gill
Early Sunday morning. She went through such a lot and was only 48 when she died I am devastated. Gill
Seren18
in
My Ovacome
10 years ago
Some Good News ( well sort of ! )
report on the cancer, he was smiling now, a bit of a Cheshire cat grin really, he says your chemo & radiotherapy finished last Easter and the secondary tumour was removed shortly after that, we realised that the cancer had not completely gone and we told you that we would have to operate and give you a
colostomy
report on the cancer, he was smiling now, a bit of a Cheshire cat grin really, he says your chemo & radiotherapy finished last Easter and the secondary tumour was removed shortly after that, we realised that the cancer had not completely gone and we told you that we would have to operate and give you a
colostomy
PeterK1
in
Lung Conditions Community Forum
10 years ago
Endometriosis, Depression, Paranoia and in pain! Doesn't make a good patient! Not sure where to go from here....
What doesn't help either is my sister has just had a full hysterectomy and has a
colostomy
bag due to the damage the endo has done to her system. I'm paranoid and terrified that I'm also going to have to go through this. Can anyone help with any advice please? Yours hopefully Sarah x
What doesn't help either is my sister has just had a full hysterectomy and has a
colostomy
bag due to the damage the endo has done to her system. I'm paranoid and terrified that I'm also going to have to go through this. Can anyone help with any advice please? Yours hopefully Sarah x
Sareheadies
in
Endometriosis UK
10 years ago
Any advice for the newly diagnosed ovarian carcinosarcoma (stage 3C MMT)? Vitamins? Nutrition? Ostomy bags? Exercise?
They have surgically removed the tumors, which crushed her colon and now has a
colostomy
bag which has been a nightmare to sort out. Chemo starts next week and right now she has virus that's making it very difficult to eat. She's lost 50lbs in the last 4 months.
They have surgically removed the tumors, which crushed her colon and now has a
colostomy
bag which has been a nightmare to sort out. Chemo starts next week and right now she has virus that's making it very difficult to eat. She's lost 50lbs in the last 4 months.
Drusan
in
My Ovacome
10 years ago
Should I find a new Endo specialist?
Could possibly have to have
colostomy
bag and endo specialist wants to save my only ovary if she does the hysterectomy. Don't really know if that is good? Now wants me to take lupron shot or another pill. Why is she so against surgery.
Could possibly have to have
colostomy
bag and endo specialist wants to save my only ovary if she does the hysterectomy. Don't really know if that is good? Now wants me to take lupron shot or another pill. Why is she so against surgery.
BridgetP
in
Endometriosis UK
10 years ago
Ileocecal valve questions -> do I have an issue or not.
I'm only 35 and it starting to scare me since I am still young and dont' want a
colostomy
bag.. Also, I've seen chiropractors, had Bowen therapy, tried all the tricks and stuff. One other odd thing. Grapefruit juice seems to calm things down and make the pain pretty much go away... Odd?
I'm only 35 and it starting to scare me since I am still young and dont' want a
colostomy
bag.. Also, I've seen chiropractors, had Bowen therapy, tried all the tricks and stuff. One other odd thing. Grapefruit juice seems to calm things down and make the pain pretty much go away... Odd?
karger
in
IBS Network
10 years ago
Enlarged uterus/womb, and rectal bleeding
Before I had the internal examination, she said that if it was endometriosis on my rectum/bowel, there isn't a lot they can do because of the nature of the bowel, and any surgery on that area would result in a
colostomy
bag!
Before I had the internal examination, she said that if it was endometriosis on my rectum/bowel, there isn't a lot they can do because of the nature of the bowel, and any surgery on that area would result in a
colostomy
bag!
Hoppityhop
in
Endometriosis UK
10 years ago
Fed up and unhappy - how do I deal with a complicated situation?
I have also been told that if it is on/through my bowel, the consequences are pretty major (resection +
colostomy
). I'm somewhat freaked out by this (although to people about me I always seem calm - it's in my nature).
I have also been told that if it is on/through my bowel, the consequences are pretty major (resection +
colostomy
). I'm somewhat freaked out by this (although to people about me I always seem calm - it's in my nature).
