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Torchy
Hi everyone.ive just joined this forum and i have been having ibs for months.i have quiet alot of pain killers for the excruciating pain and none of them help.ive colofac long release just prescibed me but it doesnt help my pain much i still have to take tramadol and really really want to come off this.so
Hi everyone.ive just joined this forum and i have been having ibs for months.i have quiet alot of pain killers for the excruciating pain and none of them help.ive colofac long release just prescibed me but it doesnt help my pain much i still have to take tramadol and really really want to come off this.so
Hidden
in
IBS Network
9 years ago
FDA updates warning about Bendamustine (Trenda)
The FDA issued a statement, warning healthcare professionals not to use the chemotherapy drug Treanda Injection (bendamustine hydrochloride) with closed system transfer devices (CSTDs), adapters, and syringes containing polycarbonate or acrylonitrile-butadiene-styrene (ABS). In an expanding world of
The FDA issued a statement, warning healthcare professionals not to use the chemotherapy drug Treanda Injection (bendamustine hydrochloride) with closed system transfer devices (CSTDs), adapters, and syringes containing polycarbonate or acrylonitrile-butadiene-styrene (ABS). In an expanding world of
ThreeWs
in
CLL Support
9 years ago
does anyone know or have information
I have been prescibed spiiva respimat inhaler2.5mcg/actuation 2puffs once a day. The drug stores have all said I'm the first person they have filled it for.They had to order it.So far none of them sound like they know anything about this inhaler. So I'm nervous about using it.I have used spiriva handihaler
I have been prescibed spiiva respimat inhaler2.5mcg/actuation 2puffs once a day. The drug stores have all said I'm the first person they have filled it for.They had to order it.So far none of them sound like they know anything about this inhaler. So I'm nervous about using it.I have used spiriva handihaler
Cheryl58
in
Lung Conditions Community Forum
9 years ago
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InPractice CLL reference update - Idelalisib+Ofatumumab for relapsed/refractory patients. (Another CLL reference worth bookmarking)
The comprehensive InPractice reference for diagnosing, monitoring and treating CLL is regularly updated, with the latest update incorporating the addition of ofatumumab to idelalisib in patients with relapsed/refractory CLL plus the initial results from HELIOS trial of ibrutinib added to BR. The authors
The comprehensive InPractice reference for diagnosing, monitoring and treating CLL is regularly updated, with the latest update incorporating the addition of ofatumumab to idelalisib in patients with relapsed/refractory CLL plus the initial results from HELIOS trial of ibrutinib added to BR. The authors
AussieNeil
Partner
in
CLL Support
9 years ago
England cancer drug funding cancellation - Use your democratic freedom to protest. Derogatory posts/replies/content [u]will[/u] be deleted.
The whole CLL patient world is the poorer because of the recent reversal of funding arrangements for new (and not so new CLL drugs i.e. Bendamustine) in England*. Unfortunately posting or replying with derogatory remarks about politicians and political parties will not help your cause.
These will
The whole CLL patient world is the poorer because of the recent reversal of funding arrangements for new (and not so new CLL drugs i.e. Bendamustine) in England*. Unfortunately posting or replying with derogatory remarks about politicians and political parties will not help your cause.
