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Video - Brian's Story: A Husband and Wife's CLL Diagnosis, Understanding and Coping Together
Brian shares with us: how he learned of and reacted to his wife's diagnosis, how that affected him, what he understood and how they discovered what this meant. how they both gained their knowledge to put things in context, how learning and information networks were key, how on-line resources countered
Brian shares with us: how he learned of and reacted to his wife's diagnosis, how that affected him, what he understood and how they discovered what this meant. how they both gained their knowledge to put things in context, how learning and information networks were key, how on-line resources countered
HAIRBEAR_UK
Administrator
in
CLL Support
10 years ago
A bit confused
HI, It's been sometime since my last post and I am just writing for some advice and information,because I do not think that I am taking my CLL Seriously enough and just hoping it will go away. I am 71 yrs and was diagnosed with CLL last year. I have had six months of Chemotherapy which was two days a
HI, It's been sometime since my last post and I am just writing for some advice and information,because I do not think that I am taking my CLL Seriously enough and just hoping it will go away. I am 71 yrs and was diagnosed with CLL last year. I have had six months of Chemotherapy which was two days a
john133
in
CLL Support
10 years ago
Back pain
I was diagnosed with CLL in 2009 and that developed into Richter's Transformation at the end of 2012. After successful treatment (CHOP-R) last year I am back on watch and wait. In the last 4-6 weeks a number of palpable lymph nodes have begun to develop in my neck and under my left arm but on the positive
I was diagnosed with CLL in 2009 and that developed into Richter's Transformation at the end of 2012. After successful treatment (CHOP-R) last year I am back on watch and wait. In the last 4-6 weeks a number of palpable lymph nodes have begun to develop in my neck and under my left arm but on the positive
colmoore1
in
CLL Support
10 years ago
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Endo on the bowel causing pain?
Hi there. Im mew to this forum but was hoping for some peace of mind and support. I was diagnosed age13 with endo and have lived with it now for 24 years. Several laporoscopies and an oophorectomy 4 years ago due to chocolate cyst on my right ovary. Pcos was also diagnosed. Ttc for 8 years with failed
Hi there. Im mew to this forum but was hoping for some peace of mind and support. I was diagnosed age13 with endo and have lived with it now for 24 years. Several laporoscopies and an oophorectomy 4 years ago due to chocolate cyst on my right ovary. Pcos was also diagnosed. Ttc for 8 years with failed
Claireabella78
in
Endometriosis UK
10 years ago
New Video Series: CLL patients and Carers share their own story
10/12/2014 The video series of Patient/carer personal stories continues with more insights from friends and members Jan, Chonette, Andy and Nick. This is a series of brief videos from friends and CLLSA members living with CLL; their own stories, insights and lessons.
Nick's Story: CLL diagnosis;
10/12/2014 The video series of Patient/carer personal stories continues with more insights from friends and members Jan, Chonette, Andy and Nick. This is a series of brief videos from friends and CLLSA members living with CLL; their own stories, insights and lessons.
Nick's Story: CLL diagnosis;
HAIRBEAR_UK
Administrator
in
CLL Support
10 years ago
ASCO 2014: Dr. Byrd: What we could only Learn from a CLL Phase 3 Trial about Ibrutinib and Ofatumumab in Relapsed CLL
Friends, I just posted an audio only interview with Dr. Byrd on my blog: http://bkoffman.blogspot.com. It is full of important issues concerning trial design and equipoise, and surprising findings in the Resonate trial comparing ofatumumab to ibrutinib Enjoy but please do forgive my lousy recording
Friends, I just posted an audio only interview with Dr. Byrd on my blog: http://bkoffman.blogspot.com. It is full of important issues concerning trial design and equipoise, and surprising findings in the Resonate trial comparing ofatumumab to ibrutinib Enjoy but please do forgive my lousy recording
bkoffman
CLL CURE Hero
in
CLL Support
10 years ago
Splenomegaly in CLL patients: How far can you go ?
