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Peeping Over The Parapet...
We have all we need...food on the table and warmth when it's cold...enough clothes and hot water and a loo that flushes. We have good neighbours and a reliable car and just enough money to spare for hobbies... There are our pets...the kittens who snuggle up and purr in my ear at night...the dogs Himself
We have all we need...food on the table and warmth when it's cold...enough clothes and hot water and a loo that flushes. We have good neighbours and a reliable car and just enough money to spare for hobbies... There are our pets...the kittens who snuggle up and purr in my ear at night...the dogs Himself
Hidden
in
Lung Conditions Community Forum
9 years ago
Silly question....
Hi I was diagnosed with CLL in October 2013 I had treatment in October 2014 (bendamustine and Rituximab) and finished treatment in March of this year. I saw my haematologist yesterday and he said there is no trace of the leukaemia in my blood . My question is do I still have CLL?
Hi I was diagnosed with CLL in October 2013 I had treatment in October 2014 (bendamustine and Rituximab) and finished treatment in March of this year. I saw my haematologist yesterday and he said there is no trace of the leukaemia in my blood . My question is do I still have CLL?
icklemand
in
CLL Support
9 years ago
FISH TEST
Dear CLL experts can someone please tell me what the FISH test is? I do understand that it is the main test to determine CLL. Since I have only had PET scans and MRI I'm wondering if the FISH test is a blood test? Or is the FISH test a bone marrow test? Thanks I know this is a very basic question
Dear CLL experts can someone please tell me what the FISH test is? I do understand that it is the main test to determine CLL. Since I have only had PET scans and MRI I'm wondering if the FISH test is a blood test? Or is the FISH test a bone marrow test? Thanks I know this is a very basic question
kathypawpaw
in
CLL Support
9 years ago
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Benefit Help Please
Hi all. fI was a full time carer for my 86 yr old mom but she's sadly passed away in 27/7/15 i'd say it was co depency. We kinda looked after each other. She was my reason to get up, to to carry on regardless of how much pain i was in. It's a long story but for now can anyone advise me please on what
Hi all. fI was a full time carer for my 86 yr old mom but she's sadly passed away in 27/7/15 i'd say it was co depency. We kinda looked after each other. She was my reason to get up, to to carry on regardless of how much pain i was in. It's a long story but for now can anyone advise me please on what
cheekyminx
in
Fibromyalgia Action UK
9 years ago
Initial Safety Report Finds Acceptable Safety With Ibrutinib for Asymptomatic, High-Risk CLL
[i]"Initial findings from the CLL12 trial on the use of ibrutinib in the treatment of chronic lymphocytic leukemia (CLL) in asymptomatic patients at risk of disease progression found risks in using the agent to be acceptable. The German CLL Study Group conducted the trial, whose findings were presented
[i]"Initial findings from the CLL12 trial on the use of ibrutinib in the treatment of chronic lymphocytic leukemia (CLL) in asymptomatic patients at risk of disease progression found risks in using the agent to be acceptable. The German CLL Study Group conducted the trial, whose findings were presented
AussieNeil
Partner
in
CLL Support
9 years ago
Dr. Byrd on Ibrutinib trials
Friends, This week's new post on the CLL Society website http://cllsociety.org is an update of the data from trials with ibrutinib in treatment-naïve and relapsed patients presented by Dr. Byrd from an interview done at the CRC (CLL Research Consortium) meeting in San Diego in April 2015. Dr. Byrd
Friends, This week's new post on the CLL Society website http://cllsociety.org is an update of the data from trials with ibrutinib in treatment-naïve and relapsed patients presented by Dr. Byrd from an interview done at the CRC (CLL Research Consortium) meeting in San Diego in April 2015. Dr. Byrd
bkoffman
CLL CURE Hero
in
CLL Support
9 years ago
Nobel Prize in Chemistry highlights how our bodies can repair our fragile DNA - and provides the basis for cancer treatments
Tomas Lindahl, Paul Modrich and Aziz Sancar, have received the 2015 Nobel Prize for Chemistry for their ground breaking research into how each cell in our body copes with an estimated 10,000 DNA damage events every day. Subsequent research into DNA repair has offered remarkable opportunities to improve
Tomas Lindahl, Paul Modrich and Aziz Sancar, have received the 2015 Nobel Prize for Chemistry for their ground breaking research into how each cell in our body copes with an estimated 10,000 DNA damage events every day. Subsequent research into DNA repair has offered remarkable opportunities to improve
AussieNeil
Partner
in
CLL Support
