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My Prostate battle
A Summary Diagnosed in Nov 22 PSA 74 High risk Prostate cancer Biopsy Jan 24... Glesson 8 28 cycles of External Beam radiation Sept 23 PSA below zero when finished. 3 Chemo tablets ...all failed. Late Nov PSA over 100 and prostate cancer in left lung...now Stage 4. 2024 Had 5 cycles of Dosetaxial and
A Summary Diagnosed in Nov 22 PSA 74 High risk Prostate cancer Biopsy Jan 24... Glesson 8 28 cycles of External Beam radiation Sept 23 PSA below zero when finished. 3 Chemo tablets ...all failed. Late Nov PSA over 100 and prostate cancer in left lung...now Stage 4. 2024 Had 5 cycles of Dosetaxial and
PDH2024
in
Advanced Prostate Cancer
2 months ago
Should I take Nubeqa continuously when going to a PSMA Pylarify PET scan or take an intermittent break for a few weeks beforehand?
Should I take Nubeqa continuously when going to a PSMA Pylarify PET scan or break from the Nubeqa for a few weeks beforehand?When getting a PSMA PET scan, I often here advice about temporarily pausing use of whatever drugs that are effectively keeping the PSA scores down at nadir or below .1. The purpose
Should I take Nubeqa continuously when going to a PSMA Pylarify PET scan or break from the Nubeqa for a few weeks beforehand?When getting a PSMA PET scan, I often here advice about temporarily pausing use of whatever drugs that are effectively keeping the PSA scores down at nadir or below .1. The purpose
GeorgeGlass
in
Advanced Prostate Cancer
2 months ago
Gleason 8 on HRT
I was recently diagnosed with localized prostate cancer Gleason 8, which fortunately was caught early. After initial discussions with my healthcare team, I've begun hormone therapy, receiving my first injection about three to four weeks ago, along with a 28-day course of tablets. This decision came after
I was recently diagnosed with localized prostate cancer Gleason 8, which fortunately was caught early. After initial discussions with my healthcare team, I've begun hormone therapy, receiving my first injection about three to four weeks ago, along with a 28-day course of tablets. This decision came after
Njugs
in
Prostate Cancer Network
2 months ago
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What's it like to have a husband, Dad, or dear friend with prostate cancer?
If you are reading this, you are either diagnosed with prostate cancer or are concerned enough to be information hunting for someone you care about. There are many characterizations and attempts at defining "caregiver." At Malecare, if you are here, and do not have prostate cancer, then you are a caregiver
If you are reading this, you are either diagnosed with prostate cancer or are concerned enough to be information hunting for someone you care about. There are many characterizations and attempts at defining "caregiver." At Malecare, if you are here, and do not have prostate cancer, then you are a caregiver
Darryl
Partner
in
Prostate Cancer Network
2 months ago
What's it like to have a husband, Dad, or dear friend with prostate cancer?
If you are reading this, you are either diagnosed with prostate cancer or are concerned enough to be information hunting for someone you care about. There are many characterizations and attempts at defining "caregiver." At Malecare, if you are here, and do not have prostate cancer, then you are a caregiver
If you are reading this, you are either diagnosed with prostate cancer or are concerned enough to be information hunting for someone you care about. There are many characterizations and attempts at defining "caregiver." At Malecare, if you are here, and do not have prostate cancer, then you are a caregiver
Darryl
Partner
in
Advanced Prostate Cancer
2 months ago
Best Support Tips?
My lovely mum has recently been diagnosed with ovarian cancer. We’re awaiting staging etc so as you can imagine there’s a lot of worry and uncertainty going on right now. I feel pretty useless as there’s nothing I can do or say that will help right now. But I’m just after some advice on what I can
My lovely mum has recently been diagnosed with ovarian cancer. We’re awaiting staging etc so as you can imagine there’s a lot of worry and uncertainty going on right now. I feel pretty useless as there’s nothing I can do or say that will help right now. But I’m just after some advice on what I can
Doodlemama12
in
My Ovacome
2 months ago
Success with alternative protocol
Started Aug 2023 with clioquinol +zinc, weekly Vitamin A infusions. Added Ivermectine in Sept My naturopath measures "Nagalase" count instead of PSA. 1.55....... 10/25/23. 1.37......1/10/24. 1.12......4/2/24 Nagalase count is in the normal range- less than 1....... 8/2/24 I'll have
Started Aug 2023 with clioquinol +zinc, weekly Vitamin A infusions. Added Ivermectine in Sept My naturopath measures "Nagalase" count instead of PSA. 1.55....... 10/25/23. 1.37......1/10/24. 1.12......4/2/24 Nagalase count is in the normal range- less than 1....... 8/2/24 I'll have
agnut
in
Fight Prostate Cancer
2 months ago
what’s the best exercise and nutrition while on Abiraterone/Prednisone and Lupron.
