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Asking for words of support please
Hi, next week I have a VA eval for PTSD/ Depression increase. I know it’s God’s will whatever the decision, but it causes anxiety, esp. when the person evaluating has no idea of my daily battle with depression/ anxiety. Also, a lot of self blaming/ feeling ashamed. Thank you for listening. Hope you
Hi, next week I have a VA eval for PTSD/ Depression increase. I know it’s God’s will whatever the decision, but it causes anxiety, esp. when the person evaluating has no idea of my daily battle with depression/ anxiety. Also, a lot of self blaming/ feeling ashamed. Thank you for listening. Hope you
ElephantsHear
in
Anxiety and Depression Support
9 months ago
Clinical Trial Dallas UT Southwestern
Will begin a Pfizer starting on Monday. I will post more later as it goes. We are adding a drug to Xtandi to treat solid tumors. I have been on and off Xtandi a few times. I am chemo naive. In the past had a very heavy tumor load and received 3 rounds of Lu-177 from Ishita Sen, Fortis health in Delhi
Will begin a Pfizer starting on Monday. I will post more later as it goes. We are adding a drug to Xtandi to treat solid tumors. I have been on and off Xtandi a few times. I am chemo naive. In the past had a very heavy tumor load and received 3 rounds of Lu-177 from Ishita Sen, Fortis health in Delhi
pilot52
in
Advanced Prostate Cancer
9 months ago
residential advice for anxiety, trauma, ocd but no substance abuse
Seeking a place for 22 year old daughter. Deciding between different places, but OCDI Texas one of them. She also has trauma, body dysmorphia and depressed a bit. Recent dx of OCD, actually. We always treated the anxiety, so not sure if her OCD is bad enough. (We live near Boston so we know McLean).
Seeking a place for 22 year old daughter. Deciding between different places, but OCDI Texas one of them. She also has trauma, body dysmorphia and depressed a bit. Recent dx of OCD, actually. We always treated the anxiety, so not sure if her OCD is bad enough. (We live near Boston so we know McLean).
kaya2
in
Anxiety and Depression Support
9 months ago
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Care oncology
Hi I have stage 4 lung cancer and today have just found out that they are going to stop my immunotherapy as I have had to many side effects anyway my choices are to go back on chemo for a bit or I might be able to go a clinical trial. I've heard and read up a bit care oncology has anyone on here had
Hi I have stage 4 lung cancer and today have just found out that they are going to stop my immunotherapy as I have had to many side effects anyway my choices are to go back on chemo for a bit or I might be able to go a clinical trial. I've heard and read up a bit care oncology has anyone on here had
Leni22
in
The Roy Castle Lung Cancer Foundation
9 months ago
NICE Final Guidance on Ruxolitinib for the treatment of Polycythaemia Vera
We are delighted to announce that NICE (the National Institute for Health and Care Excellence) has recently released Final Guidance recommending Ruxolitinib for treating Polycythaemia Vera (PV) in adults in England who cannot tolerate Hydroxycarbamide (also called Hydroxyurea) or when the condition is
We are delighted to announce that NICE (the National Institute for Health and Care Excellence) has recently released Final Guidance recommending Ruxolitinib for treating Polycythaemia Vera (PV) in adults in England who cannot tolerate Hydroxycarbamide (also called Hydroxyurea) or when the condition is
Mazcd
MPNVoice
in
MPN Voice
9 months ago
what do you do when you want to get a grip instead of crying all the time?
last week and today were very hard for me. I’m living with my ex and he started dating someone. It’s a very complicated situation where I feel paralyzed and can’t seem to find the strength to move out. Depression seems to hold me back plus the newly breakup. Any advise on how to come out of this?
last week and today were very hard for me. I’m living with my ex and he started dating someone. It’s a very complicated situation where I feel paralyzed and can’t seem to find the strength to move out. Depression seems to hold me back plus the newly breakup. Any advise on how to come out of this?
Browny71
in
Anxiety and Depression Support
9 months ago
problems wearing glasses?
