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Worried about my man!
Good evening, I’m new here and I just need a sounding board. My 51 year old partner has been having problems since nov 17, and although not diagnosed formally had been told that he has ILD and that has caused other serious complications (autoimmune haemolytic anaemia) and is now on oxygen at home in
Good evening, I’m new here and I just need a sounding board. My 51 year old partner has been having problems since nov 17, and although not diagnosed formally had been told that he has ILD and that has caused other serious complications (autoimmune haemolytic anaemia) and is now on oxygen at home in
Rachelmcc80
in
Lung Conditions Community Forum
6 years ago
JUST JOINED - EMPHYSEMA - CHEST INFECTION ADVISE
Hi, I was diagnosed with Copd & Emphysema in 2014, I had emergency surgery to remove part of my right lung, and spent a few weeks in hospital on various drugs. I am also on the lung transplant list. Since 2014 I have been ok, still working and I was swimming 5 times a week. But at the end of Jan I
Hi, I was diagnosed with Copd & Emphysema in 2014, I had emergency surgery to remove part of my right lung, and spent a few weeks in hospital on various drugs. I am also on the lung transplant list. Since 2014 I have been ok, still working and I was swimming 5 times a week. But at the end of Jan I
Shads71
in
Lung Conditions Community Forum
6 years ago
Struggling with FND diagnosis
Hi everyone, I’m very glad to have found this site! I was diagnosed with FND at the end of January so this is all very new to me. To give you some background I have a very complex set of medical conditions- I have Cystic Fibrosis and underwent a successful double lung transplant in 2012, so I am immunosuppressed
Hi everyone, I’m very glad to have found this site! I was diagnosed with FND at the end of January so this is all very new to me. To give you some background I have a very complex set of medical conditions- I have Cystic Fibrosis and underwent a successful double lung transplant in 2012, so I am immunosuppressed
feebee0609
in
Functional Neurological Disorder - FND Hope
6 years ago
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LUNG TRANSPLANT WAITING LIST
Is there anywhere I can go to talk to people who are on this list? I really need some one who understands?
Is there anywhere I can go to talk to people who are on this list? I really need some one who understands?
ross-35_
in
Lung Conditions Community Forum
6 years ago
Flying with Iressa and lung cancer will
Hi all, I was lucky to have the mutation for Iressa and have been on it for nearly 6 months. The scan in Jan showed shrinkage and s/e bearable. I’m 72 and I’ve just booked a flight from New Zealand to Cape Town - 27 or more hours which is terribly long. Any suggestions to help make the trip more bearable
Hi all, I was lucky to have the mutation for Iressa and have been on it for nearly 6 months. The scan in Jan showed shrinkage and s/e bearable. I’m 72 and I’ve just booked a flight from New Zealand to Cape Town - 27 or more hours which is terribly long. Any suggestions to help make the trip more bearable
Marina4
in
The Roy Castle Lung Cancer Foundation
6 years ago
Unlikely to get listed for Lung Transplant.
Good morning all, I just wondering if anyone had come up against this in the UK and what they tried to do next. The situation is, I have been through the 3 day lung assessment at Wythenshawe Hospital in Manchester UK. As well as going back for several more tests over a further six month period. The
Good morning all, I just wondering if anyone had come up against this in the UK and what they tried to do next. The situation is, I have been through the 3 day lung assessment at Wythenshawe Hospital in Manchester UK. As well as going back for several more tests over a further six month period. The
Joseph260268
in
Lung Conditions Community Forum
6 years ago
Asbestos: The lies that killed
Asbestos, now banned in the EU, kills up to 4,000 people a year in the UK alone. In this exclusive report, Ed Howker reveals how the industry hid the truth for decades and why the death toll will certainly continue to rise.
There are nearly one million documents on microfiche sitting in the
Asbestos, now banned in the EU, kills up to 4,000 people a year in the UK alone. In this exclusive report, Ed Howker reveals how the industry hid the truth for decades and why the death toll will certainly continue to rise.
