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Passing it on.
I was wondering if leukaemia can be hereditary. I was diagnosed with CLL 3 years ago, my wife died from AML and the thought of my children being susceptible crossed my mind. I did ask Doctor Google the question but it seems the jury is out on that subject.
I was wondering if leukaemia can be hereditary. I was diagnosed with CLL 3 years ago, my wife died from AML and the thought of my children being susceptible crossed my mind. I did ask Doctor Google the question but it seems the jury is out on that subject.
Bigglesworth
in
CLL Support
2 years ago
test interpretation
I have a rather long summary page from my flow cytrometry test and I understand none of it. Can someone here please help? translate to common language I can understand? I apologize if this is not the right thing to post. I had to push to get the test done as within this past year my lymphocytes and white
I have a rather long summary page from my flow cytrometry test and I understand none of it. Can someone here please help? translate to common language I can understand? I apologize if this is not the right thing to post. I had to push to get the test done as within this past year my lymphocytes and white
DianeSH
in
CLL Support
2 years ago
A diet for CLL
Dear friends, I hope you are staying well. Last week I ate fruit with vitamine C, I exagerated with quantity and felt really bad. My lymph nodes were swallen and I felt very big fatigue. I m still on watch and wait (I was diagnosed with Cll in January 2018) and I wish to stay on it as long
Dear friends, I hope you are staying well. Last week I ate fruit with vitamine C, I exagerated with quantity and felt really bad. My lymph nodes were swallen and I felt very big fatigue. I m still on watch and wait (I was diagnosed with Cll in January 2018) and I wish to stay on it as long
Lela1212
in
CLL Support
2 years ago
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Results from Phase 2 study of nivolumab plus ibrutinib in patients with diffuse large b-cell Richter Transformation of CLL
A research article that reports on "[i]A Phase 2 Study of Nivolumab Combined with Ibrutinib in Patients with Diffuse Large B-cell Richter Transformation of CLL[/i]" was published in the journal Blood Advances this week and provides some encouraging data for a population that is very challenging to treat
A research article that reports on "[i]A Phase 2 Study of Nivolumab Combined with Ibrutinib in Patients with Diffuse Large B-cell Richter Transformation of CLL[/i]" was published in the journal Blood Advances this week and provides some encouraging data for a population that is very challenging to treat
CLLerinOz
Administrator
in
CLL Support
2 years ago
Five-year results for the iFCG regimen: first-line treatment of CLL patients with mutated IGHV and without del(17p)/TP53 mutation
Published 4 months ago, https://journals.lww.com/hemasphere/Fulltext/2022/06003/S149__LONG_TERM_OUTCOMES_OF_IFCG_REGIMEN_FOR.50.aspx is an update of the Phase 2 study S149, initiated in 2017 and previously reported here in "Novel Combos Are Shaking Up the CLL Landscape but FCR still has its place" https
Published 4 months ago, https://journals.lww.com/hemasphere/Fulltext/2022/06003/S149__LONG_TERM_OUTCOMES_OF_IFCG_REGIMEN_FOR.50.aspx is an update of the Phase 2 study S149, initiated in 2017 and previously reported here in "Novel Combos Are Shaking Up the CLL Landscape but FCR still has its place" https
bennevisplace
in
CLL Support
2 years ago
Is Trimbow causing me health problems
So, I have had 3 full blood counts over the last 4 months, seems for some reason my platelet count is very low, had the usual lifestyle questions asked by my doctor and after the latest blood count was told by my doctor that it's all a red herring, my platelet count must be my normal level, sounds plausible
So, I have had 3 full blood counts over the last 4 months, seems for some reason my platelet count is very low, had the usual lifestyle questions asked by my doctor and after the latest blood count was told by my doctor that it's all a red herring, my platelet count must be my normal level, sounds plausible
Hidden
in
Lung Conditions Community Forum
1 year ago
Trimbow eligibility??
ok so I’ll reply to you all on my other post shortly, thank you all for your support!! I was thinking of asking my GP to step down my Seretide from 125/25 to 50/25 because the steroid is definitely doing less for me than the long acting reliever. I was also going to ask to switch back from Atrovent
ok so I’ll reply to you all on my other post shortly, thank you all for your support!! I was thinking of asking my GP to step down my Seretide from 125/25 to 50/25 because the steroid is definitely doing less for me than the long acting reliever. I was also going to ask to switch back from Atrovent
saltyskies
in
Lung Conditions Community Forum
1 year ago
green tea
I was told to drink lots of green tea when I was first diagnosed with CLL 9 months ago.But it seems like my spleen hurts more when I drink a cup of green tea or take a green tea capsule. Am I missing something?
