Turmeric: I have been amazed at the effect taking... - MPN Voice

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Turmeric

Mwalimu profile image
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I have been amazed at the effect taking turmeric has had on the amount of pain I experience in my hands and how quickly this has happened. (Yes, I know about the placebo effect!)

I would recommend anyone to try it (providing they check with their haems/doctors first). I take 2 capsules of turmeric extract complex purchased from the internet. It contains: Vit D3, Vit C, Turmeric extract (95% curcuminoids)and Black Pepper. Not cheap but for me worth it. Sallie

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Mwalimu
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Mostew profile image
Mostew

I stopped taking Curcumin when started Hydroxicarbamide,as my Ayurvedic practitioner advised. Plus what I’ve read .

I’m open to hearing other thoughts as still miss taking it. Not for pain but all the benefits

Meatloaf9 profile image
Meatloaf9 in reply toMostew

Hi, I take HU and Turmeric, have for several years, my MPN specialist is ok with taking both, I am wondering why you were advised to not take them together, I have not heard that before. Thanks and best to you all.

Anag profile image
Anag in reply toMostew

I was on Anagrelide and was careful only to take the turmeric at least 3 1/2 hours after my tablet, because turmeric would knock out the medication. Anagrelide only works in the body for about 3 1/2 hours. Turmeric longer.

fear of the turmeric detox in your medication would probably be the reason why your doctor said no. It’s so important to ask why? for every single detail. Then we learn to be a team with our doctors, working for our bodies together. 😁

I just found the half-life of Anagrelide is one hour and 20 minutes so I calculated the time it needs to clear out of my body. The half-life of HU is very important to know if you’re taking any antioxidants.

Mostew profile image
Mostew in reply toAnag

That was the reason . I'd forgotten. Thank you. .I'll ask th e half life of Hu tomorrow . Added it to my list of questions

Anag profile image
Anag in reply toMostew

I just typed in Hydroxyurea and half life and Internet and immediately got 100 responses that HU has a half-life of between two and four hours. If you take the maximum of four hours, 3/4 of the HU have been already used after 8 hours. If you take the minimum of two hours, 3/4 of the HU are gone after four hours. 7/8 are gone after six hours.

you can also calculate the three hours. 😉

Mostew profile image
Mostew in reply toAnag

That's good ,, as I'm taking every other day ,it will be well out of my system. Interesting to see what the conventional and integrative Dr s say.

Anag profile image
Anag in reply toMostew

Yay!

Adlon57 profile image
Adlon57

Good stuff recommended by Hunter, taking Turmeric and black pepper, excellent for relieving equilibrium symptoms from broken skull👍

hunter5582 profile image
hunter5582

I also use turmeric/curcumin as originally recommended by my rheumatologist for osteoarthritis pain in my hands. It is a more effective anti-inflammatory agent than any NSAID I ever used. Glad to hear that you also have found it helpful.

Scaredy_cat profile image
Scaredy_cat in reply tohunter5582

Do you know if there is any affect on platelets? I'm post stem cell transplant and mustn't take anything like ibuprofen or aspirin that can mess up my recovering blood counts

hunter5582 profile image
hunter5582 in reply toScaredy_cat

I have never seen evidence that Curcumin has any impact on platelet levels. While is purported to be mildly blood thinning, I have not observed that effect.

ainslie profile image
ainslie in reply tohunter5582

Can I ask you what dose you take, I too am trying to keep arthritis at bay with various supplements possibly with some success, there’s room for improvement though

hunter5582 profile image
hunter5582 in reply toainslie

I take 550mg (2 caps) bid. Using the Spring Valley CurcuWIN formulation.

ainslie profile image
ainslie in reply tohunter5582

Thanks for that info, I take about half that dose, I was concerned about increasing the risk of bleeding with too high a dose but presumably you okd it with your Haem?

I take alphacircumin plus by ReallybHealthy in the UK, it’s tricky to compare exactly as they all use slightly different formulations and allegedly bioavailability’s, what is striking is the difference in price , yours is $15, mine is £29 which is approx $35, the US is so much cheaper for summplements.

hunter5582 profile image
hunter5582 in reply toainslie

It is hard to compare different formulations. I let my hematologist know about the curcumin, but take my guidance from my Integrative Medicine doc who knows more about complementary health interventions.

Quality supplements usually cost the same or more in the USA. I just got lucky and found a cheaper than usual source for the curcumin.

carlagb profile image
carlagb

Tumeric has been great for my husband. His headaches stopped. He also takes organic turkey mushroom tail. Great for strengthening immune system, reducing inflammation. Researches have been done that it helps with cancers too.

Looolooo profile image
Looolooo

Yes. It is really incredible. Better than any over the counter painkiller.

Anag profile image
Anag

Turmeric is excellent! It thins the blood, so be careful if you’re on aspirin, but two capsules should not be a problem. It is important to take good supplements, and they are naturally more expensive, but are worth it.

One warning is that if your liver is not OK, turmeric can be problematic.

I take a fabulous turmeric from Mount natural, premium Curcuma mit Piperin, Certified organic, free of aluminum, etc. It’s a German company and it also has curcumin in it, which makes it even more intensive. I buy it in large amounts of 270 capsules per little bag. In the end, it’s much cheaper buying in bulk. My husband takes it also. He and my brother-in-law also swear by it. We live in Austria.

when I have back or knee pain or a rare headache, I take a whole teaspoon of organic turmeric simmer it for five minutes in some rice milk (I don’t eat dairy products) adding some pepper, a little bit of oil, and a bit of honey in the end. This is very intensive much more than two capsules more like 5-6. The pain in 10 minutes. If the pain is less, I take less.

Turmeric must be taken with some fat or oil, because it is then taken up by the gut. Without fats it goes straight to the large intestine. If it’s taken for colon cancer, then best taken without any fats. Also better to be taken with food. It’s easier on the stomach.

😁👍

champ30 profile image
champ30

I wanted to take Tumeric but I take aspirin and one of the haematology specialist nurses said not to take it.... regards Lynn

ainslie profile image
ainslie

When you say turmeric extract do you mean circumin and could I ask what dose you take

Wyebird profile image
Wyebird

That’s amazing. So pleased for you

michael123 profile image
michael123

I had to stop it unfortunstrly. Tumeric stops iron absorption and I am very anemic.

Revcat profile image
Revcat

Like any medicine powerful enough to have major benefits, turmeric may have side effects as well. The Washington Post reports today on possible liver damage from turmeric. washingtonpost.com/wellness... I imagine there is some way to monitor liver function to minimize the risk if you are self prescribing turmeric. There are some free rides but there aren’t very many.

EPguy profile image
EPguy in reply toRevcat

Good info, their point is a rare event but with much larger numbers now using hi test curcumin cases are rising. They suggest Curcumin is one large reason for rising lever injury cases. I can attest to really bad rare outcomes.

Most MPN pts get regular CMP blood tests that check liver function, this is a good reason to keep that up for those on curcumin, and esp if also on IFN where liver injury is a known, but avoidable, risk.

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