Richters update

[norahmaria]

Hi everyone, just thought I would post an update re my richters tranformation. As i have seen an increase in sweats, my co sultant arranged another ct scan. The scan has revealed an

enlargment of my lymph nodes pretty much everywhere since the previous scan in january. It could be just the cll in which case they could hold off treatment for a while as my blood work is good and within 'normal range' (wbc 4, hb 12.5, platelets 157), however it could be the richters has returned (I finished CHOP in jan 2013 and the maintenance period of ofatumumab in november 2013 for RT). I am having a biopsy from the lymph node under my right arm for confirmation.my consultant mentined that if it proves to be richters again I will be able to have ibrutinib. I think this will be on compassionate grounds. Apart from the sweats I feel well. Will post further updates of my progress. Best wishes everyone

[Cammie]

Wish you good luck and hope all goes well!

[norahmaria in reply to Cammie]

Thank you cammie

[flutterbye]

Wishing you the very best of luck!

[norahmaria in reply to flutterbye]

Thank you

[SycamoreN]

Best of luck, Noramaria

[bkoffman CLL CURE Hero]

Have you considered a transplant?

[norahmaria in reply to bkoffman]

I was told it would not be suitable for me

[Newdawn Administrator]

Glad to hear you're actually feeling well in yourself norahmaria despite the sweats and the enlarged lymph nodes. Keeping everything crossed that the tests don't reveal Richter's but should it be the case, I hope you can be given Ibrutinib on compassionate grounds.

Thanks for giving us your update, we're all wishing you well and I hope you're managing to keep strong psychologically.

Warm good wishes,

Newdawn x

[norahmaria]

Thank you so muck newdawn. I will post further updates when I get the results of my biopsy . Feeling scared but hopeful. Hope you are keeping well

[Calopteryx]

Let us know how you get on. Waiting for results is always scary, you have my sympathy. I hope it all goes well for you.

C

[norahmaria in reply to Calopteryx]

Thank you. Best wishes to you too

[norahmaria in reply to Calopteryx]

Will do. Thank you. Best wishes to you too.

[jangreen]

Best of luck.

[norahmaria in reply to jangreen]

Thank you for your good wishes jangreen

[fieldmeadow]

Thanks for the update. Let us all know how your biopsy goes - and any other results you feel able to share. Will be thinking of you. All the best.

[norahmaria in reply to fieldmeadow]

Will do, many thanks fieldmeadow

[ABQCLL]

I too send along my sincere wishes that RT has not returned, and that things are easy for you -

[norahmaria in reply to ABQCLL]

Thank you for your good wishes. I have everything crossed

[stewie]

Hope your ok norahmaria , stay strong , good that you feel well apart from the sweats

stewie

[norahmaria in reply to stewie]

Thank you for your good wishes stewie. All the very best to you too.