I was told to drink lots of green tea when I was first diagnosed with CLL 9 months ago.But it seems like my spleen hurts more when I drink a cup of green tea or take a green tea capsule. Am I missing something?
Nugent666
in
CLL Support
2 years ago
Oncology Learning Network CME- Emerging Treatments for CLL / SLL included in NCCN and ESMO guidelines
This video and most on the Oncology Learning Network CME are intended for trained medical professionals, but those comfortable with MedSpeak can sign up for an account to view this excellent presentation by Dr. Nicole Lamanna of Columbia NY Presbyterian here: https://hmpeducation.com/content/access-webcast
This video and most on the Oncology Learning Network CME are intended for trained medical professionals, but those comfortable with MedSpeak can sign up for an account to view this excellent presentation by Dr. Nicole Lamanna of Columbia NY Presbyterian here: https://hmpeducation.com/content/access-webcast
lankisterguy
Volunteer
in
CLL Support
2 years ago
Patient Power CLL & Fatigue 2022-10-19.
Fatigue is a side effect shared by just about every patient with chronic lymphocytic leukemia (CLL). In this replay of a recent CLL Answers Now program, CLL patient and host Brad Adams and Carmelita Escalante, MD, from the Cancer-Related Fatigue Clinic at the University of Texas MD Anderson Cancer Center
Fatigue is a side effect shared by just about every patient with chronic lymphocytic leukemia (CLL). In this replay of a recent CLL Answers Now program, CLL patient and host Brad Adams and Carmelita Escalante, MD, from the Cancer-Related Fatigue Clinic at the University of Texas MD Anderson Cancer Center
lankisterguy
Volunteer
in
CLL Support
2 years ago
CLL testing
hi relatively new in here. I cannot see a pinned post on this subject but apologies if i missed it. i am on watch and wait and next check up isnt till December. I have read posts about deletions and mutations and how it influences long term prognosis re future treatment, aggressiveness and mutations
hi relatively new in here. I cannot see a pinned post on this subject but apologies if i missed it. i am on watch and wait and next check up isnt till December. I have read posts about deletions and mutations and how it influences long term prognosis re future treatment, aggressiveness and mutations
Saju21
in
CLL Support
2 years ago
Hair texture changes? Hyper or hypo?
What condition(s) makes hair go: a) from wavy/curly to straight? b) darker at the back of your neck? c) grey/blonde -> brazzy/orange? Hyperthyroidism or hypothyroidism? Possibly other conditions?
What condition(s) makes hair go: a) from wavy/curly to straight? b) darker at the back of your neck? c) grey/blonde -> brazzy/orange? Hyperthyroidism or hypothyroidism? Possibly other conditions?
Tomchr
in
Thyroid UK
2 years ago
Fred Hutchinson Cancer Center receives $710.5 million gift to accelerate cancer and infectious disease research.
This gift will enable Fred Hutch to recruit about 36 new researchers from a variety of scientific areas, including early- and mid-career researchers and senior scientists. The funding includes resources for lab space, equipment, and technology for Fred Hutch’s collaborative research environment. https
This gift will enable Fred Hutch to recruit about 36 new researchers from a variety of scientific areas, including early- and mid-career researchers and senior scientists. The funding includes resources for lab space, equipment, and technology for Fred Hutch’s collaborative research environment. https
gardening-girl
in
CLL Support
2 years ago
Psych evaluation
Hi! This is for those of you who are either on the liver transplant list or who have had a transplant. What I'd like to know is whether you were given a psychological evaluation or a one-to-one conversion with a trained therapist as to how to deal with serious organ rejection should it occur.
Hi! This is for those of you who are either on the liver transplant list or who have had a transplant. What I'd like to know is whether you were given a psychological evaluation or a one-to-one conversion with a trained therapist as to how to deal with serious organ rejection should it occur.