Wondering if anyone could provide a good description of the causes of Splenomegaly specifically in CLL patients i.e. what the spleen is doing and why it enlarges in the CLL case. I can now visibly see my spleen tip extended about 11cm now below the end of the rib cage, the ribs also sticking out. Having
Wondering if anyone could provide a good description of the causes of Splenomegaly specifically in CLL patients i.e. what the spleen is doing and why it enlarges in the CLL case. I can now visibly see my spleen tip extended about 11cm now below the end of the rib cage, the ribs also sticking out. Having
Ernest2
in
CLL Support
10 years ago
Pulmonary Effects of Tobacco Vaporizer?
I have switched from cigarettes to a tobacco vaporizer, which is not the same as an e-cigarette in that it uses tobacco leaves rather than e-juices/liquids. I use approximately one cigarette worth of leaves on a daily basis. This device heats the leaves up to a max of 210 degrees celsius, thus not causing
I have switched from cigarettes to a tobacco vaporizer, which is not the same as an e-cigarette in that it uses tobacco leaves rather than e-juices/liquids. I use approximately one cigarette worth of leaves on a daily basis. This device heats the leaves up to a max of 210 degrees celsius, thus not causing
ALMOS7
in
Lung Conditions Community Forum
10 years ago
?Haem or peritoneal dialysis
My eGFR is 12 and I am having a fistula made. Consultant calls it'planned dialysis' although I don't need it right now. I prefer idea of haemodialysis but would really appreciate other peoples' experiences. Look forward to hearing from you. Manon
My eGFR is 12 and I am having a fistula made. Consultant calls it'planned dialysis' although I don't need it right now. I prefer idea of haemodialysis but would really appreciate other peoples' experiences. Look forward to hearing from you. Manon
manon
in
Early CKD Support
10 years ago
After a CLL cure, how do we restore our immune system?
As we are well aware, CLL is a cancer of the immune system. Current treatments don't provide a permanent cure and often worsen immune suppression, which is why nearly all of us are put on 'Watch and Wait' when we are diagnosed, much to our surprise, rather than starting immediate treatment. So I'm
As we are well aware, CLL is a cancer of the immune system. Current treatments don't provide a permanent cure and often worsen immune suppression, which is why nearly all of us are put on 'Watch and Wait' when we are diagnosed, much to our surprise, rather than starting immediate treatment. So I'm
AussieNeil
Partner
in
CLL Support
10 years ago
How Can Anyone Be 'Bored'...
That horrible black cloud is moving away thank goodness...thank you all for your reassuring comments...it's nasty enough to be thinking how to breathe without having to suffer from an over whelming feeling of doom and gloom...! I don't know how many of you have an account on FaceAche...both Himself
That horrible black cloud is moving away thank goodness...thank you all for your reassuring comments...it's nasty enough to be thinking how to breathe without having to suffer from an over whelming feeling of doom and gloom...! I don't know how many of you have an account on FaceAche...both Himself
Hidden
in
Lung Conditions Community Forum
10 years ago
no salt no sugar no potassium help!!!
I have seen my consultant today we have discussed dialysis, I have had a fistula fitted but it hasn't worked so am waiting to have another fitted. he suggested I think about the perennial dialysis which I don't like the idea of. he also suggested I cut out potassium in my diet, I already don't add
I have seen my consultant today we have discussed dialysis, I have had a fistula fitted but it hasn't worked so am waiting to have another fitted. he suggested I think about the perennial dialysis which I don't like the idea of. he also suggested I cut out potassium in my diet, I already don't add
Louise71
in
Early CKD Support
10 years ago
New video - When clinical trials are discussed with patients as an option for CLL treatment
Gwyneth Stafford CLL & Lymphoma Nurse Specialist at Cambridge University Hospitals discusses how clinical trials may be first introduced to patients and if a trial is an option that should be considered. What, where, when and if patients fit trial criteria, How the Cambridge centre connects patients
Gwyneth Stafford CLL & Lymphoma Nurse Specialist at Cambridge University Hospitals discusses how clinical trials may be first introduced to patients and if a trial is an option that should be considered. What, where, when and if patients fit trial criteria, How the Cambridge centre connects patients
HAIRBEAR_UK
Administrator
in
CLL Support
10 years ago
young people with COPD
