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niggles or warnings?
A bit of context before my question. I was diagnosed with PMR in mid August by my GO, who was straight onto it from my telephone description, had me straight in for a blood test, and responded to my face to face description with “polymyalgia” before checking the blood results which confirmed it for
A bit of context before my question. I was diagnosed with PMR in mid August by my GO, who was straight onto it from my telephone description, had me straight in for a blood test, and responded to my face to face description with “polymyalgia” before checking the blood results which confirmed it for
Sibelius5
in
PMRGCAuk
9 months ago
trying to taper prednisone
hi, I’m feeling depressed today . I was diagnosed with PMR in July 2023 ,Been on prednisone since then . When I started to taper and I feel really terrible. I’m currently on 12.5 and reducing by half a milligram weekly. I’m also on methotrexate 25 mga weekly . Also had a Dexscan and have osteoporosis
hi, I’m feeling depressed today . I was diagnosed with PMR in July 2023 ,Been on prednisone since then . When I started to taper and I feel really terrible. I’m currently on 12.5 and reducing by half a milligram weekly. I’m also on methotrexate 25 mga weekly . Also had a Dexscan and have osteoporosis
Elvied
in
PMRGCAuk
6 months ago
do I need more prednisolone?
Hello fellow sufferers! I was diagnosed PMR in February after 5 months and started 15mg Pred. Now down to 6mg but struggling. Broke my arm in June, put house on market (sale still going through), stepdaughters mental health reached very low point and just had surgery in unbroken arm. Went down from 7
Hello fellow sufferers! I was diagnosed PMR in February after 5 months and started 15mg Pred. Now down to 6mg but struggling. Broke my arm in June, put house on market (sale still going through), stepdaughters mental health reached very low point and just had surgery in unbroken arm. Went down from 7
Bobbiegirl
in
PMRGCAuk
9 months ago
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Adrenals
Still having problems with digestion Mood is very low and tired all the time On 3.5 Prednisolone GP not interested at all If this is Adrenals how long does it take to get back on track
Still having problems with digestion Mood is very low and tired all the time On 3.5 Prednisolone GP not interested at all If this is Adrenals how long does it take to get back on track
Harry8388
in
PMRGCAuk
9 months ago
increasing my prednisone
Diagnosed in 2014 and put on 30mg. Tapered it slowly and got rid of prednisone in March 2020. My hand ,knee and ankle swelled up so the GP put me back on 20mg. Tapered again, a little up and down but managed to get down to 2mg. Unfortunately I seem to have had another flare up and I wake up aching all
Diagnosed in 2014 and put on 30mg. Tapered it slowly and got rid of prednisone in March 2020. My hand ,knee and ankle swelled up so the GP put me back on 20mg. Tapered again, a little up and down but managed to get down to 2mg. Unfortunately I seem to have had another flare up and I wake up aching all
zealand
in
PMRGCAuk
6 months ago
Taper
I take 8mg Prednisone now .. I work night shift so I take 4mg at 4pm with evening meal and 4mg at 4am before going to sleep … I’m going to cut down to 7-1/2mg and wonder what dose should I cut 4 pm or 4am Thanks for you help
I take 8mg Prednisone now .. I work night shift so I take 4mg at 4pm with evening meal and 4mg at 4am before going to sleep … I’m going to cut down to 7-1/2mg and wonder what dose should I cut 4 pm or 4am Thanks for you help
Januzzi
in
PMRGCAuk
6 months ago
Pericardial effusion
I had taken Prednisone for about three and a half years for PMR and stopped about four months ago. In December a follow up CT scan for something else showed fluid in the pericardial sac. One of the causes listed for this to occur is an auto immune condition. I have never seen anyone on this forum speak
I had taken Prednisone for about three and a half years for PMR and stopped about four months ago. In December a follow up CT scan for something else showed fluid in the pericardial sac. One of the causes listed for this to occur is an auto immune condition. I have never seen anyone on this forum speak
Tiredofpmr555
in
PMRGCAuk
6 months ago
PMR and Breast Pain
I was diagnosed with GCA in 2016 and after many failed attempts managed to gradually reduce the steroids. Recently, I was diagnosed with PMR and am currently taking 10mg prednisolone. I have an ache from under my arms down into the side of both breasts. The left aside is worse than the right. I have
I was diagnosed with GCA in 2016 and after many failed attempts managed to gradually reduce the steroids. Recently, I was diagnosed with PMR and am currently taking 10mg prednisolone. I have an ache from under my arms down into the side of both breasts. The left aside is worse than the right. I have
040547RJH
in
PMRGCAuk
9 months ago
Maintenance dose of prednisone - how effective?