9 years ago
Statistical analysis of REACH trial patients identifies Progression Free Survival prognostic factor for FCR patients
Why is this news about FCR - an 'old' immunochemotherapy treatment, so important now that we have non-chemotherapy treatments like Ibrutinib and Idelalisib? Many CLL specialists recognise that for some CLL patients, FCR may be a better choice. Just 6 month's treatment and they can hopefully forget
Why is this news about FCR - an 'old' immunochemotherapy treatment, so important now that we have non-chemotherapy treatments like Ibrutinib and Idelalisib? Many CLL specialists recognise that for some CLL patients, FCR may be a better choice. Just 6 month's treatment and they can hopefully forget
AussieNeil
Partner
in
CLL Support
9 years ago
Another new one
Just found your group and thought I'd say hello. No major issues at the moment but it's always good to stay connected. I was diagnosed in 2009, required treatment earlier this year, and am now in a partial remission. I had bendamustine, Rituxan, and Idelalisib as part of a clinical trial but failed
Just found your group and thought I'd say hello. No major issues at the moment but it's always good to stay connected. I was diagnosed in 2009, required treatment earlier this year, and am now in a partial remission. I had bendamustine, Rituxan, and Idelalisib as part of a clinical trial but failed
Eagle5327
in
CLL Support
9 years ago
Plant-derived compound shows activity against Non Hodgkin Lymphoma (NHL). CLL is a NHL.
[i]"The active compound in a plant extract has shown promise for treating non-Hodgkin lymphomas (NHLs), according to researchers. The compound, withaferin A, is a steroidal lactone isolated from the Ayruvedic medicinal plant Ashwagandha (Withania somnifera) : : Withaferin A exhibited activity in several
[i]"The active compound in a plant extract has shown promise for treating non-Hodgkin lymphomas (NHLs), according to researchers. The compound, withaferin A, is a steroidal lactone isolated from the Ayruvedic medicinal plant Ashwagandha (Withania somnifera) : : Withaferin A exhibited activity in several
AussieNeil
Partner
in
CLL Support
9 years ago
Food Food Food.
Hey guys, I'm wondering if anyone can help me with some advice. My name is Shane, I'm 30 years old. I am living with stage 5 renal failure. Although my treatment is going well ( peritoneal dialysis ) I find myself struggling with food. Especially with everything I have to keep an eye on. I'm thinking
Hey guys, I'm wondering if anyone can help me with some advice. My name is Shane, I'm 30 years old. I am living with stage 5 renal failure. Although my treatment is going well ( peritoneal dialysis ) I find myself struggling with food. Especially with everything I have to keep an eye on. I'm thinking
Shane84
in
Early CKD Support
9 years ago
COPD research in Derbyshire
I’ve been approached by a postgraduate research student, Karen, at Keele University. She is doing a research project into the ways in which men in semi-rural towns, aged 55 and over, look after themselves when they are diagnosed with Chronic Obstructive Pulmonary Disease (COPD). The study will take
I’ve been approached by a postgraduate research student, Karen, at Keele University. She is doing a research project into the ways in which men in semi-rural towns, aged 55 and over, look after themselves when they are diagnosed with Chronic Obstructive Pulmonary Disease (COPD). The study will take
BethanyBateman
in
Lung Conditions Community Forum
9 years ago
Anything positive out there?
Hi I've only recently joined this forum but so far its making me more and more worried rather than helping me, and we know how bad stress is for us all. I've been referred to IBS clinic this week and I've cut out diary and most wheat products, cut right back on sugar. All of which I should do anyway
Hi I've only recently joined this forum but so far its making me more and more worried rather than helping me, and we know how bad stress is for us all. I've been referred to IBS clinic this week and I've cut out diary and most wheat products, cut right back on sugar. All of which I should do anyway
coz1505
in
IBS Network
9 years ago
Adcal-D3 caplets
Hi everyone again. Grateful thanks for yesterday's input. Today my query is about taking Adcal-D3 which my surgery has changed from Calcichew. The Calcichew was not a problem to take as they could be sucked or chewed, I kept mine by the bed and had the morning one before I got up and the evening one
Hi everyone again. Grateful thanks for yesterday's input. Today my query is about taking Adcal-D3 which my surgery has changed from Calcichew. The Calcichew was not a problem to take as they could be sucked or chewed, I kept mine by the bed and had the morning one before I got up and the evening one
Sandybo
in
PMRGCAuk
9 years ago
Blood donors relax. There is negligible risk of CLL transmission via blood donation!
