Search
Search
About
Log in
Join
Experiences with
Colonic polyps
Posts
Communities
2,357 public posts
Filter results
Verbal endo diagnosis after 13 years
Hi all, My name is Rosie and I live in New Zealand anyway Ive been suffering from horrendous period pain since I was 13 no pain killer helped some codeine based ones took the edge off so I wasn't moaning on the floor in agony after being prescribed some ponstan and paracetmole the doctor told me you'll
Hi all, My name is Rosie and I live in New Zealand anyway Ive been suffering from horrendous period pain since I was 13 no pain killer helped some codeine based ones took the edge off so I wasn't moaning on the floor in agony after being prescribed some ponstan and paracetmole the doctor told me you'll
Rosie1989
in
Endometriosis UK
10 years ago
chronic fatigue syndrome
has anyone else been fobbed off with having chronic fatigue syndrome, and if so what have you done next? i have seen so many practitioners (Dr P, Dr Myhill, 2 endos and a CFS doc) and nothing has really been done. now this second endo is saying i have dampening of the pituitary (no examination was done
has anyone else been fobbed off with having chronic fatigue syndrome, and if so what have you done next? i have seen so many practitioners (Dr P, Dr Myhill, 2 endos and a CFS doc) and nothing has really been done. now this second endo is saying i have dampening of the pituitary (no examination was done
jayz2008
in
Thyroid UK
10 years ago
Archive of latest CLLSA videos
Nick's Story: CLL diagnosis; impact and challenges for the family, and talking to his children
Nick shares with us: How he was diagnosed How hard it was to adjust to that diagnosis, How he gained information to help to do this, What this meant for his family, How he discussed this with his children
Nick's Story: CLL diagnosis; impact and challenges for the family, and talking to his children
Nick shares with us: How he was diagnosed How hard it was to adjust to that diagnosis, How he gained information to help to do this, What this meant for his family, How he discussed this with his children
HAIRBEAR_UK
Administrator
in
CLL Support
10 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
My Wife, Esther, Shares Perspective of Cancer Caregiver
I am so proud of my wife of 29 years, Esther, for being a panelist at a recent town meeting for CLL patients in Seattle and being open about her experience as a caregiver to me, a patient with CLL and myelofibrosis. There is another interview coming and one with my 21 year old daughter, Ruthie, too..
I am so proud of my wife of 29 years, Esther, for being a panelist at a recent town meeting for CLL patients in Seattle and being open about her experience as a caregiver to me, a patient with CLL and myelofibrosis. There is another interview coming and one with my 21 year old daughter, Ruthie, too..
andrewschorr
in
CLL Support
10 years ago
My kidney function is hovering between 9-7% for the 12 months
Hi everyone it's nice to see all these ppl on here helping each other as least you don't feel alone.... I would just like to share my sidewith you all...I am 30 n unfortubarely am on the final stage of CKD my creatinine I am not sure exactly but it's around 400+... I suffere from high bp n anemia...
Hi everyone it's nice to see all these ppl on here helping each other as least you don't feel alone.... I would just like to share my sidewith you all...I am 30 n unfortubarely am on the final stage of CKD my creatinine I am not sure exactly but it's around 400+... I suffere from high bp n anemia...
Mobeg
in
Early CKD Support
10 years ago
CLL Clinical trials explained: Video from Dr George Follows and article for patients/carers from Professor Peter Hillmen
Dr George Follows of Cambridge University Hospitals, discusses clinical trials for CLL patients Clinical trials are not for everyone. Discussion about suitability is an “individual thing” and requires consideration of many factors and discussion between the CLL patient and Doctor. In this brief video
Dr George Follows of Cambridge University Hospitals, discusses clinical trials for CLL patients Clinical trials are not for everyone. Discussion about suitability is an “individual thing” and requires consideration of many factors and discussion between the CLL patient and Doctor. In this brief video
HAIRBEAR_UK
Administrator
in
CLL Support
10 years ago
Good morning all
Good morning all looking for. Abit of advice I gave up smoking about months ago now :) with the help of the nicotine inhalator and support from this lovely site the problem is I feel. Abit of a failure as Iam still using the inhalator that my doctor prescribe for me I only use maybe. One cartridge a
Good morning all looking for. Abit of advice I gave up smoking about months ago now :) with the help of the nicotine inhalator and support from this lovely site the problem is I feel. Abit of a failure as Iam still using the inhalator that my doctor prescribe for me I only use maybe. One cartridge a
pamela2014
in
Lung Conditions Community Forum
10 years ago
Good day to all I've been living with cll since 2008.