There are nearly one million documents on microfiche sitting in the
Hidden
in
Lung Conditions Community Forum
6 years ago
Had four rounds of Chemo for Stage 2 lung cancer, had catscan after last infusion and doctor says there is a lesion on left lung. Why
lung cancer stage 2
lung cancer stage 2
Gangadarhan
in
Lung Cancer Support
6 years ago
What to do
End of the line with 20% chance of success. Stage 4 lung cancer diagnosed July 2017 strongest chemotherapy possible for 6 rounds 3 weeks apart, caused the tumor to shrink by 50% but came back one month later and spread to my liver and traveling up my spine, they want to try immunotherapy for 2 months
End of the line with 20% chance of success. Stage 4 lung cancer diagnosed July 2017 strongest chemotherapy possible for 6 rounds 3 weeks apart, caused the tumor to shrink by 50% but came back one month later and spread to my liver and traveling up my spine, they want to try immunotherapy for 2 months
Patti72
in
The Roy Castle Lung Cancer Foundation
6 years ago
in the pilgrims hospice
my husband is now in hospice as he fell out of bed,and keeps trying to walk but seems to lost use of legs. he's speech is slured and his brain is muddled and as he has lung cancer these symptons are confusing me. Is it the drugs they have given him?they are trying to found out,why so much confusion as
my husband is now in hospice as he fell out of bed,and keeps trying to walk but seems to lost use of legs. he's speech is slured and his brain is muddled and as he has lung cancer these symptons are confusing me. Is it the drugs they have given him?they are trying to found out,why so much confusion as
Valeriespk
in
Lung Conditions Community Forum
6 years ago
What can I do to help best to help my friend on a ventilator awake but unable to communicate?
My best friend has been in ICU for 2 weeks with flu and a
collapsed
lung
. They have woken her but she remains on the ventilator unable to communicate. I want to help the best I can but am unsure of what is best. Do you think an audio book or an mp3 with some music on will be a silly idea?
My best friend has been in ICU for 2 weeks with flu and a
collapsed
lung
. They have woken her but she remains on the ventilator unable to communicate. I want to help the best I can but am unsure of what is best. Do you think an audio book or an mp3 with some music on will be a silly idea?
Hidden
in
ICUsteps
6 years ago
Questions
Hello my husband was diagnosed with uip in July 2017 and at that time had a 36% lung capacity and on 3 liter of oxygen.He was put on esbriet and has been doing great without any side effect.He hasn't worked since march of 17 we wish we New what this life has in store for us at this point all we no is
Hello my husband was diagnosed with uip in July 2017 and at that time had a 36% lung capacity and on 3 liter of oxygen.He was put on esbriet and has been doing great without any side effect.He hasn't worked since march of 17 we wish we New what this life has in store for us at this point all we no is
kkfrank
in
Lung Conditions Community Forum
6 years ago
C T Scan results
The results were not good. There was small, but continued growth in the left lung tumor and new growth in a previously stable nodule in the right lung. After reviewing all the possibilities for treatment and the very slow progression of the tumors, my oncologist and I decided on a watch and wait plan
The results were not good. There was small, but continued growth in the left lung tumor and new growth in a previously stable nodule in the right lung. After reviewing all the possibilities for treatment and the very slow progression of the tumors, my oncologist and I decided on a watch and wait plan
JeanE41
in
Lung Cancer Support
6 years ago
Talking about blood...
