Hi Y'all, Regarding my husband, I have dragged him through 17 years of various treatments--all failed. However, he is still alive and kicking after all these years and we are grateful for that. He has lived a mostly normal, unaffected life through it all.
He had a laparoscopic prostatectomy done in 2/2002 by Dr. Arnon Krongrad in Florida. That was 10K out of pocket because out insurance didn't cover such a procedure.
Within 4 years his PSA was rising so he had the 36 days of radiation done at U of Minnesota. We neglected then to take the advice of Dr. Grado and didn't have any brachytherapy done right after the course was completed.
He participated in the pomegranate juice study and all the while his PSA was slowly rising.
We finally had Dr. Grado do the brachytherapy in 2014 after a C11 acetate scan done at KU showed activity in the prostate bed. His PSA went down initially then started to rise again within a year.
He had another C11 acetate scan that showed spots in his left lung. The U of Minn did a wedge resection of the lung in 12/2015 and removed a couple of cancerous lesions and a lymph node that were positive for prostate cancer.
He had the Provenge treatment in August-October, 2017, but that doesn't affect PSA.
After the lung surgery he finally gave in to Lupron which didn't work. Casodex was added and that seemed to bring the PSA down a bit for awhile but he was up to taking three Casodex.
We moved to north Georgia and the new doc decided to stop the Casodex as an experiment to see if the PSA would fall. It didn't fall so the new doc suggested Xtandi. That surprised us because every other med oncologist suggested Zytiga with steroids. So I did research and got a second opinion.
Meanwhile, an Axumin scan showed two spots in the lung and one near his trachea and espophagus. The radiation oncologist felt it too risky for stereotactic on those areas. He seconded the Xtandi as a systemic treatment. He suggested longer term radiation to the lung spots as the failure back up plan.
Hubby has been taking Xtandi for about a week now with no side effects so far. We go into med oncologist end of month for followup.
Always open to suggestions especially those covered by insurance! We are also looking for good docs in the north Atlanta area.
Thanks for reading this long post.