CLL and Hyperthroid

I was treated for CLL in 2018 - chlorambucil and Gazyvaro. No problems at all until last month a random blood test indicated an over active thyroid, for which I am now taking medication. I understand that both conditions relate to the immune system. I will see an endocrinologist in 3 months to check dosage etc. Just wondering if anyone else is in this situation. I’m 76 and orherwise fit and healthy.

[scarletnoir]

I wanted to reply to your post re jogging, but that led to some 'chat' system I'm not familiar with.

I'm slightly younger than yourself (74) and have a bit of extra weight, so I've never been keen - or good at - running any distance. It's hard on the joints, too - IMO.

I have been cycling for 30+ years - less joint strain. Maybe you could consider that instead? If you do, though - wear a helmet; try to keep to flat places especially at the start; avoid busy roads; use a good 'track pump', not a feeble hand-held one - and don't inflate the tyres past the recommended pressure. (The advice is for anyone considering taking u exercise here - it may not suit you, but there may be other takers!)

As for an 'overactive thyroid' - no idea if this is related to the immune system, but my wife had this after the birth of our second child ( apparently not uncommon in women); she was treated with radioactive iodine to more or less kill off the glands, and has been on thyroxin ever since. She lost a lot of weight and her pulse was really fast before the successful treatment - some other stuff was tried for 2-3 years but never really worked.

[Hidden in reply to scarletnoir]

Thanks for your reply. I used to cycle, but the area around here is very hilly, the lanes are narrow with large agricultural traffic, so I haven’t done so for a few years. Maybe I’ll have another go. Good advice on starting.

Interesting to hear about your wife’s condition, but I thought that thyroxin was for an under active rather than over active thyroid. I’ll do a bit more research. My sister and brother have under active thyroids and are on this medication - trust me to be different!

[scarletnoir in reply to Hidden]

Yes - thyroxin is indeed for an underactive thyroid. I thought I'd explained it - the overactive glands were 'killed' by the radioactive iodine, leaving her underactive - hence, thyroxin!

[Hidden in reply to Hidden]

Oh thanks - I was being a bit thick there! Well that’s certainly something I hadn’t thought about - thanks for making me aware of the possibility!

[Bowie1957]

I have been on Imbruvica for the past 3+ years and my thyroid function got impacted. I am now on Levothyroxine and my TSH and T4 are back to normal. The Levothyroxine also impacted my A1C causing a false reading as borderline pre-diabetic, but my sugar level is typically low.

[Hidden in reply to Bowie1957]

thanks - that’s very helpful. I’ll do a bit more research on thisz

[Bowie1957 in reply to Hidden]

good luck 🙂

[lexie]

I had hyperthyroidism which suddenly appeared 30 years ago. I lived 3 miles from a nuclear power plant but the doctor saw no relationship and thought autoimmune origin. I was treated several months with tapazole and became hypothyroid. Tapazole was stopped and thyroid returned to normal but remains closer to hyper on the scale than middle for 30 years with no medication. As women tend to acquire hypothyroidism in later years this has worked out well for me, remaining in the normal range. I often wonder in retrospect if the hyperthyroid was a response to a virus.

I do not connect CLL with my hyperthyroid since they are decades apart. Am W&W.

[Hidden in reply to lexie]

Thanks for this. I have no explanation for why i suddenly developed hyperthyroidism - the blood test in January was normal. No viruses or any changes. I’m hoping it can be sorted quickly like yours. I’m on Carbimazole.