I’m 44 years old with PCa. I’m on ADT for the last 18 months and had radiation and chemo a year ago. I have fatigue and find it very difficult to get the energy to workout. It’s also difficult to get motivation. Does anyone have any suggestions on workouts and nutrition during this treatment?
I’m 44 years old with PCa. I’m on ADT for the last 18 months and had radiation and chemo a year ago. I have fatigue and find it very difficult to get the energy to workout. It’s also difficult to get motivation. Does anyone have any suggestions on workouts and nutrition during this treatment?
Jumpingbellybeans
in
Advanced Prostate Cancer
2 months ago
Chemo reduction in PSA
My husband: After 7 years of treatments, we are now to chemo: Docetaxel. After 2nd infusion PSA went from 47 to 32. Is this a Good, normal, average, AWESOME 🙏🏻 response? He has the CDK12 mutation. 😩 Thanks for any comments!
My husband: After 7 years of treatments, we are now to chemo: Docetaxel. After 2nd infusion PSA went from 47 to 32. Is this a Good, normal, average, AWESOME 🙏🏻 response? He has the CDK12 mutation. 😩 Thanks for any comments!
JolleySprings
in
Advanced Prostate Cancer
2 months ago
Dosage level
Warriors I am repeating some things here that were in other posts, however I do have a new question for the group. Started my journey in Oct of 2023. Diagnosed with prostate cancer via MRI and then Biopsy. Further diagnosis via a PET scan showed PSMA uptake in Pelvic lymph nodes and in Periaortic
Warriors I am repeating some things here that were in other posts, however I do have a new question for the group. Started my journey in Oct of 2023. Diagnosed with prostate cancer via MRI and then Biopsy. Further diagnosis via a PET scan showed PSMA uptake in Pelvic lymph nodes and in Periaortic
85236442968
in
Advanced Prostate Cancer
2 months ago
Unfavorable Intermediate PCa--treatment
Treated at UCSF. Chose radiation plus 4 months ADT (Orgovyx) due to concern of local meta. Dr. Shinohara performed tp biopsy and tp placement of markers. Alexander Gottschalk is my RO. Treatment: commencing 2 months after start of ADT, 2 fractions of Cyberknife to prostate. 25 fractions IMRT
Treated at UCSF. Chose radiation plus 4 months ADT (Orgovyx) due to concern of local meta. Dr. Shinohara performed tp biopsy and tp placement of markers. Alexander Gottschalk is my RO. Treatment: commencing 2 months after start of ADT, 2 fractions of Cyberknife to prostate. 25 fractions IMRT
gualala
in
Prostate Cancer Network
2 months ago
New way to delay resistance in prostate cancer
In vitro/in vivo but ready for clinical. I have found and tried to read the paper...what I understood is "great news!" but don't ask me to explain better than this: Prostate cancer treated with androgen deprivation therapy (ADT) can (will) develop into castration-resistant prostate cancer (CRPC), making
In vitro/in vivo but ready for clinical. I have found and tried to read the paper...what I understood is "great news!" but don't ask me to explain better than this: Prostate cancer treated with androgen deprivation therapy (ADT) can (will) develop into castration-resistant prostate cancer (CRPC), making
Maxone73
in
Advanced Prostate Cancer
2 months ago
in vitro/in vivo but interesting: another therapeutic path of Enzalutamide
"This study reveals a previously unrecognized function of enzalutamide and AR by regulating PEX10 and suggests a new strategy of enzalutamide application in prostate cancer treatment." Not applied to any trial yet but an important finding! https://www.nature.com/articles/s41419-024-06937-7
"This study reveals a previously unrecognized function of enzalutamide and AR by regulating PEX10 and suggests a new strategy of enzalutamide application in prostate cancer treatment." Not applied to any trial yet but an important finding! https://www.nature.com/articles/s41419-024-06937-7
Maxone73
in
Advanced Prostate Cancer
2 months ago
Evening Primrose update
Hi. I was diagnosed with stage 1 breast cancer a year ago. I had surgery and radiotherapy and was put on Letrozole. I have had a few problems with the Letrozole, which saw me come off it for a while. I was put back on it and the Oncology Nurse told me to take Evening Primrose oil. it’s been 3 months
Hi. I was diagnosed with stage 1 breast cancer a year ago. I had surgery and radiotherapy and was put on Letrozole. I have had a few problems with the Letrozole, which saw me come off it for a while. I was put back on it and the Oncology Nurse told me to take Evening Primrose oil. it’s been 3 months
Tabbycat64
in
My Breast Cancer Community
2 months ago
Your experiences of trametinib needed (online survey)
The National Cancer Medicines Advisory Group (NCMAG) Programme have approached Ovacome as they are currently considering trametinib for patients with recurrent or progressive low grade serous ovarian carcinoma after at least one line of platinum-based chemotherapy for off-label use in NHSScotland.
