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kkfrank profile image
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Hello my husband was diagnosed with uip in July 2017 and at that time had a 36% lung capacity and on 3 liter of oxygen.He was put on esbriet and has been doing great without any side effect.He hasn't worked since march of 17 we wish we New what this life has in store for us at this point all we no is what we've read he had the open lung biopsy to confirm his disease.so far the doctors keep saying let's see how it goes about him returning to work or our life.Weve never been told from the doctors that he doesn't have long to live just that we need to wait and see.???🙏🙏🙏

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kkfrank
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docmel profile image
docmel

We are not time stamped... have they considered a lung transplant?

hypercat54 profile image
hypercat54

Hi it does sound a nasty disease (I googled it) but while there is life there is hope. There are other options which may be application such as valves, coils, or even a lung transplant. The latter usually depends on a variety of factors and there is usually an age cut off date.

If the doctor is talking about possibility returning to work s/he mustn't think the end is near. If it was then I think they wouldn't say wait and see they would tell him. x

2pray4us profile image
2pray4us

kkfrank, my name is kim but I go by 2pray4us. , Learning new discoveries about our health when things are bad is a bad thing, and yes we wish we could see the future in drastic situations such as this but that's not how life works so we try to make the best of the situation. No doctor can really tell you when its your time to die they can just assume, but God gave us life to live abundantly. No matter what is going on in his life you just have to pray for the best and don't take life for granted. I have stage 4copd, use 6-8 liter oxygen at all times. 3yrs ago I was breathing on 27percent of my own lungs, but now they say its 19percent.I thank God for giving man the knowledge that they have but I thank him more for giving me the knowledge of him. I don't know your faith or if you even believe in God but he keeps a smile on my face and I trust him because he is in the miracle business, and that's what we all need. So live life to the fullest and pray for God to do the rest .

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