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Ibutrinib plus venetoclax?
As I told you my brother is in the rump up with venetoclax. Now he is in 100 mg now. This month he start relapsing his treatment with imbruvica monotherapy. He was 18 months with very good results with imbruvica, but as I said his cll start relapsing. And his doctors consider add venetoclax. He put
As I told you my brother is in the rump up with venetoclax. Now he is in 100 mg now. This month he start relapsing his treatment with imbruvica monotherapy. He was 18 months with very good results with imbruvica, but as I said his cll start relapsing. And his doctors consider add venetoclax. He put
Cgr2018
in
CLL Support
4 years ago
Venetoclax, acalabrutnib, obitunzimab
Good morning all! Hope you are all doing well today. I’ve been reading a lot, but not posted much, so hear it goes! I have b en struggling with fatigue for years, I will not go through all the details of the past 6 years, but it’s been a ride, I only found out last year I have Cll, 11q del (although
Good morning all! Hope you are all doing well today. I’ve been reading a lot, but not posted much, so hear it goes! I have b en struggling with fatigue for years, I will not go through all the details of the past 6 years, but it’s been a ride, I only found out last year I have Cll, 11q del (although
Tton46
in
CLL Support
4 years ago
Unmutated patients on venetoclax?
I just watched the video "Evolving Front-Line Therapy in Chronic Lymphocytic Leukemia" posted by EugeneL2. In it, she refers to the trial where patients on venetoclax + obinutuzumab had much better results than those on chlorambucil + obinutuzumab. However, she also noted that mutated patients on both
I just watched the video "Evolving Front-Line Therapy in Chronic Lymphocytic Leukemia" posted by EugeneL2. In it, she refers to the trial where patients on venetoclax + obinutuzumab had much better results than those on chlorambucil + obinutuzumab. However, she also noted that mutated patients on both
HikerBiker
in
CLL Support
4 years ago
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Strange Test Result: High BUN dan Ureum but Low Creatinine
Hi, hope this message finds you well I am new member, excited to be here. I received my blood test today and will discuss it with my doctor next week. In the meantime I would be grateful if I can get some advices from good fellows here The questions I have is from my March 2020 to June 2020 measurements
Hi, hope this message finds you well I am new member, excited to be here. I received my blood test today and will discuss it with my doctor next week. In the meantime I would be grateful if I can get some advices from good fellows here The questions I have is from my March 2020 to June 2020 measurements
FitchT
in
Early CKD Support
4 years ago
How long does Neupogen effects like fever go away?
My brother had 3 shots of neopogen on Monday, Tuesday and Wednesday this week, and he has fever, no more than 38 for 3 days. He takes paracetamol and the fever get away for hours, but cone back. How long that’s usually take to go away the fever with Neupogen He hasn’t got another side effect, just a
My brother had 3 shots of neopogen on Monday, Tuesday and Wednesday this week, and he has fever, no more than 38 for 3 days. He takes paracetamol and the fever get away for hours, but cone back. How long that’s usually take to go away the fever with Neupogen He hasn’t got another side effect, just a
Cgr2018
in
CLL Support
4 years ago
Swelling feet ,ankles
Hi all ,has anyone found while using Trimbow ,or the likes ect ,have side effects of swollen feet and ankles
Hi all ,has anyone found while using Trimbow ,or the likes ect ,have side effects of swollen feet and ankles
Alice70
in
Lung Conditions Community Forum
4 years ago
CAR-NK and using Interlukin-27 to boost the cytotoxic effect of NK cells on CLL in the bone marrow
[i]"A chimeric antigen receptor (CAR) construct using transduced natural killer cells instead of T cells was associated with a high complete remission rate without the cytokine release syndrome (CRS) frequently seen with CAR T cell therapy, early clinical trial results show.[/i] [i]:[/i] [i]..there were
[i]"A chimeric antigen receptor (CAR) construct using transduced natural killer cells instead of T cells was associated with a high complete remission rate without the cytokine release syndrome (CRS) frequently seen with CAR T cell therapy, early clinical trial results show.[/i] [i]:[/i] [i]..there were
AussieNeil
Partner
in
CLL Support
4 years ago