The National Cancer Medicines Advisory Group (NCMAG) Programme have approached Ovacome as they are currently considering trametinib for patients with recurrent or progressive low grade serous ovarian carcinoma after at least one line of platinum-based chemotherapy for off-label use in NHSScotland.
OvacomeSupport
My Ovacome Team
in
My Ovacome
2 months ago
Final lap?
Four years on and grateful for that. Enzalutamide stopped working earlier in the year. PSA doubling. Lesion in spine led to pathological fracture and some pressure on the spinal cord. Radiation to spine and pain relieved. Docetaxel started but discontinued due to severe allergic reaction. Nothing for
Four years on and grateful for that. Enzalutamide stopped working earlier in the year. PSA doubling. Lesion in spine led to pathological fracture and some pressure on the spinal cord. Radiation to spine and pain relieved. Docetaxel started but discontinued due to severe allergic reaction. Nothing for
FortyWinks
in
Advanced Prostate Cancer
2 months ago
Lymph node deposits (aka TD's)
Dear all Hoping you are all as OK as possible. Having been originally diagnosed with breast cancer in Feb 2019, after which I had a lumpectomy and 3 lymph nodes removed(the latter were clear), I have been back and forth for many ops due to recurrences including a radical mastectomy after recurrence
Dear all Hoping you are all as OK as possible. Having been originally diagnosed with breast cancer in Feb 2019, after which I had a lumpectomy and 3 lymph nodes removed(the latter were clear), I have been back and forth for many ops due to recurrences including a radical mastectomy after recurrence
DJK99
in
My Breast Cancer Community
2 months ago
Started Xtandi and AST spiked!
Hey everyone...don't know if anyone has had this experience. I'm about 12 months into my PCa battle...been on Firmagon for most of it (including now). Started on Zytiga last year but had to stop due to elevated liver enzymes, so I switched to Casodex about two months ago, but PSA numbers started to
Hey everyone...don't know if anyone has had this experience. I'm about 12 months into my PCa battle...been on Firmagon for most of it (including now). Started on Zytiga last year but had to stop due to elevated liver enzymes, so I switched to Casodex about two months ago, but PSA numbers started to
CoastalTex
in
Advanced Prostate Cancer
2 months ago
Am I headed for Radiation
hello all. Wishing the best to everyone. Just a quick question that I think I know the answer to. After RP in June 2023 pathology was Gleason 4~3 with SVI, clear margins, lymph node dissection negative, prostate 30% involved. First PSA test all at quest was an ultra sensitive post prostatectomy test
hello all. Wishing the best to everyone. Just a quick question that I think I know the answer to. After RP in June 2023 pathology was Gleason 4~3 with SVI, clear margins, lymph node dissection negative, prostate 30% involved. First PSA test all at quest was an ultra sensitive post prostatectomy test
Elkguide
in
Advanced Prostate Cancer
2 months ago
A Phase 1 Open-label trial of Actinium-225-macropa-pelgifatamab for Advanced Metastatic Castration Resistant Prostate Cancer (mCRPC)
Finland, UK and Netherlands: a new theranostic based on actiniun 225 for metastatic prostate cancer https://www.theranostictrials.org/studies/cl74bp9il0233ajjfrlrlvs3d/NCT06052306
Finland, UK and Netherlands: a new theranostic based on actiniun 225 for metastatic prostate cancer https://www.theranostictrials.org/studies/cl74bp9il0233ajjfrlrlvs3d/NCT06052306
Maxone73
in
Advanced Prostate Cancer
2 months ago
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