Bikafella
in
British Liver Trust
2 years ago
RISK OF DYING OF COVID DURING THIS OMICRON PHASE
Hi, Covid Mortality Rates, I am wondering about the reality. I've read everything from 33% - 89% until Omicron. I've read 2% in a recent publication from Denmark during their Omicron phase, and most of those deaths were in age > than 71, with many other serious morbidities. Half of those dying
Hi, Covid Mortality Rates, I am wondering about the reality. I've read everything from 33% - 89% until Omicron. I've read 2% in a recent publication from Denmark during their Omicron phase, and most of those deaths were in age > than 71, with many other serious morbidities. Half of those dying
skipro
in
CLL Support
2 years ago
Living with dialysis
My name is Vicki and I myself have had 2 years of dialysis before I got a kidney transplant . I was very young just 32 with two boys ages 2 and 3 at that time . I received a perfect matching kidney in 1996 and it lasted for 27 years . I am and have been back on hemo-dialysis for another 3 years . I am
My name is Vicki and I myself have had 2 years of dialysis before I got a kidney transplant . I was very young just 32 with two boys ages 2 and 3 at that time . I received a perfect matching kidney in 1996 and it lasted for 27 years . I am and have been back on hemo-dialysis for another 3 years . I am
bubbaboo2
in
Kidney Dialysis
2 years ago
Acalabrutinib + Ruxolitinib interactions
Hello I have CLL (taking Acalabrutinib ) I also have Myelofibrosis and my Dr might put me on Ruxolitinib..... I am Looking for interactions between both drugs. I have checked drugs.com and Epocrates Looking for someone with more info or someone taking this combination Thank you
Hello I have CLL (taking Acalabrutinib ) I also have Myelofibrosis and my Dr might put me on Ruxolitinib..... I am Looking for interactions between both drugs. I have checked drugs.com and Epocrates Looking for someone with more info or someone taking this combination Thank you
antonb
in
CLL Support
2 years ago
Navigating the Hidden Costs of Clinical Trials on Patient Power
Navigating the Hidden Costs of Clinical Trials https://www.patientpower.info/navigating-the-hidden-costs-of-clinical-trials Nearly two years ago, Brad Adams’ doctor presented him with a few options to treat his chronic lymphocytic leukemia after it returned. Adams could continue taking an oral treatment
Navigating the Hidden Costs of Clinical Trials https://www.patientpower.info/navigating-the-hidden-costs-of-clinical-trials Nearly two years ago, Brad Adams’ doctor presented him with a few options to treat his chronic lymphocytic leukemia after it returned. Adams could continue taking an oral treatment
lankisterguy
Volunteer
in
CLL Support
2 years ago
Save the date! Our first conference for over two years! We're very pleased to invite you to our conference in Glasgow later this month.
We are excited to announce that our first conference for over two years will be held in Glasgow.
Topic: 'Managing CLL in 2022- Treatment guidelines explained'
When:
Tuesday 18 October
Where:
Voco Grand Central, 99 Gordon Street, Glasgow, G1 3SF. The centre is within the
We are excited to announce that our first conference for over two years will be held in Glasgow.
Topic: 'Managing CLL in 2022- Treatment guidelines explained'
When:
Tuesday 18 October
Where:
Voco Grand Central, 99 Gordon Street, Glasgow, G1 3SF. The centre is within the
pkguk2
CLL Support Association
in
CLL Support
2 years ago
Does Covid boost ALS?
I'm W&W for 2 years. Abs lymphs (ALS) were 82K in July. Got 1st Evusheld 8/23. Got Covid 8/31 and started Paxlovid same day. 5 days later, 9/5, felt great then went on a vigorous 31 miles bike ride (probably too soon for such exercise). Then rebound on 9/12 with positive home test. Never got fever but
I'm W&W for 2 years. Abs lymphs (ALS) were 82K in July. Got 1st Evusheld 8/23. Got Covid 8/31 and started Paxlovid same day. 5 days later, 9/5, felt great then went on a vigorous 31 miles bike ride (probably too soon for such exercise). Then rebound on 9/12 with positive home test. Never got fever but
JDG45
in
CLL Support
2 years ago
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