Hi everybody, I must say this site is certainly a godsend when it comes to giving encouragement and inspiration. So thanks everybody who replies to worries, anxiety and concerns,especially those not fully addressed by GPs because of time restraints. The latest posts on blood are of particular interest
Hi everybody, I must say this site is certainly a godsend when it comes to giving encouragement and inspiration. So thanks everybody who replies to worries, anxiety and concerns,especially those not fully addressed by GPs because of time restraints. The latest posts on blood are of particular interest
Frustrated12
in
Lung Conditions Community Forum
6 years ago
17 years of various treatments
Hi Y'all, Regarding my husband, I have dragged him through 17 years of various treatments--all failed. However, he is still alive and kicking after all these years and we are grateful for that. He has lived a mostly normal, unaffected life through it all. He had a laparoscopic prostatectomy done
Hi Y'all, Regarding my husband, I have dragged him through 17 years of various treatments--all failed. However, he is still alive and kicking after all these years and we are grateful for that. He has lived a mostly normal, unaffected life through it all. He had a laparoscopic prostatectomy done
Grumpyswife
in
Advanced Prostate Cancer
6 years ago
Hello
Hi I am John. I was diagnosed with Small cell Lung Cancer in June 2015 and have been in remission since November of that year. I know that this is good and all i could hope for but lately my usual positivity has turned to worry . I am told this is normal, does anyone else have any ideas that may help
Hi I am John. I was diagnosed with Small cell Lung Cancer in June 2015 and have been in remission since November of that year. I know that this is good and all i could hope for but lately my usual positivity has turned to worry . I am told this is normal, does anyone else have any ideas that may help
johnnyb63
in
The Roy Castle Lung Cancer Foundation
6 years ago
Chostocondritis Flare-up
Is there anything that anyone can recommend, I am coming to the end of my Baclofen and Dihydrocodeine, and I am still getting flair ups. Does anyone know of any natural remedies, in terms of pain management, rather than have to rely on medication, because I am aware that overuse, can lead to addiction
Is there anything that anyone can recommend, I am coming to the end of my Baclofen and Dihydrocodeine, and I am still getting flair ups. Does anyone know of any natural remedies, in terms of pain management, rather than have to rely on medication, because I am aware that overuse, can lead to addiction
Scoobs87
in
Asthma Community Forum
6 years ago
Optivo Skin trouble
I take care of my 90 year old mother. She was diagnosed with Stage IV Lung Cancer. More than 5 years ago. She had Chemo Alimta with carboplaten for 2 years. Then went on Tarceva pills for 2 more. . They stopped working. Her doctor started her on Optivo. 1 2 &3 treatment went fine. Well #4 was a doosey
I take care of my 90 year old mother. She was diagnosed with Stage IV Lung Cancer. More than 5 years ago. She had Chemo Alimta with carboplaten for 2 years. Then went on Tarceva pills for 2 more. . They stopped working. Her doctor started her on Optivo. 1 2 &3 treatment went fine. Well #4 was a doosey
ChickisGirl
in
Lung Cancer Support
6 years ago
Bit more on the NHS (following knitter's recent post on ACOs)
Hi all, in case you didn't read that post - https://healthunlocked.com/blf/posts/private/137234902/accountable-care-organisations-nhs - ACOs are a major part of NHSEngland's reorganisation of the NHS, known as the Sustainable Transformation Plan (STPs) which aim to save £20-30 billion by 2021 from the
Hi all, in case you didn't read that post - https://healthunlocked.com/blf/posts/private/137234902/accountable-care-organisations-nhs - ACOs are a major part of NHSEngland's reorganisation of the NHS, known as the Sustainable Transformation Plan (STPs) which aim to save £20-30 billion by 2021 from the
O2Trees
in
Lung Conditions Community Forum
6 years ago
A little update on Lucy
She was on ECMO for 6 nerve-wracking days and then they weaned her off it, she then developed a pneumothorax (
collapsed
lung
). All told she was in Intensive Care for 21 days. Incredibly, she made a rapid recovery once the worst was over and we were discharged just in time for Christmas.
She was on ECMO for 6 nerve-wracking days and then they weaned her off it, she then developed a pneumothorax (
collapsed
lung
). All told she was in Intensive Care for 21 days. Incredibly, she made a rapid recovery once the worst was over and we were discharged just in time for Christmas.
sipidania
in
Fertility Network UK
6 years ago
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