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Coagulation factor IX
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Uncertain PMR or EORA?
Good morning, My first visit to see the Rheumatologist referred by GP and taking Naproxen for three months. Hip pain much better but not doing much walking, shoulders heavy with impaired mobility and last four weeks hands stiff and tight feeling. ESR was 50 in March, 76 in April. CRP was 22 March
Good morning, My first visit to see the Rheumatologist referred by GP and taking Naproxen for three months. Hip pain much better but not doing much walking, shoulders heavy with impaired mobility and last four weeks hands stiff and tight feeling. ESR was 50 in March, 76 in April. CRP was 22 March
Woollyback1
in
PMRGCAuk
1 year ago
interesting find
has anyone tried grass fed beef liver supplements. I’m wondering if these freeze dried capsules would be beneficial because of the vitamins and minerals in them as I don't seem to be able to keep my levels of anything up without supplementing. As soon as I stop they seem to drop again quite quickly ,
has anyone tried grass fed beef liver supplements. I’m wondering if these freeze dried capsules would be beneficial because of the vitamins and minerals in them as I don't seem to be able to keep my levels of anything up without supplementing. As soon as I stop they seem to drop again quite quickly ,
Thrones12
in
Pernicious Anaemia Society
1 year ago
Sourcing advice please
Hi I went to my GP in April with this problem. My GP practice give you forms for self booking for Rheumatology at choice of 2 hospitals. Both have no appointments available. I rang and was told 18 to 34 week wait but even then you have to go on a waiting list to get the appointment before that. I booked
Hi I went to my GP in April with this problem. My GP practice give you forms for self booking for Rheumatology at choice of 2 hospitals. Both have no appointments available. I rang and was told 18 to 34 week wait but even then you have to go on a waiting list to get the appointment before that. I booked
Wonderfullifeandmore
in
PMRGCAuk
1 year ago
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castor, oil patch
hi was wondering if anyone has ever done this it keeps popping up on my phone that it reduces inflammation and detox his liver. I’m not sure if we can do this being on pegasys just interested if anyone has done this
hi was wondering if anyone has ever done this it keeps popping up on my phone that it reduces inflammation and detox his liver. I’m not sure if we can do this being on pegasys just interested if anyone has done this
Nc3500
in
MPN Voice
1 year ago
Cystocele/Rectocele repair all done
I'm almost 6 weeks after my repair surgery. Recovery not to bad. First two weeks I was warned were crucial and told not to do anything except rest, which I did. Luckily we had hot sunny weather so I literally layed outside sunbathing in-between medication, meals and sleeping. No pain as I kept taking
I'm almost 6 weeks after my repair surgery. Recovery not to bad. First two weeks I was warned were crucial and told not to do anything except rest, which I did. Luckily we had hot sunny weather so I literally layed outside sunbathing in-between medication, meals and sleeping. No pain as I kept taking
Jasparswim
in
Pelvic Pain Support Network
1 year ago
Pmr for 2nd time!
Hi, just a question for Members who have had PMR twice. Where your symptoms exactly the same the second time. I am feeling very poorly at the moment and am banging my head up against the wall with my Doctor. I feel as if it is PMR again. My ESR is 32. The only difference this time is that my fingers
Hi, just a question for Members who have had PMR twice. Where your symptoms exactly the same the second time. I am feeling very poorly at the moment and am banging my head up against the wall with my Doctor. I feel as if it is PMR again. My ESR is 32. The only difference this time is that my fingers
Attic
in
PMRGCAuk
1 year ago
PA in a child?
