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Chronic pain
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RLS journey- question of pain…
Hi Survivors Very quick question from me: Currently upped my Pregabalin to 100mg and so far so good. As I’ve said in previous posts, it isn’t a silver bullet but it’s helping. Insomnia is harder to kick to the curb but I’ve noticed that I’m not waking with jumpy legs but with random pain. This could
Hi Survivors Very quick question from me: Currently upped my Pregabalin to 100mg and so far so good. As I’ve said in previous posts, it isn’t a silver bullet but it’s helping. Insomnia is harder to kick to the curb but I’ve noticed that I’m not waking with jumpy legs but with random pain. This could
careerSquirrel
in
Restless Legs Syndrome
8 months ago
Any Herbal Remedies for Dystonia
My husband is suffering a lot with aches in his legs. When I massaged his legs I noticed that the muscle at the back of one of his legs was bulging in one area and seemed almost twisted. I think this is dystonia. Pain killers such as co-codamol and gabapentin which the doctor prescribed for central
My husband is suffering a lot with aches in his legs. When I massaged his legs I noticed that the muscle at the back of one of his legs was bulging in one area and seemed almost twisted. I think this is dystonia. Pain killers such as co-codamol and gabapentin which the doctor prescribed for central
BonsaiKid
in
Cure Parkinson's
8 months ago
Severe back pain now to the point where I can not walk 10 steps! Is this entresto sides? Dapagliflozin. Something.severe with kidney?
Or is it just a severe bad back with no specific cause that I can remember. I have heart failure and on all the meds. This last couple days I have back pain on the low right side of my back digging in at me that spreads over. It's got that severe I am literally a cripple. I struggle to do 5 steps to
Or is it just a severe bad back with no specific cause that I can remember. I have heart failure and on all the meds. This last couple days I have back pain on the low right side of my back digging in at me that spreads over. It's got that severe I am literally a cripple. I struggle to do 5 steps to
theonethatgotaway1
in
British Heart Foundation
8 months ago
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Ampyra
I have been on Ampyra/Dalfampridine for about 4 years. I am thinking of stopping as it is expensive. What effect may it have on my MS? does anyone have any thoughts?
I have been on Ampyra/Dalfampridine for about 4 years. I am thinking of stopping as it is expensive. What effect may it have on my MS? does anyone have any thoughts?
whwiechm
in
My MSAA Community
11 months ago
Double seizure, JME epilepsy, in Jan 2018, irreparable brain damage, one more seizure probably my last!
My brain seems to work faster than normal, find it very hard to get to sleep, is it due to damage! Am living on my own, but try to get to sleep, try about midnight, but whole body system far too alert, just pure fatigue, exhaustion eventually just drop off about 3-4am! Am single retired and live on my
My brain seems to work faster than normal, find it very hard to get to sleep, is it due to damage! Am living on my own, but try to get to sleep, try about midnight, but whole body system far too alert, just pure fatigue, exhaustion eventually just drop off about 3-4am! Am single retired and live on my
Adlon57
in
Epilepsy Action
8 months ago
ibuptofen?
I am about 10 weeks post aortic valve replacement. Prior to learning I had aortic valve stenosis earlier this year I always regarded ibuprofen as a superior pain killer to paracetamol. Might have something to do with a childhood in Nottingham where it was developed by Boots! Tended to use it for the
I am about 10 weeks post aortic valve replacement. Prior to learning I had aortic valve stenosis earlier this year I always regarded ibuprofen as a superior pain killer to paracetamol. Might have something to do with a childhood in Nottingham where it was developed by Boots! Tended to use it for the
Petitlady
in
British Heart Foundation
8 months ago
Hello
It’s about healing
chronic
pain
but it’s very scientific. They’ve had amazing results. I’m hopeful! Quite frankly, if someone told me that by standing on my head whilst sucking by thumb, would cure me, I’d probably do it! 😆😆😆. X
It’s about healing
chronic
pain
but it’s very scientific. They’ve had amazing results. I’m hopeful! Quite frankly, if someone told me that by standing on my head whilst sucking by thumb, would cure me, I’d probably do it! 😆😆😆. X
Bramble2000
in
PMRGCAuk
10 months ago
I stopped steroids rapidly and all PMR symptoms returned - HELP!
