Symptoms: Heavy and very painful menstrual cycles along with painful bowl movements a week to two weeks after cycle (symptoms increasingly worsened lasting longer and longer)
Onset: For at least the past several years moderate – Worsened around April 2014, sought medical attention for pain.
Summary: April 2014 - Saw family doctor I informed him that I googled my symptoms and they fit Endometriosis. After examining me and listening to my symptoms he concluded that Endometriosis was likely. He informed me that I needed to have some tests to determine. I had a CT scan and MRI performed which revealed approx. a 3 cm mass that was pushing/stuck to my colon wall. He could not determine origin of mass with MRI, so he sent me for a colonoscopy which came back perfect with no polyps and no mass on inside of colon. I was then referred to my gynecologist for further medical attention. After discussing it with Dr. XXXXXX he performed a laparoscopic procedure to determine diagnosis which is the only true way to diagnose Endometriosis. After procedure Dr. XXXXX confirmed the mass and Endometriosis and referred me to a specialist to remove my uterus and ovaries along with the mass. I was referred to Dr. XXXXX (gynecologist cancer specialist and general surgeon). Dr. XXXXXX scheduled surgery on my first appointment with him. He looked at the tests and results so far and informed me that I need surgery and the risks are I could hemorrhage, or die and that he may have to open me up and I could temporarily have a colostomy bag. He would be using the DaVinci Robot for the entire procedure including removing the mass. The surgery was scheduled for June 24th. I was given a bowl prep and I preformed all bowl prep instructions exactly has instructed. The surgery was approx. 7 hours long. They removed 8 cm of colon and burned off numerous lesions of endometriosis along with removing my uterus and ovaries. I was taken to recovery and everything seemed to be ok. I was released to go home approx. 5 days later. I went in for my post op appointment on July 10th. Dr. XXXXXX did a pelvic exam and said I was healing nicely. I did inform him of a lot of discomfort I was having in my right buttocks and down my right leg (I had informed him in the hospital after the surgery that the right side of my vagina and butt was numb…he said that it should go back to normal that it was a long and complicated surgery). Dr. XXXXXX never not one time did any tests on my leg or even acknowledged it was a problem or a symptom of a problem. A couple of days later I was at home sitting in bed and felt a gush of wetness in-between my legs. I pulled back the covers and saw bright red blood. I got up and went to the bathroom. By now my pants were around my knees, weighed down by blood. I sat on the toilet and the blood just continued to pour in the toilet. I started to get dizzy and passed out landing on the bathroom floor and I hit my head as well. My 15 yr. old niece who was staying with me to help after the surgery called 911. I was rushed to the hospital and Dr. XXXXXX met us there. The bleeding had pretty much stopped at that point. He then packed my vagina with gauze and put in a catheter and had me admitted. I was then given two pints of blood later that night. A CT scan was performed to try to discover why I was bleeding. The CT scan discovered an abscess that was still intact. Dr. XXXXX admitted that it was not what caused the bleeding and that we still did not know why I had hemorrhaged. Dr. XXXXXX had a drain put in thru my right buttocks to drain the abscess. No further tests were performed even when I asked for them to determine why I bled in the first place. Approx. 5 days later the nurse was flushing the drain and I had a gush of blood and saline come out of my vagina, I informed the nurse of this and it was shrugged off like it was no big deal. My drain was flushed at least two to three times more with the same result and I informed the nursing staff each time it happened and received the same response each time that it was ok. Then during one of the flushing’s I started to hemorrhage again. The nurse “Jenny” was cleaning up the blood….she had me get out of bed while bleeding and had me sit on the couch then she changed my sheets and had me get back in bed and then continued to clean the couch and floor all while I am bleeding. I then told her I was going to throw up and I vomited on the floor by her feet. She then looked at me and said this is not normal and called for another nurse. At that point I am getting very faint and then next thing I know tons of nurses are in my room giving me fluids and doing things to help me. They take me down stairs to ICU (I think) the bleeding from my vagina stopped mostly and then I told the nurse I felt like I had diarrhea she and another nurse started to clean me but did not seem concerned. I kept telling them I felt like I had diarrhea and they just kept cleaning me and never mentioned it was actually blood. Then during one of the times they were cleaning me they got very quiet I was then told that it was not stool it was blood. My great aunt and cousin were also in the room during this time. The nurses taped a bag on my butt to catch the blood. Dr. XXXXX was not on call so another doctor I had never seen before from his office that was on call, poked her head in and out from time to time but really did nothing. I was told that I coded out due to blood loss and was revived. Finally Dr. XXXXXX showed up and rushed me to emergency surgery to see why I keep hemorrhaging he discovered that I had blood vessels in my abdominal cavity that was bleeding and the abscess had corroded my colon. He then had to remove more colon and give me a colostomy along with a large open wound from my belly button to my pelvic bone due to cauterizing the bleeding blood vessels. This wound had to heal wide open with a wound vac and then packing it with gauze due to how swollen my body was at the time of surgery and the doctor was afraid of the wound busting open at the incision if I swelled more. I was given 10 to 12 pints of blood during surgery. I remember waking up with an incubator tube down my wind pipe and my arms tied down to the bed. Dr. XXXXXX said that he believes that when he cut into my colon on the June 24th surgery bile spilled out corroding the blood vessels and colon.
After the fact: I am left with a huge abdominal scar that is caved in the entire distance of scar (indented), Nerve damage of some kind to back of my entire right leg, including right side of vagina ending in my calf. I have a colostomy bag for the next 6 months then have to undergo another complicated surgery to have it reversed and we do not know if it is even possible and if so the doctor may have to build a permanent bag on the inside.
My thoughts: I feel like there is negligence here some place. I should not have had to hemorrhage twice and die before the doctor realized he made a mistake during the first surgery. Why did I sit in the hospital almost 5 days till I bled again without any tests to figure out why it happened in the first place? Should the DaVinci Robot (primarily used for hysterectomies) had been used to cut into my colon? Should a GI specialist been present during the surgery? Why did I have to suffer so much??