Does anybody have any experience of PA in children? My almost 6 year old daughter has been suffering with mouth ulcers for the past 6 months and I’m just wondering if she might have PA? I was diagnosed at 23 (now 40). My sister, brother and nephew (14) have recently tested positive for intrinsic factor
Does anybody have any experience of PA in children? My almost 6 year old daughter has been suffering with mouth ulcers for the past 6 months and I’m just wondering if she might have PA? I was diagnosed at 23 (now 40). My sister, brother and nephew (14) have recently tested positive for intrinsic factor
Murfie276
in
Pernicious Anaemia Society
1 year ago
fobbed off by Drs
ok, so wrote letter to practice manager quoting and linking the NICE protocol for B12…get a call from a dr saying “Your B12 is in range and take supplements not retesting you til october” I tried to explain my intrinsic factor was 2.2Au/l The reference for positive PA is 1.53 Au/l but not according
ok, so wrote letter to practice manager quoting and linking the NICE protocol for B12…get a call from a dr saying “Your B12 is in range and take supplements not retesting you til october” I tried to explain my intrinsic factor was 2.2Au/l The reference for positive PA is 1.53 Au/l but not according
Bumblebee02
in
Pernicious Anaemia Society
1 year ago
PMR turns into 3 things, per my Rheumo
I had PMR and on Predisone for 1 1/2 years, and off of it for 5 months. I have bad pain in all joints/muscles and much stiffness. Inflammatory blood tests are OK - CRP and ESr fairly low, and all autoimmune blood tests OK including Rheumatoid Factor, etc. and temporal Ultrasound OK for GCA. Had
I had PMR and on Predisone for 1 1/2 years, and off of it for 5 months. I have bad pain in all joints/muscles and much stiffness. Inflammatory blood tests are OK - CRP and ESr fairly low, and all autoimmune blood tests OK including Rheumatoid Factor, etc. and temporal Ultrasound OK for GCA. Had
kp60
in
PMRGCAuk
1 year ago
MMA results - supplements or further test?
Can I ask for your advice please? I have Hashmito’s. Since learning that this can influence the absorption of nutrients, I have been to the doctor’s to request tests. Last B12 test: 229 ng/l (190-910) I used B12 symptoms checklist which suggests severe deficiency. Neither of this seemed to worry
Can I ask for your advice please? I have Hashmito’s. Since learning that this can influence the absorption of nutrients, I have been to the doctor’s to request tests. Last B12 test: 229 ng/l (190-910) I used B12 symptoms checklist which suggests severe deficiency. Neither of this seemed to worry
Dandelions
in
Pernicious Anaemia Society
1 year ago
Hello and thank you for having me!
Hello all, Thank you for having me on your forum and for sharing information. I appreciate that it's possible nobody will have the time to read or reply to this, but it will help me to share it anyhow. I hope that's OK. My name is Holly and I am 35. I am on somewhat of a journey in terms of seeking
Hello all, Thank you for having me on your forum and for sharing information. I appreciate that it's possible nobody will have the time to read or reply to this, but it will help me to share it anyhow. I hope that's OK. My name is Holly and I am 35. I am on somewhat of a journey in terms of seeking
Hollyinthewild
in
LUPUS UK
1 year ago
ANA Titre 1:80 with Raynauds and burning hands
Hi, looking for some help and advice from others... Male - Age 39 - slim - mostly fit and well - non smoker I have this year began to experience episodes of Raynauds that appear to be triggered by the cold (but not that cold) weather and also stress/anxiety - so fairly classic stuff. The GP initially
Hi, looking for some help and advice from others... Male - Age 39 - slim - mostly fit and well - non smoker I have this year began to experience episodes of Raynauds that appear to be triggered by the cold (but not that cold) weather and also stress/anxiety - so fairly classic stuff. The GP initially
Chester_1983
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Questions regarding my B12 case (IF, veganism, oral sublingual, and other blood results)
Hi all, My case seems to be a little murky. In 2018 I found out that I had very low B12. I was a vegetarian at that time and for the last 2 years have been vegan. Back in 2018, I began injections which brought my level very high very quickly. At that time I also took my first intrinsic factor test. It
Hi all, My case seems to be a little murky. In 2018 I found out that I had very low B12. I was a vegetarian at that time and for the last 2 years have been vegan. Back in 2018, I began injections which brought my level very high very quickly. At that time I also took my first intrinsic factor test. It
Greeneyecolor
in
Pernicious Anaemia Society
1 year ago
How to fight for treatment?