Hi, I have only found this group today so I am really pleased to find ANYONE else who has PMR! I have difficult situation as I was responding really well 25mg of steroids per day, when I developed a CSR in my eye. I have had one before from Stress a couple of years ago and knew this was a risk,
Hi, I have only found this group today so I am really pleased to find ANYONE else who has PMR! I have difficult situation as I was responding really well 25mg of steroids per day, when I developed a CSR in my eye. I have had one before from Stress a couple of years ago and knew this was a risk,
Megasorearms
in
PMRGCAuk
8 months ago
Boron
Hi AllHas anyone heard of taking boron supplements instead of alendronic acid? (I have some osteopenia and am on prednisolone for PMR.) Many thanks
Hi AllHas anyone heard of taking boron supplements instead of alendronic acid? (I have some osteopenia and am on prednisolone for PMR.) Many thanks
CaraDee
in
PMRGCAuk
8 months ago
Osteochondral defect, loose bodies in the knee and Baker's cyst.
Hi everyone,Hope you are all managing. Since the beginning of the year, I have been experiencing tear sensation at the back of my right knee. When I told my mum she said it might be that I have added weight. That it would stop when I reduce some weight. In April, I experiened a locked knee. It was
Hi everyone,Hope you are all managing. Since the beginning of the year, I have been experiencing tear sensation at the back of my right knee. When I told my mum she said it might be that I have added weight. That it would stop when I reduce some weight. In April, I experiened a locked knee. It was
ijeasike
in
LUPUS UK
8 months ago
Pred and painkillers
Hi all Can you tell me what painkillers are safe to take with Pred. Is ibuprofen and aspirin off limits and if so what do you suggest for general aches and pains. Many thanks.
Hi all Can you tell me what painkillers are safe to take with Pred. Is ibuprofen and aspirin off limits and if so what do you suggest for general aches and pains. Many thanks.
Fredddie
in
PMRGCAuk
9 months ago
Chronic pancreatitis sufferer
Most of the
pain
management doctors do not treat
chronic
pancreatitis
pain
with medication now. With the opiate epidemic, a lot of doctors will not prescribe the proper
pain
medicine for
chronic
pancreatitis.
Most of the
pain
management doctors do not treat
chronic
pancreatitis
pain
with medication now. With the opiate epidemic, a lot of doctors will not prescribe the proper
pain
medicine for
chronic
pancreatitis.
Pancreatitis000
in
Chronic Pancreatitis Support
11 months ago
Progress update - Pirtobrutinib triple trial for treatment naive
I finished Cycle 4 of the fixed duration Pirtobrutinib combo trial at M.D. Anderson for Pirtobrutinib, Obinutuzumab, and Venetoclax on June 13, 2023. https://clinicaltrials.gov/study/NCT05536349?tab=table In addition to the usual blood tests - CBC, differential, metabolic, electrolyte, and immunoglobulin
I finished Cycle 4 of the fixed duration Pirtobrutinib combo trial at M.D. Anderson for Pirtobrutinib, Obinutuzumab, and Venetoclax on June 13, 2023. https://clinicaltrials.gov/study/NCT05536349?tab=table In addition to the usual blood tests - CBC, differential, metabolic, electrolyte, and immunoglobulin
SeymourB
in
CLL Support
10 months ago
Increased bleeding after first scan…
hi everyone, this is my first post. First IVF cycle. I have PCOS and my bleeds are [u]extremely[/u] unpredictable. I started my current cycle with very light murky bleeding and because there was nothing else to go on and none of my bleeds are the same, we started the protocol given by our doctor.
hi everyone, this is my first post. First IVF cycle. I have PCOS and my bleeds are [u]extremely[/u] unpredictable. I started my current cycle with very light murky bleeding and because there was nothing else to go on and none of my bleeds are the same, we started the protocol given by our doctor.
