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Video of the afternoon patient/carer question and answer session at Cambridge CLLSA meeting 2014
Q&A 2 - Cambridge CLLSA meeting 2014. Latest treatments and clinical trials Following on from their talks on clinical trials and the new treatment landscape; CLL consultant Dr George Follows and CLL Nurse specialist Gwyn Stafford of Cambridge University Hospitals discuss and answer questions from CLL
Q&A 2 - Cambridge CLLSA meeting 2014. Latest treatments and clinical trials Following on from their talks on clinical trials and the new treatment landscape; CLL consultant Dr George Follows and CLL Nurse specialist Gwyn Stafford of Cambridge University Hospitals discuss and answer questions from CLL
HAIRBEAR_UK
Administrator
in
CLL Support
10 years ago
Video of the morning patient/carer question and answer session at Cambridge CLLSA meeting 2014
Q&A 1 - Cambridge CLLSA meeting 2014: CLL an overview Following on from their talks on chronic lymphocytic leukaemia (CLL) and clinical care; CLL consultant Dr George Follows and CLL nurse specialist Gwyn Stafford of Cambridge University Hospitals discuss and answer questions from CLL patients and
Q&A 1 - Cambridge CLLSA meeting 2014: CLL an overview Following on from their talks on chronic lymphocytic leukaemia (CLL) and clinical care; CLL consultant Dr George Follows and CLL nurse specialist Gwyn Stafford of Cambridge University Hospitals discuss and answer questions from CLL patients and
HAIRBEAR_UK
Administrator
in
CLL Support
10 years ago
Adverse drug effects; clinical trials and real life - What we can learn from Pradaxa
From the University of Sydney, Australia, Wendy Lipworth, Senior Research Fellow, Bioethics and Ian Kerridge, Associate Professor in Bioethics & Director, Centre for Values and Ethics and the Law in Medicine, provide insights into the challenges of identifying adverse drug effects both during trials
From the University of Sydney, Australia, Wendy Lipworth, Senior Research Fellow, Bioethics and Ian Kerridge, Associate Professor in Bioethics & Director, Centre for Values and Ethics and the Law in Medicine, provide insights into the challenges of identifying adverse drug effects both during trials
AussieNeil
Partner
in
CLL Support
10 years ago
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Chronic Lymphocytic Leukaemia: "an overview" & "New treatment options". Dr George Follows - CLLSA meeting June 2014
Educational CLL information from the CLL Support Association Cambridge meeting 2014
Part 1- Chronic Lymphocytic Leukaemia; an overview
In this talk Dr Follows of Cambridge University hospitals explains for patients/carers much about CLL and where we are today in the UK.
watch talk with
Educational CLL information from the CLL Support Association Cambridge meeting 2014
Part 1- Chronic Lymphocytic Leukaemia; an overview
In this talk Dr Follows of Cambridge University hospitals explains for patients/carers much about CLL and where we are today in the UK.
watch talk with
HAIRBEAR_UK
Administrator
in
CLL Support
10 years ago
Richters update
Hi everyone, just thought I would post an update re my richters tranformation. As i have seen an increase in sweats, my co sultant arranged another ct scan. The scan has revealed an enlargment of my lymph nodes pretty much everywhere since the previous scan in january. It could be just the cll in which
Hi everyone, just thought I would post an update re my richters tranformation. As i have seen an increase in sweats, my co sultant arranged another ct scan. The scan has revealed an enlargment of my lymph nodes pretty much everywhere since the previous scan in january. It could be just the cll in which
norahmaria
in
CLL Support
10 years ago
CLL patients/carers meeting Scotland, September 22nd - places and support with travel available.
Dear members there are places available for you to join us in Glasgow for our first meeting in Scotland to provide CLL support in the north. This is an opportunity to stamp this as a regular calendar event and a much needed opportunity to bring the CLL patient/carer community together in Scotland and
Dear members there are places available for you to join us in Glasgow for our first meeting in Scotland to provide CLL support in the north. This is an opportunity to stamp this as a regular calendar event and a much needed opportunity to bring the CLL patient/carer community together in Scotland and
HAIRBEAR_UK
Administrator
in
CLL Support
10 years ago
CLL specialists ?