I felt awful last oct and blood test showed B12 was at 21.6pmol/l so was given 6 loading doses. I went back at their request and was told my B12 levels were in range (obviously) and that was that, no other appointments needed. My intrinsic factor they tested a few weeks later was 2Au which I believe
I felt awful last oct and blood test showed B12 was at 21.6pmol/l so was given 6 loading doses. I went back at their request and was told my B12 levels were in range (obviously) and that was that, no other appointments needed. My intrinsic factor they tested a few weeks later was 2Au which I believe
Bumblebee02
in
Pernicious Anaemia Society
1 year ago
Antibodies Negative
Hi, Im pretty new to this all. I was feeling extremely weak lethargic, pins and needles etc and my b12 came back pretty low (167) started injections but now the doctor tells me that the test for my antibodies came back negative which means I do not have PA and that they will not do an Intrinsic factor
Hi, Im pretty new to this all. I was feeling extremely weak lethargic, pins and needles etc and my b12 came back pretty low (167) started injections but now the doctor tells me that the test for my antibodies came back negative which means I do not have PA and that they will not do an Intrinsic factor
Stepp
in
Pernicious Anaemia Society
1 year ago
Intrinsic factor antibody result
Hi all, I've only just seen the result of an Intrinsic Factor Antibody test that was done in December before I started SI which I don't know how to interpret. I got a result of 2 u/ml (reference range is 0-24 u/ml). Is that a positive or a negative result? Does that confirm PA or not? Can someone explain
Hi all, I've only just seen the result of an Intrinsic Factor Antibody test that was done in December before I started SI which I don't know how to interpret. I got a result of 2 u/ml (reference range is 0-24 u/ml). Is that a positive or a negative result? Does that confirm PA or not? Can someone explain
Gecko22
in
Pernicious Anaemia Society
1 year ago
B12 injections stopped by GP
I have been on B12 injections for 4 years. (I had exhaustion, nausea, headaches etc and B12 was confirmed as being 40.)Had.loading dose and been having 3 monthly injections ever since. Intrinsic Factor was negative, but I do not have a restrictive diet. Anyway, GP decided to check my B12 when I asked
I have been on B12 injections for 4 years. (I had exhaustion, nausea, headaches etc and B12 was confirmed as being 40.)Had.loading dose and been having 3 monthly injections ever since. Intrinsic Factor was negative, but I do not have a restrictive diet. Anyway, GP decided to check my B12 when I asked
ValentinoBlue
in
Pernicious Anaemia Society
1 year ago
Could my B12d be due to medication
After another wasted trip to the doctors last month. She showed some concern over my long list of symptoms but thought it best to wait another 5 weeks before we discussed B12 injections again (She is convinced it is due to diet), and in the meantime sent me for more of the same repeated blood tests but
After another wasted trip to the doctors last month. She showed some concern over my long list of symptoms but thought it best to wait another 5 weeks before we discussed B12 injections again (She is convinced it is due to diet), and in the meantime sent me for more of the same repeated blood tests but
woo79
in
Pernicious Anaemia Society
1 year ago
Intrinsic Factor Antibodies
Hi I was diagnosed with PA in October 22 .I had a private blood test after feeling unwell for a while. I used Superdrug and IFA came back as 36.4 U/ml Range 0-6 Recently I had another test done at Medichecks and IFA came back as 57.82 Au/ml Range Less than 1.2. I can see these are different references
Hi I was diagnosed with PA in October 22 .I had a private blood test after feeling unwell for a while. I used Superdrug and IFA came back as 36.4 U/ml Range 0-6 Recently I had another test done at Medichecks and IFA came back as 57.82 Au/ml Range Less than 1.2. I can see these are different references
smg1950
in
Pernicious Anaemia Society
1 year ago
Possible R.A ?
Hi all sorry if your fed up reading people's symptoms etc.... I'm feeling a little lost and looking I suppose to find out more of other peoples journeys and thoughts. I have psoriasis but for a while have niggles in my fingers and thumbs. Not bothered me really and a lump on my finger(knuckle). But around
Hi all sorry if your fed up reading people's symptoms etc.... I'm feeling a little lost and looking I suppose to find out more of other peoples journeys and thoughts. I have psoriasis but for a while have niggles in my fingers and thumbs. Not bothered me really and a lump on my finger(knuckle). But around
Valla81
in
NRAS
1 year ago
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