For people who are on this all the time or during the winter months, what mg are you on and does it stop infections turning bad?
For people who are on this all the time or during the winter months, what mg are you on and does it stop infections turning bad?
PW_R
in
Lung Conditions Community Forum
6 months ago
Flare Protocol
I just spent a month at 2.5 mg prednisone and was going to 2 mg when I started to notice more stiffness in my right wrist, lower back, shoulders and neck. This has gotten progressively worse over the last couple of weeks. Four days ago in went to 5 mg for two days and the last two days I went to 8
I just spent a month at 2.5 mg prednisone and was going to 2 mg when I started to notice more stiffness in my right wrist, lower back, shoulders and neck. This has gotten progressively worse over the last couple of weeks. Four days ago in went to 5 mg for two days and the last two days I went to 8
Skier321
in
PMRGCAuk
6 months ago
iron lab results 10 weeks post iron infusion
I have had four iron infusions in the last 2 years. 10 weeks ago I received Injectafer 1000 mg with so-so results. I had seen a hematologist at my neurologist/Sleep specialist’s urging out of his concern for my out of whack lab numbers. The hematologist was not concerned. I gave my sleep, specialist
I have had four iron infusions in the last 2 years. 10 weeks ago I received Injectafer 1000 mg with so-so results. I had seen a hematologist at my neurologist/Sleep specialist’s urging out of his concern for my out of whack lab numbers. The hematologist was not concerned. I gave my sleep, specialist
SleeplessinNC
in
Restless Legs Syndrome
6 months ago
GCA symptoms
I have been suffering with PMR for going on 2 yrs. now. Developed GCA after cataract surgery within 4 days. Finally recognized by great Rheumatologist. I'm being treated with 8mls. liquid prednisolone twice a day. So far so good. Dr. recommended slow taper 1mls per week. Will start tomorrow.
I have been suffering with PMR for going on 2 yrs. now. Developed GCA after cataract surgery within 4 days. Finally recognized by great Rheumatologist. I'm being treated with 8mls. liquid prednisolone twice a day. So far so good. Dr. recommended slow taper 1mls per week. Will start tomorrow.
pomeranion
in
PMRGCAuk
9 months ago
Hives and reducing pred
I’ve had terrible itchy hives on my arms, back, chest and neck for weeks now which is just not getting any better, it started from heat rash whilst on holiday in the summer. I’ve had a small amount of relief from antihistamines (Fexofenadine 180mg) and 2 weeks of Eumovate steroid cream and I’m slathering
I’ve had terrible itchy hives on my arms, back, chest and neck for weeks now which is just not getting any better, it started from heat rash whilst on holiday in the summer. I’ve had a small amount of relief from antihistamines (Fexofenadine 180mg) and 2 weeks of Eumovate steroid cream and I’m slathering
JoLou12
in
PMRGCAuk
9 months ago
prednisone and tinnitus treatment ?