I'm very relieved to pass on this post by Irene Irwin to the CLL ACOR list today.
A 30 year study on 1.5 million recipients of blood from 2.1 million individual donors in Denmark and Sweden shows negligible risk of passing on CLL from a donor with MBL/CLL.
http://www.medpagetoday.com/HematologyOncology
I'm very relieved to pass on this post by Irene Irwin to the CLL ACOR list today.
A 30 year study on 1.5 million recipients of blood from 2.1 million individual donors in Denmark and Sweden shows negligible risk of passing on CLL from a donor with MBL/CLL.
http://www.medpagetoday.com/HematologyOncology
AussieNeil
Partner
in
CLL Support
9 years ago
Please help me with my ibs
I have joined this site looking for help with ibs, to begin it as never really been properly diagnosed but i have had a camera and they said they could not see anything, but the doctor says it is ibs I am sure it must be more then that the pain is unbearable.My typical symptoms are very bad stomach
I have joined this site looking for help with ibs, to begin it as never really been properly diagnosed but i have had a camera and they said they could not see anything, but the doctor says it is ibs I am sure it must be more then that the pain is unbearable.My typical symptoms are very bad stomach
kazzaz
in
IBS Network
9 years ago
Torchy
Hi everyone.ive just joined this forum and i have been having ibs for months.i have quiet alot of pain killers for the excruciating pain and none of them help.ive colofac long release just prescibed me but it doesnt help my pain much i still have to take tramadol and really really want to come off this.so
Hi everyone.ive just joined this forum and i have been having ibs for months.i have quiet alot of pain killers for the excruciating pain and none of them help.ive colofac long release just prescibed me but it doesnt help my pain much i still have to take tramadol and really really want to come off this.so
Hidden
in
IBS Network
9 years ago
FDA updates warning about Bendamustine (Trenda)
The FDA issued a statement, warning healthcare professionals not to use the chemotherapy drug Treanda Injection (bendamustine hydrochloride) with closed system transfer devices (CSTDs), adapters, and syringes containing polycarbonate or acrylonitrile-butadiene-styrene (ABS). In an expanding world of
The FDA issued a statement, warning healthcare professionals not to use the chemotherapy drug Treanda Injection (bendamustine hydrochloride) with closed system transfer devices (CSTDs), adapters, and syringes containing polycarbonate or acrylonitrile-butadiene-styrene (ABS). In an expanding world of
ThreeWs
in
CLL Support
9 years ago
does anyone know or have information
I have been prescibed spiiva respimat inhaler2.5mcg/actuation 2puffs once a day. The drug stores have all said I'm the first person they have filled it for.They had to order it.So far none of them sound like they know anything about this inhaler. So I'm nervous about using it.I have used spiriva handihaler
I have been prescibed spiiva respimat inhaler2.5mcg/actuation 2puffs once a day. The drug stores have all said I'm the first person they have filled it for.They had to order it.So far none of them sound like they know anything about this inhaler. So I'm nervous about using it.I have used spiriva handihaler
Cheryl58
in
Lung Conditions Community Forum
9 years ago
InPractice CLL reference update - Idelalisib+Ofatumumab for relapsed/refractory patients. (Another CLL reference worth bookmarking)
The comprehensive InPractice reference for diagnosing, monitoring and treating CLL is regularly updated, with the latest update incorporating the addition of ofatumumab to idelalisib in patients with relapsed/refractory CLL plus the initial results from HELIOS trial of ibrutinib added to BR. The authors
The comprehensive InPractice reference for diagnosing, monitoring and treating CLL is regularly updated, with the latest update incorporating the addition of ofatumumab to idelalisib in patients with relapsed/refractory CLL plus the initial results from HELIOS trial of ibrutinib added to BR. The authors
AussieNeil
Partner
in
CLL Support
9 years ago
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