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sjogrens
Hi Everyone, Diagnosed last Nov with PBC. 2 weeks ago I started getting a really bad taste in mouth and some dry mouth. The taste is terrible ! How do you treat this to get rid of taste? Does anyone have Sjogrens w/ PBC? What are the symptoms? How is this treated? I see my doc in Oct. Thanks
Hi Everyone, Diagnosed last Nov with PBC. 2 weeks ago I started getting a really bad taste in mouth and some dry mouth. The taste is terrible ! How do you treat this to get rid of taste? Does anyone have Sjogrens w/ PBC? What are the symptoms? How is this treated? I see my doc in Oct. Thanks
Samanthaann
in
PBC Foundation
10 months ago
visual disturbances and eye problems
Hi everyone, If have moth FND & FM and have had some strange things going on , does anyone have strange vision. I see eye floaters all day when my eyes are open and when I close my eyes but this has also developed into what I can only describe as black and white static vision. I’ve have issues with
Hi everyone, If have moth FND & FM and have had some strange things going on , does anyone have strange vision. I see eye floaters all day when my eyes are open and when I close my eyes but this has also developed into what I can only describe as black and white static vision. I’ve have issues with
Loobyloo1966
in
Functional Neurological Disorder - FND Hope
10 months ago
visual snow and fibromyalgia
does anyone have strange vision. I see eye floaters all day and when I close my eyes but this has also developed into what I can only describe as black and white static vision. I’ve have issues with my eyelids not automatically opening too. Migraines are most likely linked but not the reason. It’s bizarre
does anyone have strange vision. I see eye floaters all day and when I close my eyes but this has also developed into what I can only describe as black and white static vision. I’ve have issues with my eyelids not automatically opening too. Migraines are most likely linked but not the reason. It’s bizarre
Loobyloo1966
in
Fibromyalgia Action UK
10 months ago
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No more propafenone!!!! What???
I'm in the U.S., diagnosed PAF ~3 years ago. Have achieved excellent control with propafenone (Rythmol). My pharmacy informed me they cannot refill my prescription, as there is a supply side problem with propafenone. From what I have read, there is a dangerous shortage of propafenone in the U.S and
I'm in the U.S., diagnosed PAF ~3 years ago. Have achieved excellent control with propafenone (Rythmol). My pharmacy informed me they cannot refill my prescription, as there is a supply side problem with propafenone. From what I have read, there is a dangerous shortage of propafenone in the U.S and
frazeej
in
AF Association
8 months ago
MS infusion treatment
Hey guys ! Has anyone here taken the 2 times per year Ocrevus? Or the monthly Tysabri? Which one did you find most effective? The Safety Consideration sheet sounds scary. I would love to hear the cons/pros to your reactions. Thank you all !!
Hey guys ! Has anyone here taken the 2 times per year Ocrevus? Or the monthly Tysabri? Which one did you find most effective? The Safety Consideration sheet sounds scary. I would love to hear the cons/pros to your reactions. Thank you all !!
Haku949
in
My MSAA Community
4 months ago
Coast Clinical Trial
Has anyone heard of this CT? Trial number is NCT05036226. ET
Has anyone heard of this CT? Trial number is NCT05036226. ET
Echotango51
in
Advanced Prostate Cancer
4 months ago
Transdermal estrogen/estradiol as monotherapy for Prostate Cancer
Does anyone know of recent studies, clinical trials or Standard of Care (SoC) protocols using or studying estrogen gels, sprays, ointments or patches as hormone therapy for Prostate Cancer, particularly micrometastatic cancer that has not spread beyond the pelvic region? I am in discussions with my
Does anyone know of recent studies, clinical trials or Standard of Care (SoC) protocols using or studying estrogen gels, sprays, ointments or patches as hormone therapy for Prostate Cancer, particularly micrometastatic cancer that has not spread beyond the pelvic region? I am in discussions with my
Lost_Sheep
in
Prostate Cancer Network
4 months ago
My story - medical professional with severe multi-drug resistant major depressive disorder, and general anxiety disorder.
I am glad to find this community. I just signed up, and it prompted me to tell my story. What I put down in my profile, with some edits, is a good intro: I am diagnosed with multi-drug resistant major depressive disorder, aka, treatment resistant depression, general anxiety disorder, and substance abuse
I am glad to find this community. I just signed up, and it prompted me to tell my story. What I put down in my profile, with some edits, is a good intro: I am diagnosed with multi-drug resistant major depressive disorder, aka, treatment resistant depression, general anxiety disorder, and substance abuse
Hidden
in
Anxiety and Depression Support
4 months ago
CELC-G-201 Phase 1b/2 clinical trial: gedatolisib plus darolutamide in mCRPC
Currently enrolling! Two different AR inhibitors, nubeqa producer (you know who I am taking about) entered an agreement with this biotech company to supply nubeqa for free...they don't usually partner easily if they do not think that something good may come out of the trial... https://www.biospace.com
Currently enrolling! Two different AR inhibitors, nubeqa producer (you know who I am taking about) entered an agreement with this biotech company to supply nubeqa for free...they don't usually partner easily if they do not think that something good may come out of the trial... https://www.biospace.com
Maxone73
in
Advanced Prostate Cancer
4 months ago
Tapering - have I got it wrong?
