in the pilgrims hospice

[Valeriespk]

my husband is now in hospice as he fell out of bed,and keeps trying to walk but seems to lost use of legs.

he's speech is slured and his brain is muddled and as he has lung cancer these symptons are confusing me.

Is it the drugs they have given him?they are trying to found out,why so much confusion as some times he cannot find words and sleeps constantly.

anyone with these simptons

[Pentreath Volunteer]

Dear Valerie, how difficult for you to see your husband suffering. Are you able to visit him? If so you could ask if you could speak to a member of staff about your husband. If not, you could phone them? You need to know what is going on and hospices are usually very good about supporting family members as well as patients.

[BillBruce]

I can’t add anything to the advice given by Pentreath except to say that you and your husband are in my thoughts and prayers

God bless

Bill

[mrsmummy]

Ask them if he has seen the GP.

[Shancock]

I'm terribly sorry about what's happening. The experience Ive known with Hospices are that they are generally very good with advice and support so hopefully you can get some answers.

I'm sure the drugs are probably quite potent so could well cause unpleasant side effects. Hopefully the staff can advise you.

I wish you both the best x

[Hidden]

Hello Valerie

How hard for you to see your husband in that state..I am sorry.

I would have a good chat with his doctor and nurse so you can get an explanation. It could be finding the right dosage for his drugs so he can be comfortable while avoiding pain. It is difficult to adjust, it was for my father when he had pneumonia.

Take good care xx

Fran

[1947Mags]

Sorry to hear about your husband. I lost my husband 10 months ago with lung cancer. He was exactly the same, in his case it was a build up of calcium in his blood which was causing the symptoms. (If I am remembering right) I believe that was detected from water or blood samples. So sorry if I am wrong about this but it could be worthwhile asking. Thinking of you at this most difficult time. Mags

[Kay1986]

Dear Valerie. Im so sorry to read your post. I lost my husband to cancer. He too had neuro problems,GP was convinced he had early onset dementia, he did not. I think neuro complications can happen with lung cancer(small cell cancer). Hopefully they will find what the cause is and get some treatment to give him relief from his symptoms. My husband had high dose steroids to reduce swelling and inflammation in nervous system.

Please take care of yourself too. It is such a stressful time for you and so easy to forget to eat at this time. xxx

[Stumpy55]

Hello Pentreath, what sad news, so sorry to hear this. I lost my mum to lung cancer and she to was slurring her words and sometimes in her confusion she would say things completely out of character. I discovered that she was on high doses of morphine and other medication as well . Her mood was changeable and on occasion she was nasty and other times she would stay sleeping. I do feel for you and if I were you have a word with the doctors. I know that the medication dose affect the patients. I wish you well, and could you please let us know how you are getting on please? Best wishes to you both. 🌹

[Valeriespk in reply to Stumpy55]

Thank you for the information as I thought it must have traveled to his brain,but they can't do anything as he is taking blood thinners and has ulcers on his foot,so radiation therapy is no good or steroids

[Stumpy55 in reply to Valeriespk]

So sorry for you Valeriespk, and obvcourse your husband. My prayers are with you. God Bless 🌹

[Izb1]

What a worry for you Valeriespk, it is a stressful time you are going through and my heart goes out to you, take care good care Irene x

[Valeriespk in reply to Izb1]

Thank you