hi everyone happy pre new year🥳 (quietly blows) I’m experiencing a nasty tinnitus and hyperacusis increase following a noise induced incident just before Christmas. Do any of you have experience of taking prednisone / prednisolone to combat noise induced tinnitus incidents? My understanding is it can
hi everyone happy pre new year🥳 (quietly blows) I’m experiencing a nasty tinnitus and hyperacusis increase following a noise induced incident just before Christmas. Do any of you have experience of taking prednisone / prednisolone to combat noise induced tinnitus incidents? My understanding is it can
bournville
in
Tinnitus UK
8 months ago
Rheumy exam/USA major university medical system - disappointed
I have severe RA - much joint damage in hands & feet. Good results with Rinvoq. Yesterday, I visited rheumy for 6 mth visit. I have been suffering with swollen ankles & major chronic fatigue. Tried prednisone, B12 - no relief. Rheumy did no physical exam. I showed her my ankles, hands & feet. She
I have severe RA - much joint damage in hands & feet. Good results with Rinvoq. Yesterday, I visited rheumy for 6 mth visit. I have been suffering with swollen ankles & major chronic fatigue. Tried prednisone, B12 - no relief. Rheumy did no physical exam. I showed her my ankles, hands & feet. She
Hisue
in
NRAS
6 months ago
Antihistamines and Prednisone, are they compatible?
In the case of pollen allergies, is it ok to take an antihistamine while on Prednisone? I have mild symptoms, runny nose and teary eyes and so far haven't taken any antihistamines, but would it be safe to do so if symptoms get worse? I am on 4 mg for another month before attempting to taper to 3.5
In the case of pollen allergies, is it ok to take an antihistamine while on Prednisone? I have mild symptoms, runny nose and teary eyes and so far haven't taken any antihistamines, but would it be safe to do so if symptoms get worse? I am on 4 mg for another month before attempting to taper to 3.5
Dochaz
in
PMRGCAuk
6 months ago
PMR and Parkinson's Disease
Background: I have PMR diagnosed 2016 and GCA/extensive LVV diagnosed 2019. I have been on 5mg Prednisolone daily for the past year. I used to also take 25mg Methotrexate weekly but this was stopped in 2022 when I was hospitalised with Methotrexate-induced interstitial lung disease (now resolved).
Background: I have PMR diagnosed 2016 and GCA/extensive LVV diagnosed 2019. I have been on 5mg Prednisolone daily for the past year. I used to also take 25mg Methotrexate weekly but this was stopped in 2022 when I was hospitalised with Methotrexate-induced interstitial lung disease (now resolved).
JanetRosslyn
in
PMRGCAuk
9 months ago
Food poisoning
Some advice please,I have food poisoning,sickness and diarrhoea,although the sickness seems to have cleared up! There is no way I can eat anything,I have some Omeprazole 20mg capsules,should I take one of these about half an hour before my prednisolone( 8mg,non e/c),also should I take any extra prednisolone
Some advice please,I have food poisoning,sickness and diarrhoea,although the sickness seems to have cleared up! There is no way I can eat anything,I have some Omeprazole 20mg capsules,should I take one of these about half an hour before my prednisolone( 8mg,non e/c),also should I take any extra prednisolone
Seamab
in
PMRGCAuk
9 months ago
Undiagnosed inflammatory disease
After two weeks of severe and increasing pain in my legs and three GP appointments my blood was checked and I was admitted to hospital with a CRP of 330. I was initially put on Prednisolone at 60mg and gradually my CRP score improved. I then went through months where the pain seemed to move through my
After two weeks of severe and increasing pain in my legs and three GP appointments my blood was checked and I was admitted to hospital with a CRP of 330. I was initially put on Prednisolone at 60mg and gradually my CRP score improved. I then went through months where the pain seemed to move through my
Hightower62
in
NRAS
9 months ago
Prednisone Help
I need some help finding a Dr that knows about PMR in WA state. My Dr wants me off the Pred. I am unable to take less than 7 mg. a day. Any information would be very helpful. Dog Mom
I need some help finding a Dr that knows about PMR in WA state. My Dr wants me off the Pred. I am unable to take less than 7 mg. a day. Any information would be very helpful. Dog Mom
DobermanMom
in
PMRGCAuk
6 months ago
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