Hi. I’ve always worn glasses - very shortsighted so a strong prescription and heavy lenses. For a long time I’ve had to pay for the lightest possible lenses and small frames, because of headaches. But despite that, in the last 2-3 years I get sores on the sides of my nose where the glasses rest. It’s
Hi. I’ve always worn glasses - very shortsighted so a strong prescription and heavy lenses. For a long time I’ve had to pay for the lightest possible lenses and small frames, because of headaches. But despite that, in the last 2-3 years I get sores on the sides of my nose where the glasses rest. It’s
LadyTrundle
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Right eye injury
I got hit in right eye upper region, after several hours swelling occurred, at time of injury and after 24 hours at time of diagnosis my vision was 6/6, severe pain and conjunctivitis was present, doctor subscribe me cold therapy and antibiotic, light sensitivity was present for 2 weeks, Vision is
I got hit in right eye upper region, after several hours swelling occurred, at time of injury and after 24 hours at time of diagnosis my vision was 6/6, severe pain and conjunctivitis was present, doctor subscribe me cold therapy and antibiotic, light sensitivity was present for 2 weeks, Vision is
Ravish340
in
Glaucoma UK
1 year ago
Stanford Gloves Development: New Patent Granted Oct 12
For those closely following the development of Peter Tass' Stanford glove for treating PD, a potential new milestone in the development might have been reached last week. A patent was granted to Peter Tass last week on October 12. U.S. Patent # US-20230321436-A1, titled MEDICAL DEVICE FOR STIMULATING
For those closely following the development of Peter Tass' Stanford glove for treating PD, a potential new milestone in the development might have been reached last week. A patent was granted to Peter Tass last week on October 12. U.S. Patent # US-20230321436-A1, titled MEDICAL DEVICE FOR STIMULATING
Neurosmith
in
Cure Parkinson's
9 months ago
PT-112 Immunotherapy Trial
Hi fellow travelers, Maxone73posted this sumary of interesting developments yesterday: https://healthunlocked.com/advanced-prostate-cancer/posts/150097372/new-hopes-we-all-need-them-on-a-monday So I thought that I would raise my my hand and say “I’m on the trial!” It’s NCT02266745, and here’s the
Hi fellow travelers, Maxone73posted this sumary of interesting developments yesterday: https://healthunlocked.com/advanced-prostate-cancer/posts/150097372/new-hopes-we-all-need-them-on-a-monday So I thought that I would raise my my hand and say “I’m on the trial!” It’s NCT02266745, and here’s the
TeleGuy
in
Advanced Prostate Cancer
9 months ago
CAR T-cell therapy IMPT-514 gets FDA fast track designation for lupus
Investigational treatment targets active, resistant lupus nephritis and SLE The U.S. Food and Drug Administration (FDA) has granted fast track designation to IMPT-514, a CAR T-cell therapy being developed by Immpact Bio for people with active, treatment-resistant lupus nephritis and systemic lupus
Investigational treatment targets active, resistant lupus nephritis and SLE The U.S. Food and Drug Administration (FDA) has granted fast track designation to IMPT-514, a CAR T-cell therapy being developed by Immpact Bio for people with active, treatment-resistant lupus nephritis and systemic lupus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
9 months ago
Intensified Saphnelo dosing seen to benefit lupus nephritis patients
lupusnewstoday.com/news/intensified-dosing-of-saphnelo-seen-to-benefit-lupus-nephritis-patients/ October 16, 2023 Treatment with an intensified dosing regimen of Saphnelo (anifrolumab) led to greater improvements in kidney function compared with standard dosing or a placebo for people with active
lupusnewstoday.com/news/intensified-dosing-of-saphnelo-seen-to-benefit-lupus-nephritis-patients/ October 16, 2023 Treatment with an intensified dosing regimen of Saphnelo (anifrolumab) led to greater improvements in kidney function compared with standard dosing or a placebo for people with active
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
9 months ago
Pegasys side effects
Hi all Started on Pegasys 11 weeks ago, at lowest dose of 45mg, suffered terribly with side effects for the first few weeks, fatigue, nausea, painful joints, itchy rash arms legs & palms of my hands. Week 6 on Pegasys I caught a mild case of Covid & all my Pegasys side effects stopped immediately!
Hi all Started on Pegasys 11 weeks ago, at lowest dose of 45mg, suffered terribly with side effects for the first few weeks, fatigue, nausea, painful joints, itchy rash arms legs & palms of my hands. Week 6 on Pegasys I caught a mild case of Covid & all my Pegasys side effects stopped immediately!
Lilliegarden
in
MPN Voice
1 year ago
diazepam withdrawal
hi, I haven’t posted on here for 3 yrs now, I’m 55yrs of age, I have been prescribed 20mg a day of diazepam now for over 30 yrs and my gp has now again decided to reduce my dose, without even speaking to me, my psychiatrist advised the gp not to take them off me as they did the same during lockdown,
hi, I haven’t posted on here for 3 yrs now, I’m 55yrs of age, I have been prescribed 20mg a day of diazepam now for over 30 yrs and my gp has now again decided to reduce my dose, without even speaking to me, my psychiatrist advised the gp not to take them off me as they did the same during lockdown,
Jewellerymaker
in
Anxiety and Depression Support
9 months ago
Adverse reaction to eyedrops
I was prescribed Latanoprost for one eye. After two doses I experienced severe pain in the eye which lasted at least eight hours. I stopped taking the drops and the bad pain subsided. But I still feel mild discomfort in the eye and it feels a bit gritty. At night I feel mild discomfort in the eye and
I was prescribed Latanoprost for one eye. After two doses I experienced severe pain in the eye which lasted at least eight hours. I stopped taking the drops and the bad pain subsided. But I still feel mild discomfort in the eye and it feels a bit gritty. At night I feel mild discomfort in the eye and
wychwood58
in
Glaucoma UK
1 year ago
advice for docetaxel
I have read several posts of those who have done docetaxel and done a little research on the Internet and YouTube to try to offset side effects. I am 51 years old and was diagnosed five years ago with advanced prostate cancer Gleason score 9 and a few spots to the bones. pelvic area, spine and ribs.
I have read several posts of those who have done docetaxel and done a little research on the Internet and YouTube to try to offset side effects. I am 51 years old and was diagnosed five years ago with advanced prostate cancer Gleason score 9 and a few spots to the bones. pelvic area, spine and ribs.
Oct18
in
Advanced Prostate Cancer
9 months ago
Clear Cell OC clinical trial
Hi everyone, just a quick update, the plans changed again for me! I’m undergoing tests to see if I meet the criteria for the Shattuck clinical trial. Has anyone been on this trial? I’d really love to know how you got on if you have xx
Hi everyone, just a quick update, the plans changed again for me! I’m undergoing tests to see if I meet the criteria for the Shattuck clinical trial. Has anyone been on this trial? I’d really love to know how you got on if you have xx
Hidden
in
My Ovacome
9 months ago
Antipsychotics causing restless brain, Antidepressant causing restless sleep
If you can't love someone at their worst, you don't deserve to love them at their best. I meet a woman suffering catatonia and RLS in a psychiatric hospital, woman had serious injures, from jumping out of a car, her doctor said to me she was quiet psychotic when she first arrived to the ward. While
If you can't love someone at their worst, you don't deserve to love them at their best. I meet a woman suffering catatonia and RLS in a psychiatric hospital, woman had serious injures, from jumping out of a car, her doctor said to me she was quiet psychotic when she first arrived to the ward. While
RLSSCARER
in
Restless Legs Syndrome
9 months ago
New research: Aripiprazole, a Novel Option in the Management of Restless Legs Syndrome (2023)
A new paper reporting a small case series of 4 patients who got relief from low dose aripiprazole (abilify ) after augmentation that was resistant to other treatment. https://pubmed.ncbi.nlm.nih.gov/37818170/ Does anyone have any experience with aripiprazole? I took it long ago, before I was even
A new paper reporting a small case series of 4 patients who got relief from low dose aripiprazole (abilify ) after augmentation that was resistant to other treatment. https://pubmed.ncbi.nlm.nih.gov/37818170/ Does anyone have any experience with aripiprazole? I took it long ago, before I was even
Avart
in
Restless Legs Syndrome
9 months ago
Doxycycline, small clinical trial
A few months ago, Seasid posted a study on doxycyline, however it was all lab studies. This study is a small "open-window" trial on breast cancer patients indicating eradication of cancer stem cells by doxycycline, an antibiotic. 10.3389/fonc.2018.00452 Prostate and breast cancer have similarities
A few months ago, Seasid posted a study on doxycyline, however it was all lab studies. This study is a small "open-window" trial on breast cancer patients indicating eradication of cancer stem cells by doxycycline, an antibiotic. 10.3389/fonc.2018.00452 Prostate and breast cancer have similarities
Purple-Bike
in
Advanced Prostate Cancer
9 months ago
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