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Coats plus syndrome
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GLP1-R agonist improves Parkinson disease symptoms
"Lixisenatide can cross the blood-brain barrier and is known to have neuroprotective properties in https://www.ccjm.org/page/mds-2023/glp1-r-agonist-parkinson#:~:text=Lixisenatide%20can%20cross%20the%20blood,%2C%20University%20Hospital%20Bordeaux%2C%20France.
"Lixisenatide can cross the blood-brain barrier and is known to have neuroprotective properties in https://www.ccjm.org/page/mds-2023/glp1-r-agonist-parkinson#:~:text=Lixisenatide%20can%20cross%20the%20blood,%2C%20University%20Hospital%20Bordeaux%2C%20France.
Gcf51
in
Cure Parkinson's
3 months ago
Sjogrens Syndrome
Sjogrens, Raynauds, Mixed Connective Tissue Disorder….. was diagnosed maybe 20 years ago with Sjogrens. No treatment was needed other eye drops. Then I started having the dry mouth and dental issues. I currently taking 400mg daily of hydroxychloroquine. The medication has helped tremendously .
Sjogrens, Raynauds, Mixed Connective Tissue Disorder….. was diagnosed maybe 20 years ago with Sjogrens. No treatment was needed other eye drops. Then I started having the dry mouth and dental issues. I currently taking 400mg daily of hydroxychloroquine. The medication has helped tremendously .
Juanburr1950
in
Scleroderma & Raynaud's UK (SRUK)
4 months ago
Urgent Synarel - help!
Hi everyone I have just had my final scan today, before ER on Monday. I take my trigger shot tomorrow- and im sure the Dr said to me to take my last Synarel/nafarelin nasal spray as usual (I have been taking it twice each nostril, 9am and 9pm) However, the paper instructions she has written down state
Hi everyone I have just had my final scan today, before ER on Monday. I take my trigger shot tomorrow- and im sure the Dr said to me to take my last Synarel/nafarelin nasal spray as usual (I have been taking it twice each nostril, 9am and 9pm) However, the paper instructions she has written down state
MollyHar
in
Fertility Network UK
4 months ago
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Informing DVLA
Hi all. You've been super helpful before so wonder if you can help with another question. One for the UK based folk. Question about informing the DVLA of a TBI. Has anyone navigated this process please? I know I need to inform them and have looked at their form. I'm not currently well enough to drive
Hi all. You've been super helpful before so wonder if you can help with another question. One for the UK based folk. Question about informing the DVLA of a TBI. Has anyone navigated this process please? I know I need to inform them and have looked at their form. I'm not currently well enough to drive
Ideogram
in
Headway
4 months ago
Clonidine - success with RLS anyone?
Evening team I have a query. As some of you may remember I was prescribed Buprenorphine two years ago by a neurologist for my restless limbs. I have a feeling I may have asked this question before, maybe not in one of my posts, (can't remember!) Does anyone out there take Clonidine for RLS? if
Evening team I have a query. As some of you may remember I was prescribed Buprenorphine two years ago by a neurologist for my restless limbs. I have a feeling I may have asked this question before, maybe not in one of my posts, (can't remember!) Does anyone out there take Clonidine for RLS? if
Heatherandgorse
in
Restless Legs Syndrome
4 months ago
Efficacy of Trihexyphenidyl on Apraxia of Eyelid Opening in Parkinsonism: A Case Report
Apraxia of eyelid opening (AEO) is occasionally seen in Parkinson’s disease (PD) or related diseases. However, many clinicians have trouble with the management of AEO by Parkinsonism. The following link mentions a case of apraxia of eyelids opening in PD patient which was successfully treated with the
Apraxia of eyelid opening (AEO) is occasionally seen in Parkinson’s disease (PD) or related diseases. However, many clinicians have trouble with the management of AEO by Parkinsonism. The following link mentions a case of apraxia of eyelids opening in PD patient which was successfully treated with the
Farooqji
in
Cure Parkinson's
4 months ago
first scan anxiety! Please say something positive
i have my first scan today (13wks 1 day), i am very anxious.. i keep thinking ridiculous things like they are going to say there is no baby etc. and am horrified thinking about birth defects and chromosomal abnormalities.. any help/advice?
i have my first scan today (13wks 1 day), i am very anxious.. i keep thinking ridiculous things like they are going to say there is no baby etc. and am horrified thinking about birth defects and chromosomal abnormalities.. any help/advice?
