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New video - When clinical trials are discussed with patients as an option for CLL treatment
Gwyneth Stafford CLL & Lymphoma Nurse Specialist at Cambridge University Hospitals discusses how clinical trials may be first introduced to patients and if a trial is an option that should be considered. What, where, when and if patients fit trial criteria, How the Cambridge centre connects patients
Gwyneth Stafford CLL & Lymphoma Nurse Specialist at Cambridge University Hospitals discusses how clinical trials may be first introduced to patients and if a trial is an option that should be considered. What, where, when and if patients fit trial criteria, How the Cambridge centre connects patients
HAIRBEAR_UK
Administrator
in
CLL Support
10 years ago
young people with COPD
I've been thinking about why there is a new younger demographic diagnosed with COPD. What has changed in the last 20 years with culture? In regards to marijuana in culture, the 60's and 70's did not have high pressure sodium lights which enabled a whole new way of growing pot hydroponically. The 60's
I've been thinking about why there is a new younger demographic diagnosed with COPD. What has changed in the last 20 years with culture? In regards to marijuana in culture, the 60's and 70's did not have high pressure sodium lights which enabled a whole new way of growing pot hydroponically. The 60's
Jeremy76
in
Lung Conditions Community Forum
10 years ago
In year two, MD Anderson Moon Shots Program begins to generate innovations
Interesting to see what's coming out the the 'Moon Shots Program'. CLL is only one of the areas of focus, but look at how treatment is changing: [i]"Only 15 percent of new CLL patients at MD Anderson are treated with chemotherapy, down from 48 percent two years ago. "[/i] http://www.prnewswire.com/
Interesting to see what's coming out the the 'Moon Shots Program'. CLL is only one of the areas of focus, but look at how treatment is changing: [i]"Only 15 percent of new CLL patients at MD Anderson are treated with chemotherapy, down from 48 percent two years ago. "[/i] http://www.prnewswire.com/
AussieNeil
Partner
in
CLL Support
10 years ago
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Epigenetic code cracker: why skin cells are skin cells and not neurons
Ryan Lister, Professor of Genetics at University of Western Australia (UWA), is one of four recipients of the Australian Prime Minister's Science Prize for recognise excellence in science and science teaching and was awarded the Frank Fenner Prize for Life Scientist of the Year. In the article referenced
Ryan Lister, Professor of Genetics at University of Western Australia (UWA), is one of four recipients of the Australian Prime Minister's Science Prize for recognise excellence in science and science teaching and was awarded the Frank Fenner Prize for Life Scientist of the Year. In the article referenced
AussieNeil
Partner
in
CLL Support
10 years ago
Mutations Linked to Blood Cancers Rise With Age, Study Shows
Blood cell mutations linked to the blood cancers leukemia and lymphoma increase as people get older. http://www.cancercompass.com/cancer-news/article/48382.htm Please also read the comment on the bottom of the article: Cellular iron overload affects DNA, chromosomes and organelles of the cell; creates
Blood cell mutations linked to the blood cancers leukemia and lymphoma increase as people get older. http://www.cancercompass.com/cancer-news/article/48382.htm Please also read the comment on the bottom of the article: Cellular iron overload affects DNA, chromosomes and organelles of the cell; creates
shazie
in
CLL Support
10 years ago
Dr Sharman on Lenalidomide and Rituximab in Lymphoma
This latest blog by Dr Sharman only touches briefly on CLL, but for those with a technical interest in non chemo treatments and CD20 antibodies like Rituximab, plus an interesting discussion into how CLL B-Lymphcytes inhibit T-Lymphocytes (and leave us more susceptible to secondary cancers), it is well
This latest blog by Dr Sharman only touches briefly on CLL, but for those with a technical interest in non chemo treatments and CD20 antibodies like Rituximab, plus an interesting discussion into how CLL B-Lymphcytes inhibit T-Lymphocytes (and leave us more susceptible to secondary cancers), it is well
AussieNeil
Partner
in
CLL Support
10 years ago
My Daughter's Perspectrive on My CLL
Many people know I have lived with CLL since 1996, fortunately, mostly pretty well. When I was diagnosed my daughter, Ruthie, was only 3. When I started treatment she was almost 7. Now, at 21, she is telling the world about her perspective on growing up with a Dad who is a cancer survivor. I am so proud
Many people know I have lived with CLL since 1996, fortunately, mostly pretty well. When I was diagnosed my daughter, Ruthie, was only 3. When I started treatment she was almost 7. Now, at 21, she is telling the world about her perspective on growing up with a Dad who is a cancer survivor. I am so proud
andrewschorr
in
CLL Support
10 years ago
October 2014 on-line CLL Support Association community administrators' report
CLL Support Association On-line Community Report October 2014
June saw HealthUnlocked release a new version of the CLLSA on-line community site. The new design aimed to provide a better experience for those using smart phones and tablets when accessing the site. The new version employs a simpler