My FCR treatment has been stopped after 2 courses due to a new problem - fluid on my lungs. I am awaiting another bone marrow biopsy and CT scan. Depending on what my haematologist has to say in due course, I may request another opinion with a CLL specialist. I am in Hereford. Does anyone know of
My FCR treatment has been stopped after 2 courses due to a new problem - fluid on my lungs. I am awaiting another bone marrow biopsy and CT scan. Depending on what my haematologist has to say in due course, I may request another opinion with a CLL specialist. I am in Hereford. Does anyone know of
Haileybury
in
CLL Support
10 years ago
For the newly diagnosed and those needing treatment
Rebecca Bechhold, MD has just blogged on the Cancer Network about the different and all equally right approaches of approaching cancer treatment. While written for medicos, it is still a relevant read for those of us facing treatment: http://www.cancernetwork.com/blog/nobodys-poster-child (Free membership
Rebecca Bechhold, MD has just blogged on the Cancer Network about the different and all equally right approaches of approaching cancer treatment. While written for medicos, it is still a relevant read for those of us facing treatment: http://www.cancernetwork.com/blog/nobodys-poster-child (Free membership
AussieNeil
Partner
in
CLL Support
10 years ago
Believe it, or not!
It is now over a year since I had a kidney transplant. I have just been referred back to Ipswich Hospital, for all things relating to the actual transplant. I am however, for the present anyway, remaining under Addenbrooke's Hospital for vasculitis. The new doctor that I'm under , DR Ande (Andy) IS
It is now over a year since I had a kidney transplant. I have just been referred back to Ipswich Hospital, for all things relating to the actual transplant. I am however, for the present anyway, remaining under Addenbrooke's Hospital for vasculitis. The new doctor that I'm under , DR Ande (Andy) IS
AndrewT
in
Vasculitis UK
10 years ago
Update on PCYC-1115-CA Randomised, Phase 3 study of Ibrutinib/Imbruvica versus Chlorambucil in Patients 65 yrs + and untreated with CLL/SLL.
Day 1 of cycle 12 today and with the exception of my platelets, (fluctuating around 100) and my low Immunoglobulins, all counts are in the normal range. Lymphocytes 2.4, LDH 222, B2m 2.8 (a month ago) and WBC 7.5. Biochemistry all in normal range also. A CT scan and possibly BMB next month will reveal
Day 1 of cycle 12 today and with the exception of my platelets, (fluctuating around 100) and my low Immunoglobulins, all counts are in the normal range. Lymphocytes 2.4, LDH 222, B2m 2.8 (a month ago) and WBC 7.5. Biochemistry all in normal range also. A CT scan and possibly BMB next month will reveal
Mikey47
in
CLL Support
10 years ago
Calcichew
I have been taking calcichew for several years and have had no problems with them [ I take one a day ] I had a bone scan recently which revealed my bone density had improved since my last one 2 years ago, so no treatment required, however I continued to take them. My question is can too much calcium
I have been taking calcichew for several years and have had no problems with them [ I take one a day ] I had a bone scan recently which revealed my bone density had improved since my last one 2 years ago, so no treatment required, however I continued to take them. My question is can too much calcium
bowler
in
PMRGCAuk
10 years ago
Flow symmetry
now I'm even more confused & I don't see the Hemayolgist until mid-Aug. I went online & found out some test results from the new Hematologist who redid everything (blood work): 1) beta 2 is high 2) "CD38 expression is dim heterogeneous. ABNORMAL CELL IMMUNOPHENOTYPE: (+) CD5, CD19, dim CD20, CD23
now I'm even more confused & I don't see the Hemayolgist until mid-Aug. I went online & found out some test results from the new Hematologist who redid everything (blood work): 1) beta 2 is high 2) "CD38 expression is dim heterogeneous. ABNORMAL CELL IMMUNOPHENOTYPE: (+) CD5, CD19, dim CD20, CD23
rlyndecker
in
CLL Support
10 years ago
Every Step Of The Way, Advocacy & Older People Living With Cancer. OPAAL and CLLSA
Kath Parson: on panel at Chronic Lymphocytic Leukaemia Support Association Patient Meeting July 16 Last month Kath Parson from OPAAL (Older Peoples Advocacy Alliance) http://www.opaal3.cswebsites.org/ joined us in Cambridge to discuss advocacy with us all and the UK campaign to support older people
Kath Parson: on panel at Chronic Lymphocytic Leukaemia Support Association Patient Meeting July 16 Last month Kath Parson from OPAAL (Older Peoples Advocacy Alliance) http://www.opaal3.cswebsites.org/ joined us in Cambridge to discuss advocacy with us all and the UK campaign to support older people
HAIRBEAR_UK
Administrator
in
CLL Support
10 years ago
Got a question about test results for Susan Le Clair?