QueenKoala
in
Pregnancy and Parenting Support
4 months ago
I did PGT-A testing, could my unborn baby have down's syndrome?
I am currently 18 weeks 5 days pregnant following a successful IVF cycle. I undertook PGT-A testing as I am 41 years old. I got a call today from my midwife advising that my blood test has come back with a higher chance result for down's syndrome. I thought that as PGT-A testing was done and showed
I am currently 18 weeks 5 days pregnant following a successful IVF cycle. I undertook PGT-A testing as I am 41 years old. I got a call today from my midwife advising that my blood test has come back with a higher chance result for down's syndrome. I thought that as PGT-A testing was done and showed
Systema23
in
Pregnancy and Parenting Support
5 months ago
A useful option-gastro resistant empty capsules
a post yesterday reminded me to tell you all that I’ve been taking my preds in gastro resistant empty capsules for a couple of months now. This means I can take them without food around midnight. But I have also taken them at 11pm ish and not noticed any difference. I asked a gp if I should still take
a post yesterday reminded me to tell you all that I’ve been taking my preds in gastro resistant empty capsules for a couple of months now. This means I can take them without food around midnight. But I have also taken them at 11pm ish and not noticed any difference. I asked a gp if I should still take
Freshairfiend
in
PMRGCAuk
5 months ago
Results
Hi there ..I was diagnosed with active thyroiditis 29.4F4 and on 10 mg Carbmizole. This is my latest test result ....clearly improved but should I worry about my TSH?
Hi there ..I was diagnosed with active thyroiditis 29.4F4 and on 10 mg Carbmizole. This is my latest test result ....clearly improved but should I worry about my TSH?
Apodemus
in
Thyroid UK
5 months ago
Me or the embryos?
Hi ladies, I’d be really grateful for anyone’s thoughts. We’ve just had multiple FET failures with top quality blastocysts. Over the past few years I’ve had 4 chemicals (always before 5 weeks), maybe 6 (single faint positive with the additional 2). I want to look in to embryo testing and immune testing
Hi ladies, I’d be really grateful for anyone’s thoughts. We’ve just had multiple FET failures with top quality blastocysts. Over the past few years I’ve had 4 chemicals (always before 5 weeks), maybe 6 (single faint positive with the additional 2). I want to look in to embryo testing and immune testing
Ytrewq123
in
Fertility Network UK
5 months ago
miltivits
what multivitamin/mineral/trace element would people recommend buying and taking? I have hypo and take 100 levo daily currently. Am about to order the mesichecks blood test recommended on here with finger prick although if blood draw is better will order that.
what multivitamin/mineral/trace element would people recommend buying and taking? I have hypo and take 100 levo daily currently. Am about to order the mesichecks blood test recommended on here with finger prick although if blood draw is better will order that.
BrocksfieldJo
in
Thyroid UK
5 months ago
Beta Hcg
hi all, I know there’s a few threads about this, but I’m really confused with all the information out there. At 5w2d my hcg came back at 7552 At 5w4d it was 11,309 this didn’t exactly double in 48 hours, but I read online that once above 6000 and between 5-6 weeks the rate of doubling slows down
hi all, I know there’s a few threads about this, but I’m really confused with all the information out there. At 5w2d my hcg came back at 7552 At 5w4d it was 11,309 this didn’t exactly double in 48 hours, but I read online that once above 6000 and between 5-6 weeks the rate of doubling slows down
Ivfgotthis18
in
Fertility Network UK
5 months ago
Recently diagnosed
I received a note from my Dr. in My Chart that due to my liver enzymes still being elevated that I meet the criteria for a diagnosis of Pbc. I had made an appointment with another Hepa for a second opinion and that appointment is in two weeks. I'm completely torn if I should bother. Its been a long time
I received a note from my Dr. in My Chart that due to my liver enzymes still being elevated that I meet the criteria for a diagnosis of Pbc. I had made an appointment with another Hepa for a second opinion and that appointment is in two weeks. I'm completely torn if I should bother. Its been a long time
Zelda5
in
PBC Foundation
5 months ago
Anyone know where I can get the following Blood tests done?