IchigoKeikaku
in
Fertility Network UK
9 months ago
Pelvic conjestion syndrome
Hello, for over a year now I've been having
chronic
pelvic
pain
, I went to the GP 4 months ago and got a ultrasound referral. They suspect it could be pelvic conjestion syndrome PCS (basically varicose veins around my ovaries) I'm struggling to find any UK based information on the condition.
Hello, for over a year now I've been having
chronic
pelvic
pain
, I went to the GP 4 months ago and got a ultrasound referral. They suspect it could be pelvic conjestion syndrome PCS (basically varicose veins around my ovaries) I'm struggling to find any UK based information on the condition.
Abarc
in
Pelvic Pain Support Network
9 months ago
chronic fatigue, pain in hips and thighs
I now have same level of
pain
in hips/thighs but main issue is
chronic
fatigue. I am sleeping almost around the clock, fall asleep if I sit down, I’m unable to function normally and at times feel unable to walk across the lounge. My question is, is this normal?
I now have same level of
pain
in hips/thighs but main issue is
chronic
fatigue. I am sleeping almost around the clock, fall asleep if I sit down, I’m unable to function normally and at times feel unable to walk across the lounge. My question is, is this normal?
Scarysit
in
PMRGCAuk
10 months ago
CLL and Hyperthroid
I was treated for CLL in 2018 - chlorambucil and Gazyvaro. No problems at all until last month a random blood test indicated an over active thyroid, for which I am now taking medication. I understand that both conditions relate to the immune system. I will see an endocrinologist in 3 months to check
I was treated for CLL in 2018 - chlorambucil and Gazyvaro. No problems at all until last month a random blood test indicated an over active thyroid, for which I am now taking medication. I understand that both conditions relate to the immune system. I will see an endocrinologist in 3 months to check
Hidden
in
CLL Support
10 months ago
Urgent help needed. Extremely severe RLS, cannot identify cause.
It's so goddamn severe that at this point, I either have the most severe case of RLS in medical history or it's something else. I rate it 9 on the severity scale. Did every possible test related to RLS (iron, vitamin D, etc) except for for transferrin saturation and serum iron because it wasn't available
It's so goddamn severe that at this point, I either have the most severe case of RLS in medical history or it's something else. I rate it 9 on the severity scale. Did every possible test related to RLS (iron, vitamin D, etc) except for for transferrin saturation and serum iron because it wasn't available
RestlessDaily
in
Restless Legs Syndrome
9 months ago
Endo history lesson!!!!
On a bored afternoon today, i thought i'd look up when Endo was first diagnosed. It was about 1860, here in England. I wonder how women coped then???. Was it getting drunk that helped numb the pain, cos there were no painkillers like we have today i think. I have endo at the minute, it feels like
On a bored afternoon today, i thought i'd look up when Endo was first diagnosed. It was about 1860, here in England. I wonder how women coped then???. Was it getting drunk that helped numb the pain, cos there were no painkillers like we have today i think. I have endo at the minute, it feels like
valgal76
in
Endometriosis UK
9 months ago
37 M, Functional Tremor, with hyperreflexia, dysphagia, SBD, and urinary incontinence. All diagnosed.
How can I have so many positive neurological findings and tests and be told that all of the stiffness/rigid feeling that has slowly developed and worsened the past 3 years be entirely FND? I was under the impression that FND, not just functional tremor, required a lack of positive neurogenic findings
How can I have so many positive neurological findings and tests and be told that all of the stiffness/rigid feeling that has slowly developed and worsened the past 3 years be entirely FND? I was under the impression that FND, not just functional tremor, required a lack of positive neurogenic findings
Hidden
in
Functional Neurological Disorder - FND Hope
9 months ago
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