CLL Support Association On-line Community Report October 2014
June saw HealthUnlocked release a new version of the CLLSA on-line community site. The new design aimed to provide a better experience for those using smart phones and tablets when accessing the site. The new version employs a simpler
HAIRBEAR_UK
Administrator
in
CLL Support
10 years ago
ASCO 2014: Dr. Kipps on ABT-199 and ROR1: "Cancer is not an alien from outer space, cancer is us"
Friends, In my latest post on my blog ( http://bkoffman.blogspot.com ), I have an interview with Dr. Kipps from ASCO earlier this year that helps explain why ABT-199 could be such a potent (and dangerous) weapon in fighting CLL and why the development of therapies directed against ROR1 are so exciting
Friends, In my latest post on my blog ( http://bkoffman.blogspot.com ), I have an interview with Dr. Kipps from ASCO earlier this year that helps explain why ABT-199 could be such a potent (and dangerous) weapon in fighting CLL and why the development of therapies directed against ROR1 are so exciting
bkoffman
CLL CURE Hero
in
CLL Support
10 years ago
How long have I got DR>>>?
I keep reading of different survival times for CLL patients depending on genetic factors,response to treatment etc. What I don't understand s where they start from- diagnosis? Starting treatment.? IT can't be form when you first developed it since we don't know and I suspect I may have had it a long
I keep reading of different survival times for CLL patients depending on genetic factors,response to treatment etc. What I don't understand s where they start from- diagnosis? Starting treatment.? IT can't be form when you first developed it since we don't know and I suspect I may have had it a long
romarin
in
CLL Support
10 years ago
New Inhaler
Just been to see my Consultant today and I was offered a different inhaler to use instead of my Tiotropium. It is called Aclidinium and is to be used twice a day. Have any of you used this? I have been given one which will last me for 30days. If I am happy with it I just need to ask my GP to prescribe
Just been to see my Consultant today and I was offered a different inhaler to use instead of my Tiotropium. It is called Aclidinium and is to be used twice a day. Have any of you used this? I have been given one which will last me for 30days. If I am happy with it I just need to ask my GP to prescribe
Hidden
in
Lung Conditions Community Forum
10 years ago
CLL and Hepatitis B vaccine
My medical team are checking this, however I wondered if anyone here has already been through this? I had a discussion with the nurse at my local GP yesteday as I am off on vacation soon. The question is simple - can we living with CLL have the Hepatitis B vaccine? I found several pieces of info on
My medical team are checking this, however I wondered if anyone here has already been through this? I had a discussion with the nurse at my local GP yesteday as I am off on vacation soon. The question is simple - can we living with CLL have the Hepatitis B vaccine? I found several pieces of info on
Oleboyredw-uk
in
CLL Support
10 years ago
New
hi I am new and a little in shock, diagnosed 2 weeks ago, after having a routine blood test back in May the gp called me back to repeat it as my white blood count slightly high, second test still slightly high so refered me to heamotology, asked doctor at time, could it be anything serious which she
hi I am new and a little in shock, diagnosed 2 weeks ago, after having a routine blood test back in May the gp called me back to repeat it as my white blood count slightly high, second test still slightly high so refered me to heamotology, asked doctor at time, could it be anything serious which she
9876
in
CLL Support
10 years ago
TEST RESULTS @ LANCASTER UNRELIABLE
I just discovered that my results from Lancaster are incorrect. They claimed numerous times that I had an overactive thyroid. I went to Blackpool and got normal results. I had my results from Lancaster reviewed and found out that they are unreliable. This is very worrying for people who are put on medication
I just discovered that my results from Lancaster are incorrect. They claimed numerous times that I had an overactive thyroid. I went to Blackpool and got normal results. I had my results from Lancaster reviewed and found out that they are unreliable. This is very worrying for people who are put on medication
littlemissthyroid
in
Thyroid UK
10 years ago
Why hospitals need more generalist doctors and specialist nurses
For many of us, CLL is not the only chronic health problem we are living with. This is a recognised issue in CLL treatment, with papers covering the challenges of dealing with patient comorbidities*. Further, with our higher risk of infections and secondary cancers, we are more likely to find ourselves
For many of us, CLL is not the only chronic health problem we are living with. This is a recognised issue in CLL treatment, with papers covering the challenges of dealing with patient comorbidities*. Further, with our higher risk of infections and secondary cancers, we are more likely to find ourselves
AussieNeil
Partner
in
CLL Support
10 years ago
Dr Sharman on Immunotherapy for Indolent (low grade) Lymphoma - includes SLL!