SMALL THINGS, BIG DIFFERENCE
Small Things, Big Difference is a booklet bringing together a collection of carefully selected insights, practical tips and wisdom from members of the (CLL) community. Small things can make a big difference to the everyday lives of those living with CLL, from those recently diagnosed, to those who have
Small Things, Big Difference is a booklet bringing together a collection of carefully selected insights, practical tips and wisdom from members of the (CLL) community. Small things can make a big difference to the everyday lives of those living with CLL, from those recently diagnosed, to those who have
pkguk2
Administrator
in
CLL Support
4 years ago
Richter syndrome - Resonance result of the breast
Hello friends. I want to update my status. Yesterday they gave me the results of my breast tumors. They told me they were totally clean of cancer. I was diagnosed with two breast tumors after being treated with Ibrutinib for eight months. In August I have a consultation with the hematologist to control
Hello friends. I want to update my status. Yesterday they gave me the results of my breast tumors. They told me they were totally clean of cancer. I was diagnosed with two breast tumors after being treated with Ibrutinib for eight months. In August I have a consultation with the hematologist to control
Priss69
in
CLL Support
4 years ago
Surgery cancelled
Has anyone else had their surgery’s cancelled? Mine for a Laparoscopy and polyp removal booked for May was cancelled yesterday. I understand but had a little cry. I was lucky enough to get this booked so soon anyway. I had a initial consultation booked for April but got a cancellation in March so was
Has anyone else had their surgery’s cancelled? Mine for a Laparoscopy and polyp removal booked for May was cancelled yesterday. I understand but had a little cry. I was lucky enough to get this booked so soon anyway. I had a initial consultation booked for April but got a cancellation in March so was
TereseBear
in
Endometriosis UK
4 years ago
Respiratory Deficits and Trans phobia.
Research has shown that transgender individuals with chest binding have abnormal lung function. Co-incidentally, Daniel Radcliffe has become embroiled with the creator of Harry Potter, GK Rowling, in an exchange of on-line differences of opinion about the acceptable definition of what a transgender person
Research has shown that transgender individuals with chest binding have abnormal lung function. Co-incidentally, Daniel Radcliffe has become embroiled with the creator of Harry Potter, GK Rowling, in an exchange of on-line differences of opinion about the acceptable definition of what a transgender person
Cateran
in
Lung Conditions Community Forum
4 years ago
What are the black thick mucus parts coming out of my nose?
Hello pals, I am an asthamtic 27 yro girl for 9 years now, been controlling my symptoms very well. I started to smoke for 4 years now. It's been a month now that my sinuses get dry and blocked at night that i cannot breathe but through my mouth. So I went to the pharmacy and they prescribed a nose
Hello pals, I am an asthamtic 27 yro girl for 9 years now, been controlling my symptoms very well. I started to smoke for 4 years now. It's been a month now that my sinuses get dry and blocked at night that i cannot breathe but through my mouth. So I went to the pharmacy and they prescribed a nose
KhaCB
in
Lung Conditions Community Forum
4 years ago
Front-Runners Emerge in the Race for a Covid-19 Vaccine
Herd immunity via a vaccine that produces a good immune response is the best way forward for CLL and other immunocompromised patients all over the world. From WIRED Science Science 05.08.2020 Two leading candidates are headed for mass clinical trials, and everything’s on the table—including deliberately
Herd immunity via a vaccine that produces a good immune response is the best way forward for CLL and other immunocompromised patients all over the world. From WIRED Science Science 05.08.2020 Two leading candidates are headed for mass clinical trials, and everything’s on the table—including deliberately
Jm954
Administrator
in
CLL Support
4 years ago
Opportunity to support the listing of Acalabrutinib and Venetoclax for the treatment of Australians with CLL
No matter where you live, you can support the access of Australians with CLL to Acalabrutinib or Venetoclax treatment. Australia's Pharmaceutical Benefits Advisory Committee (PBAC) is soon assessing Acalabrutinib or Venetoclax for listing - which would make them an affordable treatment for Australians