These will
AussieNeil
Partner
in
CLL Support
9 years ago
Part 2 of ASH Interview with Dr. Sharman, a patient meeting in Seattle and off to iwCLL later tonight
Friends, This week on the CLL Society website, in our Conference coverage section, we share the second part of an interview from ASH 2014 with Dr. Jeff Sharman with a discussion of the life and death pressures on our B cells and how that relates to ABT-199. We also cover the latest research on idelalisib
Friends, This week on the CLL Society website, in our Conference coverage section, we share the second part of an interview from ASH 2014 with Dr. Jeff Sharman with a discussion of the life and death pressures on our B cells and how that relates to ABT-199. We also cover the latest research on idelalisib
bkoffman
CLL CURE Hero
in
CLL Support
9 years ago
Passive smoking
Hello all, My father was a heavy smoker and I was subjected to a lot of second hand smoke growing up. Then in latter years became my Dad's carer. He was house-bound in a wheel chair as a result of losing a leg due to bad circulation. He kept on smoking in the house so when I went to look after him on
Hello all, My father was a heavy smoker and I was subjected to a lot of second hand smoke growing up. Then in latter years became my Dad's carer. He was house-bound in a wheel chair as a result of losing a leg due to bad circulation. He kept on smoking in the house so when I went to look after him on
Parramatta
in
CLL Support
9 years ago
Advice please
Hi all well this is my official stop smoking day !!!! So far so good, but probably helped because i feel so bad. I was diagnosed with copd couple weeks ago & started champix. Been on them b4 but didnt finish course & yes started smoking again, this time i know ive GOT 2 stop. Was started on serevent
Hi all well this is my official stop smoking day !!!! So far so good, but probably helped because i feel so bad. I was diagnosed with copd couple weeks ago & started champix. Been on them b4 but didnt finish course & yes started smoking again, this time i know ive GOT 2 stop. Was started on serevent
Jftyy
in
Lung Conditions Community Forum
9 years ago
ASH 2014. Dr. Sharman discusses the biology of our CLL cells
Friends, This week on the CLL Society website http://cllsociety.org, we share the first part of an interview from ASH 2014 with Dr. Jeff Sharman with a very interesting and easily understood explanation of the lifecycle of the B cell in the lymph nodes, bone marrow and bloodstream. As always we provide
Friends, This week on the CLL Society website http://cllsociety.org, we share the first part of an interview from ASH 2014 with Dr. Jeff Sharman with a very interesting and easily understood explanation of the lifecycle of the B cell in the lymph nodes, bone marrow and bloodstream. As always we provide
bkoffman
CLL CURE Hero
in
CLL Support
9 years ago
Join me in a nice cup of tea?
Having a cup of tea is a very British tradition, with the UK being the fifth highest country for tea consumption per capita. Clare Collins, Professor in Nutrition and Dietetics at University of Newcastle, provides 5 reasons why having a cup of tea is good for your health: https://theconversation.com
Having a cup of tea is a very British tradition, with the UK being the fifth highest country for tea consumption per capita. Clare Collins, Professor in Nutrition and Dietetics at University of Newcastle, provides 5 reasons why having a cup of tea is good for your health: https://theconversation.com
AussieNeil
Partner
in
CLL Support
9 years ago
Congratulations to Chris on reaching 1,000 posts (and many many replies)!
In the not quite 3 years of this community's existence, barely a day goes by without Chris (Cllcanada) bringing us the latest developments in CLL, interspersed with lots of helpful information via replies to our posts/questions to help us live better with CLL, no matter what stage we are at. Chris also
In the not quite 3 years of this community's existence, barely a day goes by without Chris (Cllcanada) bringing us the latest developments in CLL, interspersed with lots of helpful information via replies to our posts/questions to help us live better with CLL, no matter what stage we are at. Chris also
AussieNeil
Partner
in
CLL Support
9 years ago
Stable
Hi All Had my 6 monthly today still stable physically but not sure about mentally wbc 76 hb 16.3 platelets 263. Raising funds for Leukaemia and Lymphoma research but after the ride will concentrate on riasing funds for CLL research at Oxford only. The Flyer
Hi All Had my 6 monthly today still stable physically but not sure about mentally wbc 76 hb 16.3 platelets 263. Raising funds for Leukaemia and Lymphoma research but after the ride will concentrate on riasing funds for CLL research at Oxford only. The Flyer
Hidden
in
CLL Support
9 years ago
Joe Parzych,
Am a relapsed CLL patient, residing in West suburban Chicago. First diagnosed in 2008, and receive care at Nithwestern Hospital in Chicago. Started participation of clinical trial March 2014, ABT-199 and Rituxan. In remission since December 2014. Feeling very good.
Am a relapsed CLL patient, residing in West suburban Chicago. First diagnosed in 2008, and receive care at Nithwestern Hospital in Chicago. Started participation of clinical trial March 2014, ABT-199 and Rituxan. In remission since December 2014. Feeling very good.
