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Cinchocaine / Prednisolone hexanoate
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Prednisone Help
I need some help finding a Dr that knows about PMR in WA state. My Dr wants me off the Pred. I am unable to take less than 7 mg. a day. Any information would be very helpful. Dog Mom
I need some help finding a Dr that knows about PMR in WA state. My Dr wants me off the Pred. I am unable to take less than 7 mg. a day. Any information would be very helpful. Dog Mom
DobermanMom
in
PMRGCAuk
6 months ago
taper
I am currently on 8mg of prednisone a day 4 in the morning and 4 in evening going to taper to 7 next week I’m wondering should I go 3-1/2 morning and night or do a slower taper 7mg one day 8mg for 6 days decreasing 1mg every week Second week would be 2days at 7mg and 5 days at 8 mg and so forth
I am currently on 8mg of prednisone a day 4 in the morning and 4 in evening going to taper to 7 next week I’m wondering should I go 3-1/2 morning and night or do a slower taper 7mg one day 8mg for 6 days decreasing 1mg every week Second week would be 2days at 7mg and 5 days at 8 mg and so forth
Januzzi
in
PMRGCAuk
6 months ago
Long Haul advice and prednisone, please.
I’m flying to Australia for a month tomorrow and wondered if I’ve ticked all the necessary boxes . It’s about a 23 hour flight . We’ve spent the kid’s inheritance and gone business class . I’ve organised assisted wheelchair boarding . I’ve got my blue badge packed . I’m hoping they recognise it in
I’m flying to Australia for a month tomorrow and wondered if I’ve ticked all the necessary boxes . It’s about a 23 hour flight . We’ve spent the kid’s inheritance and gone business class . I’ve organised assisted wheelchair boarding . I’ve got my blue badge packed . I’m hoping they recognise it in
katiemills
in
PMRGCAuk
6 months ago
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Vasculitis/Tocilizumab
I have posted before regarding the fact that after a year on steroids and having many side effects I was told to reduce them by 1mg a month. My rheumatologist did not think I had PMR (diagnosed originally by GP). After 6 months of increasing pain and stiffness and down to 2mg I was able to have a
I have posted before regarding the fact that after a year on steroids and having many side effects I was told to reduce them by 1mg a month. My rheumatologist did not think I had PMR (diagnosed originally by GP). After 6 months of increasing pain and stiffness and down to 2mg I was able to have a
Daniella7
in
PMRGCAuk
9 months ago
Asthma attack recovery
Recently I was told my childhood asthma is back and this was diagnosed due too an asthma attack that left me in hospital for 4 days. It has really been stressful as my asthma attack was about a month ago and I don’t feel much better. Still coughing a lot, wheezing, tired and short of breath. I was
Recently I was told my childhood asthma is back and this was diagnosed due too an asthma attack that left me in hospital for 4 days. It has really been stressful as my asthma attack was about a month ago and I don’t feel much better. Still coughing a lot, wheezing, tired and short of breath. I was
kawaiicheater
in
Asthma Community Forum
9 months ago
has my sisters Polymyalgia returned?
hi, I have GCA, following Polymyalgia, I am worried about my sister who has successfully tapered of prednisone, then after a few months has it returned? she is in complete pain all over can hardly walk, blood test were taken and the inflammatory level was not raised, so the doctor said it wasn’t Polymyalgia
hi, I have GCA, following Polymyalgia, I am worried about my sister who has successfully tapered of prednisone, then after a few months has it returned? she is in complete pain all over can hardly walk, blood test were taken and the inflammatory level was not raised, so the doctor said it wasn’t Polymyalgia
Grey7
in
PMRGCAuk
6 months ago
PMR and coated Prednisolone tablets
Hallo Has anyone been able to have prescribed for them prednisolone tablets that are labelled as "enteric coated" or "gastro resistant" ? these can be taken without food, which would be a boon for me. If I don’t sleep very well, which is common, then I wake late and end up taking my preds about 10am
Hallo Has anyone been able to have prescribed for them prednisolone tablets that are labelled as "enteric coated" or "gastro resistant" ? these can be taken without food, which would be a boon for me. If I don’t sleep very well, which is common, then I wake late and end up taking my preds about 10am
Freshairfiend
in
PMRGCAuk
9 months ago
What happens when Adrenal Gland starts working
I am back down to, and hovering, at 6.5mg Prednisolone, over the past few days have developed a nasty niggling pain deep in the left side of my neck and shoulder. This pain is the same pain I hade when first diagnosed with PMR and is in one of the original places. My question is;- if PMR was caused
I am back down to, and hovering, at 6.5mg Prednisolone, over the past few days have developed a nasty niggling pain deep in the left side of my neck and shoulder. This pain is the same pain I hade when first diagnosed with PMR and is in one of the original places. My question is;- if PMR was caused
Golf-1
in
PMRGCAuk
9 months ago
Sharp pains in head - lupus related or something else?
