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Cognitive behavioural therapy (CBT)
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So the odds we all read about... are they true?
When my husband (age 52) was diagnosed with metastatic prostate cancer two and a half years ago, he was told the outlook was "grim." Everything we read told us once it moves to the bone (his has) then you're looking at months, not years, of life left. He had TEMPUS done, which was basically the oncologist
When my husband (age 52) was diagnosed with metastatic prostate cancer two and a half years ago, he was told the outlook was "grim." Everything we read told us once it moves to the bone (his has) then you're looking at months, not years, of life left. He had TEMPUS done, which was basically the oncologist
Anatalya
in
Advanced Prostate Cancer
4 months ago
PSA Nadir 6 Months After Primary RT Correlates With Prostate Cancer Outcomes — Or does it?, MedPage Today May 22, 2024
[i]This article from MedPage Today is reproduced in full along with the link to the full access editorial comment is also provided. However, it has numerous hyperlinks to the the research cited within. The link to the MedPage article provides those links. [/i] [i]* * *[/i]
PSA Nadir 6 Months After
[i]This article from MedPage Today is reproduced in full along with the link to the full access editorial comment is also provided. However, it has numerous hyperlinks to the the research cited within. The link to the MedPage article provides those links. [/i] [i]* * *[/i]
PSA Nadir 6 Months After
cujoe
in
Fight Prostate Cancer
4 months ago
Prostate biopsy from rib ?
My dad , 83 , diagnosed with pc with mets to bones as per mri and psma. Not done biopsy yet as nervous to put dad through it and one oncologist said it’s not needed as the treatment would be ADT but then 3 other oncologists say it’s good to get it done as we would know what exactly we dealing with
My dad , 83 , diagnosed with pc with mets to bones as per mri and psma. Not done biopsy yet as nervous to put dad through it and one oncologist said it’s not needed as the treatment would be ADT but then 3 other oncologists say it’s good to get it done as we would know what exactly we dealing with
Tinkudi
in
Advanced Prostate Cancer
4 months ago
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Request for Input
Before I leave this wonderful group I'd like to pick your individual/collective brains. Since it's too late to help my husband, I'm looking for info that I can pass on to my son and 6 grandsons so they might better understand this awful cancer should they ever get it. I'm also providing a bit more info
Before I leave this wonderful group I'd like to pick your individual/collective brains. Since it's too late to help my husband, I'm looking for info that I can pass on to my son and 6 grandsons so they might better understand this awful cancer should they ever get it. I'm also providing a bit more info
Shamrock46
in
Advanced Prostate Cancer
4 months ago
Advice on Blood results please?
Hi, I'm not diagnosed with any thyroid problems but have had numerous blood tests over the last 4 years because of severe menopause symptoms that have not responded to HRT. Would you be able to have a look and see what you think please? I have also included some of the vitamins tested.
Hi, I'm not diagnosed with any thyroid problems but have had numerous blood tests over the last 4 years because of severe menopause symptoms that have not responded to HRT. Would you be able to have a look and see what you think please? I have also included some of the vitamins tested.
jca123
in
Thyroid UK
4 months ago
Meningioma advice
Hi all, I started getting constant headaches about three years ago. After being ignored by my doctors, I paid for a private neurologist, and he did an MRI, told me nothing was found and suggested it was menopause. I've had three years of headaches, dizziness, vision issues and utter fatigue and losing
Hi all, I started getting constant headaches about three years ago. After being ignored by my doctors, I paid for a private neurologist, and he did an MRI, told me nothing was found and suggested it was menopause. I've had three years of headaches, dizziness, vision issues and utter fatigue and losing
Calannmc
in
Meningioma Support
4 months ago
A Neophyte's Experience with a Gummy
Some of you might be interested in my gummy experience. I do not advocate anything here, but just want to share a new experience. Outside of four episodes in my eighty-four plus years, I have not used marijuana or other drugs beyond alcohol, coffee, maté from the Pampas of Argentina, and whatever uppers
Some of you might be interested in my gummy experience. I do not advocate anything here, but just want to share a new experience. Outside of four episodes in my eighty-four plus years, I have not used marijuana or other drugs beyond alcohol, coffee, maté from the Pampas of Argentina, and whatever uppers
Worked_the_World
in
Advanced Prostate Cancer
7 months ago
Should I insist on Whole Pelvic Radiation Therapy (WPRT)?