I had treatment single agent treanda remission since 08.Still wait and worry. All the information I get on this site makes it easier to talk to my doctor thanks to all.
I had treatment single agent treanda remission since 08.Still wait and worry. All the information I get on this site makes it easier to talk to my doctor thanks to all.
ballyhoo
in
CLL Support
10 years ago
UK 'OK to ask' patient empowerment campaign encourages patients to take part in research & FLAIR 1st line CLL trial commences + others.
Never has there been a time when so many novel therapies are available in clinical trial in the UK to treat CLL. "The National Institute for Health Research (NIHR) launched a campaign in May this year entitled "OK to Ask", encouraging patients to ask their doctor about clinical-research opportunities
Never has there been a time when so many novel therapies are available in clinical trial in the UK to treat CLL. "The National Institute for Health Research (NIHR) launched a campaign in May this year entitled "OK to Ask", encouraging patients to ask their doctor about clinical-research opportunities
HAIRBEAR_UK
Administrator
in
CLL Support
10 years ago
CLL and Merkel Cell
My father has had CLL for 17 years and has been through a couple of rounds of treatment with good results. He was recently also diagnosed with Merkel Cell carcinoma on his face. He had surgery to remove the tumor and 6 weeks of radiation. About 3 weeks after the radiation ended, the Merkel Cell reoccurred
My father has had CLL for 17 years and has been through a couple of rounds of treatment with good results. He was recently also diagnosed with Merkel Cell carcinoma on his face. He had surgery to remove the tumor and 6 weeks of radiation. About 3 weeks after the radiation ended, the Merkel Cell reoccurred
notgivingup_2
in
CLL Support
10 years ago
New videos: An introduction to The Cardiff CLL Research Group and their breakthrough in CLL prognostic testing
Following our visit to Cardiff University and Cardiff CLL research CLLSA are pleased to provide you the resulting discussions in Video.
An introduction to Professor Chris Pepper and the Cardiff CLL Research Group
In this first video Professor Chris Pepper of The Cardiff CLL Research Group,
Following our visit to Cardiff University and Cardiff CLL research CLLSA are pleased to provide you the resulting discussions in Video.
An introduction to Professor Chris Pepper and the Cardiff CLL Research Group
In this first video Professor Chris Pepper of The Cardiff CLL Research Group,
HAIRBEAR_UK
Administrator
in
CLL Support
10 years ago
Sickness ...
Hello all. I was diagnosed with good pastures syndrome in March this year. It has left me with chronic renal failure. I started haemodialysis and recently changed to peritoneal dialysis. I feel sick most if the time but it seems to get worse in the evenings. Has anyone else found this? If so what did
Hello all. I was diagnosed with good pastures syndrome in March this year. It has left me with chronic renal failure. I started haemodialysis and recently changed to peritoneal dialysis. I feel sick most if the time but it seems to get worse in the evenings. Has anyone else found this? If so what did
Syreeta
in
Dialysis Support
10 years ago
Video of the afternoon patient/carer question and answer session at Cambridge CLLSA meeting 2014
Q&A 2 - Cambridge CLLSA meeting 2014. Latest treatments and clinical trials Following on from their talks on clinical trials and the new treatment landscape; CLL consultant Dr George Follows and CLL Nurse specialist Gwyn Stafford of Cambridge University Hospitals discuss and answer questions from CLL
Q&A 2 - Cambridge CLLSA meeting 2014. Latest treatments and clinical trials Following on from their talks on clinical trials and the new treatment landscape; CLL consultant Dr George Follows and CLL Nurse specialist Gwyn Stafford of Cambridge University Hospitals discuss and answer questions from CLL
HAIRBEAR_UK
Administrator
in
CLL Support
10 years ago
Video of the morning patient/carer question and answer session at Cambridge CLLSA meeting 2014
Q&A 1 - Cambridge CLLSA meeting 2014: CLL an overview Following on from their talks on chronic lymphocytic leukaemia (CLL) and clinical care; CLL consultant Dr George Follows and CLL nurse specialist Gwyn Stafford of Cambridge University Hospitals discuss and answer questions from CLL patients and
Q&A 1 - Cambridge CLLSA meeting 2014: CLL an overview Following on from their talks on chronic lymphocytic leukaemia (CLL) and clinical care; CLL consultant Dr George Follows and CLL nurse specialist Gwyn Stafford of Cambridge University Hospitals discuss and answer questions from CLL patients and