Hello All, Trust you are all doing well. Just trying to find somewhere that offer the ANTI-SPERM ANTIBODY (FEMALE PARTNER) & ANTI-DNA Blood Tests? My Clinic dont offer these and struggling to find somewhere that does. Really wanting these tests done as heard they can impact re-occurring failed implantation
Hello All, Trust you are all doing well. Just trying to find somewhere that offer the ANTI-SPERM ANTIBODY (FEMALE PARTNER) & ANTI-DNA Blood Tests? My Clinic dont offer these and struggling to find somewhere that does. Really wanting these tests done as heard they can impact re-occurring failed implantation
Flowergirlhope
in
Fertility Network UK
6 months ago
When should I tell me manager I'm pregnant
I want to wait until 12 weeks before telling anybody I am pregnant, but I work with complex, vulnerable individuals, often lone-working, and am not sure whether I should tell my manager earlier than 12 weeks. We have had a lot of ups and downs with IVF and so I am feeling anxious about sharing the news
I want to wait until 12 weeks before telling anybody I am pregnant, but I work with complex, vulnerable individuals, often lone-working, and am not sure whether I should tell my manager earlier than 12 weeks. We have had a lot of ups and downs with IVF and so I am feeling anxious about sharing the news
GranolaLover2000
in
Fertility Network UK
6 months ago
Update - pinning all our hopes on one embryo
Thanks for all your well wishes. We started with 5 eggs, which dwindled down to 2 embryos by day 3. As you know, we requested for a day 3 single embryo transfer against clinic advice. Well, it looks like my remaining embryo did not make it to blastocyst. We just got the call. My clinic feels that
Thanks for all your well wishes. We started with 5 eggs, which dwindled down to 2 embryos by day 3. As you know, we requested for a day 3 single embryo transfer against clinic advice. Well, it looks like my remaining embryo did not make it to blastocyst. We just got the call. My clinic feels that
Mrs_MT
in
Fertility Network UK
6 months ago
Lining 5.9mm on day 12.. not feeling very hopeful
Hi all, I had my cycle day 12 lining scan today. My lining on my day 9 scan (on Monday) was 5.3mm. Today on cycle day 12, it was only ay 5.9mm. I was told the lining was triple layer however have been asked to return for a scan on Tuesday 23rd Jan to see if there are any developments. I have been
Hi all, I had my cycle day 12 lining scan today. My lining on my day 9 scan (on Monday) was 5.3mm. Today on cycle day 12, it was only ay 5.9mm. I was told the lining was triple layer however have been asked to return for a scan on Tuesday 23rd Jan to see if there are any developments. I have been
lovetravelling
in
Fertility Network UK
6 months ago
Nailfold infection
I have my second nailfold infection in 2 months - it is proving difficult to resolve and a few days ago a telangectasia bled profusely for no reason. Is this connected to my Systemic Sclerosis or just a coincident. Thanks for any thoughts on this.
I have my second nailfold infection in 2 months - it is proving difficult to resolve and a few days ago a telangectasia bled profusely for no reason. Is this connected to my Systemic Sclerosis or just a coincident. Thanks for any thoughts on this.
janetfmauk
in
Scleroderma & Raynaud's UK (SRUK)
6 months ago
Methadone transition
I have been on 2mg er ropinerole for 10+ years - up and down on doses; mixed with a variety of other low dose meds; became 'refractory' a while ago - my RLS is advanced and has been so for 15+ years. I retired 2 years ago and decided it is time to finally be liberated from the evil 'R". ... I have
I have been on 2mg er ropinerole for 10+ years - up and down on doses; mixed with a variety of other low dose meds; became 'refractory' a while ago - my RLS is advanced and has been so for 15+ years. I retired 2 years ago and decided it is time to finally be liberated from the evil 'R". ... I have
Steino
in
Restless Legs Syndrome
5 days ago
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