Dr Jeff Sharman has just posted a blog that will be of interest to anyone wishing to know more of the history of cancer treatment breakthroughs for low grade lymphomas
which specifically includes Small Lymphocytic Lymphoma (SLL) and by association, CLL
, plus it concludes with Dr Sharman's idea
Dr Jeff Sharman has just posted a blog that will be of interest to anyone wishing to know more of the history of cancer treatment breakthroughs for low grade lymphomas
which specifically includes Small Lymphocytic Lymphoma (SLL) and by association, CLL
, plus it concludes with Dr Sharman's idea
AussieNeil
Partner
in
CLL Support
10 years ago
replies to my e cig question
Once again you lovely people have shared your thoughts on this and one thing thats really jumped out for me is that i didnt know the tobacco companies were now looking into e cigs for them to sell to us. A couple of years ago i read a book which stated that if the amount of nicotine were reduced in
Once again you lovely people have shared your thoughts on this and one thing thats really jumped out for me is that i didnt know the tobacco companies were now looking into e cigs for them to sell to us. A couple of years ago i read a book which stated that if the amount of nicotine were reduced in
Hidden
in
Lung Conditions Community Forum
10 years ago
Cystoscopy - advise please
Good Morning! My husband has just received his letter calling him to hospital for the above procedure in a couple of weeks. He uses ambulatory oxygen so we will take that with us and I have noted it says that the "nurse will talk you for the procedure" - doubtful will get a wheelchair. Just wondered
Good Morning! My husband has just received his letter calling him to hospital for the above procedure in a couple of weeks. He uses ambulatory oxygen so we will take that with us and I have noted it says that the "nurse will talk you for the procedure" - doubtful will get a wheelchair. Just wondered
Hidden
in
Lung Conditions Community Forum
10 years ago
Rapidly increasing lymphocytes
Has anyone out there had this problem? I have excellent prognostics...hyper mutated, normal karotype, low 38 or is it 36 presence , 0 zap 70. No del 17 or del 11. Diagnosed April 2013, ANC 6.4. All other blood counts good. Low LDH , beta microglobulin at I.6 In Feb2014 (same as prior year)
Has anyone out there had this problem? I have excellent prognostics...hyper mutated, normal karotype, low 38 or is it 36 presence , 0 zap 70. No del 17 or del 11. Diagnosed April 2013, ANC 6.4. All other blood counts good. Low LDH , beta microglobulin at I.6 In Feb2014 (same as prior year)
Wetumpka
in
CLL Support
10 years ago
FDA Grants Special Protocol Assessment to Phase III Ublituximab/Ibrutinib Study
"TG Therapeutics has reached an agreement with the FDA regarding a Special Protocol Assessment for a phase III clinical trial exploring ublituximab (TG-1101, a chimeric recombinant glycoengineered monoclonal antibody directed against CD20) in combination with ibrutinib (Imbruvica) for the treatment of
"TG Therapeutics has reached an agreement with the FDA regarding a Special Protocol Assessment for a phase III clinical trial exploring ublituximab (TG-1101, a chimeric recombinant glycoengineered monoclonal antibody directed against CD20) in combination with ibrutinib (Imbruvica) for the treatment of
AussieNeil
Partner
in
CLL Support
10 years ago
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