Hi all, I have general nerve pain in my head ever since I had concussion and whiplash seven years ago - so I'll get fibromyalgia shoulders and pains travelling up my scalp, particularly the right side. It's not that troublesome. But since I had my Covid jab three weeks ago I've had a few episodes
Hi all, I have general nerve pain in my head ever since I had concussion and whiplash seven years ago - so I'll get fibromyalgia shoulders and pains travelling up my scalp, particularly the right side. It's not that troublesome. But since I had my Covid jab three weeks ago I've had a few episodes
Treetop33
in
LUPUS UK
9 months ago
Palpitations
Hi all. Just had a horrible weekend , fast irregular heart rate, lasted over 1 hour . Of course it had stopped by the time I was monitored, so they didn't really have any record . Spent 2 nights in EAU wired up , lots of ecgs bloods etc. They reassured me it wasn't a heart attack . The flutters continued
Hi all. Just had a horrible weekend , fast irregular heart rate, lasted over 1 hour . Of course it had stopped by the time I was monitored, so they didn't really have any record . Spent 2 nights in EAU wired up , lots of ecgs bloods etc. They reassured me it wasn't a heart attack . The flutters continued
Potatoheat
in
LUPUS UK
9 months ago
Metastatic prostate cancer in the lungs
Radical prostatectomy in 2003 with PSA of 3.9. PSA slowly rose to .07 in 2023. PET scan in May, 2023 found nodules in my lungs with the largest being 1.4 cm. Needle biopsy identified it as metastatic adenocarcinoma from prostatic origin. 5 sessions of 50Gy cyberknife treatments on the 1.4 cm nodule
Radical prostatectomy in 2003 with PSA of 3.9. PSA slowly rose to .07 in 2023. PET scan in May, 2023 found nodules in my lungs with the largest being 1.4 cm. Needle biopsy identified it as metastatic adenocarcinoma from prostatic origin. 5 sessions of 50Gy cyberknife treatments on the 1.4 cm nodule
S4survivor
in
Advanced Prostate Cancer
6 months ago
Prednisone Tapering-what's going on?
Some of you have followed my posts for a while. Last post I spoke about yoyoing up and down, but each time I have tried to increased my dose temporarily 5mg, it seems I'm stuck there and can't even taper back down 1mg to get back to where I was previously before the temporary increase. I am currently
Some of you have followed my posts for a while. Last post I spoke about yoyoing up and down, but each time I have tried to increased my dose temporarily 5mg, it seems I'm stuck there and can't even taper back down 1mg to get back to where I was previously before the temporary increase. I am currently
RaisinBran
in
PMRGCAuk
6 months ago
PMR... back on 20mg
Thanks everyone for replies and suggestions after my post last Monday. Saw my GP on Tuesday, we discussed the pain, stiffness and fatigue I was experiencing since tapering off prednisone late last year. She agreed I should start at 20mg day, after bloods for Crp and ESR. The results: Crp 3 and ESR
Thanks everyone for replies and suggestions after my post last Monday. Saw my GP on Tuesday, we discussed the pain, stiffness and fatigue I was experiencing since tapering off prednisone late last year. She agreed I should start at 20mg day, after bloods for Crp and ESR. The results: Crp 3 and ESR
Biba5
in
PMRGCAuk
6 months ago
The plexopathy continues
After speaking to the consultant again he is saying to maintain long term on a low dose of Prednisolone. I'm back I agony so I have to do something. The Gabapentin isn't helping in the slightest so I'm coming off it slowly. I asked if there was an alternative to the Prednisolone and he mentioned methotrexate
After speaking to the consultant again he is saying to maintain long term on a low dose of Prednisolone. I'm back I agony so I have to do something. The Gabapentin isn't helping in the slightest so I'm coming off it slowly. I asked if there was an alternative to the Prednisolone and he mentioned methotrexate
Viklou
in
Pain Concern
9 months ago
Azathioprine dose
