CLL patients/carers meeting Scotland, Septemb... - CLL Support

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CLL patients/carers meeting Scotland, September 22nd - places and support with travel available.

HAIRBEAR_UK profile image
HAIRBEAR_UKFounder Admin
5 Replies

Dear members there are places available for you to join us in Glasgow for our first meeting in Scotland to provide CLL support in the north. This is an opportunity to stamp this as a regular calendar event and a much needed opportunity to bring the CLL patient/carer community together in Scotland and the North. Please join us in Glasgow and help us deliver a successful meeting. Glasgow has just given us the best commonwealth games ever, I think the Glasgow CLL meeting is shaping up to keep the bar as high. Having enjoyed the games, I am looking forward to enjoying Glasgow and meeting new friends.

CLLSA patient/carer meetings are an opportunity to share with others who understand and can relate (no need to explain), while learning from CLL expert clinical consultants and each other strategies to "live well with CLL" and developments and resources in your area.

If you are in Scotland or the North of England, please can you circulate meeting details by sticking up a page at your clinic next time you visit. We hope people will join us from wider afield too.

The venue is right opposite the train station. so easy to get to from both sides of the boarder. Meeting details: healthunlocked.com/cllsuppo...

The first CLLSA meeting in Scotland

Monday 22nd September 2014

10.00am - 4.00pm

Grand Central Hotel

99 Gordon Street

Glasgow G1 3SF

goo.gl/M1GNdt

All members are invited to our first meeting in Scotland on the 22nd of

September 2014. We are privileged to have Dr Alison McCaig MBChB, MRCP,

FRCPath, PhD as our keynote speaker.

Dr McCaig is a consultant in the haematology department of the Royal

Alexandra Hospital, Paisley. She also works for one day a week in the

Beatson West of Scotland Cancer Centre, running the CLL clinic, along with

Dr Mike Leach. A large part of this role is to increase the number of UK CLL

trials that are run locally, and Dr McCaig is the primary investigator on

two current trials. She took her PhD at the Paul O'Gorman Leukaemia Research

Laboratory, University of Glasgow, and still maintains links with the lab

where her work involves the investigation of novel therapeutic targets in

CLL.

The programme will be a combination of presentations and discussions

focusing on living with CLL and current treatments in the morning session.

In the afternoon the focus will switch to the latest CLL trials and future

developments in CLL research and treatments.

Dr McCaig will be joined by a member of her research team who will give a

brief presentation of the latest research work in which they are involved.

We will also ensure the patient perspective is built into the programme when

CLL patients from Scotland will share their experiences with members.

The day will begin with coffee during registration (10.00-10.30) and lunch

and afternoon tea are provided. A more detailed programme will be forwarded

in due course.

The conference is free for CLLSA members.

Membership is free you can enroll as a member ahead of booking at cllsupport.org.uk/php_f...

or by phone or by post as below.

To register for the meeting:

E-mail Sarah at: membership@cllsupport.org.uk

Telephone 0800 977 4396 and leave a message

Or write to CLL Support Association, 39-40 Eagle Street, London, WC1R 4TH.

Travel Bursary

Please be aware that financial aid is available towards travel costs. These allowances are available for CLL Patients and Carers. The total available for a CLLSA member and/or their carer is £125 per head per year.

You do need to apply for the bursary prior to your travel. We will need to receive your application ahead of the meeting date.

For more information and application details E-mail Sarah at: membership@cllsupport.org.uk

or telephone 0800 977 4396 and leave a message

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HAIRBEAR_UK
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5 Replies
Oleboyredw-uk profile image
Oleboyredw-uk

Hi all,

Speaking from personal experience of attending four meetings since my diagnosis in Mid-2012 I would strongly recommend attending the meeting if it is convenient for you. I've found the speakers excellent delivering interesting materials specifically relevant to us now and in the future.

I'm Buxton based (save anyone looking it up) and plan to be in Glasgow for this event, hoping to demonstrate Scotland and N England is a good place for a meeting. I'm also hoping to take in a few sights of Glasgow and possibly Edinburgh while I'm in the area.

Hope to see you at the meeting.

rob

Newdawn profile image
NewdawnAdministrator in reply toOleboyredw-uk

Yes I hope to be at the meeting too all being well (have some minor surgery a few days before so dependent on outcome, I'll be attending).

Be great to meet up with people.

Newdawn

flutterbye profile image
flutterbye in reply toNewdawn

Hope to be there, if all goes well with icClLLe trial

olyocl profile image
olyocl

Will be there, hoping to put faces to names. Am really looking forward to it as this will be first meeting since I was diagnosed in March, 2010.

Gartshore profile image
Gartshore

I'm coming - and bringing hubby! Looking forward to meeting others from this forum. Tricia

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