Given my condition (see profile), should I ask for Whole Pelvic Radiation Therapy (WPRT)? Multiple doctors have said I don't need WPRT due to my low Decipher score, although it would give me better peace of mind. However, I am concerned about the additional side effects. Here are my questions, and I
Given my condition (see profile), should I ask for Whole Pelvic Radiation Therapy (WPRT)? Multiple doctors have said I don't need WPRT due to my low Decipher score, although it would give me better peace of mind. However, I am concerned about the additional side effects. Here are my questions, and I
Infamous9597
in
Advanced Prostate Cancer
3 months ago
Does urinary frequency/urgency diminish after cessation of ADT?
I’m on the last month of a one year course of Orgovyx/Nubeqa for 4+3, 4.7PSA (now .006), Decipher .88. Brachyboost with pelvic SBRT 8/23 at UCLA My bladder volume at baseline was 500-600 ml (even hit 700 once). But over the months it has steadily decreased to currently 200-300ml. 350 if I really torture
I’m on the last month of a one year course of Orgovyx/Nubeqa for 4+3, 4.7PSA (now .006), Decipher .88. Brachyboost with pelvic SBRT 8/23 at UCLA My bladder volume at baseline was 500-600 ml (even hit 700 once). But over the months it has steadily decreased to currently 200-300ml. 350 if I really torture
SongofFred
in
Prostate Cancer Network
4 months ago
Blood Results- advice please
Hi had blood test as recommended early in day & no levo for 24 hours, no biotin for a week etc. I am wanting an increase in dose by 25mcg which will take me to 75mcg- for weight recommended dose is 100mcg! Still symptomatic! Also now on ppi plus change of Bp meds, an anti flam & Hrt! Gp reluctant
Hi had blood test as recommended early in day & no levo for 24 hours, no biotin for a week etc. I am wanting an increase in dose by 25mcg which will take me to 75mcg- for weight recommended dose is 100mcg! Still symptomatic! Also now on ppi plus change of Bp meds, an anti flam & Hrt! Gp reluctant
Robinface
in
Thyroid UK
4 months ago
High risk Decipher score, what now?
Hello, Im a 61 year old man, IIB, T2c, no mo, classified as unfavorable intermediate. I just finished my last day of 28 days of VMAT, ( total 70gy) ,last Weds day on May 15. Minimal SE so far. I also have 5 months in on ADT , Lupron, 1month, 1month , and 3 month shot. So I was feel pretty good
Hello, Im a 61 year old man, IIB, T2c, no mo, classified as unfavorable intermediate. I just finished my last day of 28 days of VMAT, ( total 70gy) ,last Weds day on May 15. Minimal SE so far. I also have 5 months in on ADT , Lupron, 1month, 1month , and 3 month shot. So I was feel pretty good
Surfer33
in
Prostate Cancer Network
4 months ago
ADT effectiveness duration for 80 plus age ?
For how long have those over 80 years with mets to bones , been able to keep their psa low with just ADT treatment ?
For how long have those over 80 years with mets to bones , been able to keep their psa low with just ADT treatment ?
Tinkudi
in
Advanced Prostate Cancer
4 months ago
Has anyone heard of trial DB-1311-O-1001?
Hi all, I’m wondering whether anybody has heard of the above trial? My Dad had been put forward for this and was advised yesterday he got through onto the trial but the paperwork says “first trial on humans”. They aren’t sure of the side effects and we are all feeling a bit apprehensive… My Dad has
Hi all, I’m wondering whether anybody has heard of the above trial? My Dad had been put forward for this and was advised yesterday he got through onto the trial but the paperwork says “first trial on humans”. They aren’t sure of the side effects and we are all feeling a bit apprehensive… My Dad has
Stefciaa
in
Advanced Prostate Cancer
4 months ago
HRT and fatigue
I'm quite interested to see if this resonates with anyone else .Was diagnosed with RA 2018, and been on methotrexate and Hydroxychloroquine ever since. Once the dose settled it's controlled the RA swelling. But the fatigue has been awful and constant. I assumed a result of the RA and side effects of
I'm quite interested to see if this resonates with anyone else .Was diagnosed with RA 2018, and been on methotrexate and Hydroxychloroquine ever since. Once the dose settled it's controlled the RA swelling. But the fatigue has been awful and constant. I assumed a result of the RA and side effects of
Spaniellady
in
NRAS
4 months ago
Finally!