First a little background: I have been on 200mg of Azathioprine, for a number of years. All that time my weight has been stable (too much but stable) at 17stone 3lb (110kg) but having been diagnosed with Type 2 Diabetes (since the pandemic) I have lost 2 stone (13kg) Azathioprine is dosed at between
First a little background: I have been on 200mg of Azathioprine, for a number of years. All that time my weight has been stable (too much but stable) at 17stone 3lb (110kg) but having been diagnosed with Type 2 Diabetes (since the pandemic) I have lost 2 stone (13kg) Azathioprine is dosed at between
WendyWoo50
in
Hughes Syndrome APS Forum
6 months ago
Starting Abiraterone with CRPC
Had prostatectomy 6 years ago. Radiation treatment twice. Been on lupron 3 + years. PSA #s low but rising rapidly. Were 0.01, 9 months ago, 0.77 a month ago, 2.1 couple days ago. Starting Abirateron with prednisone when I wake tonight so I can have coffie with toast in the morning. Been dealing with
Had prostatectomy 6 years ago. Radiation treatment twice. Been on lupron 3 + years. PSA #s low but rising rapidly. Were 0.01, 9 months ago, 0.77 a month ago, 2.1 couple days ago. Starting Abirateron with prednisone when I wake tonight so I can have coffie with toast in the morning. Been dealing with
Water327
in
Advanced Prostate Cancer
6 months ago
Pneumonia vaccination
Hi all. I have recently returned to Spain for the foreseeable future and managed to get my covid vaccination shortly after my arrival a few weeks ago. I had my flu vaccination in the UK just before we came out. I have to say that I have responded well to both vaccinations with no adverse side effects
Hi all. I have recently returned to Spain for the foreseeable future and managed to get my covid vaccination shortly after my arrival a few weeks ago. I had my flu vaccination in the UK just before we came out. I have to say that I have responded well to both vaccinations with no adverse side effects
Elispeth
in
PMRGCAuk
9 months ago
Polymyalgia
My husband has had polymylgia for about 6 years and started on 15mg prednisone and has only ever got down to 8mg but then can't cope so is now on 13mg . Consultant wants him to get down to 5mg .He would have no quality of life and would be in pain too much . He has tried other drugs but they didn't work
My husband has had polymylgia for about 6 years and started on 15mg prednisone and has only ever got down to 8mg but then can't cope so is now on 13mg . Consultant wants him to get down to 5mg .He would have no quality of life and would be in pain too much . He has tried other drugs but they didn't work
Caravanlover
in
PMRGCAuk
6 months ago
t3 only treatment need advice
When i got hypo i figured out fast that t4 only only worsend everything. My doc added 10 t3 it was better but not optimal. She put me on 4 Grain NDT and i did well for 2 years. Then got one symptom and we played with NDT dosages lower, higher, brands and a combo with NDT plus 10 T3... I transitioned
When i got hypo i figured out fast that t4 only only worsend everything. My doc added 10 t3 it was better but not optimal. She put me on 4 Grain NDT and i did well for 2 years. Then got one symptom and we played with NDT dosages lower, higher, brands and a combo with NDT plus 10 T3... I transitioned
charley123
in
Thyroid UK
9 months ago
Concerning Micro clots?
Hello friends, I have had some recent events I wanted to run by you all to get your thoughts. I had 3 mini strokes before I was diagnosed with APS some 20 plus years ago. Prior to the mini strokes I had lots of little sharp events mostly in my left temple but sometimes in my right temple. They were
Hello friends, I have had some recent events I wanted to run by you all to get your thoughts. I had 3 mini strokes before I was diagnosed with APS some 20 plus years ago. Prior to the mini strokes I had lots of little sharp events mostly in my left temple but sometimes in my right temple. They were
prj789
in
Hughes Syndrome APS Forum
6 months ago
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