Hi. I am a new member and this is my first post. Diagnosed with PMR in March 2023, started on 15mg of pred on 31st March. It worked like a dream and within 48 hrs, my pain was down 70% and my energy was up 70%. I felt fantastic and within a month started slowly to increase my level of exercise and activity
Hi. I am a new member and this is my first post. Diagnosed with PMR in March 2023, started on 15mg of pred on 31st March. It worked like a dream and within 48 hrs, my pain was down 70% and my energy was up 70%. I felt fantastic and within a month started slowly to increase my level of exercise and activity
EnyaBlue
in
PMRGCAuk
10 months ago
Depression symptoms are too much
I’ve been dealing with this new depression episode since May 2023 and I am tired of feeling sad and depressed all the time. It’s not a quality of life. I’m hopeful for a change in my mood. I’m on 3 different psyche meds. The last one I was put on “rexulti” made me gain like 13 lbs in less than 2 months
I’ve been dealing with this new depression episode since May 2023 and I am tired of feeling sad and depressed all the time. It’s not a quality of life. I’m hopeful for a change in my mood. I’m on 3 different psyche meds. The last one I was put on “rexulti” made me gain like 13 lbs in less than 2 months
Browny71
in
Anxiety and Depression Support
4 months ago
Blue rock therapeutic clinical trials
has anyone participated in this and what is your experience
has anyone participated in this and what is your experience
Prakash1
in
Cure Parkinson's
4 months ago
Rusfertide, a Hepcidin Mimetic, for Control of Erythrocytosis in Polycythemia Vera
Clinical trial news. https://www.nejm.org/doi/full/10.1056/NEJMoa2308809
Clinical trial news. https://www.nejm.org/doi/full/10.1056/NEJMoa2308809
Lena70
in
MPN Voice
4 months ago
Sacituzumab govitecan
I recently had more scans and unfortunately my cancer has spread to my lungs and more in my liver.My bone mets are not to bad but two active ones in my T2 and Right hip even though I had recently had radiotherapy on them again for palliative pain relief. I have been on four lines of treatment in 17 months
I recently had more scans and unfortunately my cancer has spread to my lungs and more in my liver.My bone mets are not to bad but two active ones in my T2 and Right hip even though I had recently had radiotherapy on them again for palliative pain relief. I have been on four lines of treatment in 17 months
Cherry38
in
SHARE Metastatic Breast Cancer
4 months ago
Cosopt eye drops
is anyone having trouble getting hold of Cosopt eye drops. These are single use drops which are preservative free. My pharmacist just says to ask consultant for an alternative drop but these are the only ones that lower my pressure slightly and I think I’ve had just about every glaucoma drop that’s available
is anyone having trouble getting hold of Cosopt eye drops. These are single use drops which are preservative free. My pharmacist just says to ask consultant for an alternative drop but these are the only ones that lower my pressure slightly and I think I’ve had just about every glaucoma drop that’s available
Charliecat123
in
Glaucoma UK
1 year ago
Selenium for Hashimoto's
https://www.liebertpub.com/doi/10.1089/thy.2023.0556 Selenium Supplementation in Patients with Hashimoto Thyroiditis:A Systematic Review and Meta-Analysis of Randomized Clinical Trials Published Online:16 Feb 2024https://doi.org/10.1089/thy.2023.0556 Conclusions: In people with HT without THRT, selenium
https://www.liebertpub.com/doi/10.1089/thy.2023.0556 Selenium Supplementation in Patients with Hashimoto Thyroiditis:A Systematic Review and Meta-Analysis of Randomized Clinical Trials Published Online:16 Feb 2024https://doi.org/10.1089/thy.2023.0556 Conclusions: In people with HT without THRT, selenium
vocalEK
in
Thyroid UK
4 months ago
Scared
Question for y'all... I'm scared to express my true feelings when I'm upset to the one person who is supposed to listen and comfort me, and apologize if they've done something to hurt my feelings. How can I do that without getting them angry? For example, let's say they didn't take the trash out like
Question for y'all... I'm scared to express my true feelings when I'm upset to the one person who is supposed to listen and comfort me, and apologize if they've done something to hurt my feelings. How can I do that without getting them angry? For example, let's say they didn't take the trash out like
SpaceWolf
in
Anxiety and Depression Support
4 months ago
help/ advice needed for Daughter exhibiting signs of Postpartum Psychosis
I am in need of advice . My daughter delivered her baby in January 2024. She had a rough pregnancy and delivery - depression throughout pregnancy, placenta insufficiency/ low birth weight requiring weekly sonograms that led to a two week hospital stay to untimely being induced and the baby being in
I am in need of advice . My daughter delivered her baby in January 2024. She had a rough pregnancy and delivery - depression throughout pregnancy, placenta insufficiency/ low birth weight requiring weekly sonograms that led to a two week hospital stay to untimely being induced and the baby being in
ConcernedGrandmother
in
Action on Postpartum Psychosis
4 months ago
Gold dust
https://jnanobiotechnology.biomedcentral.com/articles/10.1186/s12951-023-02236-z Clinical trials of ' gold dust' drug !
https://jnanobiotechnology.biomedcentral.com/articles/10.1186/s12951-023-02236-z Clinical trials of ' gold dust' drug !
PDCyclist
in
Cure Parkinson's
4 months ago
PatRuk
Hi all, I've not posted for a while. Diagnosed with breast cancer June 23. Has anyone with bc, on Herceptin had more AF and ectopics . Thankyou
Hi all, I've not posted for a while. Diagnosed with breast cancer June 23. Has anyone with bc, on Herceptin had more AF and ectopics . Thankyou
ruskin10
in
Atrial Fibrillation Support
4 months ago
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