HAIRBEAR_UK
Administrator
in
CLL Support
10 years ago
Adverse drug effects; clinical trials and real life - What we can learn from Pradaxa
From the University of Sydney, Australia, Wendy Lipworth, Senior Research Fellow, Bioethics and Ian Kerridge, Associate Professor in Bioethics & Director, Centre for Values and Ethics and the Law in Medicine, provide insights into the challenges of identifying adverse drug effects both during trials
From the University of Sydney, Australia, Wendy Lipworth, Senior Research Fellow, Bioethics and Ian Kerridge, Associate Professor in Bioethics & Director, Centre for Values and Ethics and the Law in Medicine, provide insights into the challenges of identifying adverse drug effects both during trials
AussieNeil
Partner
in
CLL Support
10 years ago
Chronic Lymphocytic Leukaemia: "an overview" & "New treatment options". Dr George Follows - CLLSA meeting June 2014
Educational CLL information from the CLL Support Association Cambridge meeting 2014
Part 1- Chronic Lymphocytic Leukaemia; an overview
In this talk Dr Follows of Cambridge University hospitals explains for patients/carers much about CLL and where we are today in the UK.
watch talk with
Educational CLL information from the CLL Support Association Cambridge meeting 2014
Part 1- Chronic Lymphocytic Leukaemia; an overview
In this talk Dr Follows of Cambridge University hospitals explains for patients/carers much about CLL and where we are today in the UK.
watch talk with
HAIRBEAR_UK
Administrator
in
CLL Support
10 years ago
Richters update
Hi everyone, just thought I would post an update re my richters tranformation. As i have seen an increase in sweats, my co sultant arranged another ct scan. The scan has revealed an enlargment of my lymph nodes pretty much everywhere since the previous scan in january. It could be just the cll in which
Hi everyone, just thought I would post an update re my richters tranformation. As i have seen an increase in sweats, my co sultant arranged another ct scan. The scan has revealed an enlargment of my lymph nodes pretty much everywhere since the previous scan in january. It could be just the cll in which
norahmaria
in
CLL Support
10 years ago
CLL patients/carers meeting Scotland, September 22nd - places and support with travel available.
Dear members there are places available for you to join us in Glasgow for our first meeting in Scotland to provide CLL support in the north. This is an opportunity to stamp this as a regular calendar event and a much needed opportunity to bring the CLL patient/carer community together in Scotland and
Dear members there are places available for you to join us in Glasgow for our first meeting in Scotland to provide CLL support in the north. This is an opportunity to stamp this as a regular calendar event and a much needed opportunity to bring the CLL patient/carer community together in Scotland and
HAIRBEAR_UK
Administrator
in
CLL Support
10 years ago
CLL specialists ?
My FCR treatment has been stopped after 2 courses due to a new problem - fluid on my lungs. I am awaiting another bone marrow biopsy and CT scan. Depending on what my haematologist has to say in due course, I may request another opinion with a CLL specialist. I am in Hereford. Does anyone know of
My FCR treatment has been stopped after 2 courses due to a new problem - fluid on my lungs. I am awaiting another bone marrow biopsy and CT scan. Depending on what my haematologist has to say in due course, I may request another opinion with a CLL specialist. I am in Hereford. Does anyone know of
Haileybury
in
CLL Support
10 years ago
For the newly diagnosed and those needing treatment
Rebecca Bechhold, MD has just blogged on the Cancer Network about the different and all equally right approaches of approaching cancer treatment. While written for medicos, it is still a relevant read for those of us facing treatment: http://www.cancernetwork.com/blog/nobodys-poster-child (Free membership
Rebecca Bechhold, MD has just blogged on the Cancer Network about the different and all equally right approaches of approaching cancer treatment. While written for medicos, it is still a relevant read for those of us facing treatment: http://www.cancernetwork.com/blog/nobodys-poster-child (Free membership
AussieNeil
Partner
in
CLL Support
10 years ago
1
...
98
99
100
Next page
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1445 results
Lung Conditions Community Forum
217 results
Diabetes India
81 results
View top 10 communities
Sort by
Most Relevant
Newest