Scooteeder
in
Endometriosis UK
10 years ago
Hi everyone, I have stage 4 endo and have had 3 laps over 5 yrs. my bowel is covered in it and may also be inside. I saw the surgeon today
And need a full hysterectomy and surgery on my bowel which will leave me with a temporary
colostomy
bag. Can anyone give me info, feedback or tips. Feeling scared as there are heaps of dangers during and after surgery. Has anyone been through this, ty
And need a full hysterectomy and surgery on my bowel which will leave me with a temporary
colostomy
bag. Can anyone give me info, feedback or tips. Feeling scared as there are heaps of dangers during and after surgery. Has anyone been through this, ty
Spacepup
in
Endometriosis UK
10 years ago
Anyone here been told they need a special scan done (only one scanner in Wales) and they will need a colostomy bag due the the serverity
And been told it's attacked my bowels so bad I'll need a
colostomy
bag fitted and my bowels removed to cure it So much worse than I was expecting and I'm only 20years old.
And been told it's attacked my bowels so bad I'll need a
colostomy
bag fitted and my bowels removed to cure it So much worse than I was expecting and I'm only 20years old.
Kymmy
in
Endometriosis UK
11 years ago
Anyone with a colostomy tried irrigation??
I am fed up with my
colostomy
bags leaking!!! Tried all different types but they are all the same. Embarrassing when you are out. Looking at 'you tube' and it appears easy. Stoma nurse happy for me to try but going for 2nd lot of chemo treatment at end October.
I am fed up with my
colostomy
bags leaking!!! Tried all different types but they are all the same. Embarrassing when you are out. Looking at 'you tube' and it appears easy. Stoma nurse happy for me to try but going for 2nd lot of chemo treatment at end October.
Izzystep
in
My Ovacome
11 years ago
Partial bowel, vagina and cervix removal
I'm worried about fertility and the possibility of a
colostomy
bag... I'm only 29.
I'm worried about fertility and the possibility of a
colostomy
bag... I'm only 29.
AnnaGoudie
in
Endometriosis UK
11 years ago
Hi what treatments are there for endo ? I am currently without pain but need to stop the pill due to migraine .
As I narrowly missed getting a
colostomy
in my last op this us not something I am happy about. Any ideas? Thanks
As I narrowly missed getting a
colostomy
in my last op this us not something I am happy about. Any ideas? Thanks
pinkpeanut
in
Endometriosis UK
11 years ago
Has anyone else on here had a colectomy or other abdominal surgery and had problems with adhesions on their fallopian tubes?
Was referred for testing, but consultant has refused to test my tubes because my AMH is also low and he says I will need IVF anyway. Have asked for second opinion, but could take weeks for re-referral. Should I just go private? Ovulation is normal and DH's sperm normal. Herbalist says my AMH not that
Was referred for testing, but consultant has refused to test my tubes because my AMH is also low and he says I will need IVF anyway. Have asked for second opinion, but could take weeks for re-referral. Should I just go private? Ovulation is normal and DH's sperm normal. Herbalist says my AMH not that
BluChakra
in
Fertility Network UK
11 years ago
Hi ! Had a nasty cancer 18 years back, taking heavy painkillers from day one to present. Recently started with I think - panic attacks
registered as 9+ 10 ) a month in the fist few months after surgery to now registered disabled experiencing the occasional few hours in the morning or afternoon where the pain is tolerable (never goes) I have used this bad experience to help others with similar problems via the C.A. help & support line (
colostomy
registered as 9+ 10 ) a month in the fist few months after surgery to now registered disabled experiencing the occasional few hours in the morning or afternoon where the pain is tolerable (never goes) I have used this bad experience to help others with similar problems via the C.A. help & support line (
colostomy
danielle-23
in
Anxiety Support
11 years ago
Years of thinking all the discomfort was normal!!!!!
Everything went well and I do not have a iostomy or
colostomy
bag. I have four insertions on my stomach, I am still swollen but healing nicely. I still can't walk as fast I would like and get a really bad stitch if I over do it.
Everything went well and I do not have a iostomy or
colostomy
bag. I have four insertions on my stomach, I am still swollen but healing nicely. I still can't walk as fast I would like and get a really bad stitch if I over do it.
bonygirl1
in
Endometriosis UK
11 years ago
Back under the knife tomorrow!
what if I wake up tomorrow with a
colostomy
??? I know they said it would only be temporary if it got to that point but what man can cope with that!?! Everyone just keeps telling me that
colostomy
etc is worst case and I need to stop over thinking things.
what if I wake up tomorrow with a
colostomy
??? I know they said it would only be temporary if it got to that point but what man can cope with that!?! Everyone just keeps telling me that
colostomy
etc is worst case and I need to stop over thinking things.
nat_nat_2000
in
Endometriosis UK
11 years ago
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