Parzych
in
CLL Support
9 years ago
My Take on 3 Interesting Papers on CLL from ASCO 2015
Friends, This week on CLL Society (http://cllsociety.org) in our 2015 conference coverage (http://cllsociety.org/conference-coverage/2015-conferences/) section, we feature an interview with me by fellow CLL patient, Carol Preston of Patient Power (http://www.patientpower.info) where I quickly outline
Friends, This week on CLL Society (http://cllsociety.org) in our 2015 conference coverage (http://cllsociety.org/conference-coverage/2015-conferences/) section, we feature an interview with me by fellow CLL patient, Carol Preston of Patient Power (http://www.patientpower.info) where I quickly outline
bkoffman
CLL CURE Hero
in
CLL Support
9 years ago
Newbie looking for help ๐
Hi everyone I have had type 1 diabetes for 38 yrs now but unfortunately the combination of time and mismanagement in my youth have given me a variety of complications The most severe is renal failure and because of this I am facing transplant surgery I am pre dialysis and have been given options of kidney
Hi everyone I have had type 1 diabetes for 38 yrs now but unfortunately the combination of time and mismanagement in my youth have given me a variety of complications The most severe is renal failure and because of this I am facing transplant surgery I am pre dialysis and have been given options of kidney
Mark3365
in
Kidney Transplant Patient Support
9 years ago
Kidney or pancreas kidney - ??????????
Hi Ive just been made aware of this site (thankyou) I am a type 1 diabetic diagnosed 38 yrs ago. The combination of time and mismanagement in my youth has left me with a variety of problems. The most serious being renal impairment - I am not yet on dialysis but Im guessing its not to far away My mind
Hi Ive just been made aware of this site (thankyou) I am a type 1 diabetic diagnosed 38 yrs ago. The combination of time and mismanagement in my youth has left me with a variety of problems. The most serious being renal impairment - I am not yet on dialysis but Im guessing its not to far away My mind
Mark3365
in
Kidney Transplant Patient Support
9 years ago
Why we need to register and report the results of all clinical trials
schwit1 writes in Slashdot: [i]"The requirement that medical researchers register in detail the methods they intend to use in their clinical trials, both to record their data as well as document their outcomes, caused a significant drop in trials producing positive results. From Nature: http://www.nature.com
schwit1 writes in Slashdot: [i]"The requirement that medical researchers register in detail the methods they intend to use in their clinical trials, both to record their data as well as document their outcomes, caused a significant drop in trials producing positive results. From Nature: http://www.nature.com
AussieNeil
Partner
in
CLL Support
9 years ago
Tacrolimus (advagraf)
Hello - hope everyone is as well as they can be ๐๐ We are having some problems with Robs 'tacrolimus' - he forgets if he has taken it and we have said that 'I' will give it to him and then he says 'he has already taken it' and then asks hours later if he has had it ?????? Does anyone have any experience
Hello - hope everyone is as well as they can be ๐๐ We are having some problems with Robs 'tacrolimus' - he forgets if he has taken it and we have said that 'I' will give it to him and then he says 'he has already taken it' and then asks hours later if he has had it ?????? Does anyone have any experience
Hidden
in
British Liver Trust
9 years ago
Withdrawal seizures
Hi, first post in here so forgive me. I went on a 3 month booze binge due to some distressing events that occurred in my life once again. Did the same thing 2 yrs ago and doc said I had AH. But no meds or recommendations to do anything but cut down?! Which I did and went first 3 months of this year sober
Hi, first post in here so forgive me. I went on a 3 month booze binge due to some distressing events that occurred in my life once again. Did the same thing 2 yrs ago and doc said I had AH. But no meds or recommendations to do anything but cut down?! Which I did and went first 3 months of this year sober
tgillies
in
British Liver Trust
9 years ago
Clicking noise when breathing
I was diagnosed with WG over 16 years ago and have Saddle Nose Deformity. My partner is quite concerned that when I'm asleep my breathing sounds like a regular loud clicking sound down a hollow tube and at times the ' death 'rattle ' !!!! his been so concerned at times he has sat up a lot of the
I was diagnosed with WG over 16 years ago and have Saddle Nose Deformity. My partner is quite concerned that when I'm asleep my breathing sounds like a regular loud clicking sound down a hollow tube and at times the ' death 'rattle ' !!!! his been so concerned at times he has sat up a lot of the
Essex-jill
in
Vasculitis UK
9 years ago
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