Back in July I had a response to a FOI, which I challenged. I sent out numerous emails to different NHS governing bodies. I met a brick wall. Today an email turned up out of the blue from my Health Board. It only took them five months. The complaint was that the blood testing for thyroid did not
Back in July I had a response to a FOI, which I challenged. I sent out numerous emails to different NHS governing bodies. I met a brick wall. Today an email turned up out of the blue from my Health Board. It only took them five months. The complaint was that the blood testing for thyroid did not
serenfach
in
Thyroid UK
10 months ago
Death from other-than PCa is not a "success"
A tongue-in-cheek stated goal by many here with PCa (including myself for the past 17 years since dianosis) has been to live to die of "anything other" than prostate cancer. Of course that does not bear up to close scrutiny. Many alternative causes of death, including the "big 4" of Cardiovascular Disease
A tongue-in-cheek stated goal by many here with PCa (including myself for the past 17 years since dianosis) has been to live to die of "anything other" than prostate cancer. Of course that does not bear up to close scrutiny. Many alternative causes of death, including the "big 4" of Cardiovascular Disease
MateoBeach
in
Fight Prostate Cancer
4 months ago
MCAS and LEVOTHYROXINE Nightmare
MCAS AND MEDS MCAS strikes again I can't take tablet or liquid levothyroxine as I've had the worst histamine flare even at 25mcg. Been in bed 4 days now crashing headache, body pains, inflammation, dizziness, fatigue all from 1 tiny dose of 25mcg liquid levothyroxine. What can I do ? I desperately
MCAS AND MEDS MCAS strikes again I can't take tablet or liquid levothyroxine as I've had the worst histamine flare even at 25mcg. Been in bed 4 days now crashing headache, body pains, inflammation, dizziness, fatigue all from 1 tiny dose of 25mcg liquid levothyroxine. What can I do ? I desperately
CGH123
in
Thyroid UK
4 months ago
Art and music therapy for kidney patients
Coping with kidney disease can be difficult. Sometimes you have to think outside the box! Have you considered music or art therapy? Listen today to hear Social Worker Melissa Fry and patient Steven Light share their experiences with using music and art as coping strategies. https://www.podbean.com/ep
Coping with kidney disease can be difficult. Sometimes you have to think outside the box! Have you considered music or art therapy? Listen today to hear Social Worker Melissa Fry and patient Steven Light share their experiences with using music and art as coping strategies. https://www.podbean.com/ep
JackieJ_NKF
Partner
in
Parents of Children with Kidney Disease
10 months ago
Must be doing something right!
Attended for my annual supplementary oxygen therapy review today and wahooooo, the prescription doesn't need to be increased! This is first time it hasn't needed to be increased year on year for the last 7 years. Very chuffed. A great Christmas gift.....Long may it last.
Attended for my annual supplementary oxygen therapy review today and wahooooo, the prescription doesn't need to be increased! This is first time it hasn't needed to be increased year on year for the last 7 years. Very chuffed. A great Christmas gift.....Long may it last.
PaulineHM
in
Lung Conditions Community Forum
10 months ago
Erectile dysfunction meds and side effects
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding zytega next month. Good news is that his PSA has gone to 2 and Testosterone to 9 after a month on Firmagon so meds seem to be doing what are supposed to. Drs have
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding zytega next month. Good news is that his PSA has gone to 2 and Testosterone to 9 after a month on Firmagon so meds seem to be doing what are supposed to. Drs have
SherryKahn
in
Advanced Prostate Cancer
3 months ago
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