I've been thinking about why there is a new younger demographic diagnosed with COPD. What has changed in the last 20 years with culture? In regards to marijuana in culture, the 60's and 70's did not have high pressure sodium lights which enabled a whole new way of growing pot hydroponically. The 60's
I've been thinking about why there is a new younger demographic diagnosed with COPD. What has changed in the last 20 years with culture? In regards to marijuana in culture, the 60's and 70's did not have high pressure sodium lights which enabled a whole new way of growing pot hydroponically. The 60's
Jeremy76
in
Lung Conditions Community Forum
10 years ago
In year two, MD Anderson Moon Shots Program begins to generate innovations
Interesting to see what's coming out the the 'Moon Shots Program'. CLL is only one of the areas of focus, but look at how treatment is changing: [i]"Only 15 percent of new CLL patients at MD Anderson are treated with chemotherapy, down from 48 percent two years ago. "[/i] http://www.prnewswire.com/
Interesting to see what's coming out the the 'Moon Shots Program'. CLL is only one of the areas of focus, but look at how treatment is changing: [i]"Only 15 percent of new CLL patients at MD Anderson are treated with chemotherapy, down from 48 percent two years ago. "[/i] http://www.prnewswire.com/
AussieNeil
Partner
in
CLL Support
10 years ago
Epigenetic code cracker: why skin cells are skin cells and not neurons
Ryan Lister, Professor of Genetics at University of Western Australia (UWA), is one of four recipients of the Australian Prime Minister's Science Prize for recognise excellence in science and science teaching and was awarded the Frank Fenner Prize for Life Scientist of the Year. In the article referenced
Ryan Lister, Professor of Genetics at University of Western Australia (UWA), is one of four recipients of the Australian Prime Minister's Science Prize for recognise excellence in science and science teaching and was awarded the Frank Fenner Prize for Life Scientist of the Year. In the article referenced
AussieNeil
Partner
in
CLL Support
10 years ago
Mutations Linked to Blood Cancers Rise With Age, Study Shows
Blood cell mutations linked to the blood cancers leukemia and lymphoma increase as people get older. http://www.cancercompass.com/cancer-news/article/48382.htm Please also read the comment on the bottom of the article: Cellular iron overload affects DNA, chromosomes and organelles of the cell; creates
Blood cell mutations linked to the blood cancers leukemia and lymphoma increase as people get older. http://www.cancercompass.com/cancer-news/article/48382.htm Please also read the comment on the bottom of the article: Cellular iron overload affects DNA, chromosomes and organelles of the cell; creates
shazie
in
CLL Support
10 years ago
Dr Sharman on Lenalidomide and Rituximab in Lymphoma
This latest blog by Dr Sharman only touches briefly on CLL, but for those with a technical interest in non chemo treatments and CD20 antibodies like Rituximab, plus an interesting discussion into how CLL B-Lymphcytes inhibit T-Lymphocytes (and leave us more susceptible to secondary cancers), it is well
This latest blog by Dr Sharman only touches briefly on CLL, but for those with a technical interest in non chemo treatments and CD20 antibodies like Rituximab, plus an interesting discussion into how CLL B-Lymphcytes inhibit T-Lymphocytes (and leave us more susceptible to secondary cancers), it is well
AussieNeil
Partner
in
CLL Support
10 years ago
My Daughter's Perspectrive on My CLL
Many people know I have lived with CLL since 1996, fortunately, mostly pretty well. When I was diagnosed my daughter, Ruthie, was only 3. When I started treatment she was almost 7. Now, at 21, she is telling the world about her perspective on growing up with a Dad who is a cancer survivor. I am so proud
Many people know I have lived with CLL since 1996, fortunately, mostly pretty well. When I was diagnosed my daughter, Ruthie, was only 3. When I started treatment she was almost 7. Now, at 21, she is telling the world about her perspective on growing up with a Dad who is a cancer survivor. I am so proud
andrewschorr
in
CLL Support
10 years ago
October 2014 on-line CLL Support Association community administrators' report
CLL Support Association On-line Community Report October 2014
June saw HealthUnlocked release a new version of the CLLSA on-line community site. The new design aimed to provide a better experience for those using smart phones and tablets when accessing the site. The new version employs a simpler
CLL Support Association On-line Community Report October 2014
June saw HealthUnlocked release a new version of the CLLSA on-line community site. The new design aimed to provide a better experience for those using smart phones and tablets when accessing the site. The new version employs a simpler
HAIRBEAR_UK
Administrator
in
CLL Support
10 years ago
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