Regular readers won't need an introduction to either Andrew Schorr of Patient Power or Dr Susan Le Clair, who has provided much to the CLL community on understanding your blood test results. For Dr Le Clair's earlier video coverage, see: http://www.patientpower.info/video/understanding-your-cll-blood-tests-immunoglobulin-complete-blood-counts-platelets-and-more
Regular readers won't need an introduction to either Andrew Schorr of Patient Power or Dr Susan Le Clair, who has provided much to the CLL community on understanding your blood test results. For Dr Le Clair's earlier video coverage, see: http://www.patientpower.info/video/understanding-your-cll-blood-tests-immunoglobulin-complete-blood-counts-platelets-and-more
AussieNeil
Partner
in
CLL Support
10 years ago
HCL patient seminar London September 20th
The Royal Marsden in Partnership with the Hairy Cell Leukaemia Foundation is hosting the first hairy cell leukaemia (HCL) patient seminar in Europe. September 20, 2014 The Royal Marsden Education & Conference Centre Julian Bloom Lecture Theatre Stewart’s Grove, London SW3 6JJ Contact For further
The Royal Marsden in Partnership with the Hairy Cell Leukaemia Foundation is hosting the first hairy cell leukaemia (HCL) patient seminar in Europe. September 20, 2014 The Royal Marsden Education & Conference Centre Julian Bloom Lecture Theatre Stewart’s Grove, London SW3 6JJ Contact For further
HAIRBEAR_UK
Administrator
in
CLL Support
10 years ago
Spirometry result
I had my spirometry test on Tuesday and it has come back as normal, I think it's FEV 77 and FVC 79 from what I can see. My lung age is 64, I'm 51, so that's not too good. So apparently I don't yet have COPD, but at high risk of developing it, so def need to stop smoking. The nurse gave me some champix
I had my spirometry test on Tuesday and it has come back as normal, I think it's FEV 77 and FVC 79 from what I can see. My lung age is 64, I'm 51, so that's not too good. So apparently I don't yet have COPD, but at high risk of developing it, so def need to stop smoking. The nurse gave me some champix
Poppin
in
Lung Conditions Community Forum
10 years ago
Had enough now!
Went to JCP as requested as l am in Work related group, feel l should be in Support Group now what with recent diagnosis of COPD as well as the Fibromyalgia which was diagnosed in 2009. JCP said l must get a letter from my dr to confirm the Copd and send this to DWP requesting a change to Support Group.My
Went to JCP as requested as l am in Work related group, feel l should be in Support Group now what with recent diagnosis of COPD as well as the Fibromyalgia which was diagnosed in 2009. JCP said l must get a letter from my dr to confirm the Copd and send this to DWP requesting a change to Support Group.My
sue930
in
Lung Conditions Community Forum
10 years ago
I'm up for it
This sunday,13th July , I am taking part in the London 10k to raise funds for CLLSA. I have been on watch and wait for almost 20 years and at almost 70 years old feel to take part is great, last year I raised £720 before gift aid .Only problem slowing me down this year is the secondary cancer diagnosed
This sunday,13th July , I am taking part in the London 10k to raise funds for CLLSA. I have been on watch and wait for almost 20 years and at almost 70 years old feel to take part is great, last year I raised £720 before gift aid .Only problem slowing me down this year is the secondary cancer diagnosed
william1945
CLLSA
in
CLL Support
10 years ago
Two complete opposite opinions
I have been seeing two different CLL people because I couldn't decide between the two, overall they both have agreed for the past ~18 months Watch & Wait. Well things have progressed a lot this past year for me. The fatigue has gotten really bad, many drs. have commented on the glands in my neck being
I have been seeing two different CLL people because I couldn't decide between the two, overall they both have agreed for the past ~18 months Watch & Wait. Well things have progressed a lot this past year for me. The fatigue has gotten really bad, many drs. have commented on the glands in my neck being
rlyndecker
in
CLL Support
10 years ago
Does anyone have Cold agglutinin disease that has CLL/SLL
Cold agglutinin is a rare autioimmunine disease that is seem with people with a lymphoma or leukemia. My husband has SLL with is very similar to CLL but has secondary cold Agglutinin .I have not seen many people with this rare disease and need to get to talk to others.. Many seem to live in Norway with
Cold agglutinin is a rare autioimmunine disease that is seem with people with a lymphoma or leukemia. My husband has SLL with is very similar to CLL but has secondary cold Agglutinin .I have not seen many people with this rare disease and need to get to talk to others.. Many seem to live in Norway with
Saratoga
in
CLL Support
10 years ago
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