Hello

[johnnyb63]

Hi I am John. I was diagnosed with Small cell Lung Cancer in June 2015 and have been in remission since November of that year. I know that this is good and all i could hope for but lately my usual positivity has turned to worry . I am told this is normal, does anyone else have any ideas that may help ?

[Edking]

Hi John, I managed to find a quote from a lung cancer expert that might make you feel a bit better.

"However, SCLC is typically fast growing, so it becomes less and less likely that it will return if it hasn't done so by 12-16 months later. "

As you have done 2 years, things should be looking good.

Ed

[RoyCastleHelpline Partner Ask the Nurse Roy Castle]

Hi John

Sorry to hear you have had SCLC but encouraging that you have been in remission for 2 years. It is normal and understandable that past any timeline given, you start to worry or be anxious that it may return.

Do not worry alone, discuss this with either your GP/Specialist/ lung cancer nurse/ support groups or if you have a Maggies centre near you they provide lots of practical, emotional and social support. This is the link to their website: maggiescentres.org

This link will direct you to lung cancer support groups that may be in your area:

roycastle.org/how-we-help/s...

If you wish to discuss anything you can call us on our free nurse led helpline number on 0800 358 7200

All the very best

The Roy Castle Support Team

[JanetteR57]

Hi John,

I don't know if you enjoy reading - but I found the book 'Cancer is a word not a sentence' by Dr Rob Buckman really helpful in changing my mood from anxious to hope as well as 'Anti Cancer - a new way of life' by Dr Servan Schreiber. well done on your 2 years so far - here's to many more.

[johnnyb63]

Thanks Janette I will look it up

[Pchad]

hello johnnyb63 Hi there 1st and a BIG 1ST very WELL DONE to you keep up this for long life. My situation large 12 cm beast in left lung found 02/ 01/ 18 .

Scans and last biopsy done last week . First biopsy via tube down throat only found dead cells so --- needle in back under C T scan guide. Dragged in this weds 21/02/18 to hear what this thing is called and discuss a treatment plan I have already been told possible chemo / radio . The thing is stuck to ribs and that's why I've had pain under arm area for 12 months of IT WILL BE OK TAKE PARACETOMEL oops. Your attitude is wavering at the moment . After all you have done PLEASE PLEASE don't do this and put your mind set back to positivity 100 % All since diagnosed I've taken a very I WILL BEAT THIS STANCE with the support of the med team at Bury hospital my Macmillan nurse has been brilliant all along .Please keep in touch and as SPOCK said live long and prosper. pchad

[johnnyb63]

Hi Pchad sounds like you have been under the cosh for a while. Yes you are right positivity is vital to keep going. I had a wobble last week but had a good chat with my Macmillan nurse and I am back on track. They are wonderful people who carry a heavy load I admire them all.

May your Camels have many humps/

John

[Bev86]

johnnyb63 ive never had lung cancer myself but i lost my beloved mum to this awful disease in 2015 and attended lots of appointments and done a lot of reading up on sclc. I think that being in remission for 2 years already is a fantastic sign as someone said this type of cancer is fast growing so i would of thought if it was going to come back it would of already. Sending love and positive thoughts to you xxx

[johnnyb63 in reply to Bev86]

Thanks Bev sorry about your Mom it is a nasty cancer. I hope that that is true I have everything crossed. xx