No matter where you live, you can support the access of Australians with CLL to Acalabrutinib or Venetoclax treatment. Australia's Pharmaceutical Benefits Advisory Committee (PBAC) is soon assessing Acalabrutinib or Venetoclax for listing - which would make them an affordable treatment for Australians
AussieNeil
Partner
in
CLL Support
4 years ago
Preparing for a new chapter
Hello everyone, I’m not use to being on forums but I feel so lost and alone, I don’t know who else to turn to. I’m 28 years old and the oldest daughter of my family. We recently found out my mom (52) is at her end stage of renal disease. She just had a catheter inserted to prepare for Peritoneal Dialysis
Hello everyone, I’m not use to being on forums but I feel so lost and alone, I don’t know who else to turn to. I’m 28 years old and the oldest daughter of my family. We recently found out my mom (52) is at her end stage of renal disease. She just had a catheter inserted to prepare for Peritoneal Dialysis
AC320
in
Kidney Dialysis
4 years ago
good news and bad news
Good news & bad news today . I had my rutine blood sample taken yesterday and Dr called me today instead going to the Clinic .My inmunoglobulins have risen ( specially IGA which was a little low and now close to normal ) WCC is normal as it has been for several months...... but my hematocrit and Hemglobin
Good news & bad news today . I had my rutine blood sample taken yesterday and Dr called me today instead going to the Clinic .My inmunoglobulins have risen ( specially IGA which was a little low and now close to normal ) WCC is normal as it has been for several months...... but my hematocrit and Hemglobin
antonb
in
CLL Support
4 years ago
Sheilding letter - I got one
Hi All I received this email see below - then forwarded it to my Dr surgery and they confirmed i should off had a letter and one arrived the next day. Covid-19 We are aware from feedback from patients that there is confusion over whether they should be shielding and what this means. In addition, many
Hi All I received this email see below - then forwarded it to my Dr surgery and they confirmed i should off had a letter and one arrived the next day. Covid-19 We are aware from feedback from patients that there is confusion over whether they should be shielding and what this means. In addition, many
TheFlyer
in
CLL Support
4 years ago
Covid-19: What, if anything, can we learn from integrative oncology experts?
I have just read a long article addressing possible concrete responses to Covid-19 by a doc specializing in integrative oncology. It was written for lay people (thank goodness!). Is there anyone in this group who sees an integrative oncologist for CLL? If there is, I would be interested in hearing
I have just read a long article addressing possible concrete responses to Covid-19 by a doc specializing in integrative oncology. It was written for lay people (thank goodness!). Is there anyone in this group who sees an integrative oncologist for CLL? If there is, I would be interested in hearing
hsouter
in
CLL Support
4 years ago
Richter's transformation.
Hello everyone. Been a little out of the way this month. The news of Dave's death left me very emotionally ill. I got to know him and currently I still don't understand his sudden death. I want to update my health status. As you know with the coronavirus problem they have canceled all visits. My doctor
Hello everyone. Been a little out of the way this month. The news of Dave's death left me very emotionally ill. I got to know him and currently I still don't understand his sudden death. I want to update my health status. As you know with the coronavirus problem they have canceled all visits. My doctor
Priss69
in
CLL Support
4 years ago
UK CLL Forum *Follow-Up Survey for UK CLL Patients regarding the support you're getting- Please complete if you can.
The UK CLL Forum is the special interest group for medical doctors in UK with an interest and working in the clinical field of CLL management. They have partnered with CLL Support (who moderate this site) and Leukaemia Care to promote a survey which will inform future planning . This is their message
The UK CLL Forum is the special interest group for medical doctors in UK with an interest and working in the clinical field of CLL management. They have partnered with CLL Support (who moderate this site) and Leukaemia Care to promote a survey which will inform future planning . This is their message
Jm954
